Autism Starter Kit for Newly Diagnosed Adults ❤️‍🩹🤗⛑

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  • Опубліковано 2 чер 2024
  • Receiving an autism diagnosis as an adult can be disorienting and confusing. 🤔You’re the same person, but seeing yourself in a different light after years of thinking you were just having a hard time fitting in. Where do you begin navigating the world with this new information? Which resources do you need in order to allow the truest version of yourself to shine through? 🤷‍♀️🧸
    In this video, Tay shares a few practical tips you can implement today as you learn how to support yourself after an adult autism diagnosis. 👊
    💻 ONLINE COURSE How to Unmask: Cultivating Your True Autistic Self: taylorheaton.podia.com/how-to...
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    8901 Tehama Ridge Parkway, Suite 127
    PMB 680
    Fort Worth, TX 76177
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    WhatDreamsAreMadeOf # IsThisMyLife
    Click on any of the blue timestamps below to jump to a specific section and please ⭐️SUBSCRIBE ⭐️to help support my channel and allow my videos to show up more easily for people like us!
    💻TIMESTAMPS ⏰
    (click a blue time marker to jump to a specific section)
    What is stimming? (0:29)
    I just got an autism diagnosis. Now what? (0:36)
    You are ok. (1:04)
    You don’t have to share your diagnosis. (1:08)
    You need time alone. (1:32)
    Give yourself permission to stim. (2:03)
    The way you experience the world is different and that's ok. (2:36)
    Special interests are important. (3:04)
    Setting boundaries is essential. (3:39)
    One step at a time. (4:09)
    📱RESOURCES 🤳
    Sensory Toys and Tips for Sensory Regulation (video): • Nervous System Regulat...
    Yoga for Sensory Regulation/Autistic Adults (video): • YOGA FOR AUTISTIC ADUL...
    Balancing Boundaries and Social Events (video): • Balancing Self Care an...
    Autistic Meltdowns and Shutdowns (video): • Autistic Meltdowns Vs....
    Aaron's Thinking Putty (product - not sponsored):
    www.amazon.com/Crazy-Aarons-S...
    ____________
    I'm Tay, a married mom of 2 who was diagnosed with Autism at 31 years old. This was after YEARS of therapy (and all of the self tests in the world!). My diagnosis has brought up questions, frustration, doubt, but most importantly, a new level of self compassion and understanding.
    I'm here to share knowledge, resources, and products that empower other neurodivergents (and their loved ones) to live freely and creatively. I'm not a doctor so please speak with your healthcare providers before implementing any recommendations I make on my channel.
    Females are under-diagnosed due to both lack of research and awareness. Please share any videos that are helpful to you so we can spread awareness and acceptance.
    Music by Milky Wayvers ("Mountain")
    / milky-wayvers-mountain \
    Thumbnail Photo by shawnee wilborn on Unsplash
    #autism #autistic #aspergers

КОМЕНТАРІ • 153

  • @sueannevangalen5186
    @sueannevangalen5186 2 роки тому +216

    Hi, I am a new subscriber to this channel. I'm 45 and just figured out I'm on the spectrum over the summer, so I'm currently self-diagnosed and going to be seeking formal diagnosis in the coming months. RE: stimming. I didn't really notice that I flap my hands when I'm excited about something until I realized I'm autistic. My non-verbal autistic eight-year-old son does, too. One evening, within the last couple of weeks, I flapped my hands in front of him for the first time. Oh, his face just lit up. He hummed and grinned and rocked a little bit. When I stopped, he reached over and lifted my arms as if to urge me to keep flapping. It was one of the most beautiful moments of my life 🙂

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +26

      Ok I got chills when I read this!! Thank you so much for sharing this precious moment with me! And welcome to the channel! Please let me know if there are any specific topics I could cover that might be helpful to you.

    • @sueannevangalen5186
      @sueannevangalen5186 2 роки тому +9

      Thank you for the warm welcome. This channel is helping me feel less alone.

    • @sueannevangalen5186
      @sueannevangalen5186 2 роки тому +9

      I hope life will get better for my son now that I know I'm like him. Having said that, there are specific challenges to being an autistic parent to an autistic child who needs a higher level of support than I need. I'm learning, for example, that my son's reasons for not being able to initiate a trip to the potty might be the same reasons why I struggle with being able to prepare a home-cooked meal. But I'm having the same executive function fail when it comes to initiating his trips to the potty, too, and he remains untrained. I was wondering if there are any tips on how to deal with that sort of thing. If not, that's okay 🙂

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +8

      @@sueannevangalen5186 Good question! I will try and provide some resources on executive function and potty training. It took my youngest a long time to get potty trained. Every says they will eventually be ready in their own time, and even though that can be frustrating to hear, it has proven true for us. Sorry to hear you're having those struggles! I'll see what I can do to provide some resources on that topic. Thanks for the suggestion.

    • @sueannevangalen5186
      @sueannevangalen5186 2 роки тому +3

      Thanks, Tay 🙂

  • @carriemummy
    @carriemummy 9 місяців тому +39

    I got diagnosed yesterday at the age of 56. I thought I had researched autism a lot, maybe even too much, I thought, for going for my assessment. Turns out there are some things I didn't know about and had no idea how other people experienced them differently from me!

