"SHE'S A HYPOCRITE!" Selena Gomez, Kate Middleton's Cancer Fuels Conspiracies, More L's for Boeing &
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- Опубліковано 7 тра 2024
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✩ TODAY’S STORIES ✩
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00:00 - Internet Reacts as Kate Middleton Reveals Cancer Diagnosis
03:25 - Selena Gomez Body-Shamed Over Since-Deleted Selfies
05:26 - Marjorie Taylor Greene Files a "Motion to Vacate" Against Speaker Mike Johnson
07:22 - Boeing CEO Steps Down
09:31 - Sponsored by PrizePicks
10:29 - Four Years Later, Long Covid Patients Still Have Unanswered Questions
16:30 - Your Thoughts on Thursday’s Show
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Produced by: Cory Ray
Edited by: James Girardier, Maxwell Enright, Julie Goldberg, Christian Meeks
Art Department: William Crespo
Writing/Research: Philip DeFranco, Brian Espinoza, Lili Stenn, Maddie Crichton, Star Pralle, Chris Tolve, Jared Paolino
Associate Producer on Long COVID: Maddie Crichton
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#DeFranco #KateMiddleton #SelenaGomez
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Someone alert the SCP Foundation, Phil DeFranco has escaped containment.
Get the Scranton Reality Anchor. I go see if we can get some help for 343 sake.
We're on it.
It's OK Phil is only a Euclid-class.
Do you not understand the powers he holds! He is a reality warper that can bend our world with his show. He could cause a K-Class end of the world scenario. May 343 help us if that happens!
this was a pleasant gem to find on this channel
Phil is outside!!! My world has been thrown completely upside down!
...and now he's in bed with us.
Whatever I'm lonely.
This is just an AI conspiracy created by the shadow government. How dare you slander Phil's name, saying he go outside...
Never seen him touch grass before, it’s a first for me.
It looks so nice outside, shame it can't be every video.
outside in!
A close family friend of mine used to be the chief of EMS services for 25 years. He was 5 years from retirement when he got long COVID and it forced him to retire early. Every day he deals with migraines and fatigue like nothing he's ever experienced before and yet his boss told him to stop making his symptoms up to get out of work. It should really tell you the state of healthcare that you can be chief of emergency medicine yet when you get caught up in a well documented mass disabling event you still get called a liar and your pension gets stripped. It's infuriating because all any of his coworkers would say when he talked about it was "Are you sure it's COVID? Are you sure it's not the vaccine?" Like, you work in medicine yet you're more willing to believe a vaccine could do this to somebody over a freaking virus?
It's because it's not the traditional vaccine we have been using for 80+ years
The name itself is misleading, we used to call it gene therapy for experimental cancer treatment which realistically was at least a decade away from being approved even though it was receiving insane funding
So, absolutely it can be the vaccine
Our politicians sold us out for a huge payday insider trading and lobbying to literally put a new clause in the vaccine bill where they can "NOT BE HELD LIABLE"
There's more vaccine injury's than covid injury's. He should apply for compensation: www.hrsa.gov/vaccine-compensation/data
If it’s an autoimmune disease then it could easily be the vaccine.
Because most of us who haven't got the vaccine who were healthy and got COVID were fine very shortly after. The only people I know having long term issues are the people I know who got vaccinated. It's anecdotal but I can see why people question what's affecting him.
@@samcriisfree4432 Its utter misinformation. You dont know people who have issue after being vaccinated. You maybe know people who happen to have health issue after getting vaccinated and just trying so hard to correlate that. Long Covid has massive set of data, issues after vaccination have very little.
I got covid in March of 2020. I've had Long Covid since.
For context, I used to be an adrenaline junkie; snowboarded all over the states, traveled all of the US and Canada, skateboarded, white water rafted, rock climbed. I was 49 when I got this, and still doing all the things I loved with no intention of stopping.
In 2 weeks, it took all of that away.
I started coughing and never stopped. I developed severe asthma. I could not stay awake more than an hour at a time, to start. I could easily sleep 20 hrs in a day and still be just exhausted. I tested positive for Lupus and rhuematoid arthritis, then suddenly didn't. I haven't been able to smell most scents, nor taste most food, since. Cognitive issues that on some days were ok, but on others - I couldn't *read* or understand what people were *saying* to me. And I'm alone, I still had to try and work through all of this.
I was lucky, I had a team of doctors (Canada) trying to play whack-a-mole with what the body was reacting to. Neurologist, Internist, Respirologist, Immunologist, Allergist, my wonderful family doctor.
The answer they all had for me was mostly the same: 'We don't know'.
