I never had any symptoms of MS prior to my COVID Infection (none whatsoever) - I am almost 30 years old and male. 4 Weeks after COVID infection I had a (what I now know as) a massive relapse that left me blind in one eye. Still blind in that eye a year later. My blood tests on day one (day prior to getting steroids) showed very low white blood cell count. I imagine COVID destroyed my immune system and was still recovering perhaps... I also think that COVID may allow for an EBV re-infection immediately after a COVID infection. We know both COVID + EBV do neurological damage so it is perhaps a perfect storm. Immune system was shot from the first virus and gets overwhelmed by EBV. At the time I was also very stressed due to my job + life in general adding to the perfect storm. In my mind, personally, there is a very high chance Covid was the cause of my MS. This needs FAR more research.
@@XYZOxyz Thank you for the kind words :) Sadly the damage is permanent and still blind. Recovery chances of optic neuritis / eye nerve inflammation are low after 3-6 months without healing. Currently on life long medication, fun! My old identity feels like it has "died". It is strange to wake up one day with a life long disease that will gradually leave me more disabled with time. Like being in 10 car crashes before I am 60. Perhaps tomorrow I wont be able to walk / talk / type / see / think clearly etc and it is all out of my control, all random damage. My body is attacking itself now for the rest of my life... Feeling better though, it was a shock that is for sure and still feel disbelief at the thought of living with this. What I still feel though is that uncertainty / fear of not knowing if today / tomorrow is the day I wake up with more disability.
@@__Wanderer Chin up! I know you're down, but it may not be as bad as you think. I believe they're close to solving the MS mystery, I'm thinking they're a decade away from the cure. If you're in the US, look into the stem cell transplant program in Chicago. In the meantime, get tested for Epstein Barr virus and herpes zoster. Also, work on your immune system. Maybe I haven't told you anything new, but please try to stay positive. Wondering if you were diagnosed with MS before covid or after? Did the steroids not help the optic neuritis at all?
I had Covid after all available vaccines and boosters. It was hard for me to recognize it except for a fever, worsening of weakness and fatigue. The respiratory issues, congestion and coughing lasted for a while. Had to get antibiotics for that. Diagnosed with MS in 2001 and over 65 years old now. Wheelchair user since 2006. Secondary progressive Diagnosed.
Many tks Brett to bring science to us all. ❤ I think that people newly diagnosed with MS during the pandemic, should talk to their neurologist that this was the case, because that are lots of researches going on relating to neurological effects of the virus in the central nervous system.
Thank you very much for your kind words Roger, they are much appreciated. Please let us know if there are any topics that yourself or your wife would like us to cover and we will make sure that we produce some videos providing that information. Thanks again - Brett
I had complications during my lumber puncture procedure, the docs' weren't able to use my spinal fluid due accidentally contaminanting it with blood from a burst vessel.. 😢 i've been told I exhibit all the traits and tell tale signs of condition. I've met up with my local MS trust group and they are treating me as a fringe case. I feel so pathetic and hopeless
I never had any symptoms of MS prior to my COVID Infection (none whatsoever) - I am almost 30 years old and male. 4 Weeks after COVID infection I had a (what I now know as) a massive relapse that left me blind in one eye. Still blind in that eye a year later. My blood tests on day one (day prior to getting steroids) showed very low white blood cell count. I imagine COVID destroyed my immune system and was still recovering perhaps... I also think that COVID may allow for an EBV re-infection immediately after a COVID infection. We know both COVID + EBV do neurological damage so it is perhaps a perfect storm. Immune system was shot from the first virus and gets overwhelmed by EBV. At the time I was also very stressed due to my job + life in general adding to the perfect storm. In my mind, personally, there is a very high chance Covid was the cause of my MS. This needs FAR more research.
Is your eye sight back now? Hope you're feeling better
@@XYZOxyz Thank you for the kind words :) Sadly the damage is permanent and still blind. Recovery chances of optic neuritis / eye nerve inflammation are low after 3-6 months without healing. Currently on life long medication, fun! My old identity feels like it has "died". It is strange to wake up one day with a life long disease that will gradually leave me more disabled with time. Like being in 10 car crashes before I am 60. Perhaps tomorrow I wont be able to walk / talk / type / see / think clearly etc and it is all out of my control, all random damage. My body is attacking itself now for the rest of my life... Feeling better though, it was a shock that is for sure and still feel disbelief at the thought of living with this. What I still feel though is that uncertainty / fear of not knowing if today / tomorrow is the day I wake up with more disability.
@@__Wanderer Chin up! I know you're down, but it may not be as bad as you think. I believe they're close to solving the MS mystery, I'm thinking they're a decade away from the cure. If you're in the US, look into the stem cell transplant program in Chicago. In the meantime, get tested for Epstein Barr virus and herpes zoster. Also, work on your immune system. Maybe I haven't told you anything new, but please try to stay positive.
Wondering if you were diagnosed with MS before covid or after? Did the steroids not help the optic neuritis at all?
@@__WandererI am so sorry you are dealing with this. My heart goes out to you and I appreciate you sharing your story.
@@marieabercrombie2231 Thank you Marie for your kind words
I had Covid after all available vaccines and boosters. It was hard for me to recognize it except for a fever, worsening of weakness and fatigue. The respiratory issues, congestion and coughing lasted for a while. Had to get antibiotics for that. Diagnosed with MS in 2001 and over 65 years old now. Wheelchair user since 2006. Secondary progressive Diagnosed.
And you made it through. This Bio weapon virus is not as bad as it was. People wake up.
Don't forget the meds that help were banned by the government. HCQ AND IVERMECTIN
Many tks Brett to bring science to us all. ❤
I think that people newly diagnosed with MS during the pandemic, should talk to their neurologist that this was the case, because that are lots of researches going on relating to neurological effects of the virus in the central nervous system.
Pretty sure I am one of the people.
Please expand on this🙏
Many thanks Brett for navigating the maze between scientific findings and press highlights! Keeping us on firm ground with MS - 😂❤
My wife has MS. I really love your approach to this, and other topics related to the study of MS. 👍
Thank you very much for your kind words Roger, they are much appreciated. Please let us know if there are any topics that yourself or your wife would like us to cover and we will make sure that we produce some videos providing that information. Thanks again - Brett
@@MStranslate1 , thank you.
Hello!
Could you make a video about MS and Vitamin D?
Hi Jimmy! Thanks for your interest. I'll put it on the 'to-do' list and hopefully you see it in the near future. Stay tuned! Thanks - Brett
@@MStranslate1 thanks Brett!
I've had covid 4 times, all were very mild, vaxxed once and my MS did not get worse.
Very lucky
I had complications during my lumber puncture procedure, the docs' weren't able to use my spinal fluid due accidentally contaminanting it with blood from a burst vessel.. 😢 i've been told I exhibit all the traits and tell tale signs of condition. I've met up with my local MS trust group and they are treating me as a fringe case. I feel so pathetic and hopeless
I have had covid twice ... it felt like 10 relapse at same time
could you please explain?
And your still here. Just think if you could have taken HCQ OR IVERMECTIN
I had covid. Now I have a positive ANA but the doctors can't figure out why. The other tests came back negative. I don't have any symptoms.
Ty Brett.
Can we go back to WHAT CAUSES MS?
Covid was a non event in MS terms for me.