I've had UC 40+ years and an ileostomy 30 years. I've also lived in one of the hottest places in the world all that time--Las Vegas, Nevada since 1974. In my late 40's and early 50's I started having a big problem with getting dehydrated to the point that I would wind up in the hospital with a central line. Five years ago I started adding 2-4 tablets of loperamide to my daily routine and it made a huge difference. All the fluid in the world won't help if it just flies through you. You have to slow down your bowel(s). I know this doesn't work for everyone--I think Maggie mentioned once that it didn't work for her--but by all means discuss adding it to the other medicine you take daily with your doctor. In my case, it was a game changer.
@@lorrainewhite4313I hope you are doing okay now. I have been on quite a journey. strangely i am on my second stoma 18 months after the first one was created and developed a huge herni I also needed, but didn't know it ; and had to go through 3 surgeons to get it; a proctocolectomy. My 1st stoma caused 3 hospital stays due to high output ( created after years of colon issues and finally an IBD diagnosis). With the New stoma from 5/21/24 and the rest of the 9 hour surgery I've had an obstruction and an ileus and learned I had anorectal cancer after having them removed and biopsied. Thank goodness everything was clear after removal when I saw the oncologist. But…Now having food intolerance, bloating, possible SIBO and dumping tons of water 7 weeks post-op. Really hoping LMNT helps. @letstalkibd..in another video, you mentioned a Facebook group for proctocolectomy patients. I think it is an amazing idea! Wishing everyone here the best!!!❤
Maggie, Thank you for the offer. I ordered my sample packet plus the smallest packet along with package to try because I do have those days where I get completely dehydrated. Don’t feel good and get a headache and I know it’s because my output is too high. I also got the Barbie butt surgery as they call it after you did in April 2020 after I watched your video of you having the surgery in 2019. I had a J pouch and then they discovered I had Crohn’s instead of all sort of UC and for 15 years that I had the J pouch I suffered greatly With abscesses and I was in the hospital at least a year if not more with some kind of surgery or having to have a drain put in ….. one day I came across your video/ channel and said I’m taking it all out. I remember seeing the surgery on UA-cam because I wanted to see what it looked like and I cried, but then I went back to the J pouch surgery and looked at that again and said if I can do that, I can do this because I can’t take it anymore. At the time of my decision, I had two setons and an diverted ileostomy at this time, I thought this is not living considering the setons, one is in my rectum and one in my vagina wall and I was too young to live in a diaper and be confined in my home so my story changed because I came across your video and you being so open and honest sharing your surgery experience, getting rid of all the organs and the disease tissue and being down to an ileostomy only. So I really appreciate all your honesty and your authentic sharing of every detail of what you’ve been through because it gives me hope and I learned something almost every single time I watch. I’m hoping to start a channel someday soon and what you do is very inspiring. Thank you again Maggie and I hope these work for me on those days where my output is going crazy
Coming up to having my ileostomy for three years now, and i have found that fine line between being hydrated and being under or over. Its not just the amount but also the time of day you intake the liquid. I don't drink after 8pm unless i wake in the night.
I have Crohn's but not an ostomy & I was hospitalized in March for dehydration. I had no idea that it could be so dangerous and that it could cause so many symptoms. I was in so much pain, and it was very different from a flare. Thank you for sharing this! 💙
We also use LMNT I like the watermelon and my hubby likes the citrus. He has 1 kidney and golfs out in the Texas sun and I have type 2 diabetes and my meds make it almost like I have IBS. It makes you feel so much better
Thanks a lot for the information Maggie. I have been following you for a little over five years. I tried to order LMNT but it seems like it does not deliver to the place I live at, South Korea. But I will keep it in mind and purchase them when I get some chance. Thank you😊
I have( had) crohns disease( thankfully in remission w/o ibd medication) and have an ileostomy for 30? Yrs now. I still have problems with dehydration, take 2 lomotil tabs daily, which really seems,to help me. I dtink a certain O.R.S solution suggesteed by a g.i dietician and was not recommwnded not to drink hydtationsolutions like LMNT or drip drop etc. Thank you maggie for sharing this information. 😊❤.
Normalyte is another good electrolyte brand! I have a colon, but I feel a lot better since I've been using electrolytes for about a year now. I workout and sweat a lot, and even though I drink lots of water, I was still feeling dehydrated. The electrolytes help a lot!
I have pots and and gastroparesis Dehydration is so irritating to deal with. I drink a lot of electrolytes. I love LM NT and liquid IV, but I also still go to an infusion center to get lactana ringers every 2 weeks.
Dumb question, but I've always wondered. How does it work if there is a constipation type issue because you can't "push" to help it along like we can when going the bathroom the normal way? Is that just never an issue?
