Crohn's Unfiltered: INSANE Preauthorization Fight for Remicade Infusion | Vlog |
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- Опубліковано 10 вер 2024
- Hey peeps! "What's the worst that can happen?" Is never a question you should ask during a gap in treatment due to preauthorization. Because this year the answer to that has been one of the most painful experiences of my life...and I've dealt with anal fistulas!
Preauthorization is something insurance companies do at the beginning of every year to determine whether or not a treatment plan, like Remicade (infliximab) infusions in my case, or medical procedure is medically necessary.
It is an awful time of year for any person struggling with chronic illness, but one we can get through together. Buckle up for one of my "story time" talks dripping with sarcasm and my dark humor. Trust...if I didn't laugh I would cry.
Crohn's disease is something that I carry everywhere and therefore I wear it like a favorite coat. Be prepared for an unfiltered, unvarnished look at my life as a queer, disabled badass. If you're a crohnie...this vlog is for you.
Soundtrack - Epidemic Sound: "Dance the Night Away" Siine featuring Frank Moody
#crohnsdisease #crohns
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🤣🐶 Taking care of Brylee's folds and then yours. Funny...not wrong...but I would do anything for you. No peace prize necessary. ♥
Watching you struggle this month has been really hard. I wish I could show the behind the scenes to the insurance company. Wish they would care how much pain you're in.
Love you and chunkers to he moon and back. ♥🐶
Ditto hubs. You’re my rock. 💜❤️💜💯
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The constant battle to get things approves, and the repeating battles once one that works is found IS A NIGHTMARE!
It truly is. We were griping about it for your daughter in chat on your stream this week. Our system is the worst. Or so I think.
Love ya friend.
@@BarrettLaurie The pain of shingles was worse than my migraines, and with people with us who have crazy pain tolerances, normal people would be screaming or passing out if they had to endure the stuff we fight through on a normal day.
Sir Rick is our hero.
@@PenumbraMineMMWard you so get it. All of that.
And Ricky is always my hero. 💜❤️💜💯
@@PenumbraMineMMWard 💜
Oh my gosh, Barrett! That was the worst! That’s good you are offering these informative insights for people, to help them combat these issues. Continued blessings with your health and experiences.
Thank you my friend. I so appreciate the love and support. 💜💯
@@BarrettLaurie 💕🥰
I just discovered your channel. Thank you for sharing your story. I applaud your humor and insight with your struggles with insurance! I know of many people who have had similar experiences with their insurance companies. Your channel is very helpful!
Thanks @maryellenblount6376 I appreciate the kind words. Putting it all out there is a little scary, but I have found it to be worthwhile. I get as much out of it as the folks that connect with the content.
I'm so glad you stopped by and left me a message! Hope you have a great week!
You are an amazing person and inspiring. I was diagnosed with cancer a few months ago and watching you gives me hope I can do other things than focus on my illness while still tending to my illness. Thank you Barrett. Hoping all your insurance issues become easier in the future.
Oh Bonnie I’m so sorry to hear that, but know that you’re going to be okay. If there is anything I can do for you, even to be a place where you can go to vent let me know. We can do a backstage hangout, or emails. Whatever you need.
Sending you all my love, support and good energy. 💜💜💜💜
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Oh My goodness!! Dot I had no idea what you were talking about was THIS year! Honestly I have never been happier to be on a public health system ever in my life. The trouble with insurance companies is they obviously don't want to spend the money so they deny automatically and hope the squeaky wheel just goes away. But never have I ever heard the BE THE SQUEAKY WHEEL said so appropriately.
Here Down Under is a completely different system. While it has its major problems at least when you have a problem you can get the treatment for it. Where I live there is no charge for ambulance or hospital admissions . The ongoing treatment is another case entirely. In my case it has been two years of battling to get disability support ( because I had too much money in the bank *) don't get me started on that. Basically I had to wait two years for a treatment that isn't going to work (or has low percentage of chance of working) but at least it is something.
Bless Rickie for taking care of your folds!! and Brylee's he definitely qualifies for the Peach Prize
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My Bestie has had regular shingles for her whole life around her eye and face, it is true that the pain is the worst. Stress is the leading cause. Basically its an immune response to a virus (chicken pox) or in her case Blepharitis ( which is a inflammation of the tear ducts) luckily she now has regular medication and washes her eyes out with baby shampoo and hasn't had shingles for a couple years now. I remember when she looked like the elephant man it was truly terrible .
Okay short story over.
I love you Dot!! you really are a blessing and the fact that you are vlogging during this process... wow
❤💜❤
Suey!! Thank you so much for this post. Our system is completely broken. And my story really highlights the pieces of it that aren’t working. And remember, I’m lucky enough to have coverage. Some don’t even have that. 😞
I’m so sorry to hear about the disability benefits. We have a similar system here in the states. I would have qualified for disability benefits, but would have had to divorce my husband (too many assets), given up my savings - including retirement savings, and signed over my property to my husband or mother (car, home, etc.). How does that make sense? Why must disabled people also be destitute to warrant support from the state? I don’t get and never will.
