What My Late-in-Life Autism Diagnosis Taught Me about Change | Anna Kutbay | TEDxGeorgetown

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  • Опубліковано 15 лис 2024
  • Kutbay discusses the personal challenges she faced as she grappled with her autism diagnosis. She shares lessons from her approach to change that can be instructive and supportive for individuals of all backgrounds. Anna Kutbay is a 1L at Georgetown University Law Center where she's a member of the Mock Trial team, the Public Interest Corps, and Outlaw. She's originally from Morristown, Tennessee and received her BA and MA in Economics from The University of Alabama in 2022. Her late-in-life Autism diagnosis forced her to re-evaluate much of what she thought she knew about herself, her passions, and her ability to pursue a legal education. Now, Anna has used that experience to continually discuss and advocate for women with Autism who routinely go undiagnosed, posing the tough question: what do you do when a sudden diagnosis disrupts your sense of normalcy, and how can you use that change to engage in self-reflection and actualization? This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx

КОМЕНТАРІ • 52

  • @tartgreenapple1
    @tartgreenapple1 10 місяців тому +44

    Diagnosed Autistic with ADHD last year at the age of 51. It answers so many questions and explains so many things. 50 years of being undiagnosed has brought a lot of trauma. Unfortunately, popular culture has backlashed against us, saying that its just a trend. It most certainly is not a trend. People just want to invalidate others.
    Thank you for speaking out.

    • @alfreedfandangle
      @alfreedfandangle 10 місяців тому

      Thanks for invalidating my experience. 🖕

    • @tartgreenapple1
      @tartgreenapple1 10 місяців тому +1

      @@alfreedfandangle Nobody here is doing that. We're simply informing you of things you don't understand. Nobody is saying being late diagnosed male is easy. Easier to get a diagnosis than women, but not easy. Calm down. You came in hot invalidating women's struggles with your original comment. Now you're upset because we educated you. 😆😂

    • @alfreedfandangle
      @alfreedfandangle 10 місяців тому

      ​@@tartgreenapple1 I didn't invalidate anyone. I was expressing the view that the central issues were about late in life autism diagnosis. It is the title of the talk after all.

    • @tartgreenapple1
      @tartgreenapple1 10 місяців тому

      @@alfreedfandangle 😆 ok. Maybe watch the video instead of fixating on the title.

    • @PaolaDentifrigi
      @PaolaDentifrigi 8 місяців тому

      Same here!

  • @dianevanhoff1829
    @dianevanhoff1829 5 місяців тому +16

    It’s never too late! I was just diagnosed at age 71!

  • @ChristianGreengrass
    @ChristianGreengrass Рік тому +21

    Makes me feel less alien as someone who is also on the spectrum. Thank you for this presentation. I am also very blown away by how hard it is for women to be diagnosed as compared to men such as myself. It’s great that she is advocating for the lost generation

  • @nataliesirota2611
    @nataliesirota2611 8 місяців тому +10

    Thank you so very much for this amazing talk! I was not diagnosed until I was 58! It has been so freeing and I feel like I have a new lease on life.

  • @failedfosterdogmom1548
    @failedfosterdogmom1548 2 місяці тому +10

    I believe I am Austic and have been for 60 years. Being raised by a Narcissistic parent made it more challenging. I keep being reminded that in elementary school, I was sitting very still in one place while all the other students were running around in circles, not listening to the teacher. I refused to touch certain things (and do that currently). Too much activity makes me shut down. I was forced to attend activities, including college, that would physically make me sick. To get out of the house, I played along. I struggled to keep jobs that had lots of interactions with others. I would think I was understanding what was said, but if the directions weren't very clear and detailed, I misinterpreted the directives. I have been fired from many jobs. I am just looking to make my remaining years livable but can not get past the interview stage

  • @JovanChronosTaylor
    @JovanChronosTaylor 3 місяці тому +2

    I was diagnosed a year ago at age 30, with ASD & ADHD.
    That “feeling different from the world” is STILL a thing. I’m thankful for videos like this. I need this.

  • @jaydenken3
    @jaydenken3 Рік тому +16

    Wish I could hear more! She’s incredible!