HI Maggie I was wondering what are your favorite flavors? I have a hard time drinking salty drinks but would like to try these. Not sure what flavor to start with. Thank you Hugs and blessings
This dehydration is hard to manage. No one told me about drinking (sipping and not gulping) more fluids. No mention of electrolytes loss, extra sodium and less sugar. Maggie, thank you for the tips and explaining how the 'new' streamlined digestive system works. And I like the terms 'salty friends', and what's this 'Barbie or Ken Butt' all about? 😂
I don’t have Crohn’s disease or an ostomy. I do however have a gluten intolerance. Staying hydrated is easier said than done because of it. If I eat gluten I’ll either end up spending the night in the bathroom on the toilet or hugging it. I have yet to try LMNT. I’m not sure if my doctor would be okay with the sodium content due to my thyroid and diabetes meds. She’s okay with me drinking Liquid IV though.
Hi Maggie, con you please help me with the treatment you did for SIBO? In my country Drs dont know hwat sibo is and this year I have been feeling not so good, with a kot of gas and pain. Ive had my ileostomy for almost 5 years now and First time Ive had this problems. Please help me
I am 5 weeks after surgery and have had some solid BMs. My sister in law was watery, I think it depends on how much of your small intestine you have and other personal factors etc
I got my ileostomy on March 1 2024 as I have diverticulitis disease. Generally, my output is like a thick paste and then I had days when my bag just fills up with nothing but liquid.
Dehydration can be very dangerous. This is a different reason for dehydration but I think it’s important, sorry that it’s so long: I got Norovirus shortly before Christmas 2017, it caused me to get dangerously dehydrated due to diarrhea and vomiting (I didn’t know you can have diarrhea with an ileostomy, but clearly you can) I was so weak that all I could do was sit on the bathroom floor and do nothing, it took a lot of effort just to talk, and get dressed, in fact, my mom had to wash my hair because I wasn’t able to, so my mom called my dad to come and help her take me to the ER because I couldn’t walk to her truck on my own, and there was no way she could have done it on her own, so when my dad came, they had to help me walk, my mom was behind me holding onto my waist, and my dad was in front of me facing me and I had my arms around his neck. I think that I passed out a couple times while walking to the kitchen because I don’t really remember walking to the kitchen, but I do remember being in the kitchen and my mom putting on my shoes, then the next thing I remember, I was out on our porch, then the next thing I was in my moms truck. So my mom took me to the ER (running red lights and everything, as a mom would 😊 and also while in the truck I remember I was gasping like I had just ran a really long time) so when we got there she went in to get some help, she said she yelled “I need help!” and 3 big male nurses came out and got me out of the truck, I don’t remember anything else after that but I was told that I stopped breathing, so they had to use that thing where they squeeze it to get air into me, and I then I had a breathing tube put in. I was air lifted to a bigger trauma hospital that luckily isn’t too far from our house (my first time in a helicopter and I don’t even remember it) and I was in the ICU for maybe a couple days (I think) besides the fact that I quit breathing, my kidneys and liver were starting to shut down also, so after the ICU, I was in a regular hospital room for I think another 4 or 5 days. It was so scary, but I’m sure it was so much scarier for my parents, I even asked my mom while I was in the ICU if I died because of the breathing tube, well I finger spelled it using sign language (I know the alphabet in sign language) since obviously I couldn’t talk, luckily I got it out I think later that same night, or the next day, but I don’t really remember. So remember to wash your hands very very well, especially when there is Norovirus going around. Also, when I started to vomit AND have diarrhea, I should have immediately gone to the ER, but I just thought I had a partial blockage because I’ve had so many of those and it kind of felt similar that I just assumed that’s what it was, so I didn’t know it was as serious as it was, and my mom had it also so I didn’t want to ask her to do a lot because she was sick. I think if I could go back I would call for an ambulance.
I've had UC 40+ years and an ileostomy 30 years. I've also lived in one of the hottest places in the world all that time--Las Vegas, Nevada since 1974. In my late 40's and early 50's I started having a big problem with getting dehydrated to the point that I would wind up in the hospital with a central line. Five years ago I started adding 2-4 tablets of loperamide to my daily routine and it made a huge difference. All the fluid in the world won't help if it just flies through you. You have to slow down your bowel(s). I know this doesn't work for everyone--I think Maggie mentioned once that it didn't work for her--but by all means discuss adding it to the other medicine you take daily with your doctor. In my case, it was a game changer.
Me too but mine was through cancer. I always have lopamide in my medical box and use it appropriately.