My healing has progressed, SO slowly. 4 years of such tiny steps forward that I fell into a deep, dark depression. I went from walking 7km a day, to being housebound.
But I can stay awake to work 8hrs now. I'm up to 1000 steps a day, up from days where I'd have 30. I'm on meds that help me do all that - one to wake up, many to breathe, one so I can eat, one so I can sleep, one to give my body back iron it refuses to hold onto. Though now my immune system seems to be on overdrive; a scratch a few months ago went septic inside of 24 hours and it scared the shit outta me.
I never used to get sick. People could have colds around me, I'd be fine.
I'm legitimately afraid to go outside now because it's got a really good chance of killing me. Or I get Covid again and this gets worse.
For those struggling - please hang in there. You're not alone. We are legion. Sadly.
Covid hit me pretty hard too and I developed chronic pain and fatigue because of it, but to me the worst symptom was losing my sense of smell. I did some research on what I could do to regain it and found a technique that actually worked.
Basically you smell something strong and reminisce about any memories and experiences that are associated with the scent. Since smell and memory are closely linked, the brain starts to relearn how to smell through your memories. Do this multiple times a day and you should be able to smell again. If you need more information, look up "covid scent therapy". Best of luck to you and everyone else whose lives got fucked up because of covid.
Can long covid resemble narcolepsy? My husband developed narcolepsy after a common seasonal flu, and was knocked out all the time. Many doctors just dismissed him. He could hardly attend any gatherings, had anxiety for crowds, and could not follow the lessons at uni. Then he had a psychologist (because this was all in his head, right) that said that this didn't sound like mental illness, but narcolepsy. He got a specialist to look at him, and got medication after that. He has his life back.
The specialist told him that narcolepsy-like symptoms are not unheard of after viral illness. We do not know why, but as long as the treatment helps we have options.
I’m so sorry this happened to you.
@@Fucoc Yes, some folks are reporting similar. Massive viruses can cause all sorts of things though, definitely keep pushing for doctors to listen to him and keep investigating. Often the hardest part of this stuff is the doctors making you feel like you're crazy or lying. Highly recommend therapy with someone informed on medical trauma if that's possible for him, it's a lot to deal with.
I got covid and long covid about the same time as you. You're the first person I've heard of that had the same language issues I had. Sometimes people would talk to new in English (the only language I speak) and it was like they were speaking Spanish. I could recognize it but I didn't understand any of the words. Other times they would talk to me and it was like they were speaking martian. It was like a language I've never heard before.
I spent 8 months on a strict concussion protocol giving my brain rest. I wasn't allowed to read or watch TV for more than 10 minutes per hour. I had to do something that would build me neuropathways, I took up painting. It worked and cleared my language issues up most of the time.
I still loose words if I'm tired or stressed and have issues with names. But it's manageable.
I hope you continue to recover and find your way back to normal.
Mark my words, as a Lupus sufferer, long covid is probably autoimmune in nature. When they were showing the bumps on children's fingers, I pointed at my screen and was like "those are chilblains!" having had them myself in the past (and I get them when I'm stressed or my hands are too cold). The brain fog, the fatigue, all of it screams autoimmune to me. And to top it all of, nobody knows what causes any of these autoimmune diseases to date. If anyone here is suffering from long covid, I highly suggest working with a chronic illness group -- they can help get you set up with coping mechanisms and give recommendations for good doctors or rheumatologists. People like me have been fighting a similar fight for a long time. You are not alone.
I have wondered if it is related to Guillain-Barr.
Its all a vax injury.....duh
There is a theory that autoimmune diseases are due to the bubonic plague. Those who did not survive the plague did not have the DNA strands that are often linked to autoimmune diseases today. This could certainly make sense of how "long covid" is related to autoimmune.
Absolutely 100 agreed.
I also have Lupus (for 13 years now) with secondary Sjogrens and Reynauds. Now being checked for Thyroid issues. I agree with you! There are lots of similar symptoms to autoimmune conditions. I also think chronic Lyme sounds autoimmune in nature.
Sxephil made a resurgence with that intro
It's not sexy phil... it's sxephil!
What a best intro by Philip DeFranco show ever!!!!
Those were the days
Yes by that tshirt lolz
SEXY PHIL, HES NOT SEXY.
SEXY PHIL, HES SXE.
My now deceased wife had a number of health conditions before Covid that negatively impacted her life. When she did get Covid she contracted long Covid and the impact it had on her other comorbidities was stunning. She couldn't handle more than maybe an hour out of the home, she would rest and sleep most of the day, and she lost all motivation in her life. Her other conditions combined to already make her life very difficult but long Covid ended up being the final comorbidity that led to her applying for MAID here in Canada and being able to end her suffering in July 2023. While Long Covid is already a horrible thing for people to bare, those who already have compromised immune systems this can and has been a death sentence for them. More needs to be done.
