Dystonia Explained: What You Need to Know About This Movement Disorder

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  • Опубліковано 18 гру 2024

КОМЕНТАРІ • 65

  • @EphemeralBalconist
    @EphemeralBalconist 9 місяців тому +7

    I was diagnosed with Cervical Dystonia over a decade ago. I thought my life was over. The condition is managed with medication(Baclofen) and its challenging to live with but after I accepted it as part of my life I discovered that my life was not over. Its just on a different path.

    • @movementdisordersclinic
      @movementdisordersclinic  8 місяців тому +1

      Great to know that your cervical dystonia symptoms are better with baclofen. Wishing you a good health

    • @RajeshRai-v3q
      @RajeshRai-v3q 3 місяці тому

      I was diagnosed cervical Dystonia,can u guide me how I can recover nd get better results to become to my normal life

    • @crazyupdates8715
      @crazyupdates8715 3 місяці тому

      Hi It is a working Baclofen table how many days can you used cure now or still have a problem

    • @EphemeralBalconist
      @EphemeralBalconist 3 місяці тому

      @@crazyupdates8715 Its a lifelong condition. I take Baclofen everyday and it helps manage the symptoms but theres no cure.

    • @movementdisordersclinic
      @movementdisordersclinic  3 місяці тому

      There are different therapies for cervical dystonia based upon symptom severity. Your treating doctor will guide you on this. Some of the general understanding for treatment of cervical dystonia can be read from the following web link www.movementdisordersclinic.com/cervical-dystonia/

  • @shameemusman7861
    @shameemusman7861 9 місяців тому +2

    So nice to know that someone out there knows about it.

    • @movementdisordersclinic
      @movementdisordersclinic  9 місяців тому

      Thanks for you positive feedback. Would help us to get more teaching videos

    • @pruewilson8377
      @pruewilson8377 6 місяців тому

      I agree
      Many people don't know about and it often goes undiagnosed for years. Fortunately there is so much more information about it now, one thing I thank the internet for 🙂

  • @mukeshkumar9490
    @mukeshkumar9490 2 місяці тому

    Great sir explain very well🎉

  • @Dr.Afsha.M.Z
    @Dr.Afsha.M.Z 3 місяці тому

    Very well explined sir

    • @movementdisordersclinic
      @movementdisordersclinic  3 місяці тому +1

      Thanks for the feedback. This helps to maintain different informational contents/ videos

  • @58bang25
    @58bang25 6 місяців тому +1

    Sir, I was having stiff neck and pain with right side back shoulders a bit stiff swollen and raised just a few minutes after I woke up. The GP said it was Torticollis by asking and touching the parts. I was prescribed Naproxen.The condition is getting better slowly. Is it really Torticollis? Is it going to happen again?

    • @movementdisordersclinic
      @movementdisordersclinic  6 місяців тому +2

      Torticollis means twisting or turning of neck to one side. It can happen due to various reasons. One of the reason could be muscle spasm secondary to a strain (like in your case). The muscle spasm causes neck to be slightly twisted to one side. These usually improve over few days to a week (like a cramp). Muscle spasms / cramps can happen to anyone based upon various factors. Strengthning of muscles, adequate hydration usually help to prevent recurrences.

    • @58bang25
      @58bang25 6 місяців тому

      @@movementdisordersclinic Thank you for replying. Will take your advices to avoid recurrences. I was really afraid with the slightly raised shoulders (trapezius muscles) and having this intermittently.

  • @IAMTechLearn
    @IAMTechLearn 7 місяців тому

    Prashanth Sir, would you please see case of Progressive Supranuclear Palsy Research Participation for treatment.

  • @Dr.aya16
    @Dr.aya16 10 місяців тому +1

    I have a friend of mine that is now 22 years old , she had meningitis at the age of 3 , which wasn't treated well ,so after that she had difficulty to walk ( she couldn't move her left leg ) , she has contractions of her superior members ,and she doesn't pronounce all the letters well, ... a cerebral MRI was done , there was no abnormality . She was diagnosed with dystonia ...What do you think is the best treatment ?

    • @movementdisordersclinic
      @movementdisordersclinic  10 місяців тому +1

      The treating doctor / neurologist / Movement Disorders specialist should be able to advise based upon severity and symptoms. Different therapies are available including medications, injections and surgeries

  • @najmashafqat7385
    @najmashafqat7385 6 місяців тому

    Sir i m oramandibular dystonia patient.
    Plz give me advice.

    • @movementdisordersclinic
      @movementdisordersclinic  6 місяців тому

      Please meet your treating Neurologist Or Movement Disorders Specialist for assessment and advice. Without assessing it would be difficult to give an proper advice.

