Hi Marcy. I have had Freya on my mind since you shared that Freya has seizure activity. One of my children started having seizures years ago. I got sick over it, I developed a nervous stomach, couldn't eat or sleep until we found out what was the cause. In our case it was a mix of thyroid and low blood sugar that were part of the problem. Doctor prescribed phenol barbital for the seizures and appropriate meds for the thyroid and lbs diagnosis. I can certainly empathize when I see your tears and sadness! There will be a solution Marcy. Chris and you are a team and you support each other through all the unknowns of Freya's syndrome. We only have life one moment at a time, don't foresee, or think about negative outcomes. I love how you always pace yourself and do live one day at a time. Celebrating Freya's life after the ECC is wise! My thoughts and prayers are always with all of your family. Hang in there things will be alright❤️❤️❤️❤️❤️🌹🌹🌹🌹🌹🌹
I was so concerned about the seizures and how worrisome they can be that I forgot to wish sweet sweet Freya's a Happy Birthday! Watching the video was so neat. Freya was happy as were her siblings family and friends. Hugs and well wishes to Freya and her worried beautiful mom❤️🌹❤️🌹❤️🌹and of course Chris and siblings ❤️❤️❤️❤️
I have three types of seizures and half of my brain is abnormal. And to this day my Drs and specialists are still unsure what's causing them or the abnormal for the half of my brain
@@paulined4190 aww thank you so much. I have cerebral palsy, scoliosis and a bunch of medical diagnoses so I know how hard it is to deal with some medical issues and how sometimes you just want a break from them. 💕💕💕🙏🙏🙏
It was nice to see Chris and Freya playing. You are doing a great job Marci. I hope you all have a great birthday with Freya and she enjoys some cake 🎂
She’s smart, so determined to fit through the small gap, plus her tempo to the music with both arms. I feel that she understands most of what you say. I love watching her! Mainly because I love children but watching Freya with all of her challenges makes my life challenges barely nothing if I were to compare!
Really liked the video with Chris keeping Freya awake...and watching her figure out the chair and the doorway! He said he didn't know what to do? BAH! LOL! Watching you tear up Marci...ugh! As I said in my last comment: we are collectively hugging you and just letting you cry your heart out if you need to. Thank you sooo much for bringing us along for the EEG. Please let Chris know what great job he did...anytime I can watch Freya figure out stuff is just awesome! She's a smart lil girl Momma! I know I don't have to tell you that! Much love to all! ❤❤❤❤❤❤😊😊😊😊😊😊
Mommy you had me tearing with you😢but I can see that Freya definitely is a trooper! Surrounded by so much Love and Support I wouldn't imagine her any other way🙌
I can sense your sadness Marci so I'm sending you BIG HUGS. Freya did so good for her EEG and watching her with her dad was priceless. Chris is saying "you can't get out there" and I'm thinking, "just watch this determined little lady get out there" 😂😂 but he did a great job of keeping her awake and she was so happy to be outdoors playing with the rocks. 🥰🥰
She was so determined to get past that chair. She’s hilarious. I loved her keeping the best as Chris hit the head of the Little People figure. Freya you are so loved and so cared for. Have a great birthday.
I hope all Freya‘s test come out great. I love her smile when I am down and depressed I look for your videos and I wait for her smile and her giggles. It was so so precious. I’m so glad you’re videotaping them. Can’t wait to see her birthday video, wish you many many many more birthdays to come. God bless you all bye for now.
I just read part of an article that referenced Utah as one of the states which will pay parents who care for a child with special needs. The article was by Kamer Power. Read over the this article & those around it. You might find some support!! I hope so.😊
Most of the things I watch on you tube I notice the length before I start them. I fast forward them when they are long. But Marcy, you're vlogs I "fall into" like some movies. I am unaware of my surrounding and listen with rapt attention. And it's not just Freya. I adore watching all of you. Anyways, good vlog!! Happy Birthday to the sweetest girl I know!🎉🧁🍦🍭🍧🤹🏻🦄🧚🏻♀️
She is the sweetest baby girl. Daddy is going strong with his Daughter. He’s doing a great job keeping her awake. She looks so cute with her clean hair style. I had that test, I hated the goop. She is such a little trooper. God bless that the test results comeback great. Here is a big hug for you. I hope you felt it.Happy Birthday Freya. See you tomorrow. Love, me 💋💗💕🙋🏼❤️
She is so smart! She worked it out, literally out! Great job Freya 👏 ❤! It's like her brain and body reverted back to the NICU..she looked very comfortable. Marcy I believe she heard you talking about that skill and her brain clicked back like "Oh yeah huh and there is candy".
