opening up about what's been going on & our baby
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- Опубліковано 4 жов 2024
- While we have been going back and forth regarding whether or not to make this video and how in-depth to go. At this time, this is what Kurt and I believe is best for our family and mental health.
This has been a rollercoaster experience with ups and downs and we ask that you be kind, compassionate and respectful.
Thank you to everyone who reached out to me when I disclosed I was going through some personal issues. Your love, encouragement and support really got me through some really dark moments. I will forever be grateful for you.
As a person with a severe rare genetic disorder: Yes, there are times when my disease is horrible and has made my life miserable. And any chronically ill or disabled person who doesn't acknowledge that life can be hard sometimes is in denial. HOWEVER, you will very rarely meet a disabled person who wishes they had never been born in the first place. We are *just* people. You're son will have good periods and bad periods, that's part of being alive for everyone. As for not wanting to use him to become a spokesperson, I get you. And that is totally the right decision. My daughter inherited my disease and I know people would eat up content about her more so than about me, but she is a child. Her privacy comes first.
@jen'sLife this was beautiful! It's so true though. Even if their son has a rare disease and will have a hard life, he'll be surrounded by loving parents and an amazingggg family.
to me, people who show vulnerability are people i’m so admirable of, because of their bravery and how strong and resilient they are. i can’t commend u enough for sharing your vulnerability - not that u had to because it’s ur “baggage” and ur life, but this took strength and it’s something u should be incredibly proud of.
We’ve lost nine babies and cannot have children at all now. It’s hard coming out and telling people. People don’t know your life and struggles and you have to do what is right for you and baby. I’ve been in the situation of being judged but no one saw the choices I had to choose from. Respect to you both. Praying for you.
Different perspective; I am autistic. It does define me. I am disabled, not because there is something wrong with me, but because the world isn’t set up for me. My parents tried to pretend I wasn’t autistic and it caused me severe trauma.
Please try to reach out to adults who have the same condition as your child to help guide you advocating for him. A lot of parents fall into this ableist trap of “not letting it define their kids” to the point they ignore very real needs. I can tell your heart is in the right place, but some of these the “positive” things said can be really toxic.
Disabled isn’t a bad word. People need to stop pretending like it is.
I understand where you are coming from but in the video she clearly says she reached out to parents whose child have the condition. She also clearly says in the video that she is reaching out to people who have the ability to help her son when the time comes. She also never said disabled was a bad word and obviously wants whatever is best for her child. I usually never comment on videos but I think this comment is just bringing negativity to the video.
I'm sending all the love to you Sarah and think it was really brave of you and Kurt to share your experience. I have loved watching you individually for years and am so excited to see your family grow!!
Absolutely!
@@emmasummerhill7161 It's not you know.
@AFL Rookie It is what it is. They were being TOTALLY positive. You are the one not understanding.
@AFL Rookie The comment wasn’t unkind they were just giving an honest perspective on what their life has been like based on how their parents raised them. And from what Sarah said it sounded like the doctor wasn’t very tactile with their choice of words but not unkind just giving a realistic opinion from their professional point of view. I think it’s important to not sugar coat this as they have no way of knowing what end of the spectrum their child will be on. That’s why these tests are carried out early so the option is available.
When my mum was pregnant the doctors told her that there was a 70% chance I would be born with a genetic disorder. She was really young, and they suggested she terminate the pregnancy, she believed that I would be okay, and decided to have me anyway. I was born a perfectly healthy baby, with no disorders.
Regardless of they’re possible condition, you are such a beautiful loving human, your baby will be blessed in life because of the people that around them with love.
As an adult with a genetic condition, there is good and wonder in everything. Yes I live my life a little differently but you learn to appreciate the small things and celebrate the little wins. I love life. I love being given the chance to prove people wrong. It drives me and fuels my ambition. Disability can be a beautiful thing. It’s often misconstrued as frightening or negative. It’s completely the opposite. There’s beauty to be found in everything and your little boy will thrive and flourish with your outlook and support. He’s exceptionally lucky to have parents who want to educate themselves on every aspect. Being his advocate is the best thing you can do for him. Fight his corner and get ready for him to consistently amaze you.
Beautifully written. 🥰 thank you!
Yes, beautifully written!!
A baby boy!!!! 😍
Go Tilse Fam❣❣❣❣❣
So beautiful.
you made my cry. so touching and honest.
this comment made me very happy. bless you
This boy, regardless of whatever health condition he has, without a doubt has the best parents fit to love and care for him. God has truly prepared your heart and soul to love and protect your son. You are so loved and beautiful for sharing your story and your son is going to look back on this video years from now and see how incredibly loved and honored he was before he was even born. You have truly opened my eyes and heart by being so vulnerable and sharing your testimony with your son. So much love for you Sarah. I can’t wait to meet this little world changer. ♥️♥️♥️
💯
this is a very sweet message!!! so beautiful and so true!