    • @jenbloom6848
      @jenbloom6848 5 місяців тому +2

      Same age, same thoughts. I haven’t been officially diagnosed, but I’m working towards it.

    • @heidielise6712
      @heidielise6712 4 місяці тому +1

      I am newly (self) diagnosed at 56 as well, although my counselor is in agreement.

    • @kikijewell2967
      @kikijewell2967 Місяць тому +2

      As I am also about this age, I thought I'd suggest that: the reason is we've been able to cope so far _has been in an unsustainable way_ and many of us find around this age that we have autistic burnout, and can't seem to cope in the ways that worked before.
      So we seek medical support.
      But....sadly, there really isn't a diagnosis for autistic burnout, much less support. Add to that skills regression due to the diagnosis and readjustment to our understanding of ourselves and the world.
      But the un-copable burnout is due to a lifetime of masking in an unsustainable way.
      Looks like mid-50's is a common turning point.

  • @KMx108
    @KMx108 Місяць тому +3

    My mom was so excited to tell me she learned that AuDHD was a new "thing" that fit me. It makes sense. Total sense. Im 48 and finally making sense of all my challenges. Btw i love how fast you deliver info in this video. I usually speed up videos, but not this one. My mom is always asking me to make it normal speed so she can understand what's being said and it sounds like super slow mo and stresses me out / gives me anxiety. Your speed is perfect. ❤

  • @siennaprice1351
    @siennaprice1351 2 роки тому +36

    I’m a female on the autism spectrum, and I have complex PTSD. I really enjoy sensory toys and equipment. I also love music. CPTSD on top of autism can be hard. I won’t go too deep into what my CPTSD was from, but I’ll say it was for almost 10 years of nonstop craziness. I try to mask my CPTSD more than my autism.

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +3

      Goodness. Sounds like you've been through a lot. Thank you for sharing part of your experience here and for watching. Please let me know if there are any specific topics I could cover that might be helpful to you! Sending you well wishes!

    • @siennaprice1351
      @siennaprice1351 2 роки тому +3

      @@MomontheSpectrum do you think you could do a video on autism andPTSD?

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +2

      @@siennaprice1351 That's a great idea. I know they can be closely related. I will add it to my list and do some research. Thanks for the suggestion.

    • @OlyPhoenix86
      @OlyPhoenix86 Місяць тому +1

      @@siennaprice1351 I am an 38 year old male who is the same as you. Lately I’ve just been processing my whole life of not knowing or understanding. I am still processing but these videos have been helping. Wish you the best of luck.

  • @rivahcat8247
    @rivahcat8247 8 місяців тому +25

    I'm 70, and your chart of autistic traits in women has made me self-diagnose as being on the spectrum. I actually met 3/4 of the traits listed! It explains a lot about my life experiences. I don't find it disturbing, but rather strangely comforting. My brother is ADHD, which is no surprise considering his life experiences. I also think our mom may have been on the spectrum as well.

  • @Shotleythinktank
    @Shotleythinktank Рік тому +4

    My “stemming” is the absolute destructive act of skin picking. I’ll be doing it without thinking then catch myself yet unable to quit till it’s picked-off. With the exception of smoking that I quit 25 years ago, no other repetitive activity has successfully replaced this god awful obsession-or damn addiction!!

  • @AutisticDutchie
    @AutisticDutchie 2 місяці тому +2

    I’m 43 and got diagnosed today. I brought in your list of autistic traits in women (of which I checked off nearly everything) and the assessor loved your list so much and said she may start sending those out to other women with their pre-assessment questionnaire packs.

  • @Philtopy
    @Philtopy Місяць тому +1

    Thanks a lot for this.
    I don’t have a diagnosis (yet) but I met a psychologist yesterday and he made some tests with me, just to find out the ground water and for both of us to get to know eachother and he told me that I shine out on all the autism tests! Hit me like a baseball bat because it really never occurred to me that this could be the case why I struggle so much and just with this half diagnosis I already feel like a huge weight goes off my chest because I treated myself very unfairly and suffered needlessly because I didn’t meet my expectations.
    So I started to look I to what autism really is and I found this video. Really helpful stuff :)

  • @jeannette7154
    @jeannette7154 Рік тому +4

    My least favorite thing people say to me, "You would be really good at (insert activity here)! You should try it out!" Not realizing that I have like 5 special interests that consume all my free time already. That can be overwhelming just thinking about it, but they all make me happy when I put energy into them. Just thinking about the person's suggested activity makes me twitch and it is all I can do to politely say no when I really want to have a meltdown. If they only knew ...

  • @margiestevens2384
    @margiestevens2384 5 місяців тому +3

    Just saw this today, I was diagnosed a couple of years ago. I am 70. You had me when you said you also had ADHD and your interests included piano,and crocheting. Thanks, I also cycle through those along with reading, writing, and crafts😂 nice to know there is another person out there with similar interests ❤

  • @Nodsbane
    @Nodsbane 5 місяців тому +3

    It is so wild being able to understand my life after all this time at age 37. I really don't know how everyone missed it but I did do stuff like go to school and I've always been one of the smartest people others know so I think my flat affect makes people think I'm way more normal than I really am lol. It's so awesome to know why I think the way I do and why I think people are mad at me and stuff. I thought it was paranoia but it's actually that I cannot read people.