Marci, you and your husband did a great job keeping Freya awake. I was getting sleepy just watching her. She's like ok, if I have to stay awake, I'm going to explore. Here's a drawer I know I can open that, lets see what's in here. Hmm dad set up a road block but I think I can get through there. I'm going to try it. YAY I'm out I did it. She seemed content just trying everything that came along. I have a feeling she's going to get back to solid food pretty well. The way she was chewing on the rocks! She is such a sweet heart. She may not be able to talk right now, but she certainly can tell you exactly what she wants or doesn't want. I think it's time for a nap for everyone. You look way over the top tired. Praying for good results on Freya's tests. 🙏❤🙏❤🙏
Happy Birthday to Freya!! I'm glad her testing went well. Freya and Chris interacting was so sweet. I love how she worked her way out that door. She's so smart. I know how emotional things are right now until you have answers but try to enjoy Freya's Birthday. She's such a sweetheart. I'm sure her siblings are waiting to celebrate with her. My prayers are with you for answers and strength. ❤
Marci God bless you. I feel so bad for you feeling sad. I’m sending you a big virtual hug . Loved watching Freya with daddy. I’m praying for all of you that all the results are good. 🙏❤️
I know Freya doesn't like/love cold things so ice cream cake isn't really an option but I had a friend of mine make a pretzel cake for me once. I don't have the recipe but it was mostly pretzels and pudding/whip cream, which might be an option or banana cream pie with the round vanilla cookies she likes. Not sure about cheesecake but that might be an option. Neither will guarantee that she eats any of them but it could be something unique to Freya thats the equilivant of a birthday cake.
Happy birthday Freya girl. Try and have a great birthday sweet girl. Marcy and Cris hang in there it will get better. Things will work out. Sau hi to the other kiddos for me please. Hang in there . Love your family lots your in my thoughts and prayers.
I loved Chris’s video and narration. 😊 I’m so glad that Freya did so well. Such a very long, exhausting day for you all! I hope everyone gets some rest. Happy Birthday to sweet Freya! Have a wonderful time celebrating together! 🎂🎈🎁💜 (Brach’s candy corn pumpkins are the BEST!)
Don't cry sweetie. It will be better once you get some sleep. I love sweets too but can't have them. Have a great evening and go to bed early. Prayers and love for you all. #fanforlife❤
Aw I just absolutely adore Freya 🤗 she's such a unique little angel 😇 thank you for starting my day off with positivity and a smiling face 😊, it's been a rough week!! HAPPY BIRTHDAY 🎂 FREYA WE LUV YOU ❤
Happy Birthday precious one! It was great seeing you with your Daddy! Your strong will is one of your many wonderful traits! Praying for you, Sweet Girl ... and your family! ♥
Sending so much love, healing energy and thoughts your way 🙏🏾 exhaustion makes all more difficult. Hoping you all rest well and soundly tonight. Ya’s birthday will be as Magical
Hi Marci! Chris is such a good daddy! I love watching all of your family, but this was a special treat! I am so sorry that you are going through such a tough time. I hope that you get some answers quickly. I cannot wait to watch you celebrate Ya's birthday! My family is a big birthday family as well. I am an August baby too. I turned 57 on the 30th. 💕💕
Happy Birthday Freya ‼️🎉🎂🍦🍧💜🩷💜🩷 You were such a big girl while having your EEG sweetheart. My heart loves you sweet baby girl Also, a fantastic job to Dad and mom for keeping you awake. That is truly a labor of love for your child 🩷 Gods blessings to all of you
Γλυκιά μου Freya σου εύχομαι μέσα από την καρδιά μου να τα εκατοστήσεις, να είσαι πάντα γελαστή δυνατής και υγιής και να έχεις πάντα κοντά σου όλους όσους σε αγαπάνε και κυρίως την καταπληκτική μανούλα σου. Να την χαιρεστε❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
HAPPY BIRTHDAY FREYA! 💐🎂🧁 Marcie, even though it was about miss Freya’s EEG, this video was so sweet and heartwarming. Your dear husband had such good video of keeping missy up 😊👍🏻 Praying that all is well for you all.
