VLOG: day 6 in hospital | cystic fibrosis & CF related diabetes
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- Опубліковано 12 вер 2024
- YAY. so happy to be back once again ☺️ please comment any questions or comments below!
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thanks again beauties for all the love & support, means the world to me and you’re all so amazing 💗💗
SOOOO thrilled to see you back!! You're more needed than you know, and such a powerful influence! Keep it up beautiful girl!!🤍🤍🤍
Aw that means SO incredibly much!! thank you!! 😊❤️
You know those youtubers where the second they upload you drop everything and watch their videos??? Yeah that’s you girl:) so happy to see you back
omg aweee 🥺 this is the cutest comment ever!! thankyou soo much for the support. xoxo
Girl yes get a port if your docs are willing to do it and give your veins some rest!! A lot of kiddos I work with have ports and it makes things so much easier mentally and physically when they come in for admissions and they know they don’t have to be poked!! I’m not sure how it is in Canada, but in the U.S they can also draw labs from ports! So no more waking up to needles hahaha so glad to see you uploading again❤️❤️
Awww it’s good to see Nana! She’s adorable 😊
right?! the cutest 🥰
I'm so happy you have started uploading again! Here in the UK we're in lockdown, I live on my own so having videos to watch helps me feel less alone!💕💕💕
awee, that makes me soo happy to hear! thank you love. stay safe xo ❤️
i am so glad you are back and vlogging!! i love seeing your day in the hospital videos since i have CF too!! i hope you stay as healthy as possible ik it is hard sometimes!!
awe hi fellow cyster!! that means soo much, i hope you’re doing well too! 😊❤️
I have had my port since April and I am loving it! I don’t have to be hospitalized anymore for antibiotics or fluids. The only thing I hate is the heparin for flushing. I am allergic to all adhesive and get the IV 3000 too! That is the bonus to the port if you don’t need it no dressing if not accessed
Happy to see you back on yt my love 💓 stay strong beautiful
awe thank you so much for the love n support means so much ❤️☺️
I’m on my 4th port and I couldn’t live without it! So much easier than pic lines! I prefer my port on my chest as it’s a lot more comfortable than my sides! Xxxx
I’m getting a port on the 23rd of November! I really just wanted more flexibility in my treatments and I’m losing the ability to be accessed via peripheral iv due to scar tissue. I’ve heard it’s way more comfortable than a picc and you can get numbing cream for accessing.
Hi Eliza, yes ports are way better (in my opinion). Yes it needs flushing 4-6 weekly but, it's under the skin, the needle can be left in up to 14 days. BUT make sure only qualified nurses touch your port. If they don't know what to do, ask for someone who does. I've found cancer nurses are often really good with ports if there isn't anyone around.
I have a port and I love it ! It only needs flushing 4-6 weekly but I understand many in the USA do theirs. We here in Australia generally aren't allowed to do it ourself. But I'd rather have a port any day over continual PICCs !
If you are comfortable with it you should do a story about meanings of your tattoos, if they have one. I noticed you have a couple new ones since you were vlogging last!! They look good!!
totally!! will definitely do that eventually in near future, i think i’ve gotten 6 more since i last mentioned any. & have many up coming appointments for others as well! thankyou ❤️
@@mellybeauty026 thats awesome! Cant wait to hear about them and see them!!!!
Thank you Melissa - you are a great speaker and vlogger and thank your for sharing...you speak to everyone with a heart to listen.
awe that means so much!! my mama is with me & says hi right now!! thankyou ☺️
glad your back! sorry things have been rough!! :( can you get trikafta through compassionate use until it becomes available in Canada? so sorry to hear you have cebacia
thankyou, me too!! thankyou for the support as well 💗 & its slowly starting to become approved in canada and is a long process to get it but hopefully i’ll be a candidate!
My friend has a port she said it’s amazing best thing she ever did! Xx lots of love
U are so beautiful and u are just awesome
too sweet!! thankyou 🥺❤️
I can’t control my body temperature - that’s one reason I spend a lot of time in hospital. But that should only account for one week every three months. This year has been crazy... your Nannas house is so lovely.
Wow my old stomping grounds sure has changed! I used to live in Surrey & then Aldergrove. So glad to see u back we missed you 💓
You are amazing.
and so are you! xo
@@mellybeauty026 Thank you you are very Kind. Sending lots of prayer's your way.
i think you should get a port! i have a similar illness to CF so my lungs always have me in & out of the hospital & constant flare ups or infections & my veins have basically got such bad scarring that they had to last minute do the vein in my neck & said that i should start considering a port because it’s less likely of you always being sticked, they can keep it in for years if there’s no complications and it’s less chances of you being in the hospital if you’re able to do meds at home
So good to see you back! I love your vlogs. I do think you were using the blanket I sent you a couple years ago. (You were using it in the clip at Nanas) I hope your doing well and feeling better. Keep vlogging
awe thankyou me too!! ❤️ that wasn’t the exact blanket, but i remember you and know exactly what one you’re talking about , its at my mamas house & i’ve been using it consistently since april 2018 when i opened it! thankyou again xoxo❤️
I’m always cold glad your back on UA-cam
I love your videos and you are so pretty
Yep, I’ve had over 30 PICC’s. Even for emergencies they cannot get any IV access in me any more. I’m currently in hospital too, but not up to blogging at the moment videoing videoing. I live in Melbourne Australia (in the state of Victoria: had to laugh at that as Canada has a Victoria as well). I don’t get any visitors any more. I’m older than you, okay the bit, a bit more than a bit. LOL. I need to try to leave as many hospital type clothes where my support worker can get to them. As many times I’ve had clothes sent in that I’m not comfortable, or don’t work with different tubes I’ve got.. I must say - I’m always so jealous that you guys get a bath! We just get a shower - the only places in the hospitals with a bath maternity. (And I’m talking about private hospitals). I’m literally up to week 13 in hospital for the year - not all in a row, but seven of them there.. People without a chronic illness have no clue what it is really like… You’re a superstar - I love your hair! I dyed mine last time I was in hospital... i’m sure the cleaners loved me. LOL. But they didn’t seem to mind. Take care :-) big Covid free gentle hug from Oz 🧡🦋🌈🇦🇺❣️ PS: also jealous that you get to actually leave. I’m barely able to leave my room - in factory very rarely, and it’s normally only to go to radiology! Enjoy...
