I am lucky. I was diagnosed with GBM in November 2011. Standard treatment, regular MRI’s and I am nearing my 13 year of survival. Treated by Dr. Masciopinto in Madison. Lots of prayers.
@@curse9771 Hello. I have not modified my diet throughout this except to lose weight by counting calories . My MGMT levels are “Through the roof” according to the doctor making the temozolomide more effective. I read a study years ago where a group of juveniles were to imagine and visualize an imaginary knife and stab at their disease. I thought it couldn’t hurt so every night I imagined a baton twirling rapidly in the tumor sight beating the tumor to a pulp. And, one day very early on I met a guy in a parking lot who was interested in items was selling. He asked if I would pray with him right there. A stranger wanting to pray with me. It felt powerful. I did not change my diet to avoid sugar like some people are advocating. The liver in your body convert fat to sugar so it can be used by the cell. All of your cells can only burn sugar. Bottom line is I don’t know why I am still alive today and neither do the doctors. I thank god every day that I wake up. I hope your situation follows mine. My motto is “I have hope in the here and now, and something more than hope in the hereafter.”
I’m not sure which is more frustrating to me…. The fact that out of 36 (+/-) blood related relatives, there are over 30 various diagnoses of diseases and disorders of the brain. None of which have even been truly cured. Hell I’d be happy with partially treated-controlled. That didn’t happen either. I’ve had relatives go through trial treatment of electroshock therapy after Alzheimer’s triggered a severe depression that did not respond to any medication. I had an uncle with a ‘benign meningioma’ go through trials using the gamma knife and the medication known then as RU486. Neither of those worked. Then there was the oral medication some considered chemo therapy in the form of temodar. That was just a nightmare. But I think out of everything the experience I had personally with severe depression and suicidal ideations and attempts really opened my eyes to how little is known/understood about the brain. Then my mom received a dual pathology diagnosis of brain cancer. Oligodendroglioma and Glioblastoma Multiforme. She already had a handful of health issues. One of which was involving DVTs. So she had two incidents that led to the diagnosis. Between the two moments, I don’t think together they totaled 60 seconds. But she’d go very quiet, the color drained from her face to the point she looked gray. She then said she felt the strangest and most powerful urge to laugh in a truly maniacal manner. That petrified me. It took me 30+ years to get my southern-bell of a mom to tell someone to kiss her ass if they were being a jerk. What she explained/described was well out of anything ‘normal’ for her!! My dad and I finally bullied her into going to the ER. She fought us the entire time and finally agreed just so we would shut up! They checked the filter that had already been surgically placed in her legs. That was fine. Then they did a CT of her head. That’s where “fine” stopped. There were several “lesions”. But that hospital didn’t have the ability to truly diagnose her. She was transferred and within a week we got that dual diagnosis. It’s weird that with so many relatives with some type of brain disease/disorder, no one has ever been told “this “x” is why this happened”. Never. Not once. Worst of all we’re the people who were deemed experts at hospitals that are the top in this country who could not look my mom or dad in the face and give them an honest response in what they should expect. I understand not wanting to rob people of hope. But that crosses a line to almost become criminal when you give false hope that you know isn’t true! It caused so many issues with getting my mom proper in home care and truly caused issues when starting hospice care. My parents heard so much of the false hope, that they put off completing living wills, power of attorneys, etc. ! The doctors were well aware. They would be honest with me once my parents left the room. But they would not be as honest with them in the room. To the point I ended up recording a conversation of the doctor being “honest” with me. No family member should have to go to that level to get the truth. I’m all for nurturing hope while preparing for the worst. Especially as her primary care provider.
Sounds promising, but best case scenario a cure/highly successful treatment is still several years away. These tests take a long time, often years just to collect a data set. I hope this isn’t a dead end and that it soon at least gives people with glioblastomas a fighting chance
Please look into Metabolic treatment of glioblastoma. Lot's of people are able to reverse a stage 4 prognosis with this. Here's a primar - ua-cam.com/video/Yyt3Do4w7fs/v-deo.html Watch this one as well and check out Dr Bergs materials on fasting, keto and how it decimates cancer cells. ua-cam.com/video/hSFuxFyiHF0/v-deo.html Good luck!!!
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my Glioblastoma with his herbs med and I can tell how great my health has turned out so far. Thank you 🙏 ❤️🫣
@@aaravsingh4507 it is Alive without xeimio therapy only we make in jun 30 radio we make yesterday x-ray nothink but is big story how is alive they make problem the radio and is at the bed he can walk
Any clinical trials in Mexico? My brother had an MRI and showed a malignant tumor but has not got the biopsy because the system in Mexico takes forever. Please advise
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my Glioblastoma with his herbs med and I can tell how great my health has turned out so far. Thank you 🙏 ❤️🫣
Dr Ogoh on UA-cam thought me that is all about patients and the right person, May God continue to bless You sir for the permanent cure I received for my illness 💛
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my Glioblastoma with his herbs med and I can tell how great my health has turned out so far. Thank you 🙏 ❤️🫣
My father age is 71...he has also gbm..4th grade...nd negative tumer...he operated in April 22...after 6 month his health is stable...now .plz I want to contact to u n get this medicine. ..how can it possible...plz give yr advise immediately
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my Glioblastoma with his herbs med and I can tell how great my health has turned out so far. Thank you 🙏 ❤️🫣
@@nailashah8910It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my Glioblastoma with his herbs med and I can tell how great my health has turned out so far. Thank you 🙏 ❤️🫣💕
@Aarav Singh he is going thru more therapy and he is not very talkative and don't want to walk much. He looks rough but still alive almost 2yrs later when he was given 3 months.