I once heard a couple speaking on their baby’s health conditions and they said, “instead of questioning ‘why us?’ We question ourselves, ‘why not us?’” If you have the means, the love, the hope, the will, the fight, to get the privilege to take care and raise a little one with these circumstances, why not? You will love and cherish every moment, every step of the way! I said a prayer for your baby boy and for you both, as well as your families 💙💙 cheers to an amazing future!!
ThT is beautiful! They are meant for this baby boy!
Beautifully put ❤️❤️
Okay this is amazing. So beautifully put. I will keep this in my heart.
Acacia Brinley said that about her baby Rosie! ❤️
Would you be willing to do an update on him? He looks like he’s doing amazing and I’d love to know if that’s true ❤ glad he’s doing okay if he is! It’s such An amazing thing that you trusted your gut and didn’t listen to the doctors. He’s such a handsome happy boy! Disorder or not! ❤
I was wondering the exact same thing. I was wondering if they would ever want to do any updates.
As a trainee doctor, I just want to apologise for the way that doctor spoke to you. There is no reason why he should have pushed his views on to you, and the fact that he made you feel pressured to feel one way or another is unacceptable. I come across doctors like this every so often and it’s so sad to me that they think that they are behaving in an acceptable way. In no circumstance should you be pressured into anything (a doctor should NEVER phrase his opinion as a medical fact) unless your life is in danger, and I am so sorry that this happened to you. I wish you happiness in whatever you decide.
I can already see Fox being so kind and a protector of his little bro.
so i def missed when the announced it was a boy. where did they reveal that?
@@jacysleyster8242 4:06 mark she says “his condition”. 💙😊
I missed the announcement
@@jacysleyster8242 She didn't do a full gender reveal this time because with the other stress going on and the bad lockdown in her area she felt is was unnecessary so she just told everyone on instagram.
My mother was told that I would be disabled and that she should teinate me, I was born with no health conditions at all. I am thankful to my mother for bringing me into this world. This baby is a gift from God for you to take care of and you will be amazing at it. Lots of love xx
Same, my parents were told something was wrong with my spine, that my brain wouldn't fully develop, and I would never walk, the doctor told them to terminate as well. They were scared but trusted God and kept me. Other than being socially awkward 😅 I came out totally fine. I walk, dance, run, and live a completely normal life. So thankful they didn't terminate🥰
Totally get wanting to keep his condition private but I think you have a powerful opportunity here to share his journey and build awareness in society ! Talking about it helps break the stigma and can help others feel less alone ❤️ but of course it’s a very personal thing for each family
The Lord doesn’t make mistakes. We have a son with Down syndrome (surprise diagnosis at birth)- and though we have many challenges, he is an amazing blessing. Praying for you and your sweet baby boy.
Amen to that @Emily S. My daughter Abigayle was born with Down Syndrome as well, and we also didn't find out until she was born. It wouldn't have made a difference knowing a head of time, and I wouldn't have her any other way. She is a blessing to our family and anyone that she comes in contact with. You're right, the Lord doesn't make mistakes, and it's an honor that He chose us to be her parents. And that's true for you and your family and Kurt and Sarah.
Amen 🙏
exactly what happened to me! 🤍 they are so so special!
Amen!!!
This is such a amazing thing to share praise god for you and your son you are a strong women ♥️
UA-cam needs more people that open up on raw subjects. You guys are not alone in this situation. Sending Prayers for your family! God is so good and has a plan for each of us.
As someone with a debilitating birth defect, that’s endured 17 operations and months in hospitals, being the the talking point of lectures, poked and prodded like an object at times, I love my life and wouldn’t change ANY part of me. I wouldn’t become ‘normal’. I would lose so much of myself. Please don’t mistake that there have not been times I have cried and hurt because I hated the way i looked, hated the operations, hated having people look after me - but this is ME.
You are inspiring, thank you for sharing your light
THIS
God bless your beautiful soul!! 🙏🏻
As someone with a disability myself ( cerebral palsy) I’m going to be honest: it can be hard at times. The world will have its assumptions of what they think your condition is and put you in a box. I’ve had some pretty rough days when I’ve wished my CP away, but they’re few and far between.
That being said the one thing I illiterate to people when they ask how they can help with my disability is ‘ Let me tell you what I need , if I can. ‘
That’s the one take away I’d leave you both with... don’t hide the condition from your child if they’re aware they are different, but if they are able to make choices for themselves and express what they need then let them lead the way
( much easier when they’re older).
One thing you crave as a person with a disability is independence and autonomy over ones own body, rather than ‘being normal’ or ‘being like everyone else.’