Glad to see you back. Granddaughter has CF. Love your videos.
thankyou me too!! your granddaughter must be such a fighter!! ❤️
Yayyy more vlogs🥰
i’m back at it!! 🥰
I have a port and its a lifesaver! Its so comfortable for IV antibiotics or anything really. I did have sepsis this summer and a thrombosis in my neck because of it. I have to take blood thinners for as long as I have a port now. Its definitely not risk free unfortunately. But so worth it, especially for chronic illness people who need to be accessed lots of times and who have no access points left.👍🏻
Good to have you back girl!!! Missed your face 🥰 how’s your family?? Xx
awe means so much thankyou!! ❤️ everyones well :’) xo
@@mellybeauty026 I’m glad your doing better. Keep being you!! Xx
I always cold but past few months I been hot , I hope u get better soon Melissa 💜
Great seeing you again!
Home IVs, please, and am so glad to see you back much love
I have a port it is the best thing that ever happened when I get admitted it’s a smooth access point
Facts me to
Omg I missed your videos so much ??
awe , well i’m happy to be back too!! 🥰
that's my baby
Are the side effects from the antibiotics bad?
I had a port when going through chemo and it worked awesome!
My best friend has a port and she likes it but I know she says it hurts like a bitch to get accessed, but just remember to get it on the opposite side that your seatbelt goes
I would def ask about port - your u are only young and having trouble, as you get older you will need more and more treatments, I would ask how they are going to keep gaining PICC access for the next few decades if they can’t now? I’ve had both - prefer port but if you are prone to infections harder to remove but only accessed when required. And accessing it doesn’t hurt, initial surgery a bit sore but connecting for treatment doesn’t hurt
Love the vlog❤️
Hi Nana !!! Just wondering why you won't get a port a Cath in ? So much easier that PICC lines each time and you can flush it at home or a nurse can do it ? Poor you in adult hospital. Why do they make kids hospitals so nice then as a adult the rooms and food is revolting and everything else !! Love from Australia. Sonia x
isn’t she the cutest?! ☺️ i mentioned in the video that i’m thinking of a port very soon eventually!! & i know !! i think 18 is still too young too graduate from childrens. thankyou for the constant love n support always! xoxo ❤️
Love my port ☺️
I have a port and there amazing I definitely recommend xxx
❤️❤️❤️
I'm always cold
You should message another fellow youtuber Mary Frey from The Frey Life. She has Cf I am sure she would love about how much the port helps her.
I'm a bit older than you. I have had both picc and VAD(port) I have had two differnt ones don't know what they offer now. depends how often you go in. I used to go in every 3 months at your age. As i got older i went less, not sure why. So when I was younger I had the port. I recommend it. It doesn't hurt to access once it heals of course. It's so easy to take care of as well. As I watch your video you couldn't shower. At St pauls they will saran wrap your arm with water proof tape and then you can shower. It's hard because you can't bend your arm but it's better then what you did.
Good luck. If you need to talk contact me. :) Been at st pauls for over 27 years. Also don't leave any valuables in your room every. ST pauls has a ton of theft normally, I guess because of covid it's been quiet because not many visitors. But yeah, I knew people who had their enzymes stolen... They must not have felt good after taking those! LOL
I’m in between with cold and warm
Hello from Mexico
Tricafta......can you take this?
its slowly starting to become approved in canada and is a long process to get it but hopefully i’ll be a candidate! xo
Have you ever had the tricafida treatment? I think that's how it's spelled. But I hope you feel better soon sweetie!!
it's not available in Canada yet unfortunately x
spelt Trikafta :)
its slowly starting to become approved in canada and is a long process to get it but hopefully i’ll be a candidate!
I have a port I had to get it because of cancer but I am cancer free also they told me you can keep your port for five years until I put in another one
Where did you get your tongue rings
just a local piercing store!
I was wondering, why can’t you just get your meds at home. Like in home nurse during the time you need it?
i mentioned that i’m going home to do IV at home soon :) takes time n process! xo
Do you mind putting captions on your videos?
do you know how i could do that? :)
My grandma had to get a port because of her cancer treat me she said it's the best choice that she made
I'm sick now
I love ur vloggs and l missed ur vloggs and give me a shout out and i wrote a letter to u
thankyou so much!! xo where did you write the letter to love?!
@@mellybeauty026to the address u have on ur vloggs
I would love you too blog after your hospital stay when you are discharged
i am again now!! 🥰
Cold
Srrrrrra
I wish I could meet so we could be friends
Can u pm me on Instagram for ur address thanks i hope u get my letter u did have an address on here now it doesnt i hope u get my letter
I swear radiologist are the most ignorant people! I had a port and it flipped I have a connective tissue disease that makes every thing looser. When I went to get it fixed they were horrible. I swear it’s like they have a god complex
Awww it’s good to see Nana! She’s adorable 😊