Answering YOUR Questions about MS Attacks
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- Опубліковано 29 чер 2024
- In this video, I answer viewer questions about MS attacks, and what we can do to hasten recovery!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
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Rrms u of m hospital 🏥
If possible, please talk about foot drop, thank you!!
Thank you for explaining a pseudo attack. I had a huge one last March during a COVID stent. It got so bad I lost my ability to walk. After 2 weeks in the hospital and 29 days ina rehab home, I'm back to walking
Same with me after COVID in April.
I got covid last summer and of the symptoms was my legs giving out. But it went away with the illness after about 10 days.
I can confirm that numbness is quite serious. My right hand has been completely numb since June and I can't write with it anymore, or really pick up anything because it's impossible to know how firmly I am gripping stuff.
I appreciate you so much with your passion and dedication for MS!!
Hello from Athens ohio! Still waiting on a call ❤ Woke up with second day of neck pain 😫 in the right muscl. Sorry I missed the live!
Yay! Got a call last week from the Boster Center! I will see you in three weeks! I can't wait to meet River and you, of course!
Thanks for answering my question Dr. Boster! Enjoy the channel and your live chats.
Im literally invalid now. I cant walk. I took steroids for 2 weeks and it made my symptoms even worse. It is so frustrating.
From someone who eats too many snacks! Thank you for your Channel.
Nice video. I agree it makes sense to take steroids for sensory relapses if the symptoms are significant. I had a patient who could not work as a supermarket checker for a few months due to sensory loss in the hands. I have seen steroid-induced psychosis multiple times, but it's not common and not necessarily associated with prior psychiatric disease.
Yes indeed and how can we enhance the time of recovery from the bad effects of steroid use?
My case - After about 10/15 yrs after diagnosis, Chances of flares/relapse is very less, but increased chances of Infection, disability progression, Back pain (needing relaxant), Heat sensitivity necessitating Lifestyle changes
In short, My life is positively damaged - Staying out of depression needs a conscious effort 😞
You are not alone Raguraman, sending you a huge hug from the US this am my friend!
Have you been on meds since diagnosis? Which one are you on now?
Thank you Dr. Boster for all your explanations, they are so clear. I'm 31, I've been diagnosed with rrms about a month ago. It all started with an optic neuritis of my left eye for which i was treated with methylprednisolone for 5 days, and fully recovered my vision. I felt extremely tired for about a week after the infusions. I'm starting my treatment with Kesimpta next week. I'm feeling a bit scared from time to time but i've noticed that my neurologist is pretty alligned with the way you treat your patients. Greetings from Buenos Aires, Argentina.
My Type 2 diabetes was caused by prolonged use of oral corticosteroids. Oral steroids also cause extreme mood disorders including psychosis for me. But Solu-medrol (SM) given for five days doesn’t have the same impact. My blood sugar goes very high even with insulin, and each time SM is needed, my glucose becomes more difficult to control and the problems continue longer. When it comes to a choice between, for example, being able to walk or not having to fight my blood sugar, I take walking every time. I recently got an endocrinologist on my medical team. (It only took about 20 years.) Maybe she’ll be able to get it under control more quickly.
I get 1,000 Solumedral every 6 weeks. It help greatly, by week 4 starts wear off. My vision has light blue hue after it. Eye check up yearly cuz of it. Get optimat view. I like Solumedral, can feel the relief after 1hr infusion. Maybe over 2 years getting it now. I really need it, not worrying about long term affects exept eyes.
Greetings from Romania
These are GREAT questions that I’ve heard many ask.
Ty for answering them and educating us.
❤
#StrongerTogether
I’ve been having heat flashes like I’m having a heat stroke or something I’m gonna have to research
Thank you doc!
This is all new to me and have a preliminary diagnosis of symptoms and brain lesions consistent with MS. It's quite a lot of symptoms and damage and several things already ruled out.
I am just getting referred now to a neurologist and I'm more scared of treatments than I am the disease.
I do not find a drug that has a risk of cancer to be enough of a benefit for me to take but concerned that my future neurologist (whomever that may be) will insist on something that has an increased risk of it. And if I refuse it that I will be "fired" and possibly blacklisted.
Are their treatments available that are prescribed that do not carry the risk of cancer?
There are doctors that only prescribe conservative treatment, with little to no risk.
I don't know of cancer being a big risk. Some of the highly effective treatments have a pml risk.
Hello from London UK 🇬🇧
Xxx
Thank you for sharing.
Thanks for all explaining Dr. 😊
Happy Monday Doc!💗☀️ Have a nice day!
Thank you very informative.
