Hi Dan, I am very glad you are getting better. I was diagnosed in late 2020 with stage 1 AL light chain amyloidosis, had in early 2021 six weeks therapy with CyBorD and mid April the autologous stem cell transplantation after high dose chematherapy. I am "clean" since then and take no medication. As a passionated cyclist I started cycling a month after the transplantation, constanlty gaining my strenght back. Never felt better in my life! Greetings from Switzerland!
Great to see you again Dan! I was diagnosed in 2018 and am on kidney dialysis. It's not fun, but I still feel so much better than I did before my kidneys failed. I had chemotherapy for about 18 months in 2019 and 2020 and my numbers are still good. I'm so happy that you are doing so well Dan! Keep us informed!
Can you help me also I am in egypt (arabic country) with renal amyloidosis and on dialysis but not diagnosed type of amyloidosis till now ....only on dialysis @@amyloidosismyjourneytosucc4995
Thank you for your courage and selflessness Dan. Keep spreading the word!
Hi.. and thank you. You ares so welcome! I hope you join us on our weekly outreach sessions. What type of AMY to you have?
Hi Dan, I am very glad you are getting better. I was diagnosed in late 2020 with stage 1 AL light chain amyloidosis, had in early 2021 six weeks therapy with CyBorD and mid April the autologous stem cell transplantation after high dose chematherapy. I am "clean" since then and take no medication. As a passionated cyclist I started cycling a month after the transplantation, constanlty gaining my strenght back. Never felt better in my life! Greetings from Switzerland!
wow, that’s incredible. Good for you! Thank you for sharing!!
Good to see you again! I like that white hair!
Thank you... and Thank you!
Great to see you again Dan! I was diagnosed in 2018 and am on kidney dialysis. It's not fun, but I still feel so much better than I did before my kidneys failed. I had chemotherapy for about 18 months in 2019 and 2020 and my numbers are still good. I'm so happy that you are doing so well Dan! Keep us informed!
Hi Elizabeth.. glad you are feeling better. No, doesn't sound like fun. Hang in there and hopefully I'll see you on our next Wednesday zoom
Bravissimo Dan, I am so glad you are doing awesome.
thank you so much.. How are you?
Good to see you, Dan!
HI... thank you!!
That’s great. I’m so happy your numbers are in the normal range or at least going down! Are you on Dara?
Thank you... no, Dara wasn't available when I started. I'm on Venclexta right now.
Register Here: us06web.zoom.us/meeting/register/tZAuf-GuqzgsEta_IXHOSmCoFu9Lj-oRXE1C
I was diagnosed in 2021 with aa amyloidosis. I'm on dialysis I'm having a hard time finding a doctor. I live in Philly do u have any suggestions?
Let me see what I can find out....
Can you help me also I am in egypt (arabic country) with renal amyloidosis and on dialysis but not diagnosed type of amyloidosis till now ....only on dialysis @@amyloidosismyjourneytosucc4995
🤍🤍🤍
Hi Gina!