Great video content! Excuse me for chiming in, I would love your opinion. Have you thought about - Dinanlinson Rebooting Health Approach (Sure I saw it on Google)? It is a great one of a kind guide for getting rid of chronic fatigue syndrome minus the normal expense. Ive heard some incredible things about it and my old buddy Taylor after a lifetime of fighting got amazing success with it.
Cheers for the video content! Sorry for butting in, I would love your thoughts. Have you considered - Dinanlinson Rebooting Health Approach (should be on google have a look)? It is a great one off guide for getting rid of chronic fatigue syndrome without the hard work. Ive heard some interesting things about it and my mate after many years got astronomical results with it.
Cheers for the video content! Apologies for butting in, I would love your initial thoughts. Have you heard the talk about - Dinanlinson Rebooting Health Approach (erm, check it on google should be there)? It is an awesome exclusive guide for getting rid of chronic fatigue syndrome without the headache. Ive heard some incredible things about it and my m8 finally got excellent success with it.
Appreciate Video! Apologies for the intrusion, I am interested in your thoughts. Have you considered - Dinanlinson Rebooting Health Approach (Sure I saw it on Google)? It is a smashing one off guide for getting rid of chronic fatigue syndrome minus the headache. Ive heard some interesting things about it and my close friend Aubrey got cool success with it.
Lovely video content! Sorry for chiming in, I would love your initial thoughts. Have you ever tried - Dinanlinson Rebooting Health Approach (just google it)? It is a good exclusive product for getting rid of chronic fatigue syndrome minus the hard work. Ive heard some interesting things about it and my close friend Aubrey after many years got astronomical success with it.
Sore throat and feeling flu like - i have battled with these for a long time (along with many of the other symptoms) and could never understand why I kept 'getting ill'. But its almost reassuring to know its just part of it. Thanks.
You got it right! Absolutely!! Thank you so much for clarifying what doctors don’t know anything about, which is very sad, but they can’t help anyone if they don’t know anything about this debilitating condition!! This isn’t the first time I have had to find out and learn for myself about other health conditions. But like I said it is very sad that our medical professionals are not getting on top of this when it affects so many people!! They could at LEAST have information on hand to lead people in the right direction! That is why you are so much appreciated! God bless you!
I have had this for 30 years. Have been to top doctors in the field. I have just learned to pace myself. That’s the only thing out of everything I have tried that works for me.
@@Truerealism747 yes. Just started taking Tramadol once in a while. It is a weak opiate though so I try not to. Nothing else really works. Better in the Summer.
Tinnitus, brain fog, light and sound sensitivity, insomnia, muscle and joint pain, minds racing at night, depression, anxiety, orthstatic intolerance, muscle wasting, tender lymph nodes, struggle to hold a conversation or train of thought. Irritable,
Gasper Kosmac All of the above and debilitating migraines that totally disable me. New research just came out. They proved that ME sufferers have swelling in the brain. When I received the news I cried and cried. I finally received validation of what I’ve been saying all along. My brain is on fire. Hoping they can get funding to create an anti inflammatory that can pass through the blood brain barrier. For now I have to use ice. BUT I am so grateful for the “better days”.
im so glad i found this. thankyou i needed to know this. I have had M.E for about 23yrs. I have been bed ridden for much of it. Im only out and about a little now as they found i was low in iron and am now getting infusions. but your right, I get PEM. uggh got it now as i did push myself just a little but i ate food i shouldnt have that triggers me. Coffee and sugar uggghhh
Yeah I sleep a lot but I'm always tired. Even as a little kid I took naps until I was like 6 or 7 which my now 7 year old sister deffinitely does not lol. Now as a 17 year old I have to nap most days because I get exhausted so fast. I'll sleep in until like 10:30 am then go nap at 2:30 pm or so. Then I crash again at 11 at night. I keep thinking it's part of my bipolar and anxiety but maybe not. I also get that leg pain. Bad memory. Bad digestion. Super sensetive to light like I do not go outside without sunglasses because it hurts. Headaches. Weight loss and gain is wild I fluctuate around 5-10 lbs in a few weeks but I don't do much physical activity. When I do physical activity (rare but I'm trying to more these days) I crash hard. I can't do a 10 minute workout without needing a full 3 or so hour nap about an hour after. I wonder if I have chronic fatigue? Maybe I should bring it up with my doctor?