  • @goodbyekitty4437
    @goodbyekitty4437 2 роки тому +15

    I've felt very different from other people for a good chunk of my life. I do have depression and anxiety, and have felt that there was more to that. For many years I've wondered what else I could be dealing with, but was too nervous to go find out. After having a major depressive episode/shutdown, I finally decided to get help with that. It was a few months later that my therapist suspected that I was on the spectrum. I had mixed feelings about getting evaluated, and then realized I had to know. I had my evaluation two months ago, and was officially diagnosed a month later with ASD and ADHD at the age of 41. When I got the diagnoses, I pretty much shrugged and thought to myself okay then, now I know. It certainly has been an eye opening experience, and things started to make sense. My mom has been very supportive. My brother doesn't really believe that these conditions are real, and I haven't yet told him of my official diagnoses.
    about
    II

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому

      Thanks so much for sharing your experience! Please let me know if there are any specific resources I could create or share with you that might be helpful.

  • @charlottejones8022
    @charlottejones8022 20 днів тому

    I was recently diagnosed at age 51, so much of my life made sense now. I was always very hard on myself because of my odd behavior. Now that I realize I am autistic, I tell myself every day that I am fine the way I am. I really don't care what other people think about me anymore. I do a lot of positive self talk and try not to push myself too much. I just take one day at a time. Thank you for sharing these videos they are very helpful and encouraging. We need more autism awareness out there.

  • @MasterpieceLost
    @MasterpieceLost 9 місяців тому +11

    I am 39 and newly diagnosed Level 1. Your videos were instrumental in giving me the understanding I needed to express my ‘quirks’ to my therapist and get an assessment. Your videos have also been a huge comfort in better understanding myself, when so many other resources lean on outsider observations rather than the experience of those living with Autism. Thank you for all you do!

  • @whitneymason406
    @whitneymason406 2 роки тому +40

    I so needed this! I got my diagnosis 2 months ago and I'm still struggle sometimes wrapping my head around it. I thought everyone was just better at dealing with daily stress and anxiety, I didn't realize that I experience the world differently than the average person. I really appreciate your positivity, thanks for sharing!

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +8

      I still fall into this way of thinking every day. I keep trying to live "normally" without realizing it and then trying to remind myself that I'm just different and I kind of have to pave the way for myself in terms of what that looks like. And hearing y'alls experiences helps too! Thanks for the comment. Hope you're doing well, Whitney.

    • @bethanyreid6655
      @bethanyreid6655 Рік тому +3

      Yes! My experience exactly!! And I just figured it out one week ago! I am still in shock. Mind blown… It is incredibly helpful information and I am looking at my entire life with new understanding. I’m 52. :)

    • @whitneymason406
      @whitneymason406 Рік тому +2

      @@bethanyreid6655 glad you were able to figure it out! Welcome to the cool kids club! 😎 💞

    • @bethanyreid6655
      @bethanyreid6655 Рік тому +3

      @@whitneymason406 Thanks, Whitney!!

  • @be1tube
    @be1tube 5 місяців тому +2

    You said rest is essential! This is prime advice I wish my past self had taken to heart.

  • @ItsTismTime
    @ItsTismTime 9 днів тому

    Thank you for your videos. I was recently diagnosed with Autism and ADHD at 55 years old and am still processing what it means and how I frame my past experiences in light of it.

  • @HannahFields444
    @HannahFields444 4 місяці тому +1

    Your content has been immeasurably helpful! I'm 48 and for 3+ years I've been searching a doctor in my area who will assess an adult female new patient for autism, with no luck. I recently found someone in your big autism resource guide and have started the evaluation process. Thank you for what you do! 😊

  • @ChocolateLab2000
    @ChocolateLab2000 Місяць тому

    I appreciate you making this video. I got an unofficial ADHD diagnosis and was told I’m likely on the spectrum.
    I feel like this diagnosis is pretty accurate and have been like “now what”. All the articles on Google weren’t as helpful as this video was. Thank you

  • @Mikeyboi699
    @Mikeyboi699 2 роки тому +10

    Im still awaiting my autism assessment but I find delving into my interests a great way to lessen my anxiety as well making time for myself, especially as I am a uni student and the uni environment is often very overwhelming e.g. lots of people around socializing, the busyness of campus etc.

  • @StarlahMutiny
    @StarlahMutiny 7 місяців тому

    I appreciate this channel so so much

  • @flautalee3090
    @flautalee3090 3 місяці тому

    Love the pigtails!❤❤❤

  • @noreenzahoor9804
    @noreenzahoor9804 5 місяців тому

    I’m new and loving your videos.

  • @acrobaticanna
    @acrobaticanna 10 місяців тому +1

    In the holidays I put out a tray of Fidget Toys for my kids to play with when they're sitting on the lounge.

