All About MSA-C

MSA-C or Cerebellar type Multiple System Atrophy is a rare neuromuscular disease. The National Ataxia Foundation is proud to host this webinar presented by Dr. Elizabeth Coon on October 6th, 2023. In "All About MSA-C", she gave an overview of the causes and symptoms of the disease, the typical diagnostic journey for those affected, and what to expect for clinical care.
For more information on Ataxia, please visit our website: www.ataxia.org
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About the Speaker:
Elizabeth A. Coon, M.D., is an adult neurologist, with specialty interest in autonomic disorders and movement disorders. Her clinical focus includes: Autonomic disorders such as orthostatic hypotension, movement disorders such as Parkinson's disease, neurodegenerative disorders such as multiple system atrophy, treatment of autonomic symptoms in complex neurologic syndromes, working with local care providers to optimize quality of life in patients with neurologic disease, and testing of the autonomic nervous system. In addition to her clinical activities, Dr. Coon is active in research and education. Her research centers on both autonomic and movement disorders as well as the history of neurology.
About the Series:
NAF is producing a series of monthly educational webinars that focus on one type of Ataxia at a time. Each month we will feature a different type. Clinical experts will join us to take a look at the causes and symptoms of the disease, the typical diagnostic journey for those affected, and what to expect for clinical care. Research experts will teach us how the disease is studied and give an overview of the current state of research and drug development.

[@Speetzer]

Thank you very much really helpful video. After my sister diagnosed with MSA-C 6 months ago. She was proposed some physiotherapy which she completed.
Now no more advise for anything, no more medication or support.
We are a surviving mode alone.
She was a secretary in a car body paint shop. And I am suspecting that might be the trigger for her case.
We wish a cure is found as soon as possible, seeing her everywhere day less capable to hold on life is devastating.
I wish everyone passing this the bests and hold tight

[@jenchristianrn1]

Thank you so much. Appreciate all the information. 💕

[@Kim-bx1nz]

Man i wish she lived closer. I have A LL of
That

[@user-sx2we1xe5q]

I guess I get that, but I'm in China. I have been suffered from severe insomnia and progressing diplopia for 3 years and recently notice some ataxia issues, cognitive declines along with urinal retention, hypotension when standing up to pee... I am only 30 yr yet get caught in a neurodegenerative condition like this. I don't know how to react to this, a disease people even have no idea of complete pathological path, not to mention a cure. 7-8 yrs from here what shall I become and face...

[@marywarner5967]

My husband died from M S A A cruel desise I hope one day they find a cure ❤

[@RobdeKlerk-qg6lc]

My Condolences...can it cause muscle waste in hands ?

[@mairanicolaudealmeida2503]

ataxia in my family causes vision and hearing loss

[@jeannugent4077]

All this talk about this and that, NOT ONE WORD ABOUT DIET!!!