That doesn’t sound like chronic fatigue Syndrome because a characteristic symptom of cfs is sleep disturbances. I’m the same situation the last 3ish months I want to sleep 24/7. It might be a nutritional deficiency, you should definitely get blood work done.
every day i feel i have the flu, sore eye sockets. lethargic breathing, ill sleep all day and have about 4 hours a day awake before bed again. this is horrible. doctors have only now diagnosed it after a year. they thought i was lazy to start with which made me so angry
i kn iw mate. i was diagnosed MONDAY. my family calls me lazy. i can't even concentrate on a film to watch. i cant concentrate or have energy to concentrate it awfull
@@showreel2 You are NOT LAZY. I have had this 26 years and if you like I can send you a brief of all of my symptoms and history so you can show your family. My family were like this as well and it really hurts you to the core.
Studies show that the young who develop it because of a virus are likely to recover. Those who develop it gradually over unknown cause not so much...what is your take on this?
Studies show everything. One says one thing another the opposite. "Studies" don't matter. They can't even decide the pathogenesis of the disease, forget about everything else.
Idk if this has any relation with the illness but I have experienced really bad brain fog in the morning with a weird eye sensation and in the afternoon I just feel tired and sleep. Ps: sorry for my english
I wonder now after 8 years suffering how many people commit suicide as a consequence. When you have a crash it's terrible.. In particular when you feel you don't know why you've crashed
Slow Wave Delta cannot be acheived. If the body does not get restorative sleep and all symptoms follow. You can sleep 18 yrs and feel like you have not gone to sleep at all.
@@youknowcrimedontpay9257well diagnosed neurosthenia CFS 1998 started after broken tailbone then I had pots now more fybromyalgia but now diagnosed heds asperger's add doctors are incompetent had to go private for latter in uk
@@youknowcrimedontpay9257diagnosed CFS fybromyalgia heds autism ADHD after 27 years found causation genes sleep apnea test now awaiting father has mild CFS to got better over years
The leg pain.....oh god.....my brain is on fire. My eye has started twitching. I have many more symptoms.....but no diagnosis. I am the poster child for this I know I have it....but can't get a diagnosis.....😭😭😭
How long? Someone recently suggested I see an immunologist. I've been suffering with it since I was 16 (18 years) I'm just kind or irritated none of the doctors ever recommended that (they were never much help at all honestly)
@@walkingthroughghosts I've been sick for like 20 years.....seen too many doctors all Shitty! They put me through hell that I just stopped going all together. Maybe real insurance you pay for might get good results. But these State Insured doctors don't care! I'm sorry that you aren't getting answers either. I feel like I'm loosing it. The pain is so unbearable.
@@oo6112 I think you may be absolutely right about the insurance, unfortunately so much in the medical system is motivated by money more than helping people. I can't blame you I've felt like I was losing it many times. I'm going to look into possibly getting better insurance. I hope we both manage to make a full recovery.
