Diagnosed 7 years ago at 40 years of age. I thought I was going mad, no one could tell me what was wrong with me after 20 years of pain getting worse. The best advice I can give is keep moving! No matter how much pain and stiffness you feel, keep your body moving every single day. Tai chi, yoga, stretching, walking, swimming, dancing, whatever you can do, the more variety, the better. This is definitely a case of use it or lose it my friends. Eat a healthy, low inflammatory diet, drinks lots of water. Wishing you all pain free days 🙏🏻
@@DA-ju3iv sorry I didn't see your comment. The GAPS protocol is an absolute game changer. Hard at first but a whole lot better than pain! I take magnesium, iron, zinc and B vitamins daily also.
I ve been diagnosed with ankylosing spondylitis at 18 years old male and it came like a shock for me . The gene HLA-B27 was positive Since i was a child, i was a spontanious person and i ve been practising a lot of sports. I was enjoying life and i loved my body. When i turned 15 years old, pains appeared in different spots of my body including: back, ankles, and especially knees, I thought its a normal thing wich occurs to normal people, but the pains didnt stop. There were getting worse and worse. Every morning i couldnt get out of my bed, i felt like my joints were fusing togheter. Im trying to have a healthy life based on fruits and vegetables and exercising. I cant stop this autoimune disease but im trying my best
Gabitzu1100 Microsoft is mapping the immune system and China is testing Crispr on humans. Have hope, and push legislators to fund research into autoimmunity and other genetic diseases.
I relate to everything you said there. From growing up playing sports to struggling to wake up every morning. It just feels like a challenge to even walk at times for me
If you want I can help you, because sometimes before I also have the same problem of pain. Then I dignosed spindyloarthritis in CMC Vellore but now I m felling far better with the help of natural diet and supplements. 7979096118
Good for you. I hope whatever you try works to give you relief. Have you been to see a rheumatologist to give you a treatment plan? It can be quite manageable with the right treatment. I was diagnosed with psoriasis at 9 and ank spond by the time I was 18 and had had it for some time (I wasnt diagnosed for ages because people kept accusing me of being lazy or weak because of my symptoms... and I believed them, like an idiot...) Getting it before puberty was awful. Its a hard enough time and I was self conscious enough without all these massive scaly lesions covering my body. Add inexplicable joint pain/failure to that, and the regular bullying a lot of kids experience at school, and thats the thick fog of utter garbage that i waded through for 8 or so years. I dont even cry right any more. It feels like I did it so much while growing up that now I have no tears left Anyway point is I know how much it can feel like it's going to ruin your life, but that absolutely doesn't mean it has to. And I know how much it sucks that most people don't know much about it, and when those people dismiss your symptoms as whinging... it can wear you down. But keep up the healthy diet. Move about where you can, consider going for a hot shower and then a walk every morning as both those are said to provide some relief. And as I said beforehand having a treatment plan from a professional is really important to help you stay on top of things. But if you can, you can live a relatively unaffected life without needing much luck or assistance at all. Good luck!
I had no pains anymore for the last 3 years, but I live a healthy life and quit smoking. Smoking had a great impact in the evolution of the autoimmune disease. So if you're a smoker think about quitting immediately!
It would be great to make a group for people living with AS . We could share info and , be there for anyone who has just found out , or for the person that's had it for 70 years. Just a thought . .
I love that I have no idea what this person looks like. She doesn't have the "Hey! Look at me" disorder so many people have. Much more useful to look at cartoons than someone on their couch or in a gaming chair. So thank you.
Thank you, khanacademymedicine. You did an amazing video. I'm very appreciated when watching it, it helped me a lots, brought the orders so that I could understand and took it into my case. Thanks again!
Gretel Bonilla mine moved into my legs back in October and the pain was crippling! I’ve had to start using a wheelchair if I need to be on my feet for more than a few minutes because the pain is too great and my legs seem to think it’s funny to collapse while I try to walk. LOL I hope your patient has a better experience than I have.
My AS started in my feet as a child, at 6 years old..i never had any other problems except legs pains I got it diagnosed at 7 and at 8-13 I started having severe back problems, I would have back spasms that would make me scream cry. The eye doctor found cataracts around the outer corner of the inside of my eyes at 9 it’s like it started in my feet and slowly went up Lol.
I have severe cronic AS and even my neck is effected, I have 5 vertibre in my neck that is fused. I can hardly move my back and I suffer from lots of upper back pain, Neck pain and really bad headaches. I went undiognosed for a long time in my life, The pain started when I was 19 in my lower back but I thought that it was normal back pain and never really talked with a Dr about it. I am 38 and only dignosed it two years ago.
depj1000 Hi mate I to have AS but have remained active even at times the pain just about killed me. I have found out starch and sugars antagonize AS, but the truth behind AS is that it can be treated and put in to remission with Copper Salicylate. Research Copper Salicylate like your life depends on it,as it does! I have had AS for 30 years and have looked everywhere for an answer to my suffering and Copper Salicylate is simply stunning and natural. Good luck from New Zealand.
