What Are the Effects of Encephalitis?
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- Опубліковано 15 січ 2021
- The fifth animation by the Encephalitis Society answering the question, 'what are the effects of encephalitis?' in under 95 seconds.
Please share this film, and help to raise awareness of encephalitis and its consequences.
You can watch the full series, explaining "what is encephalitis?" here: • Understanding Encephal...
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Doctors told me I was just crazy or had fibromyalgia or wanted drugs....20 years I have had this. I almost died before my mother's eyes, until she passed at a time when I wasn't able to help her in return. Part of me wants to be angry, but the rest of me knows that thus just as it is, as it was, and what will be... will be. The "Best Doctor's " were often the most cruel. I am a lower American caste, so unless I was dressed up with make up on and attractive to them (which I literally did my own experiment with this to prove it true or false to myself), they would treat me as a street rat. I looked terrible...because I felt terrible. It hurt to wear clothes. It hurt to breathe. It hurt to sit...but if I didn't hurt myself in that way, often times no one would bother to listen.
I had epilepsy, anxiety depression, paranoia anger low motivation, concentration and I did have lack of insight but the latter has improved a lot over the last 15 years or so. The effects DID occur later in my life *especially motivation anger depression and profound OCD). Thank you for this helpful video.
Thank you for watching Paula, and for sharing some of your effects with us. We are so glad you found the video helpful
Whilst working in China, in January 2017, I suddenly got extremely sick, first apparently with flu, but was later - I would find out, after starting to wake days later in a hospital bed!- diagnosed with viral encephalitis, which had apparently gone into my brain from my lungs (initially, it was said I'd had pneumonia).. As far as I was aware, it all began with severe nightly seizures in my apartment - during which I'd bite hard on my tongue and wake up confused and in pain, with a bloody mouth, face, and even bedding! - and I was found that way on my bed after not turning in for my teaching job, one day.. I spent the next week in a coma (possibly induced, I can't say) during which time I somehow knew I was very sick, but kept 'finding myself', mentally, either wandering the city streets looking for my apartment, having apparently forgotten it's location, and even key, or sometimes either teaching in mostly empty centres I didn't actually recognise (but still knew what I HAD to do there, despite my evident illness) or even being taken on 'hospital ferryboats' apparently either to an ICU in another hospital outside of the city (of Foshan), or else being taken out in a wheelchair with other hospital patients at the hospital, to such as old shopping centres. This, by nursing staff (a non-uniformed family of 'nurses', btw.. turned out they really were at my hospital, also).. And then, when I finally started to ACTUALLY 'wake up' more and more, though I was bed-ridden a while, I looked around in a deep, strange wonder as these types of things and outings continued, sporadically, and I viewed both my hospital ward surrounds, and the other people in it, very differently to what even made any sense to my own afflicted mind. In fact, people's features and skin, including my own, as eventually seen in a mirror, seemed cloth-like, and their hair looked like it was made of dark felt. Strangely, I came to assume that this must be what happens after too long breathing polluted air in the country!.. Occasionally, I also thought my visitors, one in particular, 'April' - both a friends and a colleague - was there specifically to be taught by me, and this belief was only compounded as fact by the old style classroom I viewed behind the girl, as she sat by me! On another occasion, I 'found' myself being wheeled in my bed through an airport check-in area, and even being weighed there (!!??) with another young female Chinese colleague, 'Sandy', whom also gave me back my mobile phone, as had been found in my apartment. Calling my gf in Thailand, I told her, too, that I was currently in an airport. (Both these ladies would later ask me why I insisted I was in an airport.. Because that's exactly what I viewed about me, including all the people in it, was all I could tell them!).. Anyhow, the upshot is I survived (obviously) and even quite quickly got back up and mobile - with a lot of physio - to my teaching position in China, within a month or so. I left a few months after that, and now reside usually year-round in Thailand, teaching also when I can get the work with the lady who waited for me, here. (It's been hard for everyone, lately, of course, but here I still am, and most of us likewise, thankfully). Moreover, despite some ongoing now minor issues with my left shoulder - which I badly tore the ligaments of during my seizures in China - I am mentally and physically as 'up and running' as I ever was. I have been very lucky, I know, and owe a huge debt of gratiude to both the medics in China who helped me pull through, and to all those who visited and or called (including my family stuck in England sat waiting at the time on possibly ever worse news about their 'loved one' on the critical list), to make sure I really understood fully that people, friends, family, colleagues and even my students, really cared about me. So, yes I was very fortunate in the extreme, in the end, but I was as sick as could be for a time, totally immobile, confused and hallucinating, and yet here I am, nonetheless. And, btw.. in all my apparent regular OOBE style 'wandering' I felt NO presence of ANYTHING watching over me. Not ever. (Not that I thought I would). Nor did I fear, at all, not ANY of it. Not even about what I soon realised was a possibly irredeemable and initially terribly severe physical malady. (Maybe, that lack of fear was a thing born of the disease, too).. But, my thanks go out, then, only to TERRESTRIAL sources of rescue, recovery, care, and support. REAL things and people, and I can only very much wish all the rest of you touched by this disease (or so many others), whether the sufferer or the family and friends of the sufferer, the best recovery possible, as swiftly as possible.. (ps: Sorry for the long one, just had to get it out, I suppose). x
Thank you for watching, Blue Horizons, and for sharing your story with us. We are so sorry to hear of your encephalitis in 2017. We are always here for you (and your girlfriend, family and support network) any time you have a question about encephalitis - please don't hesitate to reach out to support@encephalitis.info, or call us on +44(0)1653699599.
I've had epilepsy from that onwards i feels like i'm depressed, paranoia anger,low motivation. And i feel like these all are i'm creating myself.
Thank you for watching and for your comment Gayathri. We are so sorry to hear of some of the effects of your encephalitis. You are not alone, we are here for you. You can reach us on +44(0)1653699599 or email us at support@encephalitis.info
I had encephalitis when I was 1. I’ve always had issues with doing simple tasks like sweeping and stuff like that
Thank you for watching, and for your comment. You are not alone Barry, we are here for you. If ever you would like any support please reach out to us at support@encephalitis.info
I suffer from this n was here to see if it’s just a thing doctors make up 👨🏼⚕️🧑🏼⚕️👩🏼⚕️🥼