My sister has glioblastoma in Cleveland. She used the optune which has helped. She is at 15 months with clear scans thank gd. How can we find out if she can use this new drug??? Please let us know.
@@jaihind6305 so very sorry. My sister hated it. It was so annoying and bothersome. Some people can wear it for longer than 6 months. She just couldn't.
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my Glioblastoma with his herbs med and I can tell how great my health has turned out so far. Thank you 🙏 ❤️🫣
My 32 year old brother passed away last 4 months due to this life threatening High Great Glioblastma disease😭😭
I am lucky. I was diagnosed with GBM in November 2011. Standard treatment, regular MRI’s and I am nearing my 13 year of survival. Treated by Dr. Masciopinto in Madison. Lots of prayers.
Your diet please
Sir please share your diet,your treatment procedure and also some key/important points for Glioblastoma patients like me🙏
@@curse9771 Hello. I have not modified my diet throughout this except to lose weight by counting calories . My MGMT levels are “Through the roof” according to the doctor making the temozolomide more effective. I read a study years ago where a group of juveniles were to imagine and visualize an imaginary knife and stab at their disease. I thought it couldn’t hurt so every night I imagined a baton twirling rapidly in the tumor sight beating the tumor to a pulp. And, one day very early on I met a guy in a parking lot who was interested in items was selling. He asked if I would pray with him right there. A stranger wanting to pray with me. It felt powerful. I did not change my diet to avoid sugar like some people are advocating. The liver in your body convert fat to sugar so it can be used by the cell. All of your cells can only burn sugar. Bottom line is I don’t know why I am still alive today and neither do the doctors. I thank god every day that I wake up. I hope your situation follows mine. My motto is “I have hope in the here and now, and something more than hope in the hereafter.”
Can u please share ur treatment 🙏
Pls tell diet and treatment
I’m not sure which is more frustrating to me…. The fact that out of 36 (+/-) blood related relatives, there are over 30 various diagnoses of diseases and disorders of the brain. None of which have even been truly cured. Hell I’d be happy with partially treated-controlled. That didn’t happen either.
I’ve had relatives go through trial treatment of electroshock therapy after Alzheimer’s triggered a severe depression that did not respond to any medication. I had an uncle with a ‘benign meningioma’ go through trials using the gamma knife and the medication known then as RU486. Neither of those worked. Then there was the oral medication some considered chemo therapy in the form of temodar. That was just a nightmare.
But I think out of everything the experience I had personally with severe depression and suicidal ideations and attempts really opened my eyes to how little is known/understood about the brain. Then my mom received a dual pathology diagnosis of brain cancer. Oligodendroglioma and Glioblastoma Multiforme.
She already had a handful of health issues. One of which was involving DVTs. So she had two incidents that led to the diagnosis. Between the two moments, I don’t think together they totaled 60 seconds. But she’d go very quiet, the color drained from her face to the point she looked gray. She then said she felt the strangest and most powerful urge to laugh in a truly maniacal manner. That petrified me. It took me 30+ years to get my southern-bell of a mom to tell someone to kiss her ass if they were being a jerk. What she explained/described was well out of anything ‘normal’ for her!!
My dad and I finally bullied her into going to the ER. She fought us the entire time and finally agreed just so we would shut up!
They checked the filter that had already been surgically placed in her legs. That was fine. Then they did a CT of her head. That’s where “fine” stopped. There were several “lesions”. But that hospital didn’t have the ability to truly diagnose her. She was transferred and within a week we got that dual diagnosis.
It’s weird that with so many relatives with some type of brain disease/disorder, no one has ever been told “this “x” is why this happened”. Never. Not once.
Worst of all we’re the people who were deemed experts at hospitals that are the top in this country who could not look my mom or dad in the face and give them an honest response in what they should expect. I understand not wanting to rob people of hope. But that crosses a line to almost become criminal when you give false hope that you know isn’t true! It caused so many issues with getting my mom proper in home care and truly caused issues when starting hospice care. My parents heard so much of the false hope, that they put off completing living wills, power of attorneys, etc. ! The doctors were well aware. They would be honest with me once my parents left the room. But they would not be as honest with them in the room. To the point I ended up recording a conversation of the doctor being “honest” with me. No family member should have to go to that level to get the truth.
I’m all for nurturing hope while preparing for the worst. Especially as her primary care provider.
Roswell Park Cancer Center in Buffalo, NY is currently administering a vaccine they invented for Glioblastoma.
Sounds promising, but best case scenario a cure/highly successful treatment is still several years away. These tests take a long time, often years just to collect a data set. I hope this isn’t a dead end and that it soon at least gives people with glioblastomas a fighting chance
What if we can make it several months away? Medical innovations makes cure/highly successful treatment even better than ever before.