@@walkingthroughghosts I've lost out on so much in life. All everyone around me does is judge my situation. My life used to be great. I've done so much research and work on my own...to try to get better. I have noticed a slight difference. But catch me on a bad pain day where I don't even want to be touched. I wish there were doctors who really do care. If I got an actual diagnosis it would change so much. But sadly I can't even get that. But if I had money my life would be so different. I have a kid I can't work. No family or friends. Tried for disability for 15 years never got anywhere. I'm honestly just sooo depressed. But I still care about other peoples suffering. So I hope that you get some answers! God bless❤
This video is good but so frustrating... the majority of people dont recover. They might improve. learn to pace themselves and learn what their bodies can do routinely without taking on too much... but recovery in true ME just doesnt happen. Instead we learn a new normal and just deal wth the cards weve been dealt the best we can. Maybe different conditions can cause a temporary case of CFS... but legit ME... that just doesnt go away. Not in anything ive ever seen. Can only do the best you can for yourself within your own limits. GET is actually bad for legit ME, and will make us worse. Ive had this for going on 14 years now, and while I am a whole lot better than i was at initial diagnosis, i am not healed, or cured. I cant go about life as i could before i was ill. Ive had to learn a new normal, with new limitations and new restrictions. Pacing yourself is really the best you can do to get the closest to better that you can get.
pawprints1986 Agreed. I’ve had this for darn near 23 years. Baby steps and set backs all part of learning how to cope. When we’ve gone too far we sure do know it. It’s like a rude awakening. Life sure has changed. That’s for sure. Peace and blessings to you!
Difficulty breathing i find is one of them that comes along with it aswell
Great video content! Excuse me for chiming in, I would love your opinion. Have you thought about - Dinanlinson Rebooting Health Approach (Sure I saw it on Google)? It is a great one of a kind guide for getting rid of chronic fatigue syndrome minus the normal expense. Ive heard some incredible things about it and my old buddy Taylor after a lifetime of fighting got amazing success with it.
Cheers for the video content! Sorry for butting in, I would love your thoughts. Have you considered - Dinanlinson Rebooting Health Approach (should be on google have a look)? It is a great one off guide for getting rid of chronic fatigue syndrome without the hard work. Ive heard some interesting things about it and my mate after many years got astronomical results with it.
Cheers for the video content! Apologies for butting in, I would love your initial thoughts. Have you heard the talk about - Dinanlinson Rebooting Health Approach (erm, check it on google should be there)? It is an awesome exclusive guide for getting rid of chronic fatigue syndrome without the headache. Ive heard some incredible things about it and my m8 finally got excellent success with it.
Appreciate Video! Apologies for the intrusion, I am interested in your thoughts. Have you considered - Dinanlinson Rebooting Health Approach (Sure I saw it on Google)? It is a smashing one off guide for getting rid of chronic fatigue syndrome minus the headache. Ive heard some interesting things about it and my close friend Aubrey got cool success with it.
Lovely video content! Sorry for chiming in, I would love your initial thoughts. Have you ever tried - Dinanlinson Rebooting Health Approach (just google it)? It is a good exclusive product for getting rid of chronic fatigue syndrome minus the hard work. Ive heard some interesting things about it and my close friend Aubrey after many years got astronomical success with it.
Sore throat and feeling flu like - i have battled with these for a long time (along with many of the other symptoms) and could never understand why I kept 'getting ill'. But its almost reassuring to know its just part of it. Thanks.
You got it right! Absolutely!!
Thank you so much for clarifying what doctors don’t know anything about, which is very sad, but they can’t help anyone if they don’t know anything about this debilitating condition!! This isn’t the first time I have had to find out and learn for myself about other health conditions. But like I said it is very sad that our medical professionals are not getting on top of this when it affects so many people!! They could at LEAST have information on hand to lead people in the right direction!
That is why you are so much appreciated! God bless you!
I have had this for 30 years. Have been to top doctors in the field. I have just learned to pace myself. That’s the only thing out of everything I have tried that works for me.
Do you have much pain with it
@@Truerealism747 yes. Just started taking Tramadol once in a while. It is a weak opiate though so I try not to. Nothing else really works. Better in the Summer.
visual snow, tinnitus, twitching eyelids anybody?