Happy Birthday Freya 🎂 🥳 🎉 🎈 🎁 🎊 She did great. My kids were older when they had EEG's. My oldest daughter has learning disabilities and at age 9 she started having seizures.
Thank you so much on the update & including us in on her procedure. She did did great by the way! I hope they can give you some answers because I know it scares you & your family & little Freya herself when she has a seizure, there’s just so many unknowns with seizures. I absolutely love watching your videos it makes my heart smile and it smiles even bigger when Miss Freya laughs & giggles ❤ Can’t wait to see how her birthday party goes, I hope you all have a great day with baby girl and I hope she really enjoys it!! Ps. I loved the cute throw back pic of her as a baby sleeping and her at her procedure sleeping 🥰 still sleeps the same.
Well done Freya and Happy, happy birthday big girl🎂🥰. As stubborn as she can be ….maybe hearing that not eating solids was a lost skill she decided to prove you wrong.😂🤣 or just candy pumpkins are yummy. Whichever is good to see her eating. Hopefully that was just temporary. I would wonder, if it was my child so just my thought, if the episodes where she was sleeping for long times might have been the after effects of seizures. Those ones where she was teething. Also I think I’d want our doc to do a stool sample because she puts so many things in her mouth it would be very easy for her to pick up intestinal parasites which could cause strange symptoms. We’re going through finding out my adult daughter has a weird bacterial condition that has been causing health problems off and on her whole life , possibly caused by something she picked up as a baby when our well went dry and the source of the water the fire dept used to fill the well ended up being a boggy lake . Long story, we boiled all the water and she was breast fed so didn’t drink the water but bathed in it I guess. Who knows, but when I think of all the times she was writhing in pain and taken to emergency and all the different answers we got that were obviously wrong. You never know what can cause health problems, even seizures. I sure hope they can find what will help her the most and soon so she doesn’t suffer more seizures. Take care, be safe and well. 🥰🙋🏼♀️
Sorry to say, been there done that with these sleep deprived EEG's, they usually tell you nothing. Seizures are hard to figure out, we've been at it for over 30 years with my daughter... She had 150 electrodes put into her brain recently for 3 weeks and we still don't know any more than we did at the beginning. It's frustrating. Patience is a virtue with seizures.
Happy Birthday to Freya! 🎂🎈🎁 I hope you have a wonderful celebration. That was cute footage of Chris keeping Freya awake, he did a good job! You’re such an awesome Mom, Marci, I pray that all goes well with Freya. She did great during the EEG. I’m glad to see her eating the candy at the end, I know that was a great relief to you! Sending you all my love and hugs, and prayers in Jesus’s Name. God bless you all 🤗❤️🙏🏻🥰
I hope you guys get good results of Freyas seizure activity whether it’s a small one or not & can be controlled by medicine for her! Hope she can sleep tonight!
I just love her❤❤. She is having such a ball!! As always. So my name is Dorothy and my Granddaughter Kaylee has CDLS and will be Sweet 16 this this Wednesday. She is nonverbal, tube fed, yet still refuses to walk!! Lol We are both so blessed to have such a little angel living amongst us! So I have seen Freya playing with one of her toys that lights up that looks to me like maybe a toy boom box maybe. Could you please let me know what it is?? Thank you.
She's trying to hide in the corner bless her it breaks my heart for this young child. She is the light of this world
I loved how her lucky arm was going to the beat of the toy Chris was using. She has good rhythm ❤
She does! It was so cute
I loved that too! 💜💜
Chris has a soothing voice. He sounds like Mr. Rogers😊
😂 I will tell him. He is definitely a calming force in the house
Cheeky bugger made it past the door blocker!! 😂❤I love Freya's laugh!💕💯
Freya's hair has such pretty color shades!
I love the Little People Train!😂❤ My sisters and I grew up with the original sets.
Hi Marcy. I have had Freya on my mind since you shared that Freya has seizure activity. One of my children started having seizures years ago. I got sick over it, I developed a nervous stomach, couldn't eat or sleep until we found out what was the cause. In our case it was a mix of thyroid and low blood sugar that were part of the problem. Doctor prescribed phenol barbital for the seizures and appropriate meds for the thyroid and lbs diagnosis. I can certainly empathize when I see your tears and sadness! There will be a solution Marcy. Chris and you are a team and you support each other through all the unknowns of Freya's syndrome. We only have life one moment at a time, don't foresee, or think about negative outcomes. I love how you always pace yourself and do live one day at a time. Celebrating Freya's life after the ECC is wise! My thoughts and prayers are always with all of your family. Hang in there things will be alright❤️❤️❤️❤️❤️🌹🌹🌹🌹🌹🌹
Thank you so much. Seizures are so scary but we will get through this. Just like we have done every day before.