I'm so sorry for your loss and hope your family is taking care of each other. I'm also glad your wife had that option and was clearly supported in making that decision. I can only imagine how that must have felt, but at least now she has peace. Absolutely mindblowing that long covid still isn't being recognized for how debilitating it is.
Hey Phil! 27yo Canadian here and I’ve had long covid for about 2.5 years now. I wanted to thank you for your repeated coverage of this illness. Ngl it makes me cry because it feels so good and so horrible to be seen and validated.
I got really sick in Nov 2021 while I was teaching in Japan. I was supposed to be there for a year and had only been there 2 months when i got sick. I got well enough to go back to work but my condition deteriorated over about 2 months. Took 2 months of sick leave before I finally decided I needed to go home.
It’s very strange and difficult thinking back to before my LC. Even during the pandemic, I was a pretty happy go lucky, energetic person. I loved traveling and making puns and hiking my dog. I can’t do any of those things anymore really.
I got well enough to go back to school for my masters but had a bad relapse over the holidays and missed a month of school.
I’m doing better now but only because of a strict low histamine diet I’ve been on which seems to have helped.
Anyways, I just wanted to say again how much I appreciate you updating us on the search for a cure and bringing awareness to this issue. It can be so hopeless and isolating being sick like this, but your coverage of it makes me feel a lot less alone
Canadian Long Covid survivor here. I got sick at the start of the pandemic, in April 2020. I was stuck in either a bed or chair for the better part of a year, and I when my benefits ran out, I had to return to work even though I was still having trouble breathing, fatigue, some brain fog, and chest pain. I had to change careers in my mid-30s, and I am still dealing with those symptoms today. They aren't as bad as they were at the start, but it still prevents me from playing with my kids for long periods of time, do strenuous chores around my house, and even going up a flight of stairs. I feel completely abandoned by the Healthcare system here, cause everyone has just moved on. This is my life now, and I don't know if I will ever return to how I was before I got sick. I fear I won't.
Hey, man love your science facts videos. Hope your condition gets better.
@obanjespirit2895 I may look like Vsauce or Simon Whistler, but I am not either of them. Sorry to disappoint. But thanks for the well wishes, regardless
Hey as a fellow Canadian who also got sick during the beginning of the pandemic, I feel for you deeply. I was pretty lucky as my body fought it off well but my brother suffered for weeks with the symptoms after. My aunt still can't smell anything. Although he didn't die of covid, my grandfather had it during his last hours. I feel people forget this is a sickness effects people in many different ways, and we forget the ones who suffer the most. I do hope one day you'll return back to your pre covid. Ill pray for you and others everyday ❤
As someone with 10 years of ME/CFS please please don't push anything, pace the shit out of it. If you are a bit better than at the beginning, that is a good sign, but you need to be really patient, as it might take years. Also even if you get better, stay careful. When we feel better we tend to overdo it because hell we love life, but it often ends in going back to where you came from.
I still don’t fully have my sense of smell back and my taste buds have dulled a tiny a bit as well.
Yeah this Kate Middleton situation makes me so happy I’m not a public figure or famous or anything. The level of attention directed at her must’ve been terrifying.
The royal family always gets it the worse when it comes to attention
They could always abdicate.
Ya Kate actively sought this life. She has many opportunities to back away but she actively pursued William and the Royal lifestyle. Sucks she’s going through this but she’s been cruel to Meghan when she’s suffered a miscarriage and depression.
@@theoutsiderjess4869 those poor babies! maybe we should abolish the monarchy! and take away all their money and palaces, for their own good ofcourse! so they are protected from all this attention.
they literally want this publicity. its literally their job. to be a face of the country
I’m in cancer remission for 2 yrs now from stage 3. It is a VERY PRIVATE thing at first. You have to face death and very grueling treatment while trying also to live fully. She clearly stated they waited so her young children wld be out of school and her and William could help them process it. They didn’t need to be hearing it from kid or teachers at school. With my 1st chemo treatment, i was bald in 2 weeks. Their kids are so young. We do not own them. More importantly, how can people not just respect this hardship and solid good parent logic?! She needs NOTHING BUT SUPPORT.
Thank you for covering long COVID!!
I’m in my 30s with long covid for over 2 years now. I caught COVID during the Omicron wave during the holidays end-2021. I was an extremely active & healthy person. I started working out again in January 2022 and would feel very fatigued in the days following. This got worse to the point where I would be bed-bound for days and weeks.
