I was diagnosed at age 22. I told my boyfriend right away. We had no clue what the future held. Fortunately we got married and decided not to have kids. I truly know that you did the right thing telling your dates on the first date. Stay active and meet someone naturally. It takes a real man who loves you forever and is committed to you in a Biblical way to get through the late stages of PD. Thank you Jesus for my husband Michael!
Sounds like you have a great man by your side. So happy for you. I agree with the things you said. I’m just gonna let things happen naturally. Have a blessed day!
Thanks! I can't say for certain it's the PD...ya never know....but it's super stressful when I have to tell them. I recently met someone with a lot of potential that doesn't seem to mind...so we'll see how that goes! In the meantime, I'm livin' it up! Just like you! ;-)
I'm 2 years in to my dance with Parkinson's and I devour videos on YT to learn as much as I can. I love what you've shared and thank you for posting your journey. I'm single as well and have had my share of those dark moments, but thank God I have lots of family close by. The one thing I repeat to anyone who will listen is "Keep Moving". Stay active. Parkinson's or not...life is in motion and we all gotta try and keep up. For me, I'm learning how to sail tomorrow morning. Then the next thing on my Bucket List is competitive shooting. I like your style.
Thank you for sharing and the positive feedback. I love your positive outlook. That is awesome you're learning how to sail. As you've probably noticed, I LOVE competitive shooting....you'll have a blast!
Sorry to hear about your diagnosis. I had a roller coaster of ups and downs since my diagnosis, but I have found that staying busy and directing my attention towards things that make me feel happier has helped a lot. I did step away from dating so that I could kind of reset and get myself back on track. I think within the first two dates is an ideal time to bring it up. I also think it's best to present it in a way that it doesn't sound gloom and doom. I think I did that initially....instead of saying it in a more mater of fact kind of way. I try to put a more positive spin on it....like I point out that I exercise often and it's a great way to slow progression. In the end, the right person that has a heart of gold, will accept us as we are. I wish you the best!
Good for you! Just found your channel. Thanks for being so vulnerable. I haven't gotten an official diagnosis yet, but my primary doctor agrees it is likely Parkinson's. I see the neurologist in a few days, so we will see....
@@SDWP I’m just like you Michele. I knew I had PD well before I was officially diagnosed. That was 12 months ago. Done all my own research on line. I’m an extreme skier mountain biker hiker and knew something was wrong with my balance among other things. My tremor has increased a lot recently. I’m also been single many years and now I can’t imagine anyone wanting to take on my condition into a relationship. I have two grown up children who
@@billmoore7452 Sorry to hear your symptoms are interfering with your activities. I totally understand that frustration. That's great you have supportive kids. I'm sure there are people out there that would take us as we are. In the meantime, stay busy/active and focus on things that will make you happy (at least that's what I do). Best wishes!
Thanks for sharing, always good to hear from someone who´s dealing with mutual challenges. I have gained a new perspective to life after being diagnosed and it´s a better one than I had before the diagnose. We are all dealt with different cards in life...some live a long and healthy life, some don´t get a chance to survive the pregnancy and then there´s everything in between..... you are responsible for what you do with the cards you get, nobody will do it for you :)
Good common sense solutions Michele. I think the one that makes the biggest difference is simply getting out the door. A tough ask on a bad hair day for sure. Best of luck and good karma to all of us. PD 12 years, widowed 6 years and 4 dates…
So true....we gotta get out and mingle. Those bad hair days are the worst! ha ha ha! Sorry for your loss.....glad to see you are putting yourself out there. Have fun! Thanks for stopping by.