Morgan mckee The only trial I could find was a double blind test about arthritis. The copper salicylate wasn't effective and it produced skin rashes. Any better evidence I'm just not finding?
with your neck pain do you suffer any numbness and tingling or pain in your arms? I may possibly have this condition but i was exercising and fine before my symptoms suddenly started. i've had a soar and stiff lower back on and off over 20 yrs and have strained it a few times but once i started doing massaging, stretching and foam rolling it improved. I want to know if this causes any issues with organs bcuz my whole body just suddenly started going crazy. pain and inflammation everywhere and has some RA symptoms too, swelling in my fingers, but i'm having issues with my muscles and digestion and now losing weight. I have lots of pain in my liver area and the headaches and neck pain is unbearable. it's like a nightmare and my pain always increases in the evening or nighttime when i try to relax or go to sleep. it's only been 6-7 months and it feels like my body is just shutting down. there has to be something else going on but docs are not finding anything or just not looking hard enough!
those SPOTS we see.. YES THEY ARE THERE what we are seeing is individual or an accumulation of cells that have bound together.. they are shed from the retinal walls .. fast treatment with predforte is important to avoid having these cells block the flow of ocular fluid and building up pressure in the eye. I have chronic re occurring Eyeritis and was diagnosed with it along with AS in 1988
I have got ankylosing spondylitis. I've learnt how to manage it to the extent that I don't have any symptoms at all anymore only if I really clean and healthy lifestyle which includes no drinking alcohol no taking any drugs or smoking ever.. 90% of my diet is vegetables and fruits live glycemic carbohydrates very little grains only Greens I have a sunflower seed flax seeds chia.. maybe a little bread here and there.. no dairy... maybe a couple of slices of cheese... I am 56 and got 10% body fat... about 40 days a week I run and... including martial arts 3 times a week.... I'm extremely healthy for my age... live a healthy lifestyle and you will have no problems... live an unhealthy lifestyle your life will be a mess.... which would you choose
Hi every one I have As 4 about six years I am in pain all the time I walk with a can and I have to take enbrel 50 g/ml I don't no munch about as so if someone could tell me how I could be in less pain .what kind of food that helps as tjanku
Richard Johnson Research Copper Salicylate for arthritis and be prepared to be mind blown. Osteoarthritis,and AS etc are all caused by Copper deficiency in our diets. It's the very best single thing I have researched in 30 years of carrying AS through life.
Hi Karen. I am HLA-B27 negative also. Developed at around 40 yrs, diagnosed at 47 yrs. I believe my disease was triggered by a chronic DDT poisoning when I was 30. My disease was extreme toward the end, but I have found a highly effective CURE that is based on a radical dietary change. Google AS diet cure, or AS low starch diet, or Clint Paddison diet to get you started. The dietary change is fairly radical and strict, but it works for me, where pharma does not. Cheers, Matt
would prefer more discussion on pathophysiology of the disease. the crux of this video was spent on extra-articular manifestations, with little discussion about the enthesitis which actually leads to spinal manifestations
Earlier Last year I was diagnosed with Ankylosing spondylitis in 2019 and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum this herbalist through his email and he prepared me a herbal cure for Ankylosing spondylitis and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. They gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am nowAnkylosing spondylitis free, all thanks to Dr. Timothy You can also contact this great herbalist for help by email: timothydouglas3612@gmail.com or contact Dr. Timothy through his whatsapp number: +1(239) 977-4390 He is also specialize in treating all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES EPILEPSY AND MORE ...... He will also be of help to you
My mom has had AS since she's had it her whole adult life. I am aware that's it's hereditary do to the HLA-B27 antigen which makes me twice as likely to experience its symptoms. I'm 25 and according to my research, people are diagnosed with AS when entering adulthood (17-18). To this day, I've shown no signs of the disease. Does that mean I've been exempt or do I still have a chance to contract it later in life? Thanks for your answer. Cheers!