Now, 2 years later, I’ve had periods of weeks or months where I feel near normal, but inevitably, I’ll relapse after too much of acting like my life is normal (socializing, exercising, traveling, working). Right now I’m bed-bound again, unsure of when I’ll feel better, or if my life will ever be the same.
I lost a friend in 2021 to a brain aneurysm. She had been suffering from long covid and while we can't know for certain if one affected the other, it always left me with a feeling of how could they not be related? One minute she was talking to me on discord and then she went silent. I thought she got busy and only found out the next day that she had actually passed away mid conversation. I live in terror of covid now, long or otherwise, in a way that I didn't before, and my fear level was already pretty high. If we're not giving long covid the attention it needs, we're just letting good people die.
I'm so sorry about your friend. You were really there for her until the last minute.
SARS-CoV-2 is a vascular/clotting disease, so it's likely to have been the cause.
I am so sorry you about your friend and my heart goes out to you and your their family. 🙏🏽 🖤
That's terrible.
Hey bro - your comment is trash, at least hear me out
Brain Aneurysms, are quite literally, undetectable and can strike at any time.
It’s independent from covid and shouldn’t be attributed to covid
I actually fear it too, but my story is: a girl on reddit was giving her boyfriend head, he groaned, collapsed, and never got back up. He had an Aneurism.
She posted on reddit because it was a random event that ruined her life.
It pre dates covid, and covid fear has done a lot more damage globally than covid has.
I got COVID back in March of 2020. That led to Long Covid and POTS. It utterly wrecked my life.
I can't drive anymore. I need a wheelchair or walker most days. My husband has to help me up the stairs of our home. I'm exhausted ALL the time. I'm permanently disabled and feel twice as old as my actual 49 years.
But the hardest part is hearing people just laugh off COVID, like it is nothing more than a cold. I've been mocked by family members for taking COVID precautions, even after it ruined my life.
I understand that people want to move on, but just ignoring a deadly disease won't make it go away.
Long COVID.
I got COVID 2 weeks after my 3rd son was born in 2021. I was taken to the hospital on May 1st with trouble breathing and only 23% blood oxygen level and somehow still conscience.
Was put on a ventilator and was in a coma for 28 days. Took another 33 days to learn how to Walk, talk, and eat again among other things. I left with a hole in my neck from the trake that helped me breath and asthma.
It took 2 years to feel kinda normal. I now have fits of fatigue, crazy anxiety, and PTSD. I have good weeks and bad weeks. Find it super hard to feel rested and get sick super easy.
I feel I can't talk about it anymore because "COVID" is the thing of the past but it's everyday for me. I'm the COVID guy now and think of as a joke.
I struggle everyday but have a wife and 3 boys to take care of. I'm exhausted all the time and no matter what I do it doesn't help. I hope something comes soon to help but doubt it.
I have chronic fatigue, i'm exhausted all the time -- trying to do things people take for granted like taking a shower, putting away laundry or even going up the stairs can lead to me needing to lay down for an hour or so. There's no treatment, i've been told that essentially i might grow out of it but probably won't. It's a very unfun situation, but I'm hopeful that this research into long covid can shed a lot of very needed light on potential treatment for conditions like mine!
It infuriates me how fatigue is brushed off by people, including doctors. I have Idiopathic intracranial hypertension which is basically too much spinal fluid in my head. Aside from migraines and speech and memory problems, I battle fatigue constantly unless my meds are just right. Even doctors told me to just get active. Meanwhile I was sleeping 12-16 hours at a time on my days off and using every minute I wasn't working to sleep too. I'm so sorry you're going through this and I hope they find a cure, or at the very least a treatment!
The long COVID story brought me to tears.
When I was 16 (about 12 years ago at this point), I got West Nile Virus. I was lucky enough not to have a "serious" case, no encephalitis, no hospitalization, the blood test even suggested I was in the "convalescing stage" (AKA getting over the virus and back to being healthy) but that couldn't have been further from the truth.
The next 18 months were an absolute nightmare. My normal chronic migraines morphed into non-stop all day everyday migraines, I was mentally/physically/emotionally exhausted and sleeping 20+ hours a day, I developed POTS (Postural Orthostatic Tachycardia Syndrome) where I would often faint because my blood pressure would drop if I stood too long or moved too quickly. I couldn't remember anything, words were constantly on the tip of my tongue but never came (it would take me over an hour to write one paragraph). I had to stop marching in band, stop participating in theater, and eventually had to be home schooled because just getting out of bed had become a near impossible task. My anxiety hit an all time high, I had frequent panic attacks, and I didn't leave my house for over 6 months. It sent me into a deep depression, not only because I felt so sick and couldn't do many normal activities of daily living, but also because I had to watch the world continue to live while I couldn't do anything.