hey! you mentioned exercise, im trying ! haha but its almost like i have a level like a gas tank in a car.. the more i try or the harder the exercise, the quicker my level depletes. once this happens im done.,i find my ability to walk vanishes.... so i tend to need a schedule where once this happens say 8-9 in the evening i reside myself to the bedroom for the rest of the night. When i started showing symptoms before my diagnosis, my partner at the time would get angry at me for walking difficulties or slow movement.. but i completely agree with you ! as when i got back on the dating scene, i would mention my Parkinsons early, and yes a few ran out the door Haha Im sure you will find someone who will see completely past this condition, someone who will assist you when needed without a second thought., someone whom will wash your hair for you when you have cramped up.. or make you coffee with a straw in it because of the tremors. and they will do all these things for as they will love you unequivocally
Thank you so much for the kind words and well wishes. I'm sorry you've experienced the same thing in the dating world. I love your positive outlook! Convincing myself to workout is sometimes a challenge as well. I tell myself that once I start, I'll feel better and I'll be happy I did it...which is usually the case. There have been times where I'm super fatigued and that's when I decide to listen to my body and rest. I think what really gets me motivated to stick with working out is that it is known to slow down progression and that is something I have to strive for. The goal is to at least do something that elevates your heart rate, strengthens/stretches muscles, and keeps you off the couch. Something is better than nothing. So keep at it! Maybe try yoga/palates or LSVT BIG. They're slower paced, but still beneficial. Thanks for sharing.
You’re a pretty lady, I think you will find someone through work or activities. It’s going to be someone who starts off as a friend and develops naturally. He will be able to accept your PD slowly and after awhile it Will not be an issue.
I posted a response but it seems to have disappeared. I'm sorry you are going through this. It's normal to feel this way with such big news. Try to shift your focus on other things and don't allow yourself to spend too much time in this state. There's so much out there to enjoy....don't let it pass you by. I wish you the best.
BTW, I've stopped dating and have just focused on myself and I've been so much happier and stress free. Just make it a point to get out and do things you enjoy. Try to stay positive and keep negative thoughts at bay. Maybe join a PD support group. Check out PMD alliance...they have support groups. I wish you the best.
@@SDWP Thanks.... It is very difficult, though, as I spent many years as a carer for my mother, and sacrificed my own personal life to look after her. I have no regrets about that, but when she died in 2017 I thought it would give me the opportunity to 'focus on myself' by doing what I had not done for over twenty years; which is to try dating and hopefully meet someone nice... but times had changed and whereas dating in the '80's and '90's was through written adverts; where people form an image in their mind's eye such that if you wrote an appealing profile you could at least get to go on 'blind dates'. Now, it's all about what you look like. Nothing more, nothing less than side-swiping photos.. So, stupid but good-looking men who can barely string a coherent sentence together get inundated with dating opportunities, while witty, articulate but crappy looking guys like me get the brush off. Even from women who say they value a sense of humour, emotional intelligence and decency above all else, but come up with a remarkable array of reasons (excuses) as to why we're not suited, none of which are the truth.... 'Hey, you're a nice guy but you're ugly as sin.... 'I'm picky' translates to 'I can be with a better LOOKING man than you'.... The most insulting part is when they say things like....'you're very funny....I'm sure you'll meet someone very soon.... good luck and goodbye!'. I'm reminded of a Groucho Marx quip, when, supposedly on a date, he said to the lady he was with 'All my life I've been looking for a girl like you (she smiles at the compliment, but he hasn't finished) - ''not you, but a girl LIKE you.” Anyway, I spent three years after my mother died, never getting beyond the 'online' part of online dating. Then the tremors started and the stiffness and fatigue and all the other joys of Parkinson's Disease, which have evolved to make simple tasks difficult. So there is even less reason to spend money on dating sites, as being ugly and having Parkinson's has all the appeal, to a 'picky' lady, of a night out in Siberia with Freddie Kreuger. So, yes, you're right....I need to forget about love and romance and fun and happiness, as I stumble from middle age to old age.... That good stuff is all in the past... what I need to do is spend my time with other Parkinson's addled losers in a 'support group' where we get to shuffle about on sticks, sharing stories of irregular bowel movements, anecdotes about taking an hour to button a shirt, tales of uncontrollable drooling, and the Parkinson's 'mask' which makes you look miserable and unfriendly regardless of how you feel. Alternatively, there is the focussing on me option I'm used to, since Mum died. Just stay home, lock the doors and windows, close the curtains and contemplate the wise teachings of Dr Seuss: “I’m afraid that some times you’ll play lonely games too. Games you can’t win ‘cause you’ll play against you.”