  • @namuh_a
    @namuh_a 10 місяців тому +6

    This talk is so incredibly validating. I pulled a similar course-switch, changing first from Computer Science to Physics, then to 'Economics and Politics', and now wanting to leave uni and pursue other things more directly related to what I refer to as the Objective (to increase the freedom and flourishing of all). Talks like these have helped me to finally liberate myself, so I can help others liberate themselves too. Thank you :)

  • @MeganLehnert-wz7rp
    @MeganLehnert-wz7rp Рік тому +21

    Right? I want to hear more.
    I received my diagnosis at the age of 37. It feels as if this TedTalks was created with me in mind.
    "you are not alone. In fact, you have never been closer to becoming the person you were always meant to be."

  • @tata2023f
    @tata2023f 8 місяців тому +2

    Thank you for this powerful speech! Your words described how I feel about disruptions and the loneliness caused by changes.
    I changed my country, I’m struggling with learning a new language, my master degree in one of the top 100 universities doesn’t work in here and lots of things happening… I feel lonely.

  • @jeanninej224
    @jeanninej224 2 місяці тому +1

    Just started the process of getting tested for autism and adhd at 66. Just researching on my own has opened my eyes and so many things makes sense now. Yet another journey… never stop learning!

  • @redpalex
    @redpalex Рік тому +7

    This is exactly what I need now.

  • @TheAlyxson
    @TheAlyxson Місяць тому +1

    Diagnosed yesterday at nearly 54. Part of the lost generation. I feel like so much of my life finally makes sense.

  • @janieno1102
    @janieno1102 Рік тому +3

    Thank you for giving me a voice and the words.

  • @TheAngelaoddone
    @TheAngelaoddone 7 місяців тому +9

    There are very few services for "late diagnosed" autistic adults. My psychotherapy practice is dedicated to serving them via individual and group psychotherapy and case management support. I thought I had done a deep dive into researching and understanding autism before I began seeing newly self- or "officially" diagnosed autistic adults. Nope. I have learned so much more from my clients, particularly when facilitating therapy groups especially for them to share and process their experiences discovering they're autistic and supporting each other with their new insights as they continue to navigate a predominantly allistic world, which I like to describe as being full of "neurotypical static."

  • @KatieKate574
    @KatieKate574 8 місяців тому +4

    40 here and diagnosed one month before I turned 40.

  • @jaydenken3
    @jaydenken3 Рік тому +3

    Powerful.

  • @chaplainmattsanders4884
    @chaplainmattsanders4884 Рік тому +3

    Very interesting message. Well done.

  • @erinhutchins5718
    @erinhutchins5718 10 місяців тому +5

    Since 15 I have used self harm, I have wanted to end my life so many times, I even attempted to end my life in 2017. I woke up in the ER from a Seizure. I have had over 60 jobs, I’ve been treated like im supposed to be a “ normal 38 year old.” I have worked with autistic kids and adults, that’s the only job I’ve ever loved. I just can’t handle working with non- autistic people….they don’t understand.

  • @zachjohnson4530
    @zachjohnson4530 5 місяців тому +2

    I have Autism
    I love Anna

  • @hollieverafter
    @hollieverafter Рік тому

    Thank you, Anna!

  • @divining_denizen
    @divining_denizen 10 місяців тому

    Thank you!❤

  • @erinhutchins5718
    @erinhutchins5718 10 місяців тому +3

    Anna please help me get a diagnosis, it’s a 2 year waiting list here in California…

  • @MsLisa551
    @MsLisa551 6 місяців тому

    Thank you ❤

  • @SergioBlackDolphin
    @SergioBlackDolphin Рік тому +48

    Please, please, please, don’t leave those men who mask “like women do” alone! For the same reasons.. please. I am 51…

    • @atomicsun72
      @atomicsun72 11 місяців тому +11

      Thankyou for bringing this up. @SergioBlackDolphin
      I agree 100%

    • @pb11118
      @pb11118 9 місяців тому +20

      Yes but this is not what this talk is about. And the reasons are not the same due to mens power in society. Im a sociology lecturer, autistic & adhd (diagnosed age 40). Women on the autistic spectrum often engage in masking behaviors, adapting to societal expectations, which can be exacerbated by patriarchal norms. The pressure to conform to traditional gender roles & social expectations OFTEN leads them to conceal or downplay their autistic traits. This masking can make it challenging to recognise & diagnose autism in women, as their coping mechanisms might obscure the characteristic signs. Addressing these gender-related dynamics is crucial for a more accurate understanding & identification of autism in women. More evidence that the biomedical model fails us as women