I was so concerned about the seizures and how worrisome they can be that I forgot to wish sweet sweet Freya's a Happy Birthday! Watching the video was so neat. Freya was happy as were her siblings family and friends. Hugs and well wishes to Freya and her worried beautiful mom❤️🌹❤️🌹❤️🌹and of course Chris and siblings ❤️❤️❤️❤️
I have three types of seizures and half of my brain is abnormal. And to this day my Drs and specialists are still unsure what's causing them or the abnormal for the half of my brain
Hang in there Marcie, Chris, Freya and family. God is with you all.
Such a beautiful comment.. you are a caring soul ❤❤❤
@@paulined4190 aww thank you so much. I have cerebral palsy, scoliosis and a bunch of medical diagnoses so I know how hard it is to deal with some medical issues and how sometimes you just want a break from them. 💕💕💕🙏🙏🙏
It was nice to see Chris and Freya playing. You are doing a great job Marci. I hope you all have a great birthday with Freya and she enjoys some cake 🎂
They have such a special relationship
Freya is probably like mom and dad are loosing their minds keeping me awake. She is a cutie pie.
She’s smart, so determined to fit through the small gap, plus her tempo to the music with both arms. I feel that she understands most of what you say. I love watching her! Mainly because I love children but watching Freya with all of her challenges makes my life challenges barely nothing if I were to compare!
She is very very determined that's for sure . Trying to figure stuff out etc etc
Really liked the video with Chris keeping Freya awake...and watching her figure out the chair and the doorway! He said he didn't know what to do? BAH! LOL! Watching you tear up Marci...ugh! As I said in my last comment: we are collectively hugging you and just letting you cry your heart out if you need to. Thank you sooo much for bringing us along for the EEG. Please let Chris know what great job he did...anytime I can watch Freya figure out stuff is just awesome! She's a smart lil girl Momma! I know I don't have to tell you that! Much love to all! ❤❤❤❤❤❤😊😊😊😊😊😊
Your husband is a good playmate. He sounds like Mr Rogers😍
You are the second person to say this 😂
Mommy you had me tearing with you😢but I can see that Freya definitely is a trooper! Surrounded by so much Love and Support I wouldn't imagine her any other way🙌
I agree with viewers Chris was great keeping Freya awake, going outside great ideas all round. Love to you all I sincerely hope all is well! X
I can sense your sadness Marci so I'm sending you BIG HUGS. Freya did so good for her EEG and watching her with her dad was priceless. Chris is saying "you can't get out there" and I'm thinking, "just watch this determined little lady get out there" 😂😂 but he did a great job of keeping her awake and she was so happy to be outdoors playing with the rocks. 🥰🥰
She was so determined to get past that chair. She’s hilarious. I loved her keeping the best as Chris hit the head of the Little People figure.
Freya you are so loved and so cared for. Have a great birthday.
Happy Birthday Freya🧁. LOL Chris gave Freya a “I’ll show you moment” with the chair.
Shes so good letting the techs put stuff in her hair. Good girl! Lets pray she is fine❤❤❤❤ Happy Birthday Freya!
She did amazing
Freya's determintion will get her to reach her goal in life.
Wow! I'm impressed, Freya, you really figured out how to engineer your way through the obstacle your daddy constructed! 😮🥰
She is determines
Freya totally outsmarted you on moving the chair, Chris! Hoping the results of the EEG is good news.
She is a determined wee thing
Happy Birthday Princess, we all love you❤️ Marci, sending big hugs to you.
Aaaaawwwww Marcie… big hugs from England 🥹🥹❤️🏴
Such a sweet video of Freya playing with Chris ❤
Freya is just like the energizer bunny! When she crashes mama try to lay down yourself. Is she a September girl? We're fierce!!!
Oh, I love Freyas smiles! So cute...❤
Her dad's voice sounds like Mr. Rogers❤❤
😂 I had never made the connection but it totally does
Freya kept perfect time to the train beeping with both arms❤
She has good rhythm
I hope all Freya‘s test come out great. I love her smile when I am down and depressed I look for your videos and I wait for her smile and her giggles. It was so so precious. I’m so glad you’re videotaping them. Can’t wait to see her birthday video, wish you many many many more birthdays to come. God bless you all bye for now.
