Myasthenia Gravis in Children and Teenagers
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- Опубліковано 26 січ 2016
- Myasthenia gravis is a rare autoimmune disorder that causes symptoms such as a drooping eyelid and muscle weakness. www.chop.edu/jmg
In children and adolescents the disease is called juvenile myasthenia gravis (JMG). A team at The Children's Hospital of Philadelphia (CHOP) is one of the most experienced in the world in treating juvenile myasthenia gravis. Many thanks to the Zalewski family, whose generous support helped make this video possible.
Ocular myasthenia gravis is one form of the disease, with droopy eyelid (ptosis) the primary symptom. Generalized myasthenia gravis, when the disease affects more of the body, includes symptoms such as double vision (diplopia); difficulty breathing, speaking, swallowing, and/or chewing; weakness of arms and legs; difficulty holding your head up; tiring easily; and falling easily. Some patients can't smile because of facial weakness.
At CHOP, neurologists, neuro-ophthalmologists and pediatric surgeons work together to provide treatment for myasthenia gravis. Myasthenia gravis treatment includes medicines and thymectomy, surgery to remove the thymus, which can result in complete remission. CHOP has the highest volume for this surgery in children in North America.
MG disease is caused by the antibodies of the immune system mistakenly blocking neurotransmitters (acetylcholine) released by the nerve cell to send signals to the muscle cells. The symptoms are caused by the disrupted communication between nerve and muscle. - Наука та технологія
So after I was diagnosed and recieved an IVIG treatment for 6 months I HAVENT HAD A SINGLE SYMPTOM FOR 5 YEARS NOW!!! Thank you. I no longer take any meds and have no symptoms.
I was diagnosed at 7 I am currently 24.
I grew up in an urban northern city in, Mexico.
I started school at age 3 in a Montessori type which divides the kinder garden into three levels and the program by the end of the 2nd kinder level the students are expected to perform at a 1st-grade elementary school level and write. One of my teachers scheduled a meeting with my mom because I was falling behind because I couldn't hold a pencil after a few letters and I was trying. But I was just placed with a private tutor and It was ignored until I had double vision at age 6. I was taken to an ophthalmologist he referred my mother and myself to a psychologist because he said I was making it up. But then, one day my pupil just went out of its orbit. And everyone, including my shrink, started to believe me.
Then my parents took me to a hospital in Mexico city with a neuro-pediatrician. I was feeling normal and my eye was back to its orbit because I had been wearing a patch. But the doctor kept on making me exercise my ocular muscles and then he saw a delay. Then all of the sudden all of the hospital residents were surrounding me. And after my thymectomy I have been stable with Mestinon, I went to college and I have am starting my career. I do have my limitations but you grow to understand your body limits :)
Listen to your kids :)
how you doing now son?
My girlfriend was diagnosed with MG 2 years ago, and it has been difficult. But she's a beautiful strong girl! we've learned a lot since.
I started experiencing MG symptoms in 2009 and in 2010 my dad died due to it. I got diagnosed in 2011 after multiple misdiagnosis. Learned years later that my dad had MG. I'm 22 now and still not coping. I hope everyone else gets better xx
Hi, I'm trixia from Philippines, I had symtoms at 21years old , got worse when I was 23, my life totally changed, you know you can't do whatever you want,it's so sad I can't go back to the way I used to, I missed being normal, now I'm 25 still fighting.
I was diagnosed in 2016 when I was 14 but I had symptoms for 3 years . But now that I am getting treated I have improved in all of my daily activities but yet I know that I won’t ever go back to how I used to be but I am sill staying strong and won’t let MG run my life
awesome story
I am 29 years old and was recently diagnosed with ocular myasthenia gravis. I had drooping of my left eyelid at the age of 5 . And most of the doctor's diagnosed it as just ptosis with no underlying cause. I underwent an eyelid lift surgery in 2011 but it failed after 1-2 years. I am so glad that the children's hospital is sharing such important information. I think it needs a lot of awareness because in a country like India where I'm from the diagnosis came to light only at one of the best hospitals in India, otherwise it's all misdiagnosis.
Hi, I also have ocular myasthenia gravis. I have been diagnosed with it an year back. But it is gradually increasing. Can you help me with the treatment or any other information that might help me with this condition.
I was 16 when i first started showing symptoms, nobody knew what was wrong then i turned 22 and my symptoms got so severe i went into crisis, it took me so long to get diagnosed.
I was diagnosed in 2015 at 14 years old
My niece 20yrs old had a Sternotomy of Thymoma myasthenia gravis.Dr is specialist for thymectomy sternotomy surgeon of cardiologyst..Is free at the hospital in Cyprus.He told us that she will be cured in a year 2017.If she had to go to a clinic by sternotomy or robotic surgery it would cost 15thousand euro.I hope Alexander is doing well.Thank you love from Cyprus.
great information
very good
very good
very good
My daughter is now 4 and she was diagnosed when she was 16months old.
We live in Istanbul. My son has been diagnosed at the same age. How is your daughters condition right now? Is she using Mestinon or she had a surgical operation of Thymectomy?
I am diagnosed with MG
Sir. I am suffering from MG last 7 year. I am not living normal life please advise me how I am live normal and healthy life.
I was diagnosed when 8 with conijetical
my sister have this deseas she take medicines but medicines not effected on him now we inject asteroids her after 5,6 time we inject her but after this these injections not effected on her body day by day he well not well we are all very worried about her
💜💜.
Am 23 now, I had myasthenia gravis since 22, could someone please tell me if I remove my Thymus will I be normal please answer this comment it can changed my life.
Please.
Cc can