  • @BilliesCraftRoom
    @BilliesCraftRoom Рік тому +1

    Thank you so much for this, I recently discovered how many autistic traits I have, researching has shown me just how many. You're videos help so much. Thanks for sharing your videos

  • @ladyninja3014
    @ladyninja3014 8 місяців тому

    Thank you! 31 with 2 kids and freshly diagnosed with AuDHD, so your videos are really helpful in navigating the new light I see myself under, and helping me define what are the accomodations that I should be discussing with my husband.

  • @mootbooxle
    @mootbooxle 4 місяці тому

    Thank you so much!

  • @erindoty9448
    @erindoty9448 Рік тому +1

    Thank you for this video! Have you or will you do a video on explaining/sharing what autism is to a neurotypical child. My daughter is 6 and she's starting to pick up on that I'm different. I'm not sure how to navigate it.

  • @stephaniemadison9571
    @stephaniemadison9571 2 роки тому +5

    I had my autism assessment last week! I'm just waiting on the results now!

  • @cammie49
    @cammie49 4 місяці тому

    Just got my official diagnosis this month! I’ve always had huge problems with my hands not working and very low finger dexterity. My Mom knitted constantly and played piano and hooked rugs etc and she tried for years to teach me and it was frustrating and basically impossible. Those were HER stims. But my large motor function and balance are off the charts high…and dance is my major stim and live music my special interest!! I get into a flow state spinning in circles out on the dance floor. I know it looks weird but I really don’t care. I need to do it and I embolden people like myself to get up there and dance weird and be joyful…and when I get a bunch of other autistic people up there it’s great cuz NOBODY touches anybody else! Yay!

  • @AForestCreature
    @AForestCreature 2 роки тому +3

    thanks for this video. I just got diagnosed today and this will be helpful :)

  • @ProverbsTrinketKingdom
    @ProverbsTrinketKingdom 7 місяців тому

    Thank you 🙏

  • @hockeyhacker97
    @hockeyhacker97 4 місяці тому

    Yeah, while things are still unconfirmed both in the same week just a week ago both the bmed doctor and my therapist both told me after my second time being in bmed in 2 months due to the DV situation I am in that there is a fairly high probability that I have undiagnosed autism. And honestly for me apart from having no clue what that even meant, like "ok let's assume you are right, what does that even mean?" after being told to look into it it makes so many things make so much more sense that honestly assuming it isn't something else that looks similar it is kind of a relief knowing "hey this is why I function this way and this is why I have such a hard time with things that should be easy while having an easy time with things that should be hard".

  • @passaggioalivello
    @passaggioalivello 2 роки тому +3

    Thank you, all your videos are so precious. You're really helping me.
    About the alone time I love it, but sometimes I'd like to have a choice.

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +6

      I feel that. I was telling my husband last night that I really want to be the type of person that can open my home to anyone and everyone, but it is exhausting to me and requires a lot of recovery time. It makes me sad but I'm also learning it's ok.

  • @wtfhappenedtome
    @wtfhappenedtome Рік тому

    The popping and snapping sound of the putty is a big sensory overload for me. This is as always however excellent information here, thank you so much.

  • @digital_nomadess
    @digital_nomadess 3 місяці тому +1

    Hello! Thank you for the information, it's very helpful especially on the stimming! I want to tell you that you are already very beautiful, and this is just my opinion of course, but I think to ideally flatter your features, you could do thicker eyeliner that extends further over your eyes, and I think that you could also draw your eyebrows to extend a bit closer in so that they frame your eyes better? I could be wrong, but maybe you are interested in experimenting sometime and see if you agree with me. :)

  • @ChrisZemdegs
    @ChrisZemdegs 6 місяців тому

    Thanks very much 🙏

  • @alexisunicorn5498
    @alexisunicorn5498 2 роки тому +2

    Thank you so much for this video! Having been newly diagnosed, I really appreciated it. :) You make me feel normal in a world that makes me feel like I'm not!

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +2

      Hey Alexis Unicorn! Love the name! Thanks for commenting and for watching. You are definitely not alone! Please make yourself at home on the channel and in the comments. There are a lot of great people here.

    • @kaphelan1
      @kaphelan1 Рік тому +1

      Ditto!! Words don’t always work for me. This comment said what I wanted.

  • @toriereichwald2460
    @toriereichwald2460 5 місяців тому

    I was diagnosed last year and would like tips on relationships and dating.😊

  • @sake343
    @sake343 6 місяців тому +1

    I'm 43 and VERY recently professionally diagnosed. I also have Alexithymia pretty badly. I don't feel anxiety or deep depression, or if I am "feeling" it, I don't know what it is, as it is just mild sensations. For this reason, stimming doesn't seem to do much for me, but I may not have found the right one. My oldest daughter who I am 99% sure is also autistic, does suffer from anxiety. I'm hoping it helps her. I won't know what level I am on the DSM-V scale, as they are still working on the report. They only (nice of them) told me I am autistic, but will have to wait for the detailed report. Since I still have about 2 weeks left to wait for said report, I'm waiting to tell my daughter and also trying to figure out the best way to break it to her.