But the worst part? When so many people didn't believe me. After the first couple months people started to casually imply that I was "milking" the situation. I had people ask me "It's been over a year, aren't you better yet?" I even had a doctor tell me that I wasn't sick, that he believed I never had the virus, and that I needed to stop being lazy, stop taking naps all day, and stop complaining.
Things have gotten much better in the last 12 years, but I never truly bounced back completely. I blamed my anxiety and depression for the lethargy, brain fog, the panic attacks, but now that I see so many others with similar problems after a COVID infection, I am starting to wonder if I never fully recovered in the first place. As devastating as this disease has been for the entire world, it's nice to know I'm not crazy and I'm not alone.
I try to advocate everyday for people going through this. I feel like I have a unique experience, not just as a healthcare professional, but as someone who has experienced/is still experiencing it. Long term effects from viruses is REAL. We need to believe the people suffering from them, and we need to help them.
I hope you know there is a community of chronically ill people that see you, understand you, and believe you.
The next part is me giving a suggestion about a possible diagnosis to look into. If that's not helpful to you, please ignore it. Have you looked into myalgic encephalomyelitis? It has a lot of the symptoms you mentioned and it is likely triggered by an illness. There's no real test for it, and no cure, but it might be helpful for you to find medications and coping mechanisms that will help.
I could barely listen to it, it gives me PTSD cause it hits so close to home. I’m the exact same as you. I got diagnosed with POTS at 17 before covid and I hate my life. It took everything from me and nobody would listen for so long. I had symptoms from the age of 12 but at 16 is when I remember having a cold for about two weeks and then I just never recovered.
I STILL can’t work or go to school, I can’t drive, I can’t afford to live in my own place. I take like 25 pills a day. It fucking sucks. I wanted to kill myself and sometimes I still think about it. There’s NOTHING that helps.
Strangely enough, I’m the only person in my family who never gets colds or viruses. I was born healthy and never had any big medical issues. I’ve never had covid either even though some family members and friends got it (we’re all vaxxed). It’s so weird.
In case you didn't already know, there are several specific disabling conditions that are caused by a previous viral infection: herpes zoster (chicken pox) leads to shingles, epstein-barr (mono) leads to multiple sclerosis. There are likely soooo many conditions that are triggered or caused by viruses.
When I got diagnosed with POTS, my cardiologist mentioned that a viral infection is often considered the trigger for a lot of cases.
Just a small note to say you aren't alone and it's not in your head.
I'm so sorry you've been through this😔🤲🏾🌌
Similar experience with Chronic Fatigue Syndrome. My mother would yell at me for being "lazy".
My trust is so broken. Covid only proved how right I was to be so distrustful of ppl if family was like this. Society treats vulnerable people as disposable for some drinks at a bar. If anyone is harmed longterm, they gaslight you as depressed, negative, or attention seeking. Then they disappear. Poof!
A terrible species eating its own.
As someone who had cancer I totally understand Kate’s attitude towards her cancer diagnosis. It’s no one’s business. And considering the King’s Cancer is overshadowing her own diagnosis it makes sense that she would rather have privacy, less some asshole says she’s seeking attention away from the king.
you are not one of faces of your country. yes what she has is terrible but if you play that role some privacy is sacrificed. also if they actually paid for a social media person this drama could have all been avoided.
She’s the future queen of the commonwealth (which is many countries). She actively and aggressively pursued this life. If she didn’t want to be public she didn’t have to be. Harry was born into it and left.
Sucks she is going through this illness but she’s not entitled to privacy.
@@Mama_Bear524 You're an awful human being.
People could still give her a break though, for fucks sake she has CANCER.
I’d argue this an even bigger indictment of the royal family as a concept. Why should any family be so elevated that one member not being seen is cause of conspiracy?
As someone who is currently being investigated for long-COVID/POTS, it’s appalling how little I have been believed. I even had a doctor tell me I just have anxiety after I went from a high performing law student, climber, and water polo player to being severely fatigued and almost unable to operate practically overnight. I am extremely privileged and am related to multiple doctors who took me seriously and helped me advocate for care. Still, our system is just not equipped for this.
Thankfully, I’ve been seeing a neurologist-chiropractor and, as crazy as it sounds, it’s the first time I’ve felt even close to normal in 2 months and my cardiac symptoms are improving by the day. It feels like witchcraft frankly but I failed a bunch of neurological exams and am now improving in my functional skills in a ton of ways.
Thanks so much for covering Long Covid. It's ruined my life for the last 18 months, and you described the stakes of research for people like me perfectly.