Glad she did well for the EEG.
She’s such an angel!
Bless you momma! Be sure to take care of yourself too! ❤
Happy Birthday, Freya! It was great seeing Chris interacting with Freya. Have fun celebrating!
She looked so sweet sleeping during the EEG. ❤ Happy Birthday Freya!! Hope you have a super special day!!!
Happy birthday Tomorrow sweet girl! You are celebrated every day! You are so precious and strong, and will get through this🤍🌸🦢
Oh My Goodness...so many smiles for Daddy with the train play!! I LOVE it. Now back to the vlog🙂
I just read part of an article that referenced Utah as one of the states which will pay parents who care for a child with special needs. The article was by Kamer Power. Read over the this article & those around it. You might find some support!! I hope so.😊
They do it is about $100 a month. And you have to be off a long waitlist in order to get that service
She was so good through all that! Bless her heart! Hang in there! ❤❤❤
I LOVE YOU PRINCESS FREYA💝💖💖💖💖💖
Thank you for your openness. Loved the chair challenge. Good job little girl. Bless you. Take the day off. Birthdays are special
Hope everything goes well with her EEG, she is so precious.
Most of the things I watch on you tube I notice the length before I start them. I fast forward them when they are long. But Marcy, you're vlogs I "fall into" like some movies. I am unaware of my surrounding and listen with rapt attention. And it's not just Freya. I adore watching all of you. Anyways, good vlog!!
Happy Birthday to the sweetest girl I know!🎉🧁🍦🍭🍧🤹🏻🦄🧚🏻♀️
Thank you so much
I’m so sorry y’all are having to deal with this, prayers you get some answers.
She is the sweetest baby girl. Daddy is going strong with his Daughter. He’s doing a great job keeping her awake. She looks so cute with her clean hair style. I had that test, I hated the goop. She is such a little trooper. God bless that the test results comeback great. Here is a big hug for you. I hope you felt it.Happy Birthday Freya. See you tomorrow. Love, me 💋💗💕🙋🏼❤️
She is so smart! She worked it out, literally out! Great job Freya 👏 ❤!
It's like her brain and body reverted back to the NICU..she looked very comfortable.
Marcy I believe she heard you talking about that skill and her brain clicked back like "Oh yeah huh and there is candy".
I think so too!
Freya is such an absolutely beautiful child and did so well for the EEG!!! Sending positive thoughts all will be fine!!!!❤
She was so good!
Chris is the best! It’s nice seeing record
He is the best dad.
Marci, you and your husband did a great job keeping Freya awake. I was getting sleepy just watching her. She's like ok, if I have to stay awake, I'm going to explore. Here's a drawer I know I can open that, lets see what's in here. Hmm dad set up a road block but I think I can get through there. I'm going to try it. YAY I'm out I did it. She seemed content just trying everything that came along. I have a feeling she's going to get back to solid food pretty well. The way she was chewing on the rocks! She is such a sweet heart. She may not be able to talk right now, but she certainly can tell you exactly what she wants or doesn't want. I think it's time for a nap for everyone. You look way over the top tired. Praying for good results on Freya's tests. 🙏❤🙏❤🙏
Happy birthday Freya!!!!!!🎉😊🦋❤️🎊🙏🏾
OMG, she's so precious!!! She's like a living doll! Happy Birthday Beautiful!!! You've stolen my heart!!!❤❤❤⛪⛪⛪❤❤❤
Happy Birthday to Freya!! I'm glad her testing went well. Freya and Chris interacting was so sweet. I love how she worked her way out that door. She's so smart. I know how emotional things are right now until you have answers but try to enjoy Freya's Birthday. She's such a sweetheart. I'm sure her siblings are waiting to celebrate with her. My prayers are with you for answers and strength. ❤
Marci God bless you. I feel so bad for you feeling sad. I’m sending you a big virtual hug . Loved watching Freya with daddy. I’m praying for all of you that all the results are good. 🙏❤️
I'm so proud of Freya, great job! It will be fine Marci❤ You all will have a fun celebration for Freyas birthday 🎉🎉
I know Freya doesn't like/love cold things so ice cream cake isn't really an option but I had a friend of mine make a pretzel cake for me once. I don't have the recipe but it was mostly pretzels and pudding/whip cream, which might be an option or banana cream pie with the round vanilla cookies she likes. Not sure about cheesecake but that might be an option. Neither will guarantee that she eats any of them but it could be something unique to Freya thats the equilivant of a birthday cake.