I just finished 5 days of 1 gram of steroids yesterday. A lesion got bigger but not necessarily active inflammation.
I feel much better, could walk better. A bit irritated 😡
Dang you are gifted in helping to explain this overwhelming MS & Treatments! How much does River Weight?
Thank you Dr Boster, awesome informative video! So much appreciated 🔥🔥💖🔥🔥
Glad it was helpful!
Thank you
Thank you for another great informational video!☺
Thank you so much 💫
You are so welcome
I am currently being worked up for steroid induced Cushing Syndrome. Not only do I have steroids with Ms but had 3 preterm births 1st one was only 24 hours 2nd
I was bed ridden and on steroids for 5/6 months. 3rd One I had fetal bladder tap so had from week 20-30 had steroids weekly before the procedure in case I went into labor. But also have had injections for back etc and have asthma and other sinus and history of lung issues that steroids were given.
When I have steroids now my bones hurt extremely bad, when I have injections in my back it sends me into a relapse and even when they injected my foot I had a terrible reaction like burn and lost my skin that took months to heal.
Basically only have a few years over the last 33 (that's how old my oldest is) that I haven't had some sort of steroids.
My MS doctor says that even if I have Cushings that it really doesn't change what we have to do, so I find i sit in a relapse longer because I'm afraid of the side effects.
I know you get lots of questions but just like my MS DX took a decade because my other health issues couldn't be ruled out as the cause of symptoms. I don't know what to do when one of my specialists is saying I should never have steroids again and one that says that it's really the only thing we can do.
I also would like to add I gain weight with every steroid and it never comes off.
Awesome video. Thanks, Dr. Boster! 👍👏
Glad it was helpful!
That looks like Time Machine in the background.😂
Hi Doc all of your videos are very informative and also interesting I was searching answers for many of my questions I found you just two days before I feel like I've got a good companion finger crossed 🤞
Insightful and a balanced explanation of most important steps in curing and helping MS patients.
Thank you Doc
Be 🙏well
This is so helpful thank you
You're so welcome!
A urinalysis explains an attack versus pseudo? How? Why? Link to another video explaining?
Because if you have any type of infection, our MS symptoms can become more noticeable or worsen not due to MS but due to our body being in a weaker state.
Our symptoms are triggered by our body being attacked by bacteria/ viruses.
Hidden UTI’s
( sub acute/ not that bad) are a frequent source of these pseudo exacerbations.
❤
I keep having lesions on my spine. How does it affects me. Sometimes I feel like my ribs are crushing me. I dont feel comfortable sitting or lying down.
Thanks ❤❤❤😮😮😮😮
You're welcome!
I just finished a 5 day course of solumedrol. I was exhausted the whole time and still have no feeling in my arm and hand. Three weeks out, I am thinking this is permanent. The steroids seem useless.😢
I took it for 2 weeks-cant walk. It was also useless for me.
3 weeks is a short time I noticed an improvement about 3-6 months later. Hope you do too.
@@lemonpeelangelfishcorrect✅
It takes many months for it give any kind of relief. Be 🙏 well
After a lifetime of steroids for asthma, at 68 I've gone serious bone density loss. Have not had steroids for MS, don't recall ever having a clear cut exacerbation, but have had steroid shots for bone on bone osteoarthritis. I'm afraid to get any more shots, more of my bones will disintegrate.
Steroids give me a raging headache. And my teeth became terrible after taking steroids and then 3 years of Ocrevus. I've just spent every other week since May at the dentist office getting the damage fixed. MS is a messy beast.
Thanks Dr B from England! Love your videos, have been very helpful 😊
For someone very newly diagnosed, how do you tell the difference between whether what you’re experiencing is just your new ‘normal’ or actually a relapse/attack? (An example is very weak legs and needing canes/crutches - would that go away if it was a relapse or is it just the way it is now)
Answers welcome from anyone 😊
Doc, I forced myself to look up information on nerve endings and realized I don't have → Carpal or Tunnel Syndrome. I just have "Dorsal Palpebral Nerve" and that's why I have problems with my middle finger (basically the whole hand). So I'm glad I don't have any of these syndromes.)
My first time getting steroid treatment was last year! It was okay on the first IV and next 2 IV my veins kept blowing and never received any more of it.
@AaronBosterMD can you please address medical ptsd please?
I had an attack that required 3 rounds of solumedrol 😢 I just recently had ocrevus
I happen to have a sensory attack now afecting my hands and fingers. Terrible to type or just use a pen. I asked my neurologist for iv steroids because I want this gone a.s.a.p.
All my MS symptoms were much worse in the days after my 2nd half dose of Ocrevus. Should I expect this every time I get Ocrevus? It's very difficult to deal with.