When you said “he is designed for us” I got goosebumps all over my body. You guys are a beautiful family and he is going to be a beautiful addition ❤️
I was born with a massive list of health conditions & my parents nearly lost me as a baby. I'm here now and I am so glad that I am. Yes, life has had extra challenges with my chronic health conditions & disability, but I feel so fortunate that I am here. I grew up with loving parents & now have an amazing partner, am in the degree of my dreams & have so much life ahead of me, even if it's different to others. Sending you strength and love. You will be wonderful parents for this baby boy 🤍
God did not give you this baby by accident, He makes no mistakes. You were specially chosen for him. Absolutely loving your testimony and presence on UA-cam x
Amen!!!
Soo true...❤
Naomi - you said it perfectly. Amen to that.
Amen Naomi ❤️
Oh my goodness this made me cryy!!!
I have a baby with Down syndrome and she’s the best thing that happened to me. Being her mum means more to me. More love, more strength, more clarity.
Your family will benefit from so much. Sending you my love
Me too! My son is 19 months and has Down Syndrome and ahhh I just can’t imagine that people think he is less worthy of life than another. 🥺 He is the best thing that has ever happened to me.
I think whether you're a mum or not, we can all understand that you deserve to put yourself first in every situation of your life. You have given us YEARS of your time, energy and valued information Sarah, and we can't thank you enough for that. I think I can speak for a lot of us when I say that you've helped us grow in more ways than you know, and I hope you understand you have a whole community of empowered women on your side, praying for you, Kurt and your baby's happiness ❤
exactly!!
I believe that the baby's soul picks their parents, and this little boy picked the right parents, because he knows that you will love and support him no matter what. I am praying for you that he will be the healthiest way possible and life is going to be easy and as normal as possible. ❤️
I agree with this so much
Yes!! We all pick our parents :)
I couldn’t agree more. He’s so happy he chose you 3 because he knows you’ll take the best care of him
So what you are saying is, that kids growing up in terrible environments, with abuse etc have chosen their parents? Biggest bullshit i have heard in a long time....
@Chuan Cresi🌹 üü
My favorite part was Kurt saying “sorry”. As a UA-camr I can’t imagine the pressure that you feel from us to let us in such a private part of your family. I hope the people who pass judgment understand the position you are in. I pray for healing for your family and understanding from baby fox💞
Yep. You don't owe any of us anything. You have a right to set whatever boundaries you want and need to set for yourself and your family.
As an older sister to my brother who has a neurological condition called Genesis of the missing corpus callosum. My brother has not let his condition define him. My mum was told at 6 months to terminate the pregnancy because the ‘baby’ would not be able to walk, talk, eat, or even function a day to day life routine. But 19 years later and my brother has graduated high school, studying tafe and opening his own dog therapy business. He loves sports and loves just being a young adult. No matter what these health professionals tell you when it comes to just terminating a pregnancy, it’s your choice and you will be wonderful parents to this beautiful new born. Don’t let anyone or anything determine your decision, you’ll be amazing.
If you need to talk to anyone about what you’re going through and need another point of view of this situation my mum would be super happy to talk to you.
Hi Chloe! Is there any way I could connect you or your mom to my sister? She has a beautiful one year old little girl with the same condition and I think she might like hearing more about her experience!
My husband and I went through this in March! One thing that really helped me was something my mom told me. "God has not only chosen this baby for you, but chosen you as their parents. So he will prepare you for whatever your life is going to look like ♡
My husband has cerebral palsy. He was born at 28 weeks (this was back in the 80’s, so he really is a miracle). We have been married 8years, have two beautiful children, he loves the Lord with all his heart, excels at his career & has more joy than almost anyone you could meet. He would tell you that ‘disability’ does not define you, it doesn’t tell you want you can & can’t do( you just might do it differently), it doesn’t determine how happy your life will be & it certainly doesn’t determine your value. Sure, there were challenges, life threatening & frustrating ones. He didn’t walk until he was 4 but he learned to talk at 6 months. His parents wouldn’t change him for the world.
As someone with a hugely life-impacting health condition, I am super glad that I am alive and there is so much beauty in having a condition. It gives you and the people around you an outlook on life that shows how amazing it is to love and live, and facing adversity in challenges makes general life challenges seem like a breeze so it's all in perspective! You are definitely making the right decision for you and little bubs. He is already so loved by you both he is going to be a lucky dude!!
This child is extremely lucky to have such wonderful parents!
Can we all just acknowledge Abby here supporting her family! What a gift she is! 😍 Sarah, sending you supporting vibes!
I'm a mum and a paediatric nurse.
You have to be a very special, strong person to have the perspective that you guys have ❤️
As a mother to two children with different health related conditions, I totally get it. It’s your right as parent to disclose as much info as you feel necessary. I know this baby will come into this world happy and loved, that’s what’s important. ♥️♥️
I am a child of chronic illness. Im in a wheelchair, my condition can never be better but can only be worse, cause of this I do struggle with my mental health from time to time. But to think that my parents would have terminated me breaks me. I am still thankful for my life and I love it, even if its different.