  • @olakunlejaiyeola5221
    @olakunlejaiyeola5221 13 днів тому

    Can it be cure sir

    • @movementdisordersclinic
      @movementdisordersclinic  8 днів тому

      Dystonia is just a symptom. The underlying cause for dystonia will let you know whether it can be cured or managed. e.g Dystonia occuring due to some medication sideeffects, brain fever can possibly be cured. Dystonia occuring due to metabolic disorders like wilson's disease can be reversed. Dystonia occuring due to some genetic or unknown causes can be managed with good therapy options. So overall the underlying cause will predict the outcome of dystonia - curable, treatable etc

  • @indranilghosh1568
    @indranilghosh1568 8 місяців тому

    Sir please help me out.. I suffering it since my childhood

    • @movementdisordersclinic
      @movementdisordersclinic  8 місяців тому

      Hi, Please speak to your nearest neurologist / movement disorders specialist for help. If you like to consult Dr. Prashanth LK, details can be found at www.movementdisordersclinic.com

  • @crazyupdates8715
    @crazyupdates8715 3 місяці тому

    I was suffering cervical destyoina over 1 year my head turn left side abnormal and used Botox 3 dose with 200 Units still some better but still facing issue can I use balcofen tables

    • @movementdisordersclinic
      @movementdisordersclinic  3 місяці тому

      You doctor can suggest which tablets would be better for you. In general Baclofen is one of the medications used for treatment of dystonia, however, therapies are individualized to each person based upon multiple factors. Your treating doctor would be able to guide you on the same.
      You can read more about cervical dystonia from this link : www.movementdisordersclinic.com/cervical-dystonia/

  • @PurusottamDash-bn4je
    @PurusottamDash-bn4je 7 місяців тому

    4:25 Gd evng sir, my father had suffered from brain stroke since 2 years. By stroke his right side has paralysed.. Now involuntary movement of right hand and leg are becoming. So please advice me it's speed recovery. Tq..

    • @movementdisordersclinic
      @movementdisordersclinic  6 місяців тому

      Please speak to your treating neurolgoist, they will able to guide the best possible next path. If you want consult at out clinic, you can find the details at www.movementdisordersclinic.com

  • @helaluddinmiham4188
    @helaluddinmiham4188 Місяць тому

    I have diagnosed focal Dystonia in my right hand and not able to write and now I am also facing same problem in my left hand.
    What should I do?
    Please suggest me, Sir.

    • @movementdisordersclinic
      @movementdisordersclinic  23 дні тому

      Please meet a nearby Movement Disorders specialist or a Neurologist for guidance. There are different regions for progression of dystonia which vary from drug induced to metabolic disorders to genetic causes. Your treating doctor would help you out. www.movementdisordersclinic.com/dystonia/

  • @AniruddhaGhosh-j8m
    @AniruddhaGhosh-j8m 7 місяців тому

    While researching my father's tongue dyskinesia for the past five months, I came across valbenazine and deutetrabenazine as potential medications. It's important to note that effectiveness can vary and should be determined by a doctor. Are these medications readily available in India? Additionally, I'd like to inquire about the appropriate stage for treatment with these medications and the possibility of Botulinum toxin injections.

    • @movementdisordersclinic
      @movementdisordersclinic  7 місяців тому

      Valabenzine and deutetrabanzine are currently not available in Indian markets. You can speak to your treating neurologist or Movement Disorders specialist to find out whether he requires botulinun toxin injecitons for tongue dyskineisa or can be managed with other forms. If any other concern you can contact our clinic secretary at 7026603300

  • @Khanyisile29
    @Khanyisile29 10 місяців тому

    Greetings sir I've been having focal dystonia (writing cramps) for the past 2 years without knowing that it was focal dystonia. I have had the most neat; and well perfect hand writing in my life but this problem began in Grade 12 earlier in the year. My mom once took me to my doctor and i explained to the doctor that I've recently been having problems writing and gripping the pen, she told me that it's probably stress and anxiety that I'm in my final year of high school, but then and there I knew i had a neurological problem i just did not know the name of it. I do have anxiety sir, but i don't think it has anything to do with this problem. I'm even scared of writing in front of people, i wear long sleeve jerseys t-shirts to cover my hand when I'm writing because i can't seem to get even the posture right. This is just frustrating because I've isolated myself from the outside world. I once bought a pencil gripper and inserted it on my pen but that didn't work either. Do you think I should go for a proper consultation to determine whether or not I have focal dystonia.
    I'm from South Africa by the way

    • @movementdisordersclinic
      @movementdisordersclinic  10 місяців тому

      Yes, please do consult a neurologist near you. Writer's cramp can be managed with various modes of therapies. You can read about the options in this link www.movementdisordersclinic.com/writers-cramp/

  • @vineetpandey9170
    @vineetpandey9170 10 місяців тому

    Sir mere ghar pr ek log ko hai distiniya Delhi aims,km Mumbai, vevek sharma varansi, Lucknow neurologist ko dekha chuke hai pr koi bhi thik nhi kr pa rha hai wh ek mahila hai sb pareshan hai koi elage ho to batayega

    • @movementdisordersclinic
      @movementdisordersclinic  10 місяців тому

      डिस्टोनिया के लक्षण हर व्यक्ति में अलग-अलग होते हैं। डिस्टोनिया के कुछ उपचार योग्य कारणों का इलाज हो सकता है। दूसरों में असुविधा को कम करने और जीवन की गुणवत्ता में सुधार के लिए उपचार दिया जाता है। विभिन्न उपचारों में सुधार के विभिन्न स्तर होते हैं। उदाहरण के लिए बोटोक्स 70-80% तक सुधार दे सकता है। कृपया निकटतम न्यूरोलॉजिस्ट से मिलें या बैंगलोर में हमारे क्लिनिक पर जाएँ