@@lorrainewhite4313I hope you are doing okay now. I have been on quite a journey. strangely i am on my second stoma 18 months after the first one was created and developed a huge herni I also needed, but didn't know it ; and had to go through 3 surgeons to get it; a proctocolectomy. My 1st stoma caused 3 hospital stays due to high output ( created after years of colon issues and finally an IBD diagnosis). With the New stoma from 5/21/24 and the rest of the 9 hour surgery I've had an obstruction and an ileus and learned I had anorectal cancer after having them removed and biopsied. Thank goodness everything was clear after removal when I saw the oncologist. But…Now having food intolerance, bloating, possible SIBO and dumping tons of water 7 weeks post-op. Really hoping LMNT helps. @letstalkibd..in another video, you mentioned a Facebook group for proctocolectomy patients. I think it is an amazing idea! Wishing everyone here the best!!!❤
My doctor recommended LMNT and it worked very well to keep me hydrated. Good product.
Maggie, Thank you for the offer. I ordered my sample packet plus the smallest packet along with package to try because I do have those days where I get completely dehydrated. Don’t feel good and get a headache and I know it’s because my output is too high. I also got the Barbie butt surgery as they call it after you did in April 2020 after I watched your video of you having the surgery in 2019. I had a J pouch and then they discovered I had Crohn’s instead of all sort of UC and for 15 years that I had the J pouch I suffered greatly With abscesses and I was in the hospital at least a year if not more with some kind of surgery or having to have a drain put in ….. one day I came across your video/ channel and said I’m taking it all out. I remember seeing the surgery on UA-cam because I wanted to see what it looked like and I cried, but then I went back to the J pouch surgery and looked at that again and said if I can do that, I can do this because I can’t take it anymore.
At the time of my decision, I had two setons and an diverted ileostomy at this time, I thought this is not living considering the setons, one is in my rectum and one in my vagina wall and I was too young to live in a diaper and be confined in my home so my story changed because I came across your video and you being so open and honest sharing your surgery experience, getting rid of all the organs and the disease tissue and being down to an ileostomy only.
So I really appreciate all your honesty and your authentic sharing of every detail of what you’ve been through because it gives me hope and I learned something almost every single time I watch.
I’m hoping to start a channel someday soon and what you do is very inspiring. Thank you again Maggie and I hope these work for me on those days where my output is going crazy
Good education. Im in AZ, so 19:07 per my doc the dehydration issue is really key. Ordered my sample.
Coming up to having my ileostomy for three years now, and i have found that fine line between being hydrated and being under or over. Its not just the amount but also the time of day you intake the liquid. I don't drink after 8pm unless i wake in the night.
I have Crohn's but not an ostomy & I was hospitalized in March for dehydration. I had no idea that it could be so dangerous and that it could cause so many symptoms. I was in so much pain, and it was very different from a flare. Thank you for sharing this! 💙
You're a great story teller and I appreciate your tips on ostomy life. ❤
Hi Maggie, I am getting ready to have gastric bypass surgery in November. I appreciate this video because I’ll have to be mindful of my hydration.
Thank you very much Maggie i have a ilostomy I’ll all the time with dehydration very grateful to you Maggie xx
We also use LMNT I like the watermelon and my hubby likes the citrus. He has 1 kidney and golfs out in the Texas sun and I have type 2 diabetes and my meds make it almost like I have IBS. It makes you feel so much better
Thanks a lot for the information Maggie. I have been following you for a little over five years. I tried to order LMNT but it seems like it does not deliver to the place I live at, South Korea. But I will keep it in mind and purchase them when I get some chance. Thank you😊
I have( had) crohns disease( thankfully in remission w/o ibd medication) and have an ileostomy for 30? Yrs now. I still have problems with dehydration, take 2 lomotil tabs daily, which really seems,to help me. I dtink a certain O.R.S solution suggesteed by a g.i dietician and was not recommwnded not to drink hydtationsolutions like LMNT or drip drop etc. Thank you maggie for sharing this information. 😊❤.
Thank you for the info.
You look great Maggie.
Normalyte is another good electrolyte brand! I have a colon, but I feel a lot better since I've been using electrolytes for about a year now. I workout and sweat a lot, and even though I drink lots of water, I was still feeling dehydrated. The electrolytes help a lot!
I have pots and and gastroparesis Dehydration is so irritating to deal with. I drink a lot of electrolytes. I love LM NT and liquid IV, but I also still go to an infusion center to get lactana ringers every 2 weeks.
Dumb question, but I've always wondered. How does it work if there is a constipation type issue because you can't "push" to help it along like we can when going the bathroom the normal way? Is that just never an issue?
Peristalsis, the normal and natural contractions of the bowel, moves things along. The bowels empty into the bag voluntarily.
It is so hard to find good tasting drinks with high electrolytes. Excited to try this brand!!!
