My Son Can't Speak Even Though He's 6, But That's Okay.
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- Опубліковано 28 вер 2024
- Francesca and Ulric’s son, Isaac, is the only child in Singapore with a rare disease that hinders his neurological development. We find out their struggles in caring for him, and how they find joy in parenthood.
If you are a parent of children with a rare disease, or would simply like to find out more, you can visit Rare Disorders Society (Singapore)’s website here: www.rdss.org.sg/
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thank you all for your kind words and affirmation, we hope by doing this interview, we can help spread awareness and to give strength to parents who are in the similar situation, take baby steps at a time and hopefully with time, patience and consistency, our babies will get there.
The lady in brown is a good interviewer and listener. Respect and love for Issac's parents ❤️
Thanks so much for your comment! We'll be sure to pass on the message :)
Kudos to everyone involved with making this video. I can't adequately express my level of admiration for Francesca and Ulric. Best wishes to their kids - Isaac & Faith.
I don't think it is at all selfish to choose not to have children or to go their separate ways have they known beforehand. I think a couple in Malaysia recently discovered they both carry the gene that causes thalassemia and decided to part ways. I don't think anyone would think that's selfish. Likewise, married couples who learn of anything after their marriage can choose other ways such as adoption etc. But no, I don't think she has to call herself selfish for thinking that way. It is not a matter of your own courage but it's about what the child has to face with all the deficiencies. And they will have to live a life even after their parents pass on... But yes, this couple are very brave people and not being angry takes a lot of courage too. There's so much to learn from brave people like them
Agree.
How to find out you have bad genes?
RESPECT to Francesca n Uric! They are such a wonderful, loving n strong parents.
Amazing parents!!! Much to learn from yall. Isaac and Faith, i'll be praying for yall. May the journey ahead be filled w more miracles and joy!!! God bless yall!!
Lotsa Respect and Thanks to all of them for Inspiring Strength and Hope🍀
thank you for making this video. it will definitely let me think twice when i see parents taking care of their children in the public next time; not to be too quick to judge. such videos definitely educate people more, and I believe would create more empathy. kudos to OGS as always
Francesca, Ulric, Isaac & Faith, thank you for sharing, besides family support, I hope you will always have support from your communities at work.
Very sad. We all love our children very much.
We give our daughter the best home and pampered her since young. Unfortunately, my health deteriorates and can't love her like before. Very sad
Very brave I am proud of u guys
He is cute 🥰🥰🥰🥰
I respect and admire to both of you, Be strong ❤
As a caregiver myself to my mum and brother who have a satellite in chromosome 23 I would like to thank the dad❤
I cannot really live my life having to care for them since there r not yet valid solutions through health and social system.
Keep fighting, parents, to give a good life for Issac and Faith❤
Thank u for the interview, mrs Tong😊😊😊
I'm wondering if the couple has explored sign language? Using sign language with isaac. Big love to Isaac, faith and parents ❤❤❤
hello, Isaac is unable to understand certain concepts like mimicking and thus is unable to use sign language, hopefully he will be able to find his own way to communicate, thanks for the suggestion.
@@isaacfaith1628 Jiayou 💖
abortion is not ‘killing a baby’.
My name is Faith too!
I was born and then got into China when I was 3.
But I was raised from the dead after 3 days.
All glory to God. Amen 🙏
Don't try to preach religion here. U hyprocrite
❤❤❤
Francesca and Ulric are admirable parents. However, the interviewers can do better, they could have avoided injecting their own opinions and feelings.
Are these ethnically Chinese people? Wow! All foreign names.
you GOT sharp eye and good ear.. I believe you sure believe law of karma.. I SENSE ABOUT STRANGE STRANGE
Someone's been living in a cave for the past few decades
I believe they may be Christians ❤
im half chinese and i definitely have ethnic roots but im glad i erased my chinese name of my ic
@@dacrethefrogproud of erasing ur identity 🤡🤡
That 1 girl who kept giggling while asking questions really annoys me.
Exactly.
She’s low-key laughing at the misfortune of this couple. :(
Sometimes people laugh at "inappropriate " times Because THEY ARE NERVOUS ... and don't know how to response ...
@@vincentho3964 welcome to the Internet/social media where not every comment should be taken seriously.
Ikr 👀 so mean.
First 5 years I couldn't talk (that's what my mom told me) and I remember since my kindergarten, I couldn't communicate with my classmates or my teacher. They were all very supportive so I never felt that I have some sort of abnormalities. And gradually as i grow older I started speaking better. Till today I have few speech difficulties, but if only someone pays a real attention to what i am saying, people aren't able to recognised my problem.
I also have gone through the same as you are. I congratulate you that you are courageous to face this and be the best that you are. Kudos to our parents who supported and believed in us that we can be the best. 😊
Hey guys! Thanks for watching this new episode :)
If you are a parent to children with rare diseases, or would simply like to find out more, you can visit Rare
Disorders Society (Singapore)'s website here: www.rdss.org.sg/
Special thanks to RDSS for connecting us with the family, and as well as to Ulric and Francesca for sharing their story.
See you guys for the next episode! You can also check out our previous episode here: ua-cam.com/video/2uNoHkmSL5o/v-deo.html
Kudos to the parents and thanks for raising awareness. However, I think we could use some sensitivity around some of the questions posed to the parents which I find them off putting.
Hey Ethan! Thanks so much for your comment :)
Just to clarify, we did seek Ulric and Francesca's consent before the shoot, to see if they were comfortable answering questions that were more sensitive/harder to answer.
Some of these questions were added as I felt that it would give a more complete and nuanced picture of what it's like to be a parent to kids with rare diseases.
