Myasthenia gravis treatment at the University of Michigan
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- Опубліковано 14 гру 2010
- U-M gives grandma her life back with treatment for neuromuscular disorder - This Christmas, Marie McMillan can bake and decorate holiday cookies with her grandson -- and she won't take the holiday tradition for granted.
About two years ago, she couldn't bake. She couldn't walk, speak clearly, swallow or even keep her eyes open. McMillan suffered from myasthenia gravis, a disorder that blocks the impulses that go from the nerves to the muscle, resulting in muscle weakness. Patients end up developing weakness of the muscles of the eye, of the face, of the throat and even the breathing muscles, as well as the arm and leg muscles.
McMillan ended up at the University of Michigan Health System and remembers that she didn't even have the strength to keep her eyes open as she was wheeled into the hospital the first time. But her strength improved almost immediately after her first treatment from Kirsten L. Gruis, M.D., M.S., associate professor in the Department of Neurology. - Наука та технологія
My husband has this condition and he is getting this infusions next week I'm praying for a full recovery.
Hi Dr. Gruis :) She has moved on now but I used to see her. I was dx at 10, now 52.
I've had ocular MG for about ten years...A couple of years ago, I received my third IVIG treatment and (knock-on-wood), I've been symptom free since that time...The first line of treatment for MG is usually mestonin, which is great if you like having an upset stomach all the time and need to go the bathroom every half hour! The IVIG treatment worked great for me...
Hi
Please where can I have it done and how much? Am in Africa please help
Life is always beautiful when you be with the true person you love. For almost a year my lover had broke up with me and I was lonely and sad luckily I was directed to a very kind and Great spell caster Dr imonitie who helped me to bring back my lover to me and today I am with him now and happy together and very grateful for what you have done for me Dr imonitie via doctor imonitie
OR what app on +2348141751132
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@@florencesimukoko1997 same here
Hi all :) I'm a sufferer of MG - my disease is generalised, extremely severe and refractory to treatment... I am on very high doses of steroids, MG meds and anti-rejection meds (all immunosuppresants) and have ivig every 2 weeks. I am also being treated with a chemotherapy drug called Rituximab (Mabthera) which I will need to repeat every 3-6months for the rest of my life along with the ivig. I have had 2 crises in the last 8 months (where I become zoo paralysed that even my breathing muscles stop working...) Let me tell you, this disease is truly terrifying. I was I'll for 12 years before diagnosis at beginning of 2018. I am only 28... Without IVIG I would DEFINITELY not be here today!!
What's ivig
Im going to do this as well!
Hi. Can you let us know what other countries offer this treatment and more information because many countries are still behind in receiving assistance or education to help their love ones get the best treatment for better quality of life. Kind Regards.
+Victoria Mora
Below is my story and how diet (life style helped me). Hopefully this info can help others.
I have MG and it started in 2012. I am taking Mestion. My symptoms started to go away after I started a vegan diet and after four months I am now 95% symptom free. I had most of the symptoms as you describe. Info on autoimmune disorders can be found in the book The China Study. I also improved other health parameters as weight loss, cholesterol down 40 pts, BP down to 110/60. This is a life style change but eliminating animal protein from my diet was essential to my recovery. There are no bad side effects with the change to vegan diet. Be sure to take a B12 supplement. There is a lot of info online about whole food plant based (vegan) diets. See Nutritionfacts.org and DrMacdougall.com
Animal protein (particularly dairy) in my case is the culprit in auto immune disorders.
@@johnkammer277 you are very lucky to know what the culprit is in your mg. I've never heard of anyone who actually knew what their culprit was. Thank you for sharing, but I, unfortunately can't use the information. I tried the vegan diet for almost a year and really, it didn't do much for me. I felt a little better in the beginning but after awhile it wore off and I was back where I started. So I went back to my No Diet diet but semi vegetarian.
You gave it a good try. I think everyone reacts differently. I recently took an antibiotic and some symptoms came back.
Life is always beautiful when you be with the true person you love. For almost a year my lover had broke up with me and I was lonely and sad luckily I was directed to a very kind and Great spell caster Dr imonitie who helped me to bring back my lover to me and today I am with him now and happy together and very grateful for what you have done for me Dr imonitie via doctor imonitie
OR what app on +2348141751132
Him email drimonitiehome@gmail.com
My husband has Myasthenia Gravis and just finished 5 days consecutive infusions, but has not been able to keep his eye lids open. How many infections did you get? Hope to hear from you!
Same problem with me
Iam suffering from MG
I cant open my eye lid
Suffering from 6 months
Taking gravitor and mofilet(medicine) from last 4 months
Please tell me after how much time will the symptoms go
Hi! I'm from Nigeria. I was diagnosed of myasthenia in 2012 when I was 12 years old and until now I'm still suffering with it. Mine has stopped me from moving into college, it weakens my whole body each time it starts. I was placed on pyridostigmine and prednisolone 8 hourly for everyday. There are no improvements, it's only getting worse everyday. I've experience MG crises alot of times, I got completely paralyzed and wasn't able to breath, walk, chew or even talk. I was like a cops. Please I need you help.
Omg samething is happening to me right now!!!!!! Im going to emergency and on the same meds you are on. Its like the older you get the worst you become
Same problm with me plz shair ur experience....
I'm from Nigeria too, I was diagnosed of ocular MG April 2021 my eyelid can't open I have been on same medication with you nothing is happening. I need help
Do we feel body lightness in mg
Please answer
DoesBack muscles feel very weak and light ?
Hi kindly help me I have myasthenia for 14yrs now
Maggie Chege iam from India iam also suffering from myesthenia gravis from 4 years iam fed up of eating steroid that is why iam going for vegan diet it is AIP iam feeling better now. Plz avoid eatting foods which causes inflammation in ur body. Eat gluten free foods. Iam following adamimmune youtuber channel.this channel might help you.
Had it for about 20 years. I am 20 btw🤣
what things cause inflammatory explain it?
Life is always beautiful when you be with the true person you love. For almost a year my lover had broke up with me and I was lonely and sad luckily I was directed to a very kind and Great spell caster Dr imonitie who helped me to bring back my lover to me and today I am with him now and happy together and very grateful for what you have done for me Dr imonitie via doctor imonitie
OR what app on +2348141751132
Him email drimonitiehome@gmail.com
Im indian ples help 9month to start,titment bay bangur neurosince
Symptoms kya h
Most insurance plans don’t cover this treatment.
It is horrible, insurance decide if person can live?