You two are the perfect parents for a child with a disability. You are, and have a support system - others wouldnt be able to do this as good as your family will, thank you for sharing. ♥ Love x
I didn’t find out that I had a health condition that I’ve had since I was born until I was 14, and honestly if I had known about it earlier it would of defined me. I am grateful that I only just found out about it recently so that I could enjoy childhood and be ‘normal’. Not disclosing your sons health condition to the world will benefit him and I 100% agree with your thoughts! You’re doing the right thing!!!
havent watched the video yet and Im just about to, but i just wanna let you know Sezzy that you do not need to feel the "need" to share any of your personal problems with us :) because it could be triggering for you or uncomfortable to talk about. We love you and support you and you deserve personal privacy and we'll always respect that
Oh Sara & Kurt! My sister in law went through a similar thing: Drs discovered a huge health concern during her pregnancy, asking whether she wants to terminate etc. I remember her coming over after that appointment, crying about how she's going to tell her husband and what to do... Well, the baby was born PERFECT! He's over a year now, not a thing wrong with him!
You both are very strong!
For those who don't know: NIPT searches trisomy 21,18,13,22 (non vital), and X, Y related disorders. All these are very serious conditions where the person will be affected in a big way. It will require lifelong treatments and care. It's expensive and extenhuating. In most cases the family life revolves around the disability. It means not only physical malformations, sterility of the child, dependance on meds, but also cognitive impairment. So there is absolutely no shame at all in wanting to terminate in these cases. I just wanted this to be clear in case someone watching the video felt shame in not wanting that future.
as a nurse ive noticed that for myself and other healthcare professionals we can come across as a bit cold and withdrawn but to be honest for alot of us its a way to keep our own mental health in tact. Its never a personal thing, as a doctor who has to deliver that type of news on a weekly/daily basis, he may have to remain a bit withdrawn from the emotions of the situation in order to keep his mental health in order. But in saying that, some doctors just dont have great people skills unfortunately and im so sorry he wasnt more sensitive with you
makes total sense. And probably makes it easier to control emotions so you're not crying with people!
This little boy has lucked out with some absolutely incredible parents. Sending love and support your way always!
A family friend of ours is special needs. They said he wouldn’t live past 5… he’s in his 60s and got a drivers license at normal age. You can tell he’s special needs just by talking to him but he’s highly HIGHLY functioning. He outlived his parents and is on his own for the first time as of earlier this year. They also suggested his parents terminate the baby 60 years ago. And look what became of him. 🥰🤗
My beautiful Emma, she was Born with a health condition, I was there when she took her first breath and there when she took her last and went back to the Lord. she was 23 years young and the love of my life.. My life was richer happier and fuller because of her.💙🙏
My first son was born with an extremely rare genetic condition that we didn’t find out about until after he was born (he’s just turned 13) we didn’t have access to the speciality testing back then and you know what I’m glad! He was meant to be here and do all the amazing things he has done and be the incredible kid that he is! I too was given the worst possible scenarios and expectations for him and he has surpassed them all every step of the way! He is doing amazingly well and has changed the course of so many lives just by being in ours. I am incredibly blessed and so grateful to be his mumma and while I truly wish I could make life easier for him, he is happy and resilient and amazing and I wouldn’t change anything about him… he’s perfect 😍 I have also gone on to have two more beautiful sons and they are the light of my life and my reason for living ♥️♥️♥️
Sarah and Kurt, you have got this! I know your wondering how you’ll manage but not only will you but you’ll thrive and be more grateful and happy and In love than you’ve ever been! Celebrate every step of the way because even when it’s scary there is so much beauty in it ♥️♥️♥️ sending you guys so much love xxx
When my mom was pregnant with me, doctors said after genetic testing that I was gonna have Down-syndrome. She was also advised to terminate the pregnancy.
My mom refused to do that, went home and cried out to the Lord and prayed with my dad that I'd be healthy.
I was born with no health issues and I give glory to God for it every day.
Life is precious, no matter what.
I wish you strenght and bravery to these times.
Same thing happened with my little sister
Same thing happened to my parents with me
the Lord has His hand over you and that precious baby! God has a beautiful plan, even when it doesn't make sense and it's hard. rest in that! you two are so loved. lifting your family up in prayers right now!
AMEN AMEN AMEN…🙏🏻🙏🏻
Amen!! And he gives his special babies to special parents who can look after his precious babies 🥰🙏
Amen! It's so encouraging to see how much you are leaning into God and trusting him during this time. 🙏 Praying for your family and this wonderful baby that God has given you.