  • @rachelwong3474
    @rachelwong3474 5 місяців тому

    That’s so cool that you can zone out playing piano:) you can stim and make music haha

  • @frslover
    @frslover 2 роки тому +5

    From the description of the video i literally thought there was a starter kit for newly diagnosed autistics. I was diagnosed 6 months ago, still waiting from the regional center to set up my 6 month personal plan review. 6 months and only been contacted 1 time from my case worker. Frustrating. Anyway. Thanks for your insight. I don't take time for myself. I work too much. Ryan.

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +1

      Wishing you well on this leg of your journey! Thank you for sharing this part of your experience with me. Please let me know if there are any specific topics I could cover that might be helpful to you.

  • @PoisonedSugarPill
    @PoisonedSugarPill 2 роки тому +6

    Hoihoi! First off, I love your channel!
    So far, most of your videos have been more focused on ASD in a way that clicks with me.
    I don't personally have a formal diagnosis for Autism but in the last year or so,
    I've been on an intense psychological and emotional journey that lead me to see that I'm
    more likely on the spectrum.
    I'm a 30 year old female...so yeah, it's been a struggle lol.
    But the main reason I'm commenting right meow is that you of course mention getting plenty of rest,
    and just overall sensory overload issues.
    On top of (likely) being on the spectrum, I have several chronic illnesses that overload me all the time;
    specifically fibromyalgia, chronic migraine, and endometriosis...
    I guess I'm asking (if I haven't ran across a video of it yet) if you have or would cover ASD and
    chronic illness (especially pain disorders) and how to cope. Fibromyalgia makes it almost impossible
    to get enough rest...and my hormones have the same effect. I'm always on the verge of meltdown so I'd
    be so grateful if there was something out there that really discussed this topic!

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому

      Thank you for this topic suggestion! The only thing I have on that right now that might be helpful is my video on Spoon Theory:
      ua-cam.com/video/aBzy6cx4R8I/v-deo.html

  • @TRXST.ISSUES
    @TRXST.ISSUES 2 роки тому

    Great video!!! 🙏💪👊 I recently picked up an Apollo Neuro (Bluetooth stim band for stress management) - will let you know how it goes!

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +1

      Ok. Had no idea what this was but after researching PLEASE KEEP ME POSTED. 😻

  • @bryanmerton5153
    @bryanmerton5153 2 роки тому

    Watching this video stimming with my "Star Dust Thinking Putty!" One of my favorites! (It glows in the dark😀) Excellent advice! As always thanks for posting.

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +2

      Man I just looked on Amazon for a link to thinking putty to put in my description and I’m always AMAZED how many varieties they have!!! They have scented stuff now. And totally clear putty. And putty you sort through to find beads. I want all of it!

    • @bryanmerton5153
      @bryanmerton5153 2 роки тому

      @@MomontheSpectrum Hey have you and your kids discovered making slime? Its super easy and loads of fun!

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +2

      @@bryanmerton5153 Yes Bryan but get this: the actual process of creating it is much too intolerable for us!! 😂We did try making something called Oobleck which is solid when you strike it and liquid when untouched. SO WEIRD. That was pretty cool but again the mess was very upsetting to us! We tried! haha.

  • @eriossabiston
    @eriossabiston Рік тому +2

    I was diagnosed 2 1/2 weeks ago so thx

    • @MomontheSpectrum
      @MomontheSpectrum  Рік тому

      you're welcome! sending you good vibes post-diagnosis. I know there can be a lot of emotions to sort through!

  • @anthonypetrelli
    @anthonypetrelli 3 місяці тому

    I was just diagnosed and I’m 23. So many things in my life make sense now…I can’t believe I never had an inkling I was autistic. I always thought every was going through a sensory meat grinder too you know?

  • @smhatheworldwelivein
    @smhatheworldwelivein 3 місяці тому

    I am right there with you 3:33

  • @kikijewell2967
    @kikijewell2967 Місяць тому +1

    1:08 "you don't have to share your diagnosis." I find its easier to share _symptoms_ rather than diagnosis. Like, "let's go somewhere else, since I don't like loud crouds of people." People are much more understanding, accepting and accommodating of your specific symptoms.

    • @scottfw7169
      @scottfw7169 Місяць тому

      Ahhh, that is a good point. Will remember it.

  • @KamalTiwari82
    @KamalTiwari82 9 місяців тому +2

    I like being by myself but I have family around me who think that if I be myself and not go out I will end going crazy, it’s been 3 years, I am getting forced to go on these really long walks and when I speak up and have days where I don’t want to go out I get shouted it’s overwhelming at times.

    • @Alba-pc6bz
      @Alba-pc6bz 5 місяців тому

      Wow good luck with that ! I have à very present family myself, but i do get my time alone and it s a LIFE savior.

    • @KamalTiwari82
      @KamalTiwari82 5 місяців тому

      @@Alba-pc6bz Nice to know that and good luck to you too, I am guessing that from the tone of your comment you are young and haven’t hit that age yet where as an adult you are placed with a responsibility where you need to start caring for an elderly family member and regardless of whether you want to or not and whether you get on with that particular individual you still have to do put aside your differences and just think about your responsibilities. What’s worse is when that responsibility is not something that you choose but another family member chooses it for you and expects you to stick to it regardless of how you are feeling.