I’m chronically ill (Not long Covid). I completely understand the frustration of years of doctors not believing you (it took me 7 years for a doctor to clinically diagnosis me and another 2 years to get a doctor willing to do surgery to help symptoms) and having to explain symptoms to people who don’t understand or who don’t want to understand your symptoms or why you’re suddenly “not like you were in the past”. It sucks and can be so incredibly lonely. I strong recommend joining an online chronically ill community; it will help you feel less alone. I hope that more awareness to long Covid and other chronic illnesses brings more research and treatments.
Long Covid reminds me of Fibromyalgia. So many doctors don’t understand these things and instead of acknowledging the truth about not knowing they dismiss it.
i am convinced that cures for these things cab only exist due to charity research due to healthy people not being profitable to big farma but maybe i am just jaded.
I have fibromyalgia and long covid, and my symptoms are so weird. Sometimes debilitating. I’m only 31! This is crazy!
I’ve got POTs and Fibromyalgia, it makes me pissed that it’s taken this long for people to take chronic illness seriously. I was pissed it took Long Covid existing for people to finally get to understand people with chronic illness do exist and have to deal with this stuff oftentimes since birth or don’t even notice it till it gets really bad.
@@cassidybrewer there might be a weird link between people with fibro and worse corona symptoms. you are not the first. 2 points make a line.
Yes! I have both, and you're so right.
I've been struggling with fatigue and brain fog since 2021 when I caught vanilla COVID (lost my taste for a couple of weeks and smell for several months). I've also had other COVID variants twice since then
What that woman said about "scheduling when to lie down next" hit hard for me. I feel fine physically, but my drive to work has been absolutely torpedoed, despite being someone with a reputation for quick turnarounds before 2021
I constantly wonder if I have long COVID or if it's just fatigue from the... everything that's been going on for the last several years. I think living with that doubt is why a lot of people struggle to come forward with long COVID struggles because we know so little about it and if it's what really causes our sustained apathy
And it's such a nebulous feeling that - like mental health issues before we knew more about it - they're hard to communicate to someone like a medical professional without sounding like we're making shit up or making excuses for being lazy
My roommate sounds like they have a similar thing. They got Covid last September and since than haven’t been able to work. He’s fine most of the time but get tired occasionally and has chronic headaches. The biggest thing though is that he has no drive to work anymore, he says he can’t work a normal job, doesn’t want to do any job at home, and doesn’t feel like learning in uni anymore. He’s at his parents now just playing destiny all day, it’s the only thing he says he can do now. Only thing with him is that he’s sort of never really wanted to do anything hard, and has always wanted to stay home, play destiny, and have people take care of him. So, I don’t think he’s exactly living the same nightmare.
I caught covid in July 2022. I had a fever for 9 days and started having brief bouts of full-body paralysis during this. Over time these got worse, even after I'd otherwise recovered. 1.5 years later I have several 4-8 minute episodes of paralysis every week, with the side effects lasting for hours after. It's been so incredibly destructive to my life, yet the NHS (I'm in the UK) is so slow that it took me over a year to see a specialist and I still don't have a diagnosis. They're refusing to give it the long covid label, yet the only thing they've managed to say for certain is that it's not epilepsy. Im in my mid 20s, moved back in with my parents, and I'm rarely unsupervised now because it can happen at any time plus I'm not allowed to drive. There's just no urgency there because it's not life threatening.
I love how many benefits Congress gets and then they also get a 2 week recess.. I’m getting 1 week for spring break as a bus driver, but I don’t get benefits and security and lots of money and recesses too.
That’s not just ONE two week recess, they get several of those as well as a couple months throughout the year. They are the least hard-working Americans in the country.
Most jobs don’t even get off for spring break, heck, my husband can barely get off for holidays like Thanksgiving and Christmas! I really hope some of these younger generations like the millennials Gen z, etc. Can get in there and make some changes because these politicians get away with way too much and we shouldn’t be hearing about government shutdown multiple times a year for the past couple years now. I really feel if Congress people were treated like regular every day workers a lot of these problems would be solved really quick!
@@Kellierose91no politician will make a difference where it disincentivises taking their own position. The only people who go into the profession don't deserve to be in it, they're greedy, shitty morons with nothing on their mind but the lobbyist hand reaching all the way up from their ass. Any young person who goes into it will realise it's not possible to change it while profit-obsessed corpos own it at the top, and either leave, or join in and get free tax money from regular people who won't do anything about it and just hope the politicians themselves will fix it. Good luck
@@Kellierose91 This exactly. I work an 8-5 M-F and get 23 days PTO between holidays and sick days. And I'm on the lucky end. I don't have control over when my holiday PTO is, but if I were to use my sick days to take two weeks off? I've got maybe 3 sick days left for the rest of the year. Honestly, I feel like congress members should be getting the minimums of what their legislation requires. Which right now in the US is 0 days PTO.