@@yessanknow302 I'm sorry for your loss. I'm just someone trying to get through this disease as well and sharing my experiences. I'm not saying to forget about love and put it in the past. I was just relaying what has worked out for me. I agree that dating is brutal. I hope you are able to find happiness and feel more confident about yourself. As for the support group, it may not be for everyone....you don't know until you try. It seems it's not for you and that's okay. With that said, I think it's unfortunate that you are referring to those that appreciate the group as "losers." I attend support groups from time to time and I don't consider myself or those in the group to be losers. Again, I wish you the best.
I was diagnosed at age 22. I told my boyfriend right away. We had no clue what the future held. Fortunately we got married and decided not to have kids. I truly know that you did the right thing telling your dates on the first date. Stay active and meet someone naturally. It takes a real man who loves you forever and is committed to you in a Biblical way to get through the late stages of PD. Thank you Jesus for my husband Michael!
Sounds like you have a great man by your side. So happy for you. I agree with the things you said. I’m just gonna let things happen naturally. Have a blessed day!
If someone can’t deal with your PD, then they’re not worth your time. Stay strong and be yourself. Thanks for being vulnerable and so honest 😊!
Thanks! I can't say for certain it's the PD...ya never know....but it's super stressful when I have to tell them. I recently met someone with a lot of potential that doesn't seem to mind...so we'll see how that goes! In the meantime, I'm livin' it up! Just like you! ;-)
I'm 2 years in to my dance with Parkinson's and I devour videos on YT to learn as much as I can. I love what you've shared and thank you for posting your journey. I'm single as well and have had my share of those dark moments, but thank God I have lots of family close by. The one thing I repeat to anyone who will listen is "Keep Moving". Stay active. Parkinson's or not...life is in motion and we all gotta try and keep up. For me, I'm learning how to sail tomorrow morning. Then the next thing on my Bucket List is competitive shooting. I like your style.
Thank you for sharing and the positive feedback. I love your positive outlook. That is awesome you're learning how to sail. As you've probably noticed, I LOVE competitive shooting....you'll have a blast!
We learn as we go. We can't please everyone.....you are correct in saying everything is going to be ok !!!
Blessings for you
Thank you! I wish you the same.
More I dive into your stories, more I discover you....and more I see you!!!
Warm hugs from Germany....and stay like this, never change!!!!
Me, Miki...
I was just diagnosed in August of this year, single as well and wondering how I bring up my PD. Just not sure what to expect as well.
Sorry to hear about your diagnosis. I had a roller coaster of ups and downs since my diagnosis, but I have found that staying busy and directing my attention towards things that make me feel happier has helped a lot. I did step away from dating so that I could kind of reset and get myself back on track. I think within the first two dates is an ideal time to bring it up. I also think it's best to present it in a way that it doesn't sound gloom and doom. I think I did that initially....instead of saying it in a more mater of fact kind of way. I try to put a more positive spin on it....like I point out that I exercise often and it's a great way to slow progression. In the end, the right person that has a heart of gold, will accept us as we are. I wish you the best!
Good for you! Just found your channel. Thanks for being so vulnerable. I haven't gotten an official diagnosis yet, but my primary doctor agrees it is likely Parkinson's. I see the neurologist in a few days, so we will see....
You're welcome! Best wishes on finding out what is going on.
Beautiful smart lady - I wish you all the best
Thank you! I wish you the best as well.