Your incorrect. Spreading incorrect or misleading information is a bad thing and a major injustice to all of us suffering with the disease. 4 vital points here. 1) More men than women may have AS but it's much more common in women than you make it sound. 2) age onset of AS identification. With this disease, on average, many people are not actually diagnosed for many years with having AS. It's not unheard of for people to suffer many years prior to receiving a proper AS diagnosis. I personally had pain as a teen and it got worse and worse through life as I aged. By the time I was in my early 40's the pain was daily and more severe than words can describe. Drs had always dismissed me as being one of thousands of americans suffering from a simple backache. Until my middle 40's. I was ordered to get xrays, followed by bloodwork, then a MRI. The MRI finally showed what was needed to properly diagnose. 3) theirs no certain age group to AS. You listed a age range. AS diagnosis is so hard to make and receive earlier in the disease process. Fact is many people go several years (sometimes the majority of their life like myself) it took up until my middle 40's to finally get a diagnosis that showed my diagnosis based on visual evidence. 4)Just as its commonly stated that AS is primarily a man's disease. It's also often stated that you must be HLAB27 positive and almost always have to be male to have AS. YOU DO NOT HAVE TO BE HLAB27 POSITIVE TO HAVE AS. These wrong facts serve to confuse and misinform people furthering the already long times waited to get a proper diagnosis
I do too in same area, had a prodisc surgery done with a metal fusion below the prodisc. Shit sucks living with A.S, but we have to stay strong and not let it control us.
If you want I can help you, because sometimes before I also have the same problem of pain. Then I dignosed spindyloarthritis in CMC Vellore but now I m felling far better with the help of natural diet and supplements. (email id-imamitkumar123@gmail.com)
Okay who wants some good news? I think I have managed to rid myself from ankylosing spondylitis and wanted to share my personal experience. Nearly 10 years a severe sufferer, and HLA-B27 positive. I have 2 words for you: Weight Lifting! Join a gym nowwww and do light/medium weight lifting. You won't be able to do anything in the beginning and it will hurt the following day like hell. It will hurt more and more as you go along, but keep at it, and take your normal pain killers while you continue working out. Work on your shoulders, back, buttocks, thighs.. keep lifting those weights. About 6-8 weeks later of daily weight lifting + stretches, come back and leave me a comment here. You can thank me later.
Aerobic exercise and weight lifting helped me for a long, long time, but I'm now 59 with AS and that plus the exercise has left me with years of damage including severe degenerative disk disease at L5-S1. Exercising without causing permanent damage is what I've been striving for. But I would likely be in a wheelchair now, like my sister, without the exercise.
Aerobic exercise and weight lifting helped me for a long, long time, but I'm now 59 with AS and that plus the exercise has left me with years of damage including severe degenerative disk disease at L5-S1. Exercising without causing permanent damage is what I've been striving for. But I would likely be in a wheelchair now, like my sister, without the exercise.
I agree with primalsack, somewhat. I have been diagnosed with AS in 2006. I had a serious bout some years later maybe because I took medicine occasionally. However, I started with Water Aerobics in 2013 and then after 3 months of it I started with weight training hiring a personal educated trainer I took medication seriously, now. My condition got very well. I became better than maybe a common human being. I could run, go trekking etc. I didn't have problem until now, 2017. However, I suffered from Jaundice this month and was admitted to hospital. I thought I will consult the doctor if Jaundice was a side effect due to medication. It turned out after the MRI that I have acute patchy edema in bone marrow and schmorls nodes at some places. The doctor said my disease is progressing even after taking medication Sulfasalazine and Etoricoxib. I would like to tell You that I was living normal life and had no idea that such things were happening internally. I do not know if the edema is due to weight training or something else. I will meet the doctor today and will let you know what is the scenario, he has asked me to take Tnf Alpha blocker injections. I am worried.
well it looks like i have both RA and AS because I had a RF of 107...this suddenly erupted on me last august and just kept getting worse over the last 6 months. now this week my RA specialist just told me he thinks i have AS bcuz he sees the beginning of the "bamboo" spine in my lower thoracic and my cervical spine. the neck pain just literally started a couple weeks ago. the inflammation is just spreading so fast. and also my eyes just started burning. something is also affecting my muscles. i can't even exercise with having pain in the muscles after. this is crazy!
You have given many good home remedies to avoid this problem. I too had this problem and I started my treatment with Planet Ayurveda. Now I am fine. So, if anyone is facing such kind of problem or any other health-related problem. You should go to Planet Ayurveda.
Really hate hearing diseases labeled as predominantly affecting one or the other sex, because it perpetuates misdiagnoses for the minority. I am female suffered through 10 years of young life in pain and 15 misdiagnoses before a doctor finally considered AS. Was told many times it is not typically a female disease.
Earlier Last year I was diagnosed with Ankylosing spondylitis in 2019 and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum this herbalist through his email and he prepared me a herbal cure for Ankylosing spondylitis and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. They gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am nowAnkylosing spondylitis free, all thanks to Dr. Timothy You can also contact this great herbalist for help by email: timothydouglas3612@gmail.com or contact Dr. Timothy through his whatsapp number: +1(239) 977-4390 He is also specialize in treating all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES EPILEPSY AND MORE ...... He will also be of help to you
I keep thinking I have this but the doctor's say otherwise. the pain started in my pectoral minor, shifted to shoulder then elbow and my lower back always hurts when i bend in a certain direction. also on top of that my neck gets tight sometimes.
doctors can be a bit like mechanics they think they know everything but they don't.... demand a blood test to see if you've got it... if he doesn't give it to you go to another doctor that will give you a blood test for ankylosing spondylitis... there is now a cure but lifestyle can make a big difference... research
CONOR SAVAGELY BEAT KATE DIAZ it told me 12 years of going back and forth going to doctors before I got diagnosed. And Eye doctor ended up diagnosing me. On top of the excruciating back pain my eye got inflamed as well to the point where I went blind for several months (white fog). I started taking Humira a couple years ago and that helped the Most for me. No starch diets help too.