What a great dad I know Freya is thinking what is going on lol
Precious little mama! I’m SOO proud of you!!!!
Happy birthday Freya girl. Try and have a great birthday sweet girl. Marcy and Cris hang in there it will get better. Things will work out. Sau hi to the other kiddos for me please. Hang in there . Love your family lots your in my thoughts and prayers.
I love your little Freya 🥰
Good job, Mom and Dad! Such great team work. 👏
Thank you so much!
Happy Birthday Freya, you are so adorable and growing up so fast.❤❤❤❤
Prayers for everyone. Freya is such a brave n beautiful little one. I wish I could be there n hug you ❤
I loved Chris’s video and narration. 😊 I’m so glad that Freya did so well. Such a very long, exhausting day for you all! I hope everyone gets some rest.
Happy Birthday to sweet Freya! Have a wonderful time celebrating together! 🎂🎈🎁💜
(Brach’s candy corn pumpkins are the BEST!)
Don't cry sweetie. It will be better once you get some sleep. I love sweets too but can't have them. Have a great evening and go to bed early. Prayers and love for you all. #fanforlife❤
Awwww what a great video❤ Freya's lucky arm is so cute!!! Have a wonderful birthday party Ya' !!!😊😊😊😊
Chris is having too much fun with the Little People. 😅😉😘
They are so fun to play with.
@@Freyasluckyarm I agree! My two little granddaughters 1 & 3 are in love with all their little people! ❤️🥰😉
@@Freyasluckyarm I agree! My two little granddaughters 1 & 3 are in love with all their little people! ❤️🥰😉
Aw I just absolutely adore Freya 🤗 she's such a unique little angel 😇 thank you for starting my day off with positivity and a smiling face 😊, it's been a rough week!! HAPPY BIRTHDAY 🎂 FREYA WE LUV YOU ❤
Happy Birthday precious one! It was great seeing you with your Daddy! Your strong will is one of your many wonderful traits! Praying for you, Sweet Girl ... and your family! ♥
Sending so much love, healing energy and thoughts your way 🙏🏾 exhaustion makes all more difficult. Hoping you all rest well and soundly tonight. Ya’s birthday will be as Magical
She is just so adorable, she has such a personality !! All of your subscribers just love your family. I am always sending good thoughts to all !! 💗
She’s beautiful!!
Hi Marci! Chris is such a good daddy! I love watching all of your family, but this was a special treat! I am so sorry that you are going through such a tough time. I hope that you get some answers quickly. I cannot wait to watch you celebrate Ya's birthday! My family is a big birthday family as well. I am an August baby too. I turned 57 on the 30th. 💕💕
Happy birthday. Hope the year ahead brings many blessings your way🎉🎉🎉
It was extra special treat for me. Chris took those videos without me asking. He just sent them to me in the morning.
@@Freyasluckyarm that's awesome!
Happy Birthday Freya ‼️🎉🎂🍦🍧💜🩷💜🩷
You were such a big girl while having your EEG sweetheart. My heart loves you sweet baby girl
Also, a fantastic job to Dad and mom for keeping you awake. That is truly a labor of love for your child 🩷
Gods blessings to all of you
❤ You are doing such a great job! ❤
Γλυκιά μου Freya σου εύχομαι μέσα από την καρδιά μου να τα εκατοστήσεις, να είσαι πάντα γελαστή δυνατής και υγιής και να έχεις πάντα κοντά σου όλους όσους σε αγαπάνε και κυρίως την καταπληκτική μανούλα σου. Να την χαιρεστε❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
HAPPY BIRTHDAY FREYA!
💐🎂🧁
Marcie, even though it was about miss Freya’s EEG, this video was so sweet and heartwarming.
Your dear husband had such good video of keeping missy up 😊👍🏻
Praying that all is well for you all.
Thank you so much!!
Happy Birthday 🎂 to Freya ! I’m with Freya, candy corn pumpkins are the best ! Now I need to go buy some. 😊
They are so good!
Freya the little nite owl 🦉❤Happy Birthday Freya 🎊 🎉🎂
Happy birthday Freya!🎉
Happy Birthday Freya 🎂 🥳 🎉 🎈 🎁 🎊
She did great. My kids were older when they had EEG's.
