24. 6.21 Treatment Updates and Patient Outreach Program with oneAMYLOIDOSISvoice.

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  • Опубліковано 24 січ 2025

КОМЕНТАРІ • 20

  • @odaynedaley7080
    @odaynedaley7080 Місяць тому +1

    Thank you for your courage and selflessness Dan. Keep spreading the word!

    • @DanLier
      @DanLier Місяць тому

      Hi.. and thank you. You ares so welcome! I hope you join us on our weekly outreach sessions. What type of AMY to you have?

  • @alicjapiegatowska1949
    @alicjapiegatowska1949 7 місяців тому +3

    Hi Dan, I am very glad you are getting better. I was diagnosed in late 2020 with stage 1 AL light chain amyloidosis, had in early 2021 six weeks therapy with CyBorD and mid April the autologous stem cell transplantation after high dose chematherapy. I am "clean" since then and take no medication. As a passionated cyclist I started cycling a month after the transplantation, constanlty gaining my strenght back. Never felt better in my life! Greetings from Switzerland!

    • @DanLier
      @DanLier 7 місяців тому

      wow, that’s incredible. Good for you! Thank you for sharing!!

  • @billinct860
    @billinct860 7 місяців тому +2

    Good to see you again! I like that white hair!

  • @elizabethbeauchamp6580
    @elizabethbeauchamp6580 7 місяців тому +1

    Great to see you again Dan! I was diagnosed in 2018 and am on kidney dialysis. It's not fun, but I still feel so much better than I did before my kidneys failed. I had chemotherapy for about 18 months in 2019 and 2020 and my numbers are still good. I'm so happy that you are doing so well Dan! Keep us informed!

    • @amyloidosismyjourneytosucc4995
      @amyloidosismyjourneytosucc4995  7 місяців тому +1

      Hi Elizabeth.. glad you are feeling better. No, doesn't sound like fun. Hang in there and hopefully I'll see you on our next Wednesday zoom

  • @shandusa
    @shandusa 7 місяців тому +1

    Bravissimo Dan, I am so glad you are doing awesome.

  • @randisoylandakabarnabaslyn5764
    @randisoylandakabarnabaslyn5764 7 місяців тому +1

    Good to see you, Dan!

  • @BuckRidgeHomestead
    @BuckRidgeHomestead 7 місяців тому +1

    That’s great. I’m so happy your numbers are in the normal range or at least going down! Are you on Dara?

  • @amyloidosismyjourneytosucc4995
    @amyloidosismyjourneytosucc4995  7 місяців тому

    Register Here: us06web.zoom.us/meeting/register/tZAuf-GuqzgsEta_IXHOSmCoFu9Lj-oRXE1C

  • @odie324
    @odie324 7 місяців тому +1

    I was diagnosed in 2021 with aa amyloidosis. I'm on dialysis I'm having a hard time finding a doctor. I live in Philly do u have any suggestions?

    • @amyloidosismyjourneytosucc4995
      @amyloidosismyjourneytosucc4995  7 місяців тому

      Let me see what I can find out....

    • @pinkyrose2116
      @pinkyrose2116 6 місяців тому

      Can you help me also I am in egypt (arabic country) with renal amyloidosis and on dialysis but not diagnosed type of amyloidosis till now ....only on dialysis ​@@amyloidosismyjourneytosucc4995

  • @thedopesoapmaker
    @thedopesoapmaker 7 місяців тому +2

    🤍🤍🤍

    • @DanLier
      @DanLier 7 місяців тому

      Hi Gina!