  • @tnix80
    @tnix80 4 місяці тому +1

    I couldn't live without my weighted blanket

  • @adrenaline328
    @adrenaline328 Рік тому

    Lol the silly putty sound and hand movements - sound sensitivity and trouble with visual repetitive movements - can’t watch very easily 😂 but really great tips! I do have a soft squishy animal plush on my desk for the same purpose as the putty but nobody can see or hear it working remotely on virtual meetings 😀

  • @samiko6091
    @samiko6091 7 місяців тому

    I feel defective I don't have an interest maybe that's why I'm not balanced. Maybe it's adhd related too or that any interest I tried I was worse at than everyone I knew ... urg lots of thinking but you helped already! Thanks

    • @cammie49
      @cammie49 4 місяці тому

      Im betting you HAD a special interest but someone told you it was stupid or childish or that you can’t make money doing it…or you just weren’t good enough. Think back… maybe you were forced to give up the something you loved to do as a kid. I love to dance. Its my passion and my stim. I was told at age 12 “you are too fat to be a ballerina” and gave it up. But as an adult I’ve done African dance, jazz dance, belly dance, swing dance and I excel at all of them. Then I taught Zumba for 8 years. My parents told me there was “no way to make a career out of dance”. They were wrong.

    • @samiko6091
      @samiko6091 4 місяці тому

      @cammieopre9197 nope not for me I was encouraged to do anything but there wasn't a thing 🤷🏽‍♀️ but I love that you found yours in the end! And now help others with it! 😀

  • @RevRod92
    @RevRod92 4 місяці тому +1

    I just tonight found out that my parents hide my childhood diagnosis and I've been underdiagnosed and unaware for the last 31 years.

  • @werelemur1138
    @werelemur1138 8 місяців тому

    I had no idea that futzing with a knead able art eraser was a stim.

  • @The_Vanished
    @The_Vanished Рік тому

    Hey 6ou should self sooth, regardless h9w you feel about it. Do it now ,before ypu let life pass you by!

  • @nothingtonooneinparticular8500
    @nothingtonooneinparticular8500 11 місяців тому

    I'd like to learn HOW to organize. I find I have more organizers than actually being organized. How do you learn this? I used to live in an RV and it was so easy, it's all laid out for you, in an RV. Now I have an apt unit, or should I say storage unit, with a comfy chair and laptop...Can you do a vid on how to learn skils?

    • @cammie49
      @cammie49 4 місяці тому

      Try watching UA-cam “How to ADHD”. She has many videos in how to get organized that have helped me!!

  • @donnasaud5108
    @donnasaud5108 2 роки тому +1

    thank you so much for this 💙💙💙💙

  • @troymccullagh
    @troymccullagh 2 місяці тому

    I play with playdoah. I love squeezing it in my hands. I did not realize it was stemming.

  • @Godpossessed
    @Godpossessed 6 місяців тому +3

    Can you stim through speech? Like speaking nonsense or just chattering to yourself without saying anything?

    • @lindseycassella3015
      @lindseycassella3015 6 місяців тому +4

      I do this! I never actually understood why until I looked more into vocal stimming. I talk to my cat about nonsensical things like i'm giving an important speech. I like to watch her facial expressions and imagine she's actually interested in what i'm saying.

    • @Alba-pc6bz
      @Alba-pc6bz 5 місяців тому +2

      ​@@lindseycassella3015well she probably is. Must love the quality time and attention. ❤

  • @gypsycowgurl
    @gypsycowgurl 2 місяці тому

    I have what I thought was a tic but I’m wondering if I am stimming. A few years ago it started as excessive lip licking and gradually turned into lip popping. All the time when awake.
    Can that be stimming when I do in constantly?

  • @Sunflower77723
    @Sunflower77723 4 місяці тому

    I'd like to learn how to crochet

  • @mudman7618
    @mudman7618 Місяць тому

    Hello, I recently came across your channel - and have enjoyed the material thus far, but I have to point out something - the audio levels are all over the place. one video I hear really well, the next one in the que looks interesting, and when it starts to play - I can't hear you. please don't take it personal - as I'm pretty much a self-diagnosed autistic myself - and audio - is a thing for me. just wanted you to be aware -

  • @user-xi8tw7cr8z
    @user-xi8tw7cr8z 2 місяці тому

    I believe my son might be on the spectrum, I don’t know where to take him for an assessment he exhibits traits.

  • @indigobunting2431
    @indigobunting2431 7 місяців тому

    With untreatable 4:37 pain, I am constantly overwhemed. How can I handle pain when even a hair on my skin makes me crazy?

  • @psaanonymous3105
    @psaanonymous3105 5 місяців тому

  • @PhoenixProdLLC
    @PhoenixProdLLC 2 роки тому +2

    Not everybody stims and I'm one of them.