@@Kellierose91I literally got wrote up for not working Christmas after I said I wouldn’t be able to in advance because I was with my family. Meanwhile, these guys get anything they want and paid better than anybody, watching the rest of us suffer.
I got covid back in 2020 on March 22nd (my birthday) I was hypoxic for three days and almost every day since I wished it had killed me. I used to be an engineer, designing production lines in the automotive industry but due to depression I left that and became self employed but now I’m unemployed, living on benefits, severely depressed, have been hospitalised due to an overdose last December and have gained over 30lb in weight because I’m no longer active. I used to do cycling, martial arts and running now I don’t have the energy for computer games. I’m constantly tired, can’t think, can’t cook, can’t clean, I forget to brush my teeth, forget what I was supposed to do, I do t have the mental capacity any more to even ask for help.
I see you. I hear you. Sending warm hugs your way.
I hope things get better for you ❤
I have to depend on my grown kids to provide gaming entertainment. Otherwise, I'm in a boss battle and find myself watching cats. The concentration deficit is no joke.
Everyday is a new day, and I pray for the day you feel yourself again!
You are not alone even though it may feel like it some days.
I know it seems tough, but you can do it. Don't give up
Re: Long COVID - As someone who was diagnosed with fibromyalgia during the pandemic and had all the evidence I could possibly have to bring to my doctor, I still struggle to this day to be taken seriously, and afford treatment when there is actually something available(and as a Canadian, I don’t have to worry about appointment costs when the answer is always “we don’t know what’s wrong with you”)
Many symptoms of fibromyalgia and Long COVID are eerily similar. I fear, as someone whose disease is literally described as “unexplained pain and fatigue”, that Long COVID patients will face the similar murky waters that me and my peers face from society and the medical community at large.
When so many patients facing such a wide array of symptoms are grouped together, it sometimes feels even more unclear what steps to take forward. For those fighting to just survive right now, I see you, and I’m fighting right beside you.
As someone with Long Covid, 2 years + now, this segment made me tear up. It might sound stupid and emotional but FFS my life has not only been put on hold but its been degrading, constantly day by day to the point where I am terrified that one morning not too far from now, I might not wake up due to my own body destroying itself. I went from finally turning my life around, losing weight, actually enjoying cardio for the first time ever... to not being able to walk more than a few minutes and feeling "hungover" every morning. I am exhausted, I am exhausted of being exhausted and I feel bad for my friends and family who try to understand or who I try to vent to that have to listen to something that makes no sense to them. I have to hope there is going to be a solution one day, hopefully soon, because I am scared that my health and life is only going to get worse. I want to go back to who I was or at least to get back on track rather than derailed and lost.
It really disheartens me how vile people are online just because they think there's no repercussions for what they say.... 😮💨
Imagine going through SO much, struggling with lupus, needing a kidney transplant to survive, and people STILL mock your appearance that is directly affected by those issues.
Er no. Selena ditched the friend who gave her a kidney because they fought over selena still taking substances when she literally just got a new kidney. Shes gross.
@@terraguttierez2996 Literally none of us know the truth of what went on in their friendship, but none of that is relevant at all to what I said.
@@terraguttierez2996 You're a LIAR. Selena did not take any substances she ocasionally drunk alcohol. And just because francia decided to donate her kidney does not mean she got to dictate selena's life. Anyway, it doesn't matter. They made up. But stay spewing hatred online for whatever reason, loser.
Exactly. Selena's looks mainly fluctuate due to predisone, which is for lupus. But on the days where she's not having noticeable side effects she still looks the same. People on the internet need hobbies.
@@LeBimbo Its pretty public what happened. and it is relevant, why should i extend sympathy to someone who ditched the friend who just gave them a kidney?
I've been dealing with long covid for over 2 years and I fear this is my life permanently. I'm constantly exhausted and at the verge of falling asleep, I'm out of breath from doing the slightest physical effort. I have no idea how to exist anymore.
I *hate* this. Rooting for you.
Skill issue
Yuumi Diff@@JG-MV
@@JG-MV Tf is wrong with you?
I'm so sorry you are dealing with this. I have been going on for three years. My friend, I feel you. Climbing the stairs with laundry or going out for groceries means I know I will be in bed for at least 24 hours. I hope that something, anything, will help. I am not overly religious, and I have found myself praying for my life back.
