I was diagnosed with mm may 2021. I have active mm. I see a dr at Dana Farber and Lahey clinic burlington ma for my treatment. I am a 69 yr old female. Not giving up🙏
Ask your doctor to review the research on Quercetin as a possible means of treatment. It is found in apples and has no side effect. Hope you get well soon.
Given the recent acknowledgement that the renal "correction" for African Americans is not based on science and led to under diagnosing renal disease, how would that change these results and estimation of MGUS/MM diagnosis in that population?
My husband died in his thirties from Multiple Myeloma , and my daughters lost their father. He became very stooped . A blood test for taking up a position in Saudia Arabia picked up this condition. He was told it was rare in someone so young.
Can I participate in the screening if I am an EU citizen? Or is there Eu screening study currently being done in the EU? I live in the Netherlands. My father passed away in 2013 due to Multiple Myeloma. He was a South African citizen. I am awaiting your response. Thank you so much.
You will need to go through the healthcare channels in your region as our organization serves the United States. Just for information, there is a group called the European Myeloma Network (myeloma-europe.org), who have clinical trial listings, but no screening for precursor conditions are listed today. Not to say there may not be one in the future. Hope this helps!
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Thanks for sharing.
I was diagnosed with mm may 2021. I have active mm. I see a dr at Dana Farber and Lahey clinic burlington ma for my treatment. I am a 69 yr old female. Not giving up🙏
It seemingly can be much slower as we age. Best wishes x
Ask your doctor to review the research on Quercetin as a possible means of treatment. It is found in apples and has no side effect. Hope you get well soon.
I’m very sorry for your loss. Praying for God to continue to bless you & yours peace & comfort in the days ahead. 🙏
Given the recent acknowledgement that the renal "correction" for African Americans is not based on science and led to under diagnosing renal disease, how would that change these results and estimation of MGUS/MM diagnosis in that population?
Please speak a little slower. It's a lot of info to take in even with rewinding.
You can slow the narration in settings, upper right on screen. 👍
My husband died in his thirties from Multiple Myeloma , and my daughters lost their father. He became very stooped . A blood test for taking up a position in Saudia Arabia picked up this condition. He was told it was rare in someone so young.
I am very sorry to hear your loss. Was he maybe in the military?
@@Isabelitamellamo Yes , he was. You guessed correctly.
Sorry he was so young, pickupyour life again , he wanted you 2:54 to move on
Please put the names of the tests on the screen in writing 🙏🏿🙏🏿
Never heard of a way to stop MGUS from progressing to MM.
How do we contact you
Thank you❤
Can I participate in the screening if I am an EU citizen? Or is there Eu screening study currently being done in the EU? I live in the Netherlands. My father passed away in 2013 due to Multiple Myeloma. He was a South African citizen. I am awaiting your response. Thank you so much.
You will need to go through the healthcare channels in your region as our organization serves the United States. Just for information, there is a group called the European Myeloma Network (myeloma-europe.org), who have clinical trial listings, but no screening for precursor conditions are listed today. Not to say there may not be one in the future. Hope this helps!
Thank you! This was very informative.