I use Junp powder (peach flavor is yum) or the nuum effervescent tablets (watermelon is also yum). Both from iHerb
HI Maggie I was wondering what are your favorite flavors? I have a hard time drinking salty drinks but would like to try these. Not sure what flavor to start with. Thank you Hugs and blessings
This dehydration is hard to manage. No one told me about drinking (sipping and not gulping) more fluids. No mention of electrolytes loss, extra sodium and less sugar. Maggie, thank you for the tips and explaining how the 'new' streamlined digestive system works. And I like the terms 'salty friends', and what's this 'Barbie or Ken Butt' all about? 😂
Any reccomended commercial electrolytes drinks???
Can I ask a quick question please? How can you tell when and if an intake can be absorbed or not by the small intestine?
I don’t have Crohn’s disease or an ostomy. I do however have a gluten intolerance. Staying hydrated is easier said than done because of it. If I eat gluten I’ll either end up spending the night in the bathroom on the toilet or hugging it. I have yet to try LMNT. I’m not sure if my doctor would be okay with the sodium content due to my thyroid and diabetes meds. She’s okay with me drinking Liquid IV though.
Hi Maggie, con you please help me with the treatment you did for SIBO? In my country Drs dont know hwat sibo is and this year I have been feeling not so good, with a kot of gas and pain. Ive had my ileostomy for almost 5 years now and First time Ive had this problems. Please help me
It's hard for me too I have the same problem as you do
I used to get dehydratea lot at end up. In the emergency room.
Do you have solid bowel movements? Or is it just diarrhea? because I know some people get constipated so that's why I was wondering
With my ostomy, it is always watery
I am 5 weeks after surgery and have had some solid BMs. My sister in law was watery, I think it depends on how much of your small intestine you have and other personal factors etc
I got my ileostomy on March 1 2024 as I have diverticulitis disease. Generally, my output is like a thick paste and then I had days when my bag just fills up with nothing but liquid.
@@LetsTalkIBD ok That's good to know
@@MFroggi419 Does the solid stool hurt? If I may ask
❤
I get dehydrated easily. Sometimes I don’t know I am. It’s hard to know!
❤❤❤
☀️🌼
In my experience, dehydration leads to blockages ... so I have to stay hydrated ... at my size, 192 oz of water a day does the trick, lol.
Hi! I would really like to get some. I live in Scotland UK! Can you help please. Helen from Scotland! ❤
Does it have Stevia in it ? It doesn’t agree with me.
Dehydration can be very dangerous. This is a different reason for dehydration but I think it’s important, sorry that it’s so long:
I got Norovirus shortly before Christmas 2017, it caused me to get dangerously dehydrated due to diarrhea and vomiting (I didn’t know you can have diarrhea with an ileostomy, but clearly you can) I was so weak that all I could do was sit on the bathroom floor and do nothing, it took a lot of effort just to talk, and get dressed, in fact, my mom had to wash my hair because I wasn’t able to, so my mom called my dad to come and help her take me to the ER because I couldn’t walk to her truck on my own, and there was no way she could have done it on her own, so when my dad came, they had to help me walk, my mom was behind me holding onto my waist, and my dad was in front of me facing me and I had my arms around his neck. I think that I passed out a couple times while walking to the kitchen because I don’t really remember walking to the kitchen, but I do remember being in the kitchen and my mom putting on my shoes, then the next thing I remember, I was out on our porch, then the next thing I was in my moms truck. So my mom took me to the ER (running red lights and everything, as a mom would 😊 and also while in the truck I remember I was gasping like I had just ran a really long time) so when we got there she went in to get some help, she said she yelled “I need help!” and 3 big male nurses came out and got me out of the truck, I don’t remember anything else after that but I was told that I stopped breathing, so they had to use that thing where they squeeze it to get air into me, and I then I had a breathing tube put in. I was air lifted to a bigger trauma hospital that luckily isn’t too far from our house (my first time in a helicopter and I don’t even remember it) and I was in the ICU for maybe a couple days (I think) besides the fact that I quit breathing, my kidneys and liver were starting to shut down also, so after the ICU, I was in a regular hospital room for I think another 4 or 5 days. It was so scary, but I’m sure it was so much scarier for my parents, I even asked my mom while I was in the ICU if I died because of the breathing tube, well I finger spelled it using sign language (I know the alphabet in sign language) since obviously I couldn’t talk, luckily I got it out I think later that same night, or the next day, but I don’t really remember.
So remember to wash your hands very very well, especially when there is Norovirus going around. Also, when I started to vomit AND have diarrhea, I should have immediately gone to the ER, but I just thought I had a partial blockage because I’ve had so many of those and it kind of felt similar that I just assumed that’s what it was, so I didn’t know it was as serious as it was, and my mom had it also so I didn’t want to ask her to do a lot because she was sick. I think if I could go back I would call for an ambulance.