Tinnitus, brain fog, light and sound sensitivity, insomnia, muscle and joint pain, minds racing at night, depression, anxiety, orthstatic intolerance, muscle wasting, tender lymph nodes, struggle to hold a conversation or train of thought. Irritable,
Gasper Kosmac Yes I have the Tinnitus also!! And quite often!!
Visual snow and eyelids for me too. I found that quitting coffee stopped the eyelid twitching for me.
Gasper Kosmac All of the above and debilitating migraines that totally disable me. New research just came out. They proved that ME sufferers have swelling in the brain. When I received the news I cried and cried. I finally received validation of what I’ve been saying all along. My brain is on fire. Hoping they can get funding to create an anti inflammatory that can pass through the blood brain barrier. For now I have to use ice. BUT I am so grateful for the “better days”.
Leg pain is also post viral. Not CFS
Detailed and clear explanation. Very good.
That "pushing" myself is the crucial point that people do not understand. The "push/crash cycle" that I am in then.
im so glad i found this. thankyou i needed to know this. I have had M.E for about 23yrs. I have been bed ridden for much of it. Im only out and about a little now as they found i was low in iron and am now getting infusions. but your right, I get PEM. uggh got it now as i did push myself just a little but i ate food i shouldnt have that triggers me. Coffee and sugar uggghhh
How are you now
Thanks again Toby really helpful xxx
Yeah I sleep a lot but I'm always tired. Even as a little kid I took naps until I was like 6 or 7 which my now 7 year old sister deffinitely does not lol. Now as a 17 year old I have to nap most days because I get exhausted so fast. I'll sleep in until like 10:30 am then go nap at 2:30 pm or so. Then I crash again at 11 at night. I keep thinking it's part of my bipolar and anxiety but maybe not. I also get that leg pain. Bad memory. Bad digestion. Super sensetive to light like I do not go outside without sunglasses because it hurts. Headaches. Weight loss and gain is wild I fluctuate around 5-10 lbs in a few weeks but I don't do much physical activity. When I do physical activity (rare but I'm trying to more these days) I crash hard. I can't do a 10 minute workout without needing a full 3 or so hour nap about an hour after. I wonder if I have chronic fatigue? Maybe I should bring it up with my doctor?
That doesn’t sound like chronic fatigue Syndrome because a characteristic symptom of cfs is sleep disturbances. I’m the same situation the last 3ish months I want to sleep 24/7. It might be a nutritional deficiency, you should definitely get blood work done.
every day i feel i have the flu, sore eye sockets. lethargic breathing, ill sleep all day and have about 4 hours a day awake before bed again. this is horrible. doctors have only now diagnosed it after a year. they thought i was lazy to start with which made me so angry
showreel2 that's the problem. I m not yet diagnosed for CFS. Bt I feel so fatigued especially mentally. I also get angry when people call it laziness.
i kn iw mate. i was diagnosed MONDAY. my family calls me lazy. i can't even concentrate on a film to watch. i cant concentrate or have energy to concentrate it awfull
@@showreel2 You are NOT LAZY. I have had this 26 years and if you like I can send you a brief of all of my symptoms and history so you can show your family. My family were like this as well and it really hurts you to the core.
Shadow Man hi, how was your blood count, are you low in iron, red blood cells, hemoglobin?
Studies show that the young who develop it because of a virus are likely to recover. Those who develop it gradually over unknown cause not so much...what is your take on this?
Studies show everything. One says one thing another the opposite. "Studies" don't matter. They can't even decide the pathogenesis of the disease, forget about everything else.
sounds about right!
I feel as though I cannot breathe and when I try to breathe in to my lungs maximum capacity it is only very tiny. Is this a symptom of CFS?
Man i have that as well.
It is
Air hungry air hunger
I have this air hunger 3 years now
So how did you heal?
When you are in public does the symptoms get worse?
Idk if this has any relation with the illness but I have experienced really bad brain fog in the morning with a weird eye sensation and in the afternoon I just feel tired and sleep.