  • @dianequigley8449
    @dianequigley8449 2 роки тому +1

    So here’s my question, since we are neurologically different, anyone besides me have any UNUSUAL NEUROLOGICAL EXPERIENCES? AKA - “NON NATURAL” experiences - aka “SUPERNATURAL” experiences? It has occurred to me that maybe I have a brain tumor & there is not an Angel that literally saves my bacon every now and then…… or that sudden whiff of Shalimar is not my long gone mom, or that ‘person’ in the crowd that looked exactly like my friend’s dead husband who spoke to me in my head 3 times & told me a joke only they knew about….. it goes on & on……
    Anybody? Just kinda starting to wonder what’s up in my head! Thanks for your great channel, the videos w your husband a cute & great for sharing! Keep up the good work! 😎

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +3

      yessssss. I am noticing that many of us on the spectrum are empaths. We feel and experience things that happen to others like they're happening to us. You might be interested in a Reddit thread called Empaths.
      Once when I was younger, my then boyfriend, now husband, and I were signed up for a river rafting trip. I woke up early that morning feeling like I was going to be sick and was so upset. I walked down to the concierge and changed our reservation to a later time. When the bus drove us to the river, we were passed by ambulances and found out that on the trip we were supposed to be on earlier that morning, the rafts had overturned and several people drowned. Incredibly sad story but I'll always remember how strongly I sensed the danger before it even happened.

    • @dianequigley8449
      @dianequigley8449 2 роки тому

      @@MomontheSpectrum IDK about that, I really flunked the EQ Test..... 🙄

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому

      @@dianequigley8449 I don’t know I feel like those two things don’t necessarily go hand in hand 🤷🏼‍♀️

  • @Victory_n_Jesus
    @Victory_n_Jesus 5 місяців тому

    How did you get diagnosed, like whatt kind of doctor did you see?

  • @cmaliziosa6303
    @cmaliziosa6303 5 днів тому

    Hi I’m newly diagnosed & I wonder if anyone else stims , but not because they are highly sensitive. I’m (mostly) the opposite of highly sensitive, I dont notice things that I should - such as when I’m hungry, thirsty, hot, cold, have to use the bathroom or shower and lots of other things. My alarm goes off right next to me and I just let it go on and on cuz I’m not registering it I guess. I think it’s called hyPOsensitivity (?). I don’t notice or realize emotional feelings as well.
    Does anyone relate to this? I’m new to this community but haven’t heard anyone talk about this side of sensitivity

  • @wolfdreams2000
    @wolfdreams2000 Рік тому

    Do we purposely stim, or can it begin to happen without thinking about it?

    • @Sienisota
      @Sienisota 8 місяців тому +2

      I think it's more like we are doing it by accident, realise it helps our mental state, realise it's stim, and then do it deliberately when we need it?

  • @lesbianbacon
    @lesbianbacon 5 місяців тому

    Uhm, hi!! Sorry for bothering but although I'm not an adult I wanted to ask for some advice since I got newly diagnosed a few days ago and I'm struggling with a lot of impostor syndrome and I am not so sure how to truly deal with it propertly at all ;■; so any advice is appreciated

    • @MomontheSpectrum
      @MomontheSpectrum  5 місяців тому

      I made a video over this topic that might be helpful to you: ua-cam.com/video/V6jKXO4It5E/v-deo.htmlsi=_mIEAX7MY-IhpUl-

  • @Shaqster77
    @Shaqster77 24 дні тому

    Level 1?
    Are there levels to the game?

  • @chriswalker3187
    @chriswalker3187 2 місяці тому

    Is joint popping stimming?

  • @pace1719
    @pace1719 6 місяців тому

    We get a starter kit?! i didn't get a starter kit..

  • @Cloudforest811
    @Cloudforest811 7 місяців тому +2

    Do other females with autism find they have more male friends than female friends?

    • @sylviekavanagh
      @sylviekavanagh 6 місяців тому +1

      Yes! In my experience I feel like males will typically be more straightforward in their communication and not tiptoe around what they want/need in a conversation. There is a lot less guesswork and that makes it easier to be friends

  • @samiko6091
    @samiko6091 7 місяців тому

    There are levels?????

  • @happyface4720
    @happyface4720 2 роки тому

    i was diagnosed with autism as a adult at 32 living with my parents i feel alone

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому +1

      Hi Princess Lily. I'm glad you are here! I hope you will take some time to read through others' comments and possibly interact with a couple of them. There are many safe and kind people here who will help you feel less alone!

  • @JacobSzymanski-zm7xo
    @JacobSzymanski-zm7xo 2 місяці тому

    I'd rather just go on thinking I just suck at life.

  • @acrobaticanna
    @acrobaticanna 10 місяців тому +1

    Time alone with kids??? Challenging!!!!

  • @Head0fTheHerd
    @Head0fTheHerd 3 місяці тому +2

    Hearing the word "stim" makes me physically upset. Go figure

  • @AtypicalPaul
    @AtypicalPaul 2 роки тому +2

    I find the "levels" of autism problematic and the spectrum aspect is lost. A spectrum and levels don't mesh well. Levels are too simplistic and can't incorporate the wide range of people that the autism spectrum incorporates. It's the same with high and low functioning labels.

    • @MomontheSpectrum
      @MomontheSpectrum  2 роки тому

      Spectrum + levels = confusing for sure. What types of terms do you find most helpful?