My mom has this. I think I do to. I had a chiropractor try to pop my back for several months and was unable to but finally got it to go. He told me I had fusions. this is before my mom was diagnosed. I feel like god awful shit all the time. No doctors want to help me because I am 27 and have fucked up teeth so I probably look like a drug addict or something. I just want to give the fuck up.
If you want I can help you, because sometimes before I also have the same problem of pain. Then I dignosed AS in CMC Vellore but now I m felling far better with the help of natural diet and supplements.
This disease can be easily treated. Without any drugs. Just 10 days fastining completely treats this disease. But after fasting need to be careful for having meal. There are procedure how to carry on after fasting. You can find from internet about fasting procedure.
CAC provides Pain o kill syrup.As In ankylosing spondylitis, a patient has to suffer from tenderness, severe pain, etc. The syrup plays the best role in reducing such types of symptoms because it contains various vata pacifying herbs such as Shudh guggulu, Ashwagandha, Nirgundi, Hadjod, etc. that acts as an anti-inflammatory, anti-oxidant, & analgesic in nature.
I just have watched about 1000+ videos based on AS. The age of raising AS is described as very confusingly. Here it shows 15-45yrs. Other videos said 17-30, 20-40 etc. Medical science is going down really. Funny
Those numbers aren't really all that different you know. It also depends on the country where the video was made. Canada and Europe might figure it out faster than a doctor in the US.
I was enjoying watching the simple way of describing AS, until I was chocked by an unforgivable fault which is drawing the left part of the heart wrongly! How can I continue watching your videos when detecting such a mistake! I have no confidence in you from now, I'm sorry!
AS IS ONLY DUE TO UNCONCIOUS REPRESSED RAGE AND THE NEED TO BE PERFECT AND GOOD. PERIOD. PAIN AND DIS-EASE FREE AFTER 7 YEARS. DON'T FALL FOR THIS INFORMATION. THERE IS A WAY OUT
Overbearing stress chronicly, in any way affects All (autoimmune) dis-ease. So you are spot on, never press down, find new ways to express downpressed feelings, stressrelease is so important. And Helpful (As is information on whats happening in the body)
Diagnosed 7 years ago at 40 years of age. I thought I was going mad, no one could tell me what was wrong with me after 20 years of pain getting worse. The best advice I can give is keep moving! No matter how much pain and stiffness you feel, keep your body moving every single day. Tai chi, yoga, stretching, walking, swimming, dancing, whatever you can do, the more variety, the better. This is definitely a case of use it or lose it my friends. Eat a healthy, low inflammatory diet, drinks lots of water. Wishing you all pain free days 🙏🏻
Hi @Ostara can you tell me more about low inflammatory diet? How are you doing? Are you taking biologic medications? Thanks!
@@DA-ju3iv sorry I didn't see your comment. The GAPS protocol is an absolute game changer. Hard at first but a whole lot better than pain! I take magnesium, iron, zinc and B vitamins daily also.
Hi @Ostara how often do you get flares?
I’m 44 and was diagnosed with spondolytis arthritis in 2020. I didn’t go yoga for one month and it was difficult to get back.
I ve been diagnosed with ankylosing spondylitis at 18 years old male and it came like a shock for me . The gene HLA-B27 was positive
Since i was a child, i was a spontanious person and i ve been practising a lot of sports. I was enjoying life and i loved my body. When i turned 15 years old, pains appeared in different spots of my body including: back, ankles, and especially knees, I thought its a normal thing wich occurs to normal people, but the pains didnt stop. There were getting worse and worse. Every morning i couldnt get out of my bed, i felt like my joints were fusing togheter. Im trying to have a healthy life based on fruits and vegetables and exercising. I cant stop this autoimune disease but im trying my best
Gabitzu1100
Microsoft is mapping the immune system and China is testing Crispr on humans. Have hope, and push legislators to fund research into autoimmunity and other genetic diseases.
I relate to everything you said there. From growing up playing sports to struggling to wake up every morning. It just feels like a challenge to even walk at times for me
If you want I can help you,
because sometimes before I also have the same problem of pain. Then I dignosed spindyloarthritis in CMC Vellore but now I m felling far better with the help of natural diet and supplements. 7979096118
Good for you. I hope whatever you try works to give you relief. Have you been to see a rheumatologist to give you a treatment plan? It can be quite manageable with the right treatment.