Ps: sorry for my english
I wonder now after 8 years suffering how many people commit suicide as a consequence. When you have a crash it's terrible.. In particular when you feel you don't know why you've crashed
26 years here I think that's what government s want
Anyone else experience pins & needles at the back of their throat?
Such an incredibly awful discomfort!
That's me 100% thank u x
How do you know it is CFS
Slow Wave Delta cannot be acheived. If the body does not get restorative sleep and all symptoms follow. You can sleep 18 yrs and feel like you have not gone to sleep at all.
Yes what do you attack.that with
@@Truerealism747 What illness have you been diagnosed with. FM, CF. ME, etc? What country are you in?
@@youknowcrimedontpay9257well diagnosed neurosthenia CFS 1998 started after broken tailbone then I had pots now more fybromyalgia but now diagnosed heds asperger's add doctors are incompetent had to go private for latter in uk
@@youknowcrimedontpay9257diagnosed CFS fybromyalgia heds autism ADHD after 27 years found causation genes sleep apnea test now awaiting father has mild CFS to got better over years
That sleep I've had from birth long before my CFS trigger common in autism
Wish you mic had been closer to you mouth because alot of what you said was lost in the echo and also the rains storm you had.
The leg pain.....oh god.....my brain is on fire. My eye has started twitching. I have many more symptoms.....but no diagnosis. I am the poster child for this I know I have it....but can't get a diagnosis.....😭😭😭
How long? Someone recently suggested I see an immunologist. I've been suffering with it since I was 16 (18 years) I'm just kind or irritated none of the doctors ever recommended that (they were never much help at all honestly)
@@walkingthroughghosts I've been sick for like 20 years.....seen too many doctors all Shitty! They put me through hell that I just stopped going all together. Maybe real insurance you pay for might get good results. But these State Insured doctors don't care! I'm sorry that you aren't getting answers either. I feel like I'm loosing it. The pain is so unbearable.
@@oo6112 I think you may be absolutely right about the insurance, unfortunately so much in the medical system is motivated by money more than helping people. I can't blame you I've felt like I was losing it many times. I'm going to look into possibly getting better insurance. I hope we both manage to make a full recovery.
@@walkingthroughghosts I've lost out on so much in life. All everyone around me does is judge my situation. My life used to be great. I've done so much research and work on my own...to try to get better. I have noticed a slight difference. But catch me on a bad pain day where I don't even want to be touched. I wish there were doctors who really do care. If I got an actual diagnosis it would change so much. But sadly I can't even get that. But if I had money my life would be so different. I have a kid I can't work. No family or friends. Tried for disability for 15 years never got anywhere. I'm honestly just sooo depressed. But I still care about other peoples suffering. So I hope that you get some answers! God bless❤
How are you now
Why is recovering only 5% of people?
This video is good but so frustrating... the majority of people dont recover. They might improve. learn to pace themselves and learn what their bodies can do routinely without taking on too much... but recovery in true ME just doesnt happen. Instead we learn a new normal and just deal wth the cards weve been dealt the best we can.
Maybe different conditions can cause a temporary case of CFS... but legit ME... that just doesnt go away. Not in anything ive ever seen. Can only do the best you can for yourself within your own limits. GET is actually bad for legit ME, and will make us worse.
Ive had this for going on 14 years now, and while I am a whole lot better than i was at initial diagnosis, i am not healed, or cured. I cant go about life as i could before i was ill. Ive had to learn a new normal, with new limitations and new restrictions. Pacing yourself is really the best you can do to get the closest to better that you can get.
pawprints1986 Agreed. I’ve had this for darn near 23 years. Baby steps and set backs all part of learning how to cope. When we’ve gone too far we sure do know it. It’s like a rude awakening. Life sure has changed. That’s for sure. Peace and blessings to you!
What percent of your clients recover?
Hi Under “Catagory” underneath your name, why does it have “Comedy”?? CFS/ME certainly is not funny!!