Thank you so much for your thoughtful response. This is a journey and I’m glad you’re on it with me.
Love ya Rose! 🌹 💜❤️💜
Sounds all too familiar. We have a federally funded program for disability but you have to basically have spent all your own money before you can even apply.
However it is not as bad as the states.
Thank you public health!
It is so nice to have an offsider to share the journey with Dot xxxx @@BarrettLaurie
"House comes in..." 🤣🤣dear christ
Seriously though…where was he?
Keeping paws-itive 🐾❤🔥
This…💜
Than the Lord and the universe for your doctor and your support system. The health care system is so broken and is the people they exist to serve that suffers. You are a rockstar, friend!!!
You’re one of my ride-or-dies and I’m so grateful to have you in my orbit. Thank you and hugs friend. 💜❤️💜💯
That is terrible, and I hope that you get the approval. Glad you seem to be feeling better from the shingles, and rashes. So happy that you have a doctor ready to go to bat for you, and the awesome nurses at your G.I. Doctors office since they do a lot of the fighting for you.
I don’t know if I told you, I am taking Humira instead of Remicade because insurance approved me getting it but wouldn’t approve locations that were accessible easily, would have had to get someone to drive me and hour or two hours. And it took until December for things to get figured out. My G.I. was so apologetic because I should have been on new meds in October, or early November. Started Humira injections December 18th. Currently taking old meds and Humira until change is shown in my bloodwork. Fingers crossed body accepts it and feel better way sooner.
I’m trying to start journalling in general so that can track better. Cause though we have different IBD’s tracking very similar things.
Kat! Thank you for the good vibes and update. I have several friends who respond really well to Humira. I’m crossing my fingers for you that this goes to plan.
So frustrating that the location matters. It is just an excuse to not approve it. For example, when my doctor tried to get me a home visit, my home “wasn’t big enough” for a home visit which is why my health insurance company denied me. They require 1500 sq ft and our house is 1,475…why does this matter? WHO knows?!
So then we tried my mom’s house which is 2k sq ft, and …it was denied because she is too far from their office. Her home 3.8 miles from the infusion center location. So…so frustrating.
Some day we can do a gripe stream about insurance. Morgan Lee has some horror stories too. Ugh.
So proud of you Kat! Keep plugging along. I’m here if you need me. 💜
@@BarrettLaurie 💜💜💜💜💜💜
What a nightmare!! Really hope things improve on that front 🙏
Thanks Andy!
Oh wow. I'm so sorry you've been going through this. You'd think the gov't would step in to correct something that happens every year for the vulnerable citizens of the country. I hope this is the final time you'll have to go through this with the insurance company after they learn all the pain and stress they've caused you and your family. Love you friend. Hoping this all gets easier soon.
Thank you so much! I wish our govt would fix this broken system but I worry that won’t happen. 😞
Good news is I won’t face this again because infusions will be end of month. Whew. Finally.
Thank you for the love and good energy. It’s been a rough month.
@@BarrettLaurie ❤❤❤
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Wow. That sounds horrible. Unfortunately, health insurance companies are in the business of making money, not in taking care of patients. It is a broken system where care providers are incentivized to not provide or support care of their customers. I'm sorry you had to suffer through so much pain. Stay strong.
Thanks Ben. That is so true. Appreciate you my friend. This too shall pass.
Not me noticing Brylee on the bed tryna be part of the furniture 2 min in... 💗
Bless her. I bore her to tears. No chimkin, no interest.
What is chimkin??@@BarrettLaurie
@@MargaretPinard its doggie talk for chicken. I have no idea where is started, but every other bulldog vid Ricky sends me is about chimkin. And how our bulldogs would sell us down the river for it!
I have WAY too many pictures of her "melting into the furniture." 😆
Insurance companies should not have this kind of control over a patients care or treatment. Its criminal!
PREACH! This is so true. The struggle every year for the care we need is exhausting. I can only hope it changes soon!
This makes me so angry on your behalf. Had shingles when I was 9 after appendix surgery, still remember it and was not fun. American health care sucks or at least the insurance companies do. Missed my injection this month but only because my car died, the wear off was not fun. Just feel for you ❤
Thanks my friend. Our system sucks a big toe. Truly. The very same drug here costs providers in the UK cents on the dollar. So frustrating to have a for profit healthcare system.
I hope you’re healthy and well friend. Appreciate the solidarity!
Sneaky sidling up to you on the phone to gather intel....NOT ON THE LEVEL ("Bad form, Peter!")
This whole situation was an experience.
I live in Europe (currently Italy) taxes are high but State health care is practically free & completely free for Low-Income folk... I have diabetes so ALL my necessities including blood sugar test-gadget/strips/pens/finger-puncher/insulin hospital visits etc are free (even for NON low incomes coz all chronic illnesses are exempt from payment including asthma mental health & of course Chron's)
Ciao🙋🏻♀️