There is something fishy going on with the with the Neurologisst in my area. They are booked for six months. Can't get my doctor's office on the phone for 2 years. I took my first Mavenclad 20 months ago. The Mavenclad company has called the doctor for months with no result. My Gp says there is another doctor in another city by me but he has a six month wait for new patients.
Finally been diagnosed with MS and I’m scared, 2 weeks ago i woke up not being able to get up and walk and I’m still struggling to get even get up.I don’t know which steroid to go for 😭
Thank you for all your wonderful information. I have a question! Is there any evidence that DMT like 'Tecfidera' increases a person's cancer risk?
Can you please speak on Copaxone (or the generic forms) and why it is not a threat for PML, or is it? Thanks!
Thank you so very much for answering my question! How do I tell that to my neurologist? I have no contraindications to steroids. My doctor wants me to do MRI first, that takes 2 wks or more to get appointment + up to 3 work days to get the results. By that time I'm almost a month with active attack that may b starting to subside some times.Also, all my motor attacks started as sensory & every time I have no idea how bad the attack will b.
I saw on a prior video that you shared with someone that if they had had a herniated disc you would recommend they had that fixed prior to treatment. I have 2 herniated disc in my lumbar. Would those have to be fixed prior to medication? If I can get into your clinic and I actually have MS?
I have yet to be dxed and have a appt to see a neurologist an a few weeks. Since I have severe RA and had a MRSA infection in my past I'm I going to be limited to not be given steroids to treat flares like I am with treating flares with my painful fibromyalgia flares??
I have bad flareups. Doctor gives me steroids sets up an MRI three weeks later to four weeks later I have the MRI. And nothing shows up. I’m talking wheelchair. and horrible spasms. My neurologist tells me MS does not hurt. I am so frustrated.
What is the cd4 cd8 ratio that appears on some blood tests? What does it mean and is it meant to be low or high following treatment?
Thank you 😊
Do lesions of the spinal cord ever cause tingling of the face? or is it always from the spot of the lesion downward?
I've recently had a clear brain MRI but considering a spine MRI too
Thanks!
Should I report double vision in the left eye
Wondering why solumedrol is administered as standard protocol prior to biannual Ocrevus infusion. If PPMS symptoms are stable (no symptom deterioration per EDSS scale, and no lesion enhancement on MRIs), are the steroids even necessary? 8:56
Steroids are given with Ocrevus infusion to reduce the infusion reaction not to treat MS flares.
Question : can people with hydrocephalus have a higher chance of getting MS ?
Do you consider steroids beneficial at preventing long term disability and damage?
Because I've heard people say it has no long term benefits.
Hello ,I have a question how does caffein affect ms ?
When ive talked about pseudo bouts with my GP he didn't know what it was. I always have a bout after an infection or fever
When ever the GP puts me on predisolone i cant sleep and put on weight. I dislike this
I know that this question doesn't belong in this thread, but u didn't know where else to ask. Ummm, well, our immune system decides to attack our system because it doesn't recognize it, right? Well, many people have organ transplants. Don't they take some sort of medication that makes their body accept the new organ? Has anyone ever tried to use those medications? Also, what if..... mmmm, is it possible to alter biomarkers of Mono that are different enough from our system that we could change the future for others in an inoculation? I'm not sure if I explained that sufficiently.
I am hitting with osteoporosis, and the steroids are the most probable reason.
I just went through one of the worst experiences of my life with methylprednisolone infusions. I have been stable ever since I was diagnosed in 2011 and what lead me to the neurologist was sudden bilateral nystagmus.
Anyway, last month I woke up with sharp pain and blurred vision in my right eye. It was pretty severe but I waited a day to see if it would go away and it didn't. So, I called my neurologist and was started on steroids on a Thursday. My eye was swollen shut at this point. The next day my eye felt a lot better but living in a small town the decision was made to skip the weekend.
I know this is really long already so the tldr is the steroids weakened my cornea, the AC dried my eye as I slept and my eyelid tore a star shaped outline right over my pupil. But first, after my neurologist didn't even acknowledge that I couldn't open my eye after the steroids, my GP treated me for pink eye with the standard treatment which is, you got it steroids. I also started ocrevus in the middle of this, so more steroids.
Please use artificial tears if your eyes are dry. This was miserable. I may never do steroids again because of it.
Hello. I am concerned about steroids because now I am on severe osteoporosis. I am in my 40s and using ocrevus, is there any option to not use steroids in my ocrevus sessions.
Steroids lower the chance of nasty side effects with Ocrevous.
Preventive medicine with steroids this is smart doc! Steroids help my flares.