I was diagnosed with psoriasis at 9 and ank spond by the time I was 18 and had had it for some time (I wasnt diagnosed for ages because people kept accusing me of being lazy or weak because of my symptoms... and I believed them, like an idiot...)
Getting it before puberty was awful. Its a hard enough time and I was self conscious enough without all these massive scaly lesions covering my body. Add inexplicable joint pain/failure to that, and the regular bullying a lot of kids experience at school, and thats the thick fog of utter garbage that i waded through for 8 or so years.
I dont even cry right any more. It feels like I did it so much while growing up that now I have no tears left
Anyway point is I know how much it can feel like it's going to ruin your life, but that absolutely doesn't mean it has to. And I know how much it sucks that most people don't know much about it, and when those people dismiss your symptoms as whinging... it can wear you down.
But keep up the healthy diet. Move about where you can, consider going for a hot shower and then a walk every morning as both those are said to provide some relief. And as I said beforehand having a treatment plan from a professional is really important to help you stay on top of things. But if you can, you can live a relatively unaffected life without needing much luck or assistance at all.
Good luck!
I had no pains anymore for the last 3 years, but I live a healthy life and quit smoking. Smoking had a great impact in the evolution of the autoimmune disease.
So if you're a smoker think about quitting immediately!
I loved this video, it helped me so much! Thank you!
It would be great to make a group for people living with AS . We could share info and , be there for anyone who has just found out , or for the person that's had it for 70 years. Just a thought .
.
I love that I have no idea what this person looks like. She doesn't have the "Hey! Look at me" disorder so many people have. Much more useful to look at cartoons than someone on their couch or in a gaming chair. So thank you.
Thank you, khanacademymedicine. You did an amazing video. I'm very appreciated when watching it, it helped me a lots, brought the orders so that I could understand and took it into my case. Thanks again!
Very clear and informative! Thanks
Man i love khan academy :)
Actually AS starts on iliosacral joint and ascends to the lumbar portion of the spine not the other way around. 👍
Not always!
Not true, have a patient that is experiencing it in her legs as well
Gretel Bonilla mine moved into my legs back in October and the pain was crippling! I’ve had to start using a wheelchair if I need to be on my feet for more than a few minutes because the pain is too great and my legs seem to think it’s funny to collapse while I try to walk. LOL I hope your patient has a better experience than I have.
My AS started in my feet as a child, at 6 years old..i never had any other problems except legs pains I got it diagnosed at 7 and at 8-13 I started having severe back problems, I would have back spasms that would make me scream cry. The eye doctor found cataracts around the outer corner of the inside of my eyes at 9 it’s like it started in my feet and slowly went up Lol.
Thanks for this.
I have this disease and everything they're describing is my life!
amazing sound：）sounds so adorable~！
I have severe cronic AS and even my neck is effected, I have 5 vertibre in my neck that is fused. I can hardly move my back and I suffer from lots of upper back pain, Neck pain and really bad headaches. I went undiognosed for a long time in my life, The pain started when I was 19 in my lower back but I thought that it was normal back pain and never really talked with a Dr about it. I am 38 and only dignosed it two years ago.
depj1000 Hi mate I to have AS but have remained active even at times the pain just about killed me. I have found out starch and sugars antagonize AS, but the truth behind AS is that it can be treated and put in to remission with Copper Salicylate. Research Copper Salicylate like your life depends on it,as it does! I have had AS for 30 years and have looked everywhere for an answer to my suffering and Copper Salicylate is simply stunning and natural. Good luck from New Zealand.
depj1000 My friend is suffering from this, he's seeking stemcell treatment in Panama.
Morgan mckee
The only trial I could find was a double blind test about arthritis. The copper salicylate wasn't effective and it produced skin rashes. Any better evidence I'm just not finding?
with your neck pain do you suffer any numbness and tingling or pain in your arms? I may possibly have this condition but i was exercising and fine before my symptoms suddenly started. i've had a soar and stiff lower back on and off over 20 yrs and have strained it a few times but once i started doing massaging, stretching and foam rolling it improved. I want to know if this causes any issues with organs bcuz my whole body just suddenly started going crazy. pain and inflammation everywhere and has some RA symptoms too, swelling in my fingers, but i'm having issues with my muscles and digestion and now losing weight. I have lots of pain in my liver area and the headaches and neck pain is unbearable. it's like a nightmare and my pain always increases in the evening or nighttime when i try to relax or go to sleep. it's only been 6-7 months and it feels like my body is just shutting down. there has to be something else going on but docs are not finding anything or just not looking hard enough!