True story, my brother had a down syndrome baby and it was the biggest blessing of their life. They had multiple health practitioners advise abortion after the tests revealed the 'condition' of their baby. They already had 3 healthy children b4 this child. They couldn't terminate and had their precious child. This baby has been the most amazing gift from God. They say this child, Isabella is secretly their favorite child and brings so much to the family, she has taught the whole family so much about LOVE.
My brother has autism and my mum had to go through this whole process when he was diagnosed. She said she had to go through a bit of grieving process to let go of this whole idea of what she thought his life was going to look like. She would always say to me, 'it's not a worse life, it's just a different life.' He's the greatest addition to our family and we couldn't imagine life without him. He's the happiest person I know!
I'm really glad you decided to choose your child's safety and well-being over sharing every detail with your audience. Your son will be so grateful one day, and I think you have made all the right decisions (not that it would matter if I disagreed). God bless you and your family and I will be praying for health and strength for both you and your beautiful son.
I’m so sorry the doctor was insensitive, some doctors are wrong, they told my mom that my brother (has autism) wouldn’t be able to walk, talk or eat. That he would need a feeding tube and today at 27 he runs, has conversations, eats a bunch of different foods,worked with supervision, he’s so smart. Praying for you mama 💛
As a believer in Christ and a pediatric occupational therapist, my heart feels for your journey. Thank you for sharing your experience, for protecting your son, and for believing God makes beauty in all forms and fashions. I’ll be praying for your family ❤️ I can’t wait to see all the things he will do and meet his personality!
Yes.. love this
I have grown up with a physical disability, my parents were told that they should terminate also, and that if I survived birth I wouldn't survive. Here I am 35 years later because of God's blessing and God's grace. He is with you. He is gracious. He is sovereign and he is almighty. I am standing with you in prayer over this precious blessing from God. He has this little one in his hands.
I grew up with a sister with a disability and it has honestly shaped the person I am today! It makes me constantly reflect how lucky I am in life and the bond between myself and my sister is very very special, fox will love his brother so much. My parents never let it define our family and gave us all the best life they could possible ❤️ they use to always tell me that god only gives the ones who need a bit more looking after to the families that could handle it and I use to feel comfort in that 😊 sending so much love from a sibling point of view ❤️
Aww I love this so much🤍🤍🤍
@@SarahsDay big big hugs! ❤️
I love to hear this. I also have a brother with a genetic disorder, the fragile X syndrome, and it absolutely shaped me. I get a lot out of the little things in life and also reflec much more on how good we actually have it. ❤️
@@TheAnnefleur1 100% ❤️
I completely second this!! my sister has down syndrome and it’s been nothing but a blessing. she’s shaped me to be the person today and i’m forever grateful for god blessing us with her xx
This baby is so lucky to have you two as parents. Whatever happens, all of you are so lucky to have each other and will learn from each other. sending love 🤍
This little one has a family preparing to love and support him in all the ways he needs, what a lucky little lad. Prayers for your family. ❤️❤️❤️
When you started talking about finding verses for termination & only found the beautiful words from God “I knew you in the womb” I started to get emotional in the best way 💕 I pray that your baby boy has a healthy pregnancy and birth, that he grows up to be strong & courageous in life. & I know that yours & Kurts & Fox’s love will be so abundant 💕 your baby boy is truly blessed that God chose you as his family 🥰
Wasn't it Powerful! God is Good.
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So beautiful!!! Gods got this. There are no accidents. 💞🙏💞
Same here. I started crying because He is so good. He already loves this boy so much and i think that heaven i celebrating that their son gets to live his life
Amen! I fully agree with this!! I love how turning to God's Word brings life into every situation 💓
I feel like no matter how mild or severe, Fox is going to be the best big brother to him. And you two will be the best possible support network. Thanks for being so open, I love your little fam. 🥺💕
I am disabled, and I’ve worked in it. People with difficulties are just extra special. They don’t know anything different, they’re happy being who they are. And they’re loved by everyone around them💕💕
I have a condition called cystic fibrosis, i think you guys are amazing. My mum and dad didn’t know i had cf until i was born. They where told i wouldn’t live past 18, i am now 27, married to my child hood sweetheart and a mum of the most beautiful little one year old. Now on life saving treatment. I was brought up in a positive household, laughter was the best medicine. We never felt sorry for our self as a family. Yes we have had tough times, but we had eachother. Youv got this guys! He will be the most beautiful amazing soul the world will ever meet.
A mother’s intuition is never wrong. Well done for listening to your inner voice and advocating for you and your son. I’m already cheering him on xx
You and Kurt are going to be the most incredible parents, this little bubba is so lucky to be born into a world with you two and little Foxxy by his side ❤️
This baby is so lucky to be being born to such caring parents. Excited to meet your little boy!
Will you be open to giving us an update? I think seeing Malakai and his growth can be inspiring to others?