My oldest daughter has learning disabilities and at age 9 she started having seizures.
…..as Magical as she is 🔆
Thank you so much on the update & including us in on her procedure. She did did great by the way! I hope they can give you some answers because I know it scares you & your family & little Freya herself when she has a seizure, there’s just so many unknowns with seizures. I absolutely love watching your videos it makes my heart smile and it smiles even bigger when Miss Freya laughs & giggles ❤ Can’t wait to see how her birthday party goes, I hope you all have a great day with baby girl and I hope she really enjoys it!! Ps. I loved the cute throw back pic of her as a baby sleeping and her at her procedure sleeping 🥰 still sleeps the same.
It instantly brought me back
@@Freyasluckyarm 🥰
Well done Freya and Happy, happy birthday big girl🎂🥰. As stubborn as she can be ….maybe hearing that not eating solids was a lost skill she decided to prove you wrong.😂🤣 or just candy pumpkins are yummy. Whichever is good to see her eating. Hopefully that was just temporary.
I would wonder, if it was my child so just my thought, if the episodes where she was sleeping for long times might have been the after effects of seizures. Those ones where she was teething. Also I think I’d want our doc to do a stool sample because she puts so many things in her mouth it would be very easy for her to pick up intestinal parasites which could cause strange symptoms.
We’re going through finding out my adult daughter has a weird bacterial condition that has been causing health problems off and on her whole life , possibly caused by something she picked up as a baby when our well went dry and the source of the water the fire dept used to fill the well ended up being a boggy lake . Long story, we boiled all the water and she was breast fed so didn’t drink the water but bathed in it I guess.
Who knows, but when I think of all the times she was writhing in pain and taken to emergency and all the different answers we got that were obviously wrong. You never know what can cause health problems, even seizures. I sure hope they can find what will help her the most and soon so she doesn’t suffer more seizures. Take care, be safe and well. 🥰🙋🏼♀️
Sorry to say, been there done that with these sleep deprived EEG's, they usually tell you nothing. Seizures are hard to figure out, we've been at it for over 30 years with my daughter... She had 150 electrodes put into her brain recently for 3 weeks and we still don't know any more than we did at the beginning. It's frustrating. Patience is a virtue with seizures.
Happy Birthday to Freya! 🎂🎈🎁 I hope you have a wonderful celebration. That was cute footage of Chris keeping Freya awake, he did a good job! You’re such an awesome Mom, Marci, I pray that all goes well with Freya. She did great during the EEG. I’m glad to see her eating the candy at the end, I know that was a great relief to you! Sending you all my love and hugs, and prayers in Jesus’s Name. God bless you all 🤗❤️🙏🏻🥰
Thank you so much!!
@@Freyasluckyarm You’re so welcome! 🤗❤️🥰
Happy Birthday 🎉Gorgeous girl
I hope you guys get good results of Freyas seizure activity whether it’s a small one or not & can be controlled by medicine for her! Hope she can sleep tonight!
I’m always surprised how Freya puts such small things in her mouth but knows not to swallow them.
It would be difficult to determine whether she lost a skill due to health reasons or Freya just being Freya.
Happy Birthday Freya. 🎂🎁🎈❤️🐇🥰
Keep up the great job mom !!!!!!!!!❤
Thank you!!
Baaack😁Freya said the 🪑must go Dad😅ok NO more pausing....
I just love her❤❤. She is having such a ball!! As always. So my name is Dorothy and my Granddaughter Kaylee has CDLS and will be Sweet 16 this this Wednesday. She is nonverbal, tube fed, yet still refuses to walk!! Lol We are both so blessed to have such a little angel living amongst us! So I have seen Freya playing with one of her toys that lights up that looks to me like maybe a toy boom box maybe. Could you please let me know what it is?? Thank you.
So amazing! Our kids are stubborn if nothing else 😂 I’m not sure which toy you are talking about. How big is it
Happy birthday ❤and prayers
Happy birthday fraya!!❤🎉
Happy birthday Freya 🎉🎉🎉❤❤❤❤😘😘😘
Happy birthday beautiful girl.💗💗💗💗💗💗💗💗💗💗🍡🍨🍬🍭🎂🍰
What a champ way to go❤
Happy birthday Freya
Very persistent trying to get out of her room! Lol