very helpful
those SPOTS we see.. YES THEY ARE THERE what we are seeing is individual or an accumulation of cells that have bound together.. they are shed from the retinal walls .. fast treatment with predforte is important to avoid having these cells block the flow of ocular fluid and building up pressure in the eye. I have chronic re occurring Eyeritis and was diagnosed with it along with AS in 1988
Why the extreme heel pain? It's been waking me up in the night hurting horribly
Thanks
I have got ankylosing spondylitis. I've learnt how to manage it to the extent that I don't have any symptoms at all anymore only if I really clean and healthy lifestyle which includes no drinking alcohol no taking any drugs or smoking ever.. 90% of my diet is vegetables and fruits live glycemic carbohydrates very little grains only Greens I have a sunflower seed flax seeds chia.. maybe a little bread here and there..
no dairy... maybe a couple of slices of cheese... I am 56 and got 10% body fat... about 40 days a week I run and... including martial arts 3 times a week.... I'm extremely healthy for my age... live a healthy lifestyle and you will have no problems... live an unhealthy lifestyle your life will be a mess.... which would you choose
Diet don't cause your pain to go away, you are clearly clueless about the disease.
Doctors are not trained in nutrition, it's more important than anything! Nutrition was my biggest help, too!
veronica dd thank you for shearing information.
B for Basti Doctors are in fact trained in nutrition.
veronica dd wow jogging and martial arts,most people that read your comment, straight away say themselves,bullshit,
AS can also affect other joints. I have AS in all my joints. I'm also girl and diagnosed when I was 8 so I'm a little atypical. 😁
Clair Williamson Same here. I started showing symptoms at about age 12 though. Heel pain. Was 26 when finally diagnosed though.
Hi every one I have As 4 about six years I am in pain all the time I walk with a can and I have to take enbrel 50 g/ml I don't no munch about as so if someone could tell me how I could be in less pain .what kind of food that helps as tjanku
Richard Johnson Research Copper Salicylate for arthritis and be prepared to be mind blown. Osteoarthritis,and AS etc are all caused by Copper deficiency in our diets. It's the very best single thing I have researched in 30 years of carrying AS through life.
OK I hear all about the "average" AS person! I am HLA-B27 negative female Dx at age 53! What is the research on the atypical patient such as myself?
Slower progression, less severe symptoms in women, that is why it is hard to DX In women.
Hi Karen. I am HLA-B27 negative also. Developed at around 40 yrs, diagnosed at 47 yrs. I believe my disease was triggered by a chronic DDT poisoning when I was 30. My disease was extreme toward the end, but I have found a highly effective CURE that is based on a radical dietary change. Google AS diet cure, or AS low starch diet, or Clint Paddison diet to get you started. The dietary change is fairly radical and strict, but it works for me, where pharma does not.
Cheers,
Matt
thanks
Paul French
would prefer more discussion on pathophysiology of the disease. the crux of this video was spent on extra-articular manifestations, with little discussion about the enthesitis which actually leads to spinal manifestations
Got me when you drew the aorta in the wrong spot (should be on the top of the heart). Know it doesn’t really matter but it messes with my brain.
HLA-B27 isn't always present with ASL patients
Abdus salam
every 1 look up the low starch diet ....a must .
Red strain kratom really helps my pain red bali strain its a miracle
this is such a slow description! Can't believe the heart is drawn back to front - this is NEVER how it is depicted!
I’ve had one sided back neck and hip pain that had gotten worse but I never have pain on my left side
Earlier Last year I was diagnosed with Ankylosing spondylitis in 2019 and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum this herbalist through his email and he prepared me a herbal cure for Ankylosing spondylitis and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. They gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am nowAnkylosing spondylitis free, all thanks to Dr. Timothy You can also contact this great herbalist for help by email: timothydouglas3612@gmail.com or contact Dr. Timothy through his whatsapp number: +1(239) 977-4390 He is also specialize in treating all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES EPILEPSY AND MORE ...... He will also be of help to you
My mom has had AS since she's had it her whole adult life. I am aware that's it's hereditary do to the HLA-B27 antigen which makes me twice as likely to experience its symptoms. I'm 25 and according to my research, people are diagnosed with AS when entering adulthood (17-18). To this day, I've shown no signs of the disease. Does that mean I've been exempt or do I still have a chance to contract it later in life? Thanks for your answer. Cheers!