I lost my son three months ago due to a birthing complication, and although I can’t relate to what you guys are going through with this circumstance, I think you guys made the right choice. He is still your son. He will still be loved. And he deserves all of the chances in the world to be able to say how he gets to live his own life. I would do anything to have my son in my arms again so watching you guys accept this so graciously is huge.
I am so sorry to hear that. I wish you all the best and hope you are well. Sending you much strength
My brother was born with a disability and parents had no idea until they had him. Honestly would not be who I am today without him! Completely changed the course of our family life but he brings so much happiness to our world and I actually can’t put into words how much love everyone has for him ❤️ of course there’s ups and downs and it can be frustrating but I wouldn’t change a thing and neither would my parents, he is the light of our life. Your a strong woman and this baby boy will be so blessed to be surrounded by such supportive people ☀️
Y’all are such amazing parents. That sweet baby is already being taken care of. God definitely created him specifically for you two and He will be with y’all in the valleys & on the mountain tops. In the darkness & in the light. Don’t you forget that sister.
I can confidently say, you are made for this. You are so brave, Sarah. God has a plan. A plan that is far greater than one you could imagine for yourself. Keeping your family in my thoughts in prayers. We love you and support you!
Perfectly "normal" genetic presenting babies can still grow to have genetic abnormalities as they grow and change. Strength to you both in navigating this new period of life.
Yes & vice versa!
when i went to the doctor and found out i lost my son, my doctor sat there and cried for me/with me. and it’s common to lose babies, so for your doctor to sit there and tell you retry? no matter if you retried or not, no one else can be the son you have now. it’s not that simple. you have so many people who support you no matter what you do, but i’m so happy to hear you and kurt are going to raise this sweet baby boy. y’all are amazing parents!
P
I respect your decision so much! My cousin and her husband were told that their son would not live past birth if they chose to go forth with their pregnancy. Be was born premature at about half way through her pregnancy. Now he’s a senior in high school, a killer in Cross country, and a perfectly smart/healthy boy. You can never be sure. But I’m so appreciative of your message. No one should judge anyone else’s decision. It’s hard, but in the world we live in today, all you can do is live, love, and let it be.
This health condition doesn’t confine him and it does not change the fact that he is going to be so loved regardless and he is meant to be here earth side. 💞 congratulations on your second son! 😌
As a mama of a child with additional needs and health issues, thank you for your vulnerability and honesty. There’s so much internal processing with things like this that most people don’t realise. Wishing you a beautiful pregnancy with your perfect son who’s created in Gods image x x
It is so wonderful to hear Kurt’s support in this situation. Having gone through something similar, words cannot express the emotional impact it has on the mother who hears this news. As a self titled researcher, I had thought the worst would occur in my own situation. It is the way you both raise him and instill those values in your sons that will determine his acceptance and self love. I’m also a special education teacher and advocacy is key! Wishing you find peace, continued optimism, and much love and support.
Gods is with you and your special little boy, he’s going to have a happy and healthy life being so loved by his amazing parents and big brother. We all love and support you Sarah and can’t wait to see your family go from 3 to 4 and how beautiful it’s going to be. Can’t wait till bubba is here🤍 may God continue to protect and bless you💕
My 19 year old son has Autism and though it was hard to find out when he was 2 years, our son is the biggest blessing of our lives. He is in college right now;) . I can't even imagine him being different. This video made my heart smile, as you will absolutely love this baby! May God bless your lives! Will pray for you all as well as your support friend and family group.
My 19 year old son is exactly the same, they are such a blessing and I wouldn’t change him for the world x
Miracles happen everyday, just remember that. I’m sorry you’re dealing with such heavy stuff right now, lots of worry around it and big decisions. Prayers for you guys, God has your back Sezzy
Yes they do. My 2nd child who is now 21 is a miracle. They thought she had cystic fibrosis, she had echogenic bowel in my ultrasound. We all prayed for her healing. My husband and I had to have gene tests and the dr wanted me to have an amniocentesis, I refused as it could have caused miscarriage. The next scan the echogenic bowel was gone!!! I was very ill my whole pregnancy and she had breathing issues for the first year but she is a healthy girl. She had small airways disease and got pneumonia a few times in childhood but that is as bad as anything got. I thank God everyday for my blessing. I trust God. I am praying for you Sarah.
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@@shaybatty3785 that’s amazing, so glad she turned out way healthier than they thought. God is good
I just wanna add to my first comment, sezz don’t cry, this is not your fault, you can do everything right and things can still go wrong, ill keep praying for you, you are a fantastic mother, watching be a mum to fox has made me excited to become one once i find my own Kurt haha xxx
Sending love and prayers to your beautiful family! I’m shocked the doctor was so insensitive. You are amazing parents to Fox and will be amazing parents to your new little man as well! May God bless him!
