Living with and Managing Parkinson's Disease Psychosis (Hallucinations and Delusions)

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  • Опубліковано 9 січ 2025

КОМЕНТАРІ • 4

  • @splashesin8
    @splashesin8 2 роки тому +2

    This is how I know when something is not real, because in reality I can't see. A dream can be so real seeming with so much visual detail, that it continues to freak me out because I can't wake myself up, knowing full well this is not something I could possibly be seeing, smelling, hearing. I know because when I'm really awake I know the bed is further over in this mirror opposite apartment layout from my old one, thus even if I could see there's no way I could see all the way down the corridor to the back walk in closet, because the bed is not aligned far enough over from where I'm trapped in sleep paralysis, trying to holler out or scream at the other intrusive yet mundane character, who I want to get out, so I can relax and sleep. It doesn't feel like I'm asleep, but I really am. Just feels like I'm not getting any sleep. This only seems to happen when I have eaten portobello mushrooms in some other food. As I really, wake up the visuals go away.
    I am afraid to take those medicines, because I don't know if the pros would out weigh the cons. I feel like the neurotransmitter that is not working for me the way it used to is acetylcholinesterase. There is a lot of latency as though something is blocking it and then sometimes it get on past the gap all at once. I have a lot of rigidity and spasticity in places I never knew I had muscles before. So there is a lot of actual insomnia and sleep interruptions from excruciating things my muscles do beyond my control.
    Yes! Where to get an evaluation?!
    Interesting module. Thank you.

  • @revdrjamesshowersjr8494
    @revdrjamesshowersjr8494 Рік тому +1

    Fascinating, If one is in Rem Behavioral Disorder, what is the likelihood, that both Delusions and hallucinations are present?

  • @normanrubenzer
    @normanrubenzer Рік тому +1

    well done,my wife is starting to have hallucinations she has been on amandatine with her levodopa. so we think its the amandatine causing it plus she has really dark purple veins that look like livedo reticulitis which is also a side effect of the amandatine. the side effects from the meds is terriable. the disease is bad enough.trying to get a appointment for a mds but that is taking a while.we live in illinois would you have any recomdations for are area

    • @davisphinneyfdn
      @davisphinneyfdn  Рік тому

      We have some ambassadors in Illinois, who may have recommendations for care providers or other resources in your area. You can search that list here: davisphinneyfoundation.org/ambassador-search/
      You might also see if there is any of our Healthy Parkinson's Community network groups are near you: healthyparkinsonscommunities.org
      Also, if you are not already participating in our monthly care partner meetups, please consider joining us: davisphinneyfoundation.org/event/parkinsons-care-partner-meetup/