You have the chance
i m expecting more detailed
WEIGHT LIFTING IS THE KEY FOLKS 💪🏼💪🏼💪🏼🏊🏼🏊🏼🏊🏼🏊🏼🏊🏼 AND SWIMMING
where is example of x-ray
Your incorrect. Spreading incorrect or misleading information is a bad thing and a major injustice to all of us suffering with the disease. 4 vital points here. 1) More men than women may have AS but it's much more common in women than you make it sound. 2) age onset of AS identification. With this disease, on average, many people are not actually diagnosed for many years with having AS. It's not unheard of for people to suffer many years prior to receiving a proper AS diagnosis. I personally had pain as a teen and it got worse and worse through life as I aged. By the time I was in my early 40's the pain was daily and more severe than words can describe. Drs had always dismissed me as being one of thousands of americans suffering from a simple backache. Until my middle 40's. I was ordered to get xrays, followed by bloodwork, then a MRI. The MRI finally showed what was needed to properly diagnose. 3) theirs no certain age group to AS. You listed a age range. AS diagnosis is so hard to make and receive earlier in the disease process. Fact is many people go several years (sometimes the majority of their life like myself) it took up until my middle 40's to finally get a diagnosis that showed my diagnosis based on visual evidence. 4)Just as its commonly stated that AS is primarily a man's disease. It's also often stated that you must be HLAB27 positive and almost always have to be male to have AS. YOU DO NOT HAVE TO BE HLAB27 POSITIVE TO HAVE AS. These wrong facts serve to confuse and misinform people furthering the already long times waited to get a proper diagnosis
I have hla b27 positive with L4 L5-S1.
I do too in same area, had a prodisc surgery done with a metal fusion below the prodisc. Shit sucks living with A.S, but we have to stay strong and not let it control us.
If you want I can help you,
because sometimes before I also have the same problem of pain. Then I dignosed spindyloarthritis in CMC Vellore but now I m felling far better with the help of natural diet and supplements. (email id-imamitkumar123@gmail.com)
Okay who wants some good news? I think I have managed to rid myself from ankylosing spondylitis and wanted to share my personal experience. Nearly 10 years a severe sufferer, and HLA-B27 positive. I have 2 words for you: Weight Lifting! Join a gym nowwww and do light/medium weight lifting. You won't be able to do anything in the beginning and it will hurt the following day like hell. It will hurt more and more as you go along, but keep at it, and take your normal pain killers while you continue working out. Work on your shoulders, back, buttocks, thighs.. keep lifting those weights. About 6-8 weeks later of daily weight lifting + stretches, come back and leave me a comment here. You can thank me later.
Aerobic exercise and weight lifting helped me for a long, long time, but I'm now 59 with AS and that plus the exercise has left me with years of damage including severe degenerative disk disease at L5-S1. Exercising without causing permanent damage is what I've been striving for. But I would likely be in a wheelchair now, like my sister, without the exercise.
Aerobic exercise and weight lifting helped me for a long, long time, but I'm now 59 with AS and that plus the exercise has left me with years of damage including severe degenerative disk disease at L5-S1. Exercising without causing permanent damage is what I've been striving for. But I would likely be in a wheelchair now, like my sister, without the exercise.
ماهر وحكيم asak plz I want to know about the treatment u have taken I also have hla b27
syed ali Akbar hussain
I agree with primalsack, somewhat. I have been diagnosed with AS in 2006. I had a serious bout some years later maybe because I took medicine occasionally. However, I started with Water Aerobics in 2013 and then after 3 months of it I started with weight training hiring a personal educated trainer I took medication seriously, now. My condition got very well. I became better than maybe a common human being. I could run, go trekking etc. I didn't have problem until now, 2017. However, I suffered from Jaundice this month and was admitted to hospital. I thought I will consult the doctor if Jaundice was a side effect due to medication. It turned out after the MRI that I have acute patchy edema in bone marrow and schmorls nodes at some places. The doctor said my disease is progressing even after taking medication Sulfasalazine and Etoricoxib. I would like to tell You that I was living normal life and had no idea that such things were happening internally. I do not know if the edema is due to weight training or something else. I will meet the doctor today and will let you know what is the scenario, he has asked me to take Tnf Alpha blocker injections. I am worried.
mam I think your left auricles and ventricles are misplaced and took aorta with them.
Can the pain only be one sided
well it looks like i have both RA and AS because I had a RF of 107...this suddenly erupted on me last august and just kept getting worse over the last 6 months. now this week my RA specialist just told me he thinks i have AS bcuz he sees the beginning of the "bamboo" spine in my lower thoracic and my cervical spine. the neck pain just literally started a couple weeks ago. the inflammation is just spreading so fast. and also my eyes just started burning.
something is also affecting my muscles. i can't even exercise with having pain in the muscles after. this is crazy!
How dare you draw the left side of the heart on the actual left side 😂 I was so confused.
You have given many good home remedies to avoid this problem. I too had this problem and I started my treatment with Planet Ayurveda. Now I am fine. So, if anyone is facing such kind of problem or any other health-related problem. You should go to Planet Ayurveda.
If I have the HLA-B27 would I have AS!?