    • @vineetpandey9170
      @vineetpandey9170 10 місяців тому +1

      Sir 2 year pahle botax injection Mumbai me lga tha pr vh thik nhi Hui aur ab jyada problem me rhari hai

    • @NijamShaikh-u1s
      @NijamShaikh-u1s 8 місяців тому

      ​@@vineetpandey9170 mera bhi same haal hai injection lagta hu dawai bhi khata hu but badhte ja rha hai mam mere toh ke jabde mai hai

  • @jennyosborne6571
    @jennyosborne6571 9 місяців тому

    What about dystonia seizures?

    • @movementdisordersclinic
      @movementdisordersclinic  9 місяців тому +1

      Dystonic seizures have different etiologies and therapies. This video is about general awareness about Dystonia.

  • @vineetpandey9170
    @vineetpandey9170 10 місяців тому

    Ydi kise ka distoniya parcent thik hua ho to please bataye
    Bahut khatrnak hota hai doctor bol rhe hai ki koi ilage nhi hai iska

    • @movementdisordersclinic
      @movementdisordersclinic  10 місяців тому

      डिस्टोनिया के लक्षण हर व्यक्ति में अलग-अलग होते हैं। डिस्टोनिया के कुछ उपचार योग्य कारणों का इलाज हो सकता है। दूसरों में असुविधा को कम करने और जीवन की गुणवत्ता में सुधार के लिए उपचार दिया जाता है। विभिन्न उपचारों में सुधार के विभिन्न स्तर होते हैं। उदाहरण के लिए बोटोक्स 70-80% तक सुधार दे सकता है।

  • @nidhibhagat9052
    @nidhibhagat9052 10 місяців тому

    My neck is shaking whenever i concentrate on one thing....Is it distonia ..how to overcome the same .. please advise

    • @movementdisordersclinic
      @movementdisordersclinic  10 місяців тому

      Neck shaking while concentrating during some work could be due to various reasons including sterotypy, tremors, dystonia etc. If it is not bothersome, nothing is required. However, if it is bothersome and increasing over the time, please show to nearest Neurologist / Movement Disorders specialist

    • @nidhibhagat9052
      @nidhibhagat9052 10 місяців тому

      It's not bothersome and also same i cannot feel other person(for example Brother) is saying that your neck is shaking i dont even feel that. But the same is done frequently on daily basis. I visited to neurologist(3 months back) doctor they have given medicine.but no impact on the same.It means situation is remain same.

    • @movementdisordersclinic
      @movementdisordersclinic  10 місяців тому

      Please speak to your treating doctor or please visit our clinic for consult. Very specific answers can be given based on assessment only. Details can be obtained at www.movementdisordersclinic.com

    • @EphemeralBalconist
      @EphemeralBalconist 9 місяців тому

      ua-cam.com/video/IpcXkV_ex8Y/v-deo.html

  • @AyurvedicDoctor-y6q
    @AyurvedicDoctor-y6q 6 місяців тому

    Thanku doctor .....Ashwagandha capsules from Planet Ayurveda are really good effective results on this problem.

    • @maheshbelekar
      @maheshbelekar 6 місяців тому

      Ashwagandha capsule writers cramp ke liye achhi medicine hai kya?

    • @movementdisordersclinic
      @movementdisordersclinic  6 місяців тому

      Difficult to tell, no clear literature. You can speak to an ayurvedic doctor on the same.

  • @ZZZHhh-q1c
    @ZZZHhh-q1c 5 місяців тому +1

    دیستونی یعنی درمان نداره😢

  • @keitymarley733
    @keitymarley733 Рік тому

    Parkinson disease is a very terrible illness🦠🦠, my Dad suffered from it for 19 years until we finally got a help and a medicine that truly works that helped treat, cure and reversed all his symptoms....My Dad is completely okay and healthy now💯!!!

    • @movementdisordersclinic
      @movementdisordersclinic  Рік тому +1

      Parkinson's disease is an ageing related disorder similar to greying of hair, skin changes, etc. Currently there are good treatment options for Parkinson's disease to make symptoms better and lead near normal quality of life. CURE for Parkinson's disease is not yet available in any type of medical practices. A person can 'Cured' only if the diagnosis was not Parkinson'Disease and had symptoms similar to Parkinson's which could be cured (for example - Depression, Low sodium levels, metabolic changes, infections, autoimmune changes etc)

    • @zamirrizvi6458
      @zamirrizvi6458 11 місяців тому

      What treatment your father received?

    • @am-cu6hw
      @am-cu6hw 11 місяців тому

      Sir what kind of treatment you provided to your father??

    • @vineetpandey9170
      @vineetpandey9170 10 місяців тому

      Please tell me where treat your father

    • @shameemusman7861
      @shameemusman7861 9 місяців тому

      ​@@movementdisordersclinicin