I don't think the doctor was insensitive. It's correct to offer termination in this case and, if asked for personal and professional advice, give it. There is no nice way to give this kind of news to parents but its good to offer a solution if wanted.
@@noraMD there’s always a cold way and a compassionate way. I understand they have to relay information, but there are better and worse ways to do that. Based on the way Sarah described her experience, the doctor could have been more sensitive in the way he delivered her options.
@@SheEquipsHerself of course, but imagine how hard is to deliver that Information. Its very hard to deliver the correct information professionally while remaining sensitive but not invading the patient space. And sharing the possibility of termination can seems like a “mean” thing to some, and a lifeboat to others. You never know which kind of patient you have in front. Add the fact that clinics now book patients for 20minutes… all becomes impossible. But that is on the administration, which are normally not doctors
Can we just take a moment to appreciate how amazing Kurt is, standing behind Sarah 100% on the issue with termination. I think for a father it's easier to go down the logical path (i.e. doctor's recommendation) since he doesn't have that womb connection with baby a mother does. I think it's so beautiful Kurt fully trusted Sarah to feel what's best for that baby and their family. I find him so humble and graceful. Blessings on your path,beautiful family! 💗🙏🏻💗
Termination aka abortion is pure murder. How could a true mother especially Christian kill her child?
@@JJJakubiec I’m not talking about sarah’s case but for some babies they would only live in pain and only for a couple of hours and in some cases it’s cruel not to.
I love how supportive Kurt is!!
@@JJJakubiec Everyone has their own opinions on the matter. I wouldn’t judge a women for doing what she feels is right for her situation or her family.
I’m glad you allowed us to be apart of this. We will all celebrate every milestone together and he’s already so so so loved by us 🥰 so excited to meet him and to understand him more.❤️ he’s going to be such a blessing to this world 🥰
Constantly amazed at the strength of Sarah and the way Kurt supports her. Literal couple goals! Will be praying for you guys and your baby boy❤
Praying for you guys.
This beautiful soul couldnt have picked a better family. He is and will always be SO LOVED ❤️
We got told at our 20 week scan that our son had bilateral talipes (feet are twisted) which could be linked to various syndromes. I was offered extra tests to see if he had these syndromes, I turned them down and decided to go on with the pregnancy. He was born in March and was the perfect little bundle, nothing wrong apart from his feet. He started treatment on his feet at 7days old and now at 7 months his feet are perfectly positioned. The NHS have been fantastic throughout the pandemic. I also attended every scan on my own so I sympathise how scary that is in the pandemic. For health conditions to be found in pregnancy gives them a head start with the correct health professionals being in place when he’s born. We were having meetings with orthopaedic surgeons when he was still tucked up warm inside my tummy!! Good luck for the rest of your pregnancy and beyond, sending you both lots of love. ❤️💙 Xxx
Guys, this little boy is already so loved by all of us here. We cannot wait to welcome him and see him grow!! Just know we are here to support you, Kurt and Foxy!!
Bedside manner is really nonexistent these days. We were thrown around from specialist to specialist, ultrasound to ultrasound, blamed for not taking the genetic testing, used to practicing 3D heart ultrasounds, and talked down to about the basics of what veins are by the same people who couldn't figure out if our baby would have a genetic condition, a heart condition, an undeveloped brain, or be completely fine. We are so fortunate to have been able to find a professional who WAS compassionate, caring, and provided answers in a sensitive manner. Our girl had nothing more than a murmur, and all the back and forth would've been avoided if our original doctor knew more about updated guidelines for detecting Down's or the uniqueness of ultrasounds in Asian (or mixed) babies.
But something her cardiologist said really resonated with me as I listened to your story. He said to never tell others (non medical people) about her heart. Her murmur is one that has zero affect on her life, but, he said the way people treat her would change IMMEDIATELY. They'd think she's weaker, not as capable..etc. Your choice resonates with me-don't let any condition define your son. If and when you need the support of that niche community, you may share. But you're also giving him a chance to define who he is regardless of the condition.
Strength and love to you both ❤
My daughter is 12 her name is Sarah. She has a rare genetic disorder along with alot of health issues and developmental delays. I didn’t know anything about this before she was born. She was meant to be with me and I was meant to be her momma. The lord is sending you this sweet boy for a reason. As u said he was designed for you and Kirt. I love u guys and will include u in my prayers
I get that doctors need to be straightforward but it doesn’t excuse having no bedside manner and sensitivity. You’re growing that life inside of you and to be put in the position where you guys have to consider termination is excruciatingly hard. If there’s one thing we know from watching your vlogs it is how much you both will invest into this child (as you do with Fox) and you will give him the best life possible. He’s picked an amazing family and will have so much support no matter what.