Not necessarily, you can have the gene and not have AS, but you can't have AS without the gene.
why is Left v on the right side
Really hate hearing diseases labeled as predominantly affecting one or the other sex, because it perpetuates misdiagnoses for the minority. I am female suffered through 10 years of young life in pain and 15 misdiagnoses before a doctor finally considered AS. Was told many times it is not typically a female disease.
Is this also called Bechterew Disease?
Jannick Achtergaele yeah it is
Yes
Correct me if I am wrong, but since when aorta comes from Left Ventricle?
The presenter has a long way to go with presentation skills and quality.
HODOR??
HODOR
I have Ankylosing Spondylitis
Earlier Last year I was diagnosed with Ankylosing spondylitis in 2019 and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum this herbalist through his email and he prepared me a herbal cure for Ankylosing spondylitis and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. They gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am nowAnkylosing spondylitis free, all thanks to Dr. Timothy You can also contact this great herbalist for help by email: timothydouglas3612@gmail.com or contact Dr. Timothy through his whatsapp number: +1(239) 977-4390 He is also specialize in treating all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES EPILEPSY AND MORE ...... He will also be of help to you
I keep thinking I have this but the doctor's say otherwise. the pain started in my pectoral minor, shifted to shoulder then elbow and my lower back always hurts when i bend in a certain direction. also on top of that my neck gets tight sometimes.
doctors can be a bit like mechanics they think they know everything but they don't.... demand a blood test to see if you've got it... if he doesn't give it to you go to another doctor that will give you a blood test for ankylosing spondylitis... there is now a cure but lifestyle can make a big difference... research
+veronica dd what's the cure?? is there a link? I need to know ...
CONOR SAVAGELY BEAT KATE DIAZ it told me 12 years of going back and forth going to doctors before I got diagnosed. And Eye doctor ended up diagnosing me. On top of the excruciating back pain my eye got inflamed as well to the point where I went blind for several months (white fog). I started taking Humira a couple years ago and that helped the Most for me. No starch diets help too.
So... I just read most of the comments and now I’m scared. 😑
Okay so this is a posterior view of the heart...
Haha yeah, that bugged me as well
My mom has this. I think I do to. I had a chiropractor try to pop my back for several months and was unable to but finally got it to go. He told me I had fusions. this is before my mom was diagnosed. I feel like god awful shit all the time. No doctors want to help me because I am 27 and have fucked up teeth so I probably look like a drug addict or something. I just want to give the fuck up.
I am very depressed. If you have AS, get ready.
If you want I can help you,
because sometimes before I also have the same problem of pain. Then I dignosed AS in CMC Vellore but now I m felling far better with the help of natural diet and supplements.
@@iamamitkr96 tell your number bro i am tamilnadu i am also affected AS
spondilos stands for vertebra
thanks alot for this informative vedio ,,,,but in 6.00 m you said if you have uveitis you might have an aneurysm!!!!
vocal fryyyyyy
no any brief matter
We don't want this types of lectures we want cures!!!
This disease can be easily treated. Without any drugs. Just 10 days fastining completely treats this disease. But after fasting need to be careful for having meal. There are procedure how to carry on after fasting. You can find from internet about fasting procedure.
CAC provides Pain o kill syrup.As In ankylosing spondylitis, a patient has to suffer from tenderness, severe pain, etc. The syrup plays the best role in reducing such types of symptoms because it contains various vata pacifying herbs such as Shudh guggulu, Ashwagandha, Nirgundi, Hadjod, etc. that acts as an anti-inflammatory, anti-oxidant, & analgesic in nature.
Who else is here from Zach's TryGuys vlog?
WHO'S HERE FOR ZACK CORN DIDDY
I just have watched about 1000+ videos based on AS. The age of raising AS is described as very confusingly. Here it shows 15-45yrs. Other videos said 17-30, 20-40 etc. Medical science is going down really. Funny
Those numbers aren't really all that different you know. It also depends on the country where the video was made. Canada and Europe might figure it out faster than a doctor in the US.
It's an age range moron.
In my opinion, you are giving way to much irrelevant information
I was enjoying watching the simple way of describing AS, until I was chocked by an unforgivable fault which is drawing the left part of the heart wrongly! How can I continue watching your videos when detecting such a mistake! I have no confidence in you from now, I'm sorry!
ali jaber "this is not anatomic". She literally addresses it
AS IS ONLY DUE TO UNCONCIOUS REPRESSED RAGE AND THE NEED TO BE PERFECT AND GOOD. PERIOD. PAIN AND DIS-EASE FREE AFTER 7 YEARS. DON'T FALL FOR THIS INFORMATION. THERE IS A WAY OUT
No,it's an actual disease , positivity helps but it's not enough
Overbearing stress chronicly, in any way affects All (autoimmune) dis-ease.
So you are spot on, never press down, find new ways to express downpressed feelings, stressrelease is so important. And Helpful
(As is information on whats happening in the body)