It's not just dry eyes and mouth. It's also sinusitis, vaginal dryness, itching due to skin dryness, hair loss, IBS, nerve pain, chronic fatigue......and the list goes on. They give you the brochure version of symptoms. There is nothing straightforward about any autoimmune disorder. You have to research it yourself and talk to other who have it. That helped me.
One of the issues I had with this presentation is that you state ANA and other test are definitive. Not always. Often the diagnosis is made by symptoms. It can take years to get a diagnosis. Symptoms from other maladies can over lap further muddy the waters when making a diagnosis. The fatigue was not mentioned and as it can be disabling, it should be addressed. Dry eyes and mouth are just the tip of the iceberg. .
Sjogren's affects the heart! I just had CABG quad bypass and the surgeons foo-foo'd me having Sjogren's (I have primary). Recovery in ICU from heart surgery was horrible!
I have Sjögren's syndrome and I do take medication for it but I have to wait for two months for my doctors appointment and I've never skipped a month without my medicine, so i don't know how I'll do with not taking my medicine for two months and I have a job. Do you know what will happen if I don't take my medicine for two months?
Excellent question! I was taught "you don't diagnose via AB and you don't treat AB" (except for rare cases) but I'll ask my rheuma professor tomorrow and let you know!
Boy this guy has missed the boat about what the problems are that Sjogren’s Syndome suffers are going thru very blasé re the illness and treatments and outcomes
Dear sir I m from india, my name is chintu patel my mother body sjogren's syndrome and treatment work but we want not result my mother age 51 and weight only 36 kg. Please help me
It's not just dry eyes and mouth. It's also sinusitis, vaginal dryness, itching due to skin dryness, hair loss, IBS, nerve pain, chronic fatigue......and the list goes on. They give you the brochure version of symptoms. There is nothing straightforward about any autoimmune disorder. You have to research it yourself and talk to other who have it. That helped me.
Thank you! Will keep it in mind once once I finished med school! :-)
One of the issues I had with this presentation is that you state ANA and other test are definitive. Not always. Often the diagnosis is made by symptoms. It can take years to get a diagnosis. Symptoms from other maladies can over lap further muddy the waters when making a diagnosis. The fatigue was not mentioned and as it can be disabling, it should be addressed. Dry eyes and mouth are just the tip of the iceberg. .
And heart disease
@@xDomglmao Did you finish yet?
@@RainerWinkelschleifer
No, I was too busy with bodybuilding.
I have Sjögren's syndrome and it is awful. I've made many vlogs documenting how it affects my life.
it's hell on earth
Surviving as Mom I've watched your videos the min u said you get cold I said she knows exactly what this is...
I hope ur doing well, im a medical student was studying this disease, Thanks for telling me its awful, i'll keep that in mind when i become a Dr
There is no ward can describe how much I'm thankful for you.Wish there are more videos for the surgey and Gyne-Obs too :(
Thank you Dr Paul Bolin, i really appreciate your way of teaching
Sjogren's affects the heart! I just had CABG quad bypass and the surgeons foo-foo'd me having Sjogren's (I have primary). Recovery in ICU from heart surgery was horrible!
"Straightforward" it is not....
Agreed
He means it's such when it comes studying and board quesions.
@@janlascko what means it is not......
great presentation as always !
up all night drinking water who dear no sleep. .sore throat most of time stiff as a rusty inge
Is that why when it swells I rubbed it and it's made my mouth actually water, I do have mild fibro as they say but I feel super old sometimes.
informative.... thank you
Restasis is associated with cancer? Cancer of what?
WHAT
I have Sjögren's syndrome and I do take medication for it but I have to wait for two months for my doctors appointment and I've never skipped a month without my medicine, so i don't know how I'll do with not taking my medicine for two months and I have a job. Do you know what will happen if I don't take my medicine for two months?
What kind of meds do you take?
Will plasmapheresis help in sjogren's beside the symptomatic treatment?
Excellent question! I was taught "you don't diagnose via AB and you don't treat AB" (except for rare cases) but I'll ask my rheuma professor tomorrow and let you know!
@@xDomglmao Thank you so much sir
Boy this guy has missed the boat about what the problems are that Sjogren’s Syndome suffers are going thru very blasé re the illness and treatments and outcomes
This criteris is BS. I hope to find a doctor who will treat these symptoms even though my testing is negative. I also.have Hashimotos.
Serrapeptase reduced all my symptoms.
Dear sir I m from india, my name is chintu patel my mother body sjogren's syndrome and treatment work but we want not result my mother age 51 and weight only 36 kg.
Please help me
I am also from their
Iv got it nasty