    • @chillwinstonuk
      @chillwinstonuk 3 місяці тому +2

      I'm so glad you brought this topic up. I celebrate the fact that more women are being diagnosed and feel safe to start talking about what's going on internally, however many of use AuDHD men mask in the same way as women do. We support our sisters, massively. However I know that many neurodivergent boys and men are doubting themselves or getting assessed or even a past diagnosis, because they don't fit the stereotypical male presentation. The trick here I think is for women who are trying to raise awareness to female masking, they put a disclaimer in advising that men can mask in very similar ways and also slip through the net. Thank you ❤️

    • @Spokentruth111
      @Spokentruth111 Місяць тому +2

      @@pb11118I agree but men with this disorder such as myself and others suffer a lot due to the societal norms

    • @user-iz9yc3rg5e
      @user-iz9yc3rg5e 18 днів тому +1

      ​@@Spokentruth111 Agreed

  • @neicya9949
    @neicya9949 Рік тому +7

    Thanks I appreciate you speaking out. How long did it take you to recover after? 😂 if I went on stage, I’d need a week to recover 😅
    Another good conversation would be how growing up living undiagnosed and how you treat your children. Assuming I was NT, I often pushed my kids to do things I wouldn’t or did because I was pushed to be NT. It makes me sad to think about things I’ve said to my child and the process of unmasking. Letting them be free at home as well as me.

  • @marshallgreen7815
    @marshallgreen7815 11 місяців тому +2

    67!

  • @ada13
    @ada13 Рік тому +1

    Bravo

  • @maisiejanes9098
    @maisiejanes9098 26 днів тому

    How do I find the resources ?

  • @t.terrell7037
    @t.terrell7037 2 місяці тому

    Does anyone know where to go to get the info she mentioned about getting a diagnosis?

  • @noqueq9003
    @noqueq9003 9 місяців тому +1

    I do intend to get myself a brainscan. I won't even waste any more time with non expertised ''experts'' who won't even recognise the HF autism in me because of my well evovled coping mechanisms and masking. A brainscan cannot lie even if it wanted to. And I want an answer.

    • @gct685
      @gct685 8 місяців тому +3

      a brainscan won't help you... there is nothing physically visible in the case of getting an autism diagnosis. as a matter of fact I took part in a study that involved a brainscan (MRI) and was told that my brain looks perfectly normal. this despite having an official diagnosis of both autism and ADHD.

  • @williamphanz
    @williamphanz 4 місяці тому

    Thanks! This helps me as a guy.

  • @izzypaynee
    @izzypaynee 3 місяці тому

    She’s sooo attractive

  • @WondersWhy
    @WondersWhy 11 місяців тому +2

    check out sarah hendrickx autism in women and girls, what's the difference. she calls late diagnosed women the feral generation. I'm 71. that's it. my life.

  • @AlexandreSchwarz
    @AlexandreSchwarz 10 днів тому

    Oh my God even here feminism takes the lead...

  • @gct685
    @gct685 8 місяців тому +1

    we don't know what we don't know.... we don't know how many Men & women have gone undiagnosed because ..... drum roll..... because duh, they are undiagnosed... so please stop assuming that this problem only affects women. it affects men too. perhaps women are better at hiding it but this talk tends to make it sound as if being undiagnosed only affects women. stats about ratios of undiagnosed adults are pure speculation... because..... (loop back to the beginning)

  • @devs7546
    @devs7546 5 місяців тому

    Can we remove this late diagnosis people from autism spectrum. Can you tell me one single autistic people diagnosed early in life who will speak in the way the lady presented.

  • @highlandermccloud3594
    @highlandermccloud3594 5 місяців тому

    WOW... It's only you woman who suffer? I was only diagnosed a few weeks ago at 48. Men have the same issues as woman. I'm offended at you saying woman have it harder then the other half of the Autistic population.