Girl you have no idea how doctors make my life so difficult when they are cold like this. I’m a nurse and to often I have to go in after a doctor with no beside manner and no compassion to pick up the pieces. I usually have to console a person or family after getting horrible news and HORRIBLE advice from a doctor. I also have gone head to head with doctors that have TRIED (I say tried because I don’t play that mess) to tell me not to give family false hope, or not to get to emotionally involved or not to do what we nurses are trained to do which be empathetic. Just simply be HUMAN. Uuuuuggghhhh!!!!
@@xiomaratravelingnurse6514 every patient would be lucky to get a nurse like you. Thank you!
Sarah , as a medical student myself , we are TAUGHT to deal with patients with empathy and understanding. It varies doctor to doctor but in general it is adviced to us to NOT give our suggestions but rather explain the situation fully , no sugarcoating , give them as much medical information as we can ,educate them about their options ,make them feel that they are understood and not judged for their choices. We are not adviced to give our opinion. The doctor should not have adviced you to terminate or not ,it's not his call . Sending lots of love your way.
I work with kids with disability and I love this, everyday I see the struggles and the amazing this the kids do. I also see what the parents go through there are definitely people to help and you guys are a very special type of person x
My nephew has severe learning issues. He’s basically considered IHC with this really rare epilepsy. But honestly he is the cleverest little guy I’ve ever met. He may not be “book smart” but my god he is so emotionally intelligent and he has such an amazing memory. And he is full with so much love. You will be fine! When your little man arrives you will never be able to imagine a world without him in it. 🤍🤍🤍
The fact that you had to do everything alone without kurt is so heartbreaking. Even though your baby has a condition, doesnt mean its not going to be another amazing addition to your life. This is such hard news to hear, but you can do it. Keep strong Sezzy
God makes no mistake, you guys are a strong family unit and this is happening for a reason. Wishing you all the best always 💕
I hope you know that even if your son has difficulties, he has such a wonderful support system behind him. We can already tell how loved he's going to be
What does he have?
Sarah and Kurt. Everyone walks different paths. We are all on this earth ‘riding different waves’. 🌊 And this baby could not have come to a more beautiful loving home. Best of luck. Sending you strength guys!
I was diagnosed with a pretty serious health condition at 15 and can say that it doesn’t change the value in who I am and how I go through life at all. Just like you said, God knit us all in the womb and has extraordinary plans for us. Im praying for your little one and you all, and just know that God sees you and holds you in the palm of his hands💜
This was so beautifully said, Sarah. You are so incredible, open minded, and kind. You literally were born to be a momma- you’ve worked SO hard to get here and I am confident that you’re going to continue being the best mum for your new baby boy.
Thank you for being you. I have PCOS and your journey gives me so much hope for my future. Sending love and light to you and your sweet family.
This video is basically verbatim of what i experienced at a 22 weeks doctors appointment. I felt just as lost as you Sarah and have gotten so much closer to God as a result. I sat in the hospital room receiving news of a possible genetic disorder based on scan abnormalities (the nipt came back low risk but they still pressed it cluld be somethingsl else). I saw signs he would be perfectly healthy and to trust my intuition. Im now 27 weeks and still get anxious but feel at peace overall. Im so grateful for you both sharing. I wanted to crawl in a hole and hide when i heard the news. Im in a place of peaceful surrender now. So happy to see your beautiful baby running around your videos now ❤
"When you pass through the waters I will be with you; and through the rivers, they shall not overwhelm you; when you walk through fire you shall not be burned, and the flame shall not consume you. For I am the Lord your God, the Holy One of Israel, your Savior..."-Isaiah 43:2-3 this verse came to mind as you talked. Praying for you guys!
I have this verse tattooed on my arm. It has so much meaning to my brother & I, he read it to me while I was going through a rough place. Thank you for reminding me, it gave me goose bumps 🤍
If any couple can get through anything as parents it's you guys. He's yours for a reason, and it's your decision what you do and no one else's. I look forward to you sharing this journey with us.
I'm SO encouraged to hear how much you've been looking to and clinging to the Lord through all of this. Thank you for sharing that part of this situation with the world. God will continue to strengthen you and strengthen your family's faith in His goodness. He is faithful!! I'm praying for all four of you.
Sending all the love and strength fam!! You got this! I know you are both just going to absolutely love him to pieces and provide him with all the care he needs. He’s a lucky boy to have such an amazing, loving family to join. 💓
Doctors have to be so matter of fact. It’s part of the job. However, your family is YOUR family. A health professional can give you standard of care, not give falsehoods. I’m so happy you have such a strong support system and ultimately, you know what’s best for you. You know what works for you and your family. A doctor sees multiple cases a day and can’t extend the compassion that most patients need. I hate that such a blatant statement was said to you and the affect that it had. Bedside manner is foreign to so many providers. But I’m glad you have answers and can make an informed decision. I wish you the healthiest pregnancy moving forward. 🥰🥰