A day on seizure watch - before rescue medicine
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- Опубліковано 19 вер 2024
- Elin had a couple of fairly big seizures in the morning so I decided to be on seizure watch for a while to build up the evidence I need ahead of pushing for a neurological investigation. I caught a few seizures on camera.
As always I am doing multiple things at once, and as you can see, Alice watches her mom and does the same. At least she amuses her sister in the process.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp
As another complex needs epilepsy mum this is useful to see and also to feel less alone xxx
Haven’t seen you for awhile I understand you r very busy. I look for your vlogs every nite You are all so beautiful. Sending hugs to you all. Kaitlyn is such a sweetheart. Always good to see her
Hi tova I hope elin is feeling better ❤❤❤❤❤❤
I love your channel 💕
As another complex needs epilepsy mum this is unsureful to see and also to feel less alone xxx
Love 💕 u guys hope shes alot better now xx
Moro reflex, i still got mine 🤦🏻♀️🤷🏻♀️ i have spastic cp like Elin, in wheelchair , I can talk verbally but some people don’t understand what I say so I use my phone. Yehh them moro reflexes are so annoying lying on my back. My seizures are very unnoticeable, like only my close family knows when I’m into one, although apparently mine aren’t epileptic 🤷🏻♀️🤷🏻♀️🤨🤨 apparently they are cp seizures 🤷🏻♀️🤷🏻♀️
😮😊