    • @strictnonconformist7369
      @strictnonconformist7369 11 місяців тому +3

      @@MomontheSpectrum profiles are a more semantically-correct way to define things, in that it's not merely some arbitrarily 3 cutoff points or similar along a 1 dimensional line: we all have our multiple dimensions for our core features, and they're not all advantageous/disadvantageous equally, and some cause more trouble than others.
      In late 2002 I was diagnosed with Asperger's as a side-effect of my observation (I had too much time to think, between long-term unemployment in a down economy and severe health issues) of what I recognized as inertia of behavior holding me in ways, where I was seeing I needed to get myself into being able to control that better, while also recognizing that it wasn't really tied to an emotional state, which was puzzling. I hadn't been looking stuff up on the internet for most of the time between then and now, but I now see enough blogs, etc. talking about autistic inertia, and in the last few years, even at least one study on it. I saw that as my biggest practical problem. By contrast, I have a superb variety pack of sensory issues that I'd love to not have, but if I can control my environment well enough, they don't cause me too big of blocks at least for employment purposes, though I'd never have a chance working in a kissing booth!
      So, something along the lines of inertia and not reading others/masking well enough are my biggest issues for ASD for coping with the neurotypical world, but I've largely got the others (echolalia, at least outside my mind, is one trait I'm not aware of doing, nor has flapping my hands ever been a way I stim, I have my own ways) including dyspraxia that makes me unemployable for work that requires fast enough reliable coordination (got fired from one job as a result, nearly lost the next job as a result, and fortunately I had one of my most formidable special interests as a subset of my formal training that got me that job to fall back on, that doesn't require good coordination, writing code) and then there are the other things.
      I made a boneheaded mistake not getting my records from my church's counseling services before they were disposed of after 7 years, so due to (I suspect) autistic burnout, and problems it caused at work because of work conditions pushing me into a bad state, I decided I needed to go back for a diagnosis I can have a permanent record, especially due to Meniere's, combined with going into an absurdly toxic sensory environment in the form of an open office where phone calls are regular job requirements: sensory issues don't get better as you age, and Meniere's is degenerative and adds sensory input over time, and I learned that the worse you feel physically, the worse inertia and the like impact your ability to function optimally: take care of your health as best you can.
      Well, it's now almost 2 days since the first appointment where I was getting to know the psych, and screening for other things first (anxiety, depression, which I'm not depressed, though work has me all wound up due to layoffs and threats of unknown layoffs for the past 6 months in tech, with them all happening at the same time, and my career has a pattern of layoffs) and I completed 5 questions of the multiple choice for ADHD screening, and got stuck asking what's meant by the 6th, and she told me from the first 5 and other things I told her, I didn't need to do the rest (there were at least 20) so, there's that: I can't say I was surprised.
      My older brother said my organizational style from when I was a little kid has been: a pile for everything, and everything within its pile. I think that sums up the paradox of the conflict of ASD and ADHD as traits in the same person quite succinctly, though more succinctly would be organized chaos: instead of neatly arranging things, neatly arranged messes.

    • @cammie49
      @cammie49 4 місяці тому

      A pile for everything and everything in its pile 😂 That’s my husband exactly!

  • @brin57
    @brin57 9 місяців тому

    I think you just described the human condition. It's all just levels and degree. Never before in history have so many people gone out of their way to have a disability. It's like some kind of new trend or fashion. I had a severe industrial accident at work 46 years ago that left me in a wheelchair at the age of 19. Now y'all tell me about your level 1 disability !!

    • @be1tube
      @be1tube 5 місяців тому +3

      Those of us at level 1 (requiring the least support on average) do not have challenges in the same way as you in your wheelchair. Nevertheless our disability can be plenty incapacitating.
      I've been involved in some intense situations recently at work. At least 5 times in the last few weeks, I experienced a "shutdown." For one to two hours, I was frozen. I was minimally conscious, mainly starting into space. I lost the ability to speak. My memory of these times is impaired. After the acute phase passes, there is still a period in which I have reduced executive and cognitive function. The neurotypical people who were in the events with me did not enjoy them, but they were not deprived of function by their body's reaction.
      This is the most dramatic of my symptoms. But I have many others, and they cause varying amounts of impairment. I did not arrive at this diagnosis because of fashion. A close family member was diagnosed and I realized I had the same symptoms, so I asked a doctor.
      It must have been hard for you to spend 46 years fighting to prosper in our ableist society where you are physically barred from entering most homes. And it can seem unjust for people with working eyes, ears, arms, legs, and spines to claim disability. We can freely climb stairs, drive cars, and talk on the phone. However, I assure you, those of us on the autism spectrum face other barriers, less physical but no less real.

  • @Bionicleman619
    @Bionicleman619 9 місяців тому

    Your video came up, I think it's interesting. I would suggest the gym or a hobby to not stem. It's ok to have extra energy.

    • @MomontheSpectrum
      @MomontheSpectrum  9 місяців тому +1

      Extra energy is totally great. Stimming is also totally great and not anything to avoid!

  • @TheJohnny928
    @TheJohnny928 8 місяців тому

    Is autism heredity?

    • @toriereichwald2460
      @toriereichwald2460 5 місяців тому

      It can be either but most the time it is genetic and can be passed on.

  • @JeffSherlock
    @JeffSherlock 6 днів тому

    Stop this absurdity.