God Bless You!! 🙏🙏🙏
Hey Michele. Great honesty, advice, and perspective. This will help lots of people.😀😀
Thanks Dave! 🙂
Luv your positive attitude! Thanks🎉
You're welcome. Thank you!
YOU are the special person........
Hey Michele
Great stuff. Loving your posts.
Thank you! I appreciate the positive feedback.
@@SDWP
I’m just like you Michele. I knew I had PD well before I was officially diagnosed. That was 12 months ago. Done all my own research on line. I’m an extreme skier mountain biker hiker and knew something was wrong with my balance among other things. My tremor has increased a lot recently. I’m also been single many years and now I can’t imagine anyone wanting to take on my condition into a relationship.
I have two grown up children who
Are very supportive
@@billmoore7452 Sorry to hear your symptoms are interfering with your activities. I totally understand that frustration. That's great you have supportive kids. I'm sure there are people out there that would take us as we are. In the meantime, stay busy/active and focus on things that will make you happy (at least that's what I do). Best wishes!
Thanks for sharing, always good to hear from someone who´s dealing with mutual challenges. I have gained a new perspective to life after being diagnosed and it´s a better one than I had before the diagnose. We are all dealt with different cards in life...some live a long and healthy life, some don´t get a chance to survive the pregnancy and then there´s everything in between..... you are responsible for what you do with the cards you get, nobody will do it for you :)
Amen to that! Love it!
Thank you so much for your videos
You’re welcome. Thanks for stopping by.
Good common sense solutions Michele. I think the one that makes the biggest difference is simply getting out the door. A tough ask on a bad hair day for sure. Best of luck and good karma to all of us.
PD 12 years, widowed 6 years and 4 dates…
So true....we gotta get out and mingle. Those bad hair days are the worst! ha ha ha! Sorry for your loss.....glad to see you are putting yourself out there. Have fun! Thanks for stopping by.
My pleasure.
I identify with you totally, I’m finding it tough to find a partner, I’m doing exactly the same things ❤❤
Awesome! Single life can be as fun as you make it!
What!!!? No guys at the shooting range!!?
ha ha ha! Most are taken and maybe I'm a little picky. lol
hey! you mentioned exercise, im trying ! haha but its almost like i have a level like a gas tank in a car.. the more i try or the harder the exercise, the quicker my level depletes. once this happens im done.,i find my ability to walk vanishes.... so i tend to need a schedule where once this happens say 8-9 in the evening i reside myself to the bedroom for the rest of the night.
When i started showing symptoms before my diagnosis, my partner at the time would get angry at me for walking difficulties or slow movement.. but i completely agree with you ! as when i got back on the dating scene, i would mention my Parkinsons early, and yes a few ran out the door Haha
Im sure you will find someone who will see completely past this condition, someone who will assist you when needed without a second thought., someone whom will wash your hair for you when you have cramped up.. or make you coffee with a straw in it because of the tremors. and they will do all these things for as they will love you unequivocally
Thank you so much for the kind words and well wishes. I'm sorry you've experienced the same thing in the dating world. I love your positive outlook!
Convincing myself to workout is sometimes a challenge as well. I tell myself that once I start, I'll feel better and I'll be happy I did it...which is usually the case. There have been times where I'm super fatigued and that's when I decide to listen to my body and rest. I think what really gets me motivated to stick with working out is that it is known to slow down progression and that is something I have to strive for. The goal is to at least do something that elevates your heart rate, strengthens/stretches muscles, and keeps you off the couch. Something is better than nothing. So keep at it! Maybe try yoga/palates or LSVT BIG. They're slower paced, but still beneficial. Thanks for sharing.
You’re a pretty lady, I think you will find someone through work or activities. It’s going to be someone who starts off as a friend and develops naturally. He will be able to accept your PD slowly and after awhile it Will not be an issue.
Thank you! I believe that it will happen that way as well. It's really the best way to start a relationship. Thanks for the positive comment.
Keep the faith honey. God Bless You. PEACE
Thank you! I'm definitely keeping the faith. God Bless you too!