I have GBM hoping for the best
My mother is a glioblastoma grade 4 patient.Can you give this drug for her 🙏. We two daughters still searching for a drug for her
Same here
Please look into Metabolic treatment of glioblastoma. Lot's of people are able to reverse a stage 4 prognosis with this. Here's a primar - ua-cam.com/video/Yyt3Do4w7fs/v-deo.html
Watch this one as well and check out Dr Bergs materials on fasting, keto and how it decimates cancer cells. ua-cam.com/video/hSFuxFyiHF0/v-deo.html
Good luck!!!
Same here
How is your mother now ? Pls reply
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my
Glioblastoma with his herbs med and I can tell how great my health has turned out so far.
Thank you 🙏 ❤️🫣
My father have glioblastoma who Grade iv can you help me dwktors to try the drugs,
How is your father now
@@aaravsingh4507 it is Alive without xeimio therapy only we make in jun 30 radio we make yesterday x-ray nothink but is big story how is alive they make problem the radio and is at the bed he can walk
@@gioetajas1263 How is your father now, God willing, he is fine
Any clinical trials in Mexico? My brother had an MRI and showed a malignant tumor but has not got the biopsy because the system in Mexico takes forever. Please advise
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my
Glioblastoma with his herbs med and I can tell how great my health has turned out so far.
Thank you 🙏 ❤️🫣
Dr Ogoh on UA-cam thought me that is all about patients and the right person, May God continue to bless You sir for the permanent cure I received for my illness 💛
Can you use your drugs on my father for research..Am Kenyan and my Dad is diagnosed with glioblastoma ...we will be glad.
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my
Glioblastoma with his herbs med and I can tell how great my health has turned out so far.
Thank you 🙏 ❤️🫣
My father age is 71...he has also gbm..4th grade...nd negative tumer...he operated in April 22...after 6 month his health is stable...now .plz I want to contact to u n get this medicine. ..how can it possible...plz give yr advise immediately
Hi there please I need advice ASAP my husband had this tumor which is very aggressive hrs getting worse day by day...
Hi mam how is father doing now
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my
Glioblastoma with his herbs med and I can tell how great my health has turned out so far.
Thank you 🙏 ❤️🫣
@@nailashah8910It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my
Glioblastoma with his herbs med and I can tell how great my health has turned out so far.
Thank you 🙏 ❤️🫣💕
my youngest sister was told she has this 3 weeks ago
Whars tge symptoms
Yes plaz I want to contact with you
My brother just found out 1.5yrs after surgery that today its on the otherside of brain:-( waiting for surgery
Always know that there’s a man who also survived this scenario. Love ya man and praying for you, your family, and especially your brother❤️
How is your brother now ? Pls reply
@Aarav Singh he is going thru more therapy and he is not very talkative and don't want to walk much. He looks rough but still alive almost 2yrs later when he was given 3 months.
@@anthonyp291 ur brother age
@@aaravsingh4507 33yrs old
My sister has glioblastoma in Cleveland. She used the optune which has helped. She is at 15 months with clear scans thank gd. How can we find out if she can use this new drug??? Please let us know.
In my country optune is not available.
What to do now?
@@jaihind6305 so very sorry. My sister hated it. It was so annoying and bothersome. Some people can wear it for longer than 6 months. She just couldn't.
If after 15 months clear scans why you want to use trial???????
Because it can come back@@shna2018
My mother have GBM grade4 who can be get this medicine.
Where you get operated mam
How is your mother now pls mam reply
😭😭😭
Sir pls give me this medicine my father suffering from glablastoma 4 grade sir pls help me
Same here
I know how difficult it to find treatment in India.
🥺
How is your father now please reply 😞
It a very beautiful thing to see myself healthy again after using remedy from Dr Ake on UA-cam, I finally got cured of my
Glioblastoma with his herbs med and I can tell how great my health has turned out so far.
Thank you 🙏 ❤️🫣
Sir iam from Kashmir...
My sister have low grade gloma..
Pls suggest
Ho baya metti chu pofturis baeyis🥺
I love him more than my own brother😭
Please help me sir..iam 38 years old and diagnosed with glioblastamo multiform..iam from hyderabad
Hello bro my mother also diagnoses with gbm where u will diagnosed in Hyderabad. At which hospital
@@-Nithyanand bro where you get operated ?
Not yet operated trying to take care Banjara
Ok bro
@@-Nithyanand any surgery ?
is it my fault to born in india?
Hlep me glioblastoma grade 4th. age 35 .Can you give this drug for me.plz give me drug🙏🏻🙏🏻🙏🏻🙏🏻😭😭😭brain cancer
Sir where you get operated
@@chandanakbk2563 Dinanath Mangeshkar Hospital pune,
Now how is your health sir
@@chandanakbk2563payachi v hatachi takt sampt aahe , ujava hat (Right hand)kam kart nahi,chalt nahit, Kami diste,zopun rahatat.😭😭
Hw r u sir ?
It's a death sentence with no cure