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My Autonomic Dysfunction/POTS story
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- Опубліковано 25 вер 2018
- First video in what I hope to be a series of videos of coping with being diagnosed with Autonomic Dysfunction/POTS. This first video covers my story of how it all started and how I plan to treat it.
How positive you remain is incredible
I'm a guy and I was recently diagnosed with POTS also
I was just diagnosed with POTS post covid. Thank you for this video. It was so helpful!
I have to say that this was one of the most informative videos I’ve seen of POTS. When people ask me what symptoms I have a exclude anxiety, because peoples first thought is you must have anxiety or depression. But that’s not the case the autonomic dysfunction is causing me anxiety. I feel like I can share your video to explain to others what it is that I feel. Continue making these videos, they truly are very helpful
Thank you!! I made a few other videos under this account
I've had the pots curse for 20 years. Been to Mayo, Vanderbilt, Cleveland clinic and dozens of cardiologists and neurologists. Had every drug and test known to man. Been bedridden for the last 10 years. I recently figured out on my own that it was caused by small fiber neuropathy.
Get tested for it. You're still young, there is still hope. I'm 70 and screwed. Don't give up.
Thank you for sharing . It is so frustrating when you keep getting normal test and everyone looks at you like it is in your head and you know something is not right. I am on the journey through this too and it is nice to hear others stories .
I thought I am going crazy too. But now that the doctors are seeing my symptoms they're realizing they are wrong. You really have to fight for yourself.
Stay strong brother it gets better with time. BTW research mast call Activation Syndrome it's a secondary syndrome associated with pots.
Im a guy, Iv got pots. Keep going with the uploads man. Not going to lie, it sucks having pots.
One day your living a normal life then its hard to stand up. It does get easier with time. You basically have to learn how to relive your life, understand you have new limitations etc.
Working outs also hard man, id suggest swimming as its not to hard on the body. If your going the wieghts route then it depends on what you can do. I do a 5x5 workout which is simple enough, or try 5/3/1 Its so much less than i used to do but its something.
Should join the Reddit community brother, its good. r/pots. Best of luck.
Thank you for this... :(
I’ve been worried that I’m going through this as well
Hopefully the Cleveland Clinic helped you. Hope you've been able to kick the tobacco chew addiction as well..
I'm here for you. How are you now?
Good luck bub! Hope you can find some help up there!
I don't have POTS but I do have a autonomic dysfuction. I unknowingly had mono for a year and then got sibo for a year after that from a weakend immune system. I got rid of the sibo that took 10 fukin months for the egghead doctors to dignose. And finally I see a autonomic doctor in a week. Lucky the doctor is one of the best in the country and wrote "thee book" on autonomic dysfunction.. they use it to teach in colleges. 2 fukin years of hell, put my whole life plans, education, work, relationships, everything you name it on hold. I've been to all the doctors.. I've been to a lightworker who I meet with every 1 to 2 months. I should make a video when its over, but God I don't want to waste one more second talking about the dumb shit that took 2 years from me. I will make a video tho because people don't know what this is.. many.. almost all doctors don't either.. and alot of people have it and suffer for a long ass time.
How you doing?
Look into vitamin b1 deficiency also focus on electrolytes potassium,magnesium,vitamins D3,sodium good sodium not table and processed food type of sodium
I just got told a week ago that my my autonomic system malfunctions and that’s why I passed out. Along with all the other symptoms. Is pots the same thing??
So confused! Iv suffered from migraines. Low blood pressures 80/40, nerve damage, bladder problems, high heart rate 118 to low rate. Face rifles or burns or
On and on. Used to walk 2 miles a day and unload pallets at work. To exsuasted!
Sounds like possibly syncope? Which is the most common type of autonomic dysfunction!
Sounds like Lyme Disease
Updated video under this account..... check it