I just been diagnosed in december, I'm sad & can't sleep 😔.
I posted a response but it seems to have disappeared. I'm sorry you are going through this. It's normal to feel this way with such big news. Try to shift your focus on other things and don't allow yourself to spend too much time in this state. There's so much out there to enjoy....don't let it pass you by. I wish you the best.
@@SDWP thank you
As you get used to it the sadness will lift
It helps that you're very pretty... sadly, I tried but couldn't get a date before Parkinson's because I'm ugly. Now I've got no chance.
I’m sorry you feel that way. Don’t lose hope.
BTW, I've stopped dating and have just focused on myself and I've been so much happier and stress free. Just make it a point to get out and do things you enjoy. Try to stay positive and keep negative thoughts at bay. Maybe join a PD support group. Check out PMD alliance...they have support groups. I wish you the best.
@@SDWP Thanks.... It is very difficult, though, as I spent many years as a carer for my mother, and sacrificed my own personal life to look after her. I have no regrets about that, but when she died in 2017 I thought it would give me the opportunity to 'focus on myself' by doing what I had not done for over twenty years; which is to try dating and hopefully meet someone nice... but times had changed and whereas dating in the '80's and '90's was through written adverts; where people form an image in their mind's eye such that if you wrote an appealing profile you could at least get to go on 'blind dates'. Now, it's all about what you look like. Nothing more, nothing less than side-swiping photos.. So, stupid but good-looking men who can barely string a coherent sentence together get inundated with dating opportunities, while witty, articulate but crappy looking guys like me get the brush off. Even from women who say they value a sense of humour, emotional intelligence and decency above all else, but come up with a remarkable array of reasons (excuses) as to why we're not suited, none of which are the truth.... 'Hey, you're a nice guy but you're ugly as sin.... 'I'm picky' translates to 'I can be with a better LOOKING man than you'.... The most insulting part is when they say things like....'you're very funny....I'm sure you'll meet someone very soon.... good luck and goodbye!'. I'm reminded of a Groucho Marx quip, when, supposedly on a date, he said to the lady he was with 'All my life I've been looking for a girl like you (she smiles at the compliment, but he hasn't finished) - ''not you, but a girl LIKE you.”
Anyway, I spent three years after my mother died, never getting beyond the 'online' part of online dating. Then the tremors started and the stiffness and fatigue and all the other joys of Parkinson's Disease, which have evolved to make simple tasks difficult. So there is even less reason to spend money on dating sites, as being ugly and having Parkinson's has all the appeal, to a 'picky' lady, of a night out in Siberia with Freddie Kreuger.
So, yes, you're right....I need to forget about love and romance and fun and happiness, as I stumble from middle age to old age.... That good stuff is all in the past... what I need to do is spend my time with other Parkinson's addled losers in a 'support group' where we get to shuffle about on sticks, sharing stories of irregular bowel movements, anecdotes about taking an hour to button a shirt, tales of uncontrollable drooling, and the Parkinson's 'mask' which makes you look miserable and unfriendly regardless of how you feel.
Alternatively, there is the focussing on me option I'm used to, since Mum died. Just stay home, lock the doors and windows, close the curtains and contemplate the wise teachings of Dr Seuss:
“I’m afraid that some times you’ll play lonely games too. Games you can’t win ‘cause you’ll play against you.”
@@yessanknow302 I'm sorry for your loss. I'm just someone trying to get through this disease as well and sharing my experiences. I'm not saying to forget about love and put it in the past. I was just relaying what has worked out for me. I agree that dating is brutal. I hope you are able to find happiness and feel more confident about yourself. As for the support group, it may not be for everyone....you don't know until you try. It seems it's not for you and that's okay. With that said, I think it's unfortunate that you are referring to those that appreciate the group as "losers." I attend support groups from time to time and I don't consider myself or those in the group to be losers. Again, I wish you the best.