Sitting in the hospital coughing up buckets of mucus because you don’t qualify for Trikafta is a different kind of hurt. With 24% lung function left I am running out of time. Watching these videos is bittersweet. I am happy future generations who have CF will not go through so much agony but sad at the same time because you want to breathe easy too.
Niece and great niece all with CF but NHS is supplying CFTR….life saving really. Doesn’t take much research Al. I’m lucky I have a few quid. This drug should. Be free. Everywhere 😊
Sitting in the hospital coughing up buckets of mucus because you don’t qualify for Trikafta is a different kind of hurt. With 24% lung function left I am running out of time. Watching these videos is bittersweet. I am happy future generations who have CF will not go through so much agony but sad at the same time because you want to breathe easy too.
What a cutie pie ❤
He is cute ❤
How much cost of CF medicine? How it's work
Niece and great niece all with CF but NHS is supplying CFTR….life saving really. Doesn’t take much research Al. I’m lucky I have a few quid. This drug should. Be free. Everywhere 😊
👏👏👏👏👏👏👏👏
my son 2yrs got CF, what is the machine? where to buy it?
How did it start please 🙏 my friends 15 m old baby is suspected
Sad but what a cutie.
Sir my son cf please treatment hospital nime