Nevertheless, feel free to let us know your thoughts too :) Appreciate the feedback and for wording it kindly :)
- Tan Tong (Producer of the episode)
@@OGS.Official Thanks for clarifying. All said, I thought there were also very good questions asked e.g. if there are any expectations for Faith to be part of this caregiving journey.
Agree with @lidna82 on sensitivity esp Charmaine when she asked ‘will you have more kids’ & laughed…. 😢 She seriously need to work on her skills….& control her laughs in btw the sentences.
Maybe she was awkward too? Kudos to the other 2 interviewers- come across as sincere & have empathy. ❤
Love all your videos nevertheless.😊
I used to have a boy in my class exactly how Isaac is (doesn't know how to talk and walk properly despite being 5years old) but back then in early 2000s we didn't know what kind of developmental delays he had so we had to suggest to his parents to bring him to the hospital for checks. I hope both Isaac and the boy found help and more could help them in very near future.
Thanks for the inspirational video. My prayers and blessings go out to Isaac and his precious ever supportive parents.
Francesca and Uric, these may sound cliche~ you are few of the most patient and strong parents I have seen and heard. Also, everything happens for a reason. Somehow, some reasons aren't revealed now.
Do stay in blessed health, physically and emotionally. Whenever possible, self care.
Prayers to you.
Thanks to the production for this video.
This is like jubilee's ask me anything. Cool. I really admire ulric's POV too, u should not be pulled into taking care of ur sibling's life
Same here never give up it will have miracle. I cannot talk for the my 1st 5 years of my life but now I can even though I have speech problem. Just have faith in your son and believe miracles will happen. My mom and dad never give up on me at all even I also had some near death exprience
Thank you for sharing on this rare disease and your challenges and triumphs as parents! 💪🏻💪🏻 respect!
Whenever we see a situation or some one as not fitting what we define as norm - don’t assume! A little love goes a long way!
Cheering for you guys!
Jehovah Rapha, let GOD heal Isaac and bless him. In Yeshua’s name, Amen!
The parents are very kind, GOD give them strength and courage.
It has always been an ethical dilemma thesis question during the time over getting to know some one.
When being ask about all these.
There was a period of time when Circles DNA thing was trending and so I would always ask why not ?
To put it as selfish is just a PoV but whose?
I agree that being angry and having hate is a very tiring thing. so just live life as life throws what ever lemons and make lemonade out of it.
The interviewers re not good.
God tests even His bravest soldiers. I can never understand the heft of these parents with a special child, but I can assure you are blessed to love and raise a special child eventhough it is tough. Respect to parents who cares for their special children with selfless love and dedication.
I find this very inspiring 💡
A kid with special needs is a fighter to a point where he can run and walk. It tells me that I should fight too if I want to achieve something in life
I love their team work as a couple and supporting each other so well. Support makes any difficult situation bearable.😊
Some of the questions and interviewers are so insensitive. Just like in the video of the mom who experienced miscarriages. Please be more considerate…
I wish 2 of you and your 2 kids all the best. Stay strong for your kids.
Why was the interviewer giggling non stop 😰 really quite unprofessional
IKR !!! that charmaine ... annoying and super insensitive !
Ya! I thought I was the only one irritated by her. She has terrible interviewing skills and no EQ.
Y’all are the insensitive ones flaming ppl like that?? Ugh ppl nowadays are just so sensitive to things that are not even meant to be sensitive about. Without that interviewer there wouldn’t be those various perspectives and y’all wouldn’t be able to understand the complexity that the parents are going through. Stop hating keyboard warriors
Hey guys!! Just wanted to clear things up and say that everyone was being really respectful on set :) As for the laughing, I'd say it's an unconscious habit some of us may have when having difficult conversations, and I don't think there was any ill intention behind it.
We actually got Ulric and Francesca's consent before the shoot to see if they were comfortable with answering some insensitive/harder to answer questions. Some of these were inserted by me, as I felt that it would give a fuller and more nuanced picture of what it's like to be a parent of children with rare diseases.
Hope this clarifies some things!
Would appreciate if you guys could be more thoughtful before leaving your comments as well. Constructive feedback is always welcomed, but please try to be kind when leaving comments :) Thank you!
- Tan Tong (producer of this episode)
I am not comfortable with Charmaine for giggling and laughing after asking some questions.
Thanks for the video! Huge respect to both parents & child. Production team too.
I learn something new about genetics testing. Do u do tis test before pregnancy?
hello, we did it during the pregnancy of our 2nd kid (Faith). Technology has improved over the years, in the last we need to send it to USA, but KKH is able to perform the test in house now.
Stay strong Ulric and Francesca!
These couple really help each other.... All the best, GBU... Always pray for you guys
U need strong heart to be a parent
Thank you. ❤
Love the parents! ❤
❤
0:55 when the dad mentions how Isaac wasn’t able to produce the chemical for brain development, it made me think about my own disability of prosopagnosia because it’s brain related too..Also, it’s not a recognised disability in Singapore so I can’t even register for it but it’s so bad that I can’t even recognise my own parents. Thankfully, Isaac’s parents are trying to raise awareness about his condition so that people can be more informed ❤
when I heard the father said some "idiot" pass the remark "wah so old still have to be carried ah?"; he has so much patience and grace; I wouldn't have that capacity!
These parents are amazing!!!
Heaven sent child ❤
Ulric?? Your parents named you that? Which Chinese clan is that?
Thats the main point u get from the vid 🤡🤡🤡🤡
I think both of them are one of the most patient parents! God bless you