Paul talks about his ordeal with be diagnosed with and treating his aggressive prostate cancer, and why he came to the US for his treatment with Dr. Dattoli.
Great story…thanks for sharing. I’m 4 years into battling castration resistant metastatic prostate cancer that’s moved into the bones that started out as a Gleason 9. Presently on radium 223(Xofigo) and Lupron. Trusting God and my medical team at Fred Hutch Cancer Center in Seattle for a good outcome.
For Patients with Gleason 9 T3 A/B or whatever. Re this post is about Ten years old, and it relates to his own situation. He said "25 sessions" of treatment, so I presume it's Radiation or whatever. The Surgeons not wishing to operate, might mean to near to Bladder/Bowel or something. Should have explained to us why they refused to operate. June 2018 I had Robotic, which was not successful, Dec 2018 started 33 Radiation Therapy which finished on February 2019. The initial drop after RT was not dramatic, went from 0.29 to 0.16 , then 0.1 and 0.1, am due my next PSA test in a couple of weeks. I am/was a Gleason 9 T3B , and I am relieved I went down the Surgery route, as they found the seminal vesicles had been infected, and knowing that , could target the radiation more effectively. In my case, I had the RT as quickly as possible, as I did not have Lupron HT pre Surgery the PSA after Surgery was a valid reading. My treatment was under the "NHS in the UK" , I am Scottish. The reason I commented on the post , is that to my mind it implies that a Gleason 9 T3b is inoperable, and someone just diagnosed could get depressed thinking there was no hope. Perhaps the person who posted this was well intentioned, but certain details/information are missing, and unless they explain in more detail, perhaps take post down. I don't want overly optimistic either, just realistic, this post does not do it for me! He could have explained why the Surgeon used the word "Acute" as the reason for not operating. Anyone reading this who is unsure of anything, Phone Prostate Cancer UK, or Macmillan Cancer. There are dedicated Cancer nurses who will explain any reservations you have. The relief of actually understanding my particular situation , took a lot of stress out of my life.
@@williamgrant3999 Hi William I just had RT surgery 3 weeks ago I found out my cancer was Gleason score 7 T3b my question is how do the kegel exercises really work im having leakage and I'm doing the exercises I just can't see how they help or stop the leakage maybe its still early for my recover and wordsnof wisdom is appreciated thank you
@@xDaddyx68 You must have faith that it will get better and improve, groups of ten seconds with the kegels, no obvious change but you will get there. After that real life situations, small rucksack/backpac, with underwear ,spare pads and a container, all quite discrete. you will soon learn the survival skills in real time situations. And all the time there will be improvements. Am working with an unstable laptop, tried to reply sooner, think my message was lost. None of us was/is prepared for the initial shock of the incontinence., You are not alone , fellow travellers are wishing you well
@@williamgrant3999 Thanks for responding blessings to you sir...yes this voyage was definitely not expected, but you are right im keeping the faith! Thank you again
@@m1serfreed477 In some methods they plant seeds as targets for the RT, am sure the poster said Twenty five treatment or sessions . I think the BT is one off implants and a passive treatment. A friend of mine had BT, in out of Hospital same day.
Great story…thanks for sharing. I’m 4 years into battling castration resistant metastatic prostate cancer that’s moved into the bones that started out as a Gleason 9. Presently on radium 223(Xofigo) and Lupron. Trusting God and my medical team at Fred Hutch Cancer Center in Seattle for a good outcome.
Are you alive
To God Be The Glory. I'm so Happy for your outcome.
we are all on the same journey
For Patients with Gleason 9 T3 A/B or whatever. Re this post is about Ten years old, and it relates to his own situation.
He said "25 sessions" of treatment, so I presume it's Radiation or whatever.
The Surgeons not wishing to operate, might mean to near to Bladder/Bowel or something.
Should have explained to us why they refused to operate.
June 2018 I had Robotic, which was not successful, Dec 2018 started 33 Radiation Therapy which finished on February 2019. The initial drop after RT was not dramatic, went from 0.29 to 0.16 , then 0.1 and 0.1, am due my next PSA test in a couple of weeks.
I am/was a Gleason 9 T3B , and I am relieved I went down the Surgery route, as they found the seminal vesicles had been infected, and knowing that , could target the radiation more effectively.
In my case, I had the RT as quickly as possible, as I did not have Lupron HT pre Surgery the PSA after Surgery was a valid reading.
My treatment was under the "NHS in the UK" , I am Scottish.
The reason I commented on the post , is that to my mind it implies that a Gleason 9 T3b is inoperable, and someone just diagnosed could get depressed thinking there was no hope.
Perhaps the person who posted this was well intentioned, but certain details/information are missing, and unless they explain in more detail, perhaps take post down.
I don't want overly optimistic either, just realistic, this post does not do it for me!
He could have explained why the Surgeon used the word "Acute" as the reason for not operating.
Anyone reading this who is unsure of anything, Phone Prostate Cancer UK, or Macmillan Cancer. There are dedicated Cancer nurses who will explain any reservations you have.
The relief of actually understanding my particular situation , took a lot of stress out of my life.
Hi William I have a few questions if you see this please respond thank you and God bless
@@xDaddyx68 Hello, hope you are ok, any questions just ask . My computer went down and am working from an old laptop, should be ok.
@@williamgrant3999 Hi William I just had RT surgery 3 weeks ago I found out my cancer was Gleason score 7 T3b my question is how do the kegel exercises really work im having leakage and I'm doing the exercises I just can't see how they help or stop the leakage maybe its still early for my recover and wordsnof wisdom is appreciated thank you
@@xDaddyx68 You must have faith that it will get better and improve, groups of ten seconds with the kegels, no obvious change but you will get there. After that real life situations, small rucksack/backpac, with underwear ,spare pads and a container, all quite discrete. you will soon learn the survival skills in real time situations. And all the time there will be improvements. Am working with an unstable laptop, tried to reply sooner, think my message was lost.
None of us was/is prepared for the initial shock of the incontinence.,
You are not alone , fellow travellers are wishing you well
@@williamgrant3999 Thanks for responding blessings to you sir...yes this voyage was definitely not expected, but you are right im keeping the faith! Thank you again
Are u okay now?
Funny. No mention of what treatment helped him. If ur going out ur way to tell us ur condition the why not help us by telling us how u got cured
he probably didn't
It looks like he was treated with brachytherapy as it says at the start of the video
@@m1serfreed477 In some methods they plant seeds as targets for the RT, am sure the poster said Twenty five treatment or sessions . I think the BT is one off implants and a passive treatment. A friend of mine had BT, in out of Hospital same day.
The owner of the Clinic, was charged with prescription fraud
What about no erect penis,incontinence, depression,dizziness,head aches,fatiige to the max and so much more.
What if you just don’t have the money ☹️
Money cures cancer
I don't understand this guy's story either, why talk about without presenting any facts, numbers etc, sounds like pure BS!!!
The owner of the Clinic was charged with prescription fraud
Sounds like bull
The owner of the Clinic was charged with prescription fraud