I have fibromyalgia and the long covid story is exactly what we face. It happens randomly, and completely upends your life. Ive always been a student that coukd excel, but now im failing and have to use a wheelchair. I sleep 12 hours a day and wake up miserable and in pain. I completely sympathise with those suffering from long covid, but I have little help for a "cure". Its likely these people will be disabled forever - we as a society are allowing people to be crippled by not taking this seriously. I hope theres a cure but im just not hopeful as so many people like me have been left aside. Welcome to the club, sorry about it though.
Hey Phil! Thanks for sharing the segment on long COVID. It is really important to shine a light on that part of the illness because it is devastating.
My wife has been struggling with a illness called me/cfs (also called chronic fatigue syndrome) and she has had it for at least 7 years (we've been married for four). The symptoms of long COVID and the daily realities of it are essentially the same for me/cfs. My wife hasn't been able to work a full time job or even get out of bed to make herself food on a bad day. The daily realities and pain of the illness are awful.
My heart goes out to the people who are in the same position as us as it isn't something I would wish on anyone. If you're a caregiver who is working full time and caring for your partner, it is easy to feel like giving up. Don't do it. Even the smallest things you do for your partner matter, and they remember it. At the end of the day, it is worth it.
All of that to say, any work they are doing on finding a treatment can only benefit the me/cfs community as a whole. I truly hope they prioritize this research because it has given hope to long-term sufferers of the illness.
As someone with long covid, I'm so glad you talked about this. I feel so alone, like my life is over. I got covid in early 2020 and have ever since watched my life slip away, losing everything. I cry as my birthdays near, knowing another year of my 20s has gone. I'm alone and I don't think this is going to get better. There isn't a cure, and if there is, what am I going to be, in my late 30s... 40s?... when I finally can start my life? I don't feel like I can keep going that long, I'm losing hope. I hate to say... I'm only still here because of my dog, I can't do that to him, leave him. But when he does eventually... "go", I'm probably going to follow. 😔
I know it's easy to just say "keep your head up" or something like that, but really you should. I empathize with what you're going through. Reading all these comments has made me feel awful. But then there were also people who continued to fight through it all, for whatever reason they may have. You said that you're only still here because of your dog, but I think that's a testament to your persistence. You could choose the easy way out, you could be selfish and walk away from your dog but you're not. That means something. Even at the end of your rope you're still holding on for someone or something outside of yourself. You care for another life, striving to give him the best. That means something
All this to say, I know things seem hopeless, but life really does have a weird way of surprising you. There's all kinds of avenues out there, there will be someone who will be able to help you and many others. Maybe it takes a long time, maybe it doesn't. But how many more dogs will you be able to help in the future? How many dreams might you find yourself having as you reach that point of being able to chase them? I don't know. But what I do know, it's never too late. Regardless of my opinions, I hope you find your light at the end of the tunnel. Even the longest tunnels shine brightly at the end after all. From one stranger to another, take care, and I hope everything starts looking up for you soon 😊
thank you for sharing your experience and I am so sorry to hear you're going through all of that. I just want to share this: my grandfather was a football player in high school and college, really athletic guy. One day he was helping a family member move into their apartment, and they were lifting a heavy shelf up the stairs, he was on the bottom. The other guy (I think his uncle, maybe?) slipped and my grandfather fell down a flight stairs with the shelf landing on top of him. Aside from the broken arm and cracked ribs, he suffered a concussion and the concussion caused his muscles to spasm and atrophy. He could barely stand up, let alone walk, and talking was strained. He slept most of the day. The doctors just said "nothing we can do" and let his family deal with it. For 15 years he never went outside and never really "got better" from the concussion and no doctor would bother with him cuz they thought he was a lost cause. He says that he wanted it to "end" constantly. But he and his family never gave up. They found physical therapists back in their home country in Poland who treated him and helped train him to walk. 5 years later and my grandfather can finally run again at age 39. He turns 81 this July and still gets on his peloton every morning. He and my grandmother (who he married in his 50s) make a point to go see new sights around the world every year and just got back from Italy a few months ago.
I don't share all this to say things will definitely get better, or that you will fully recover, or that even yours and his situations are comparable. I only wanted to share to say that thing are fucked now and probably looked fucked for the time being, but life is for living! There is never a point where it's "too late" to start life. My grandfather was 40 before he could start "truly living". There are so many injustices in the world, but we keep going on in spite of it all. If your dog is keeping you here, great! If you struggle to find something to keep you here after, just think of the 80 year old Polish Catholic from Chicago who is rooting for you!
(I showed him this comment, he says this: "Nothing of what happened is your fault! Days are dark now, but it makes the sunny days better. Go try Kołaczkis if you get better enough to do so.")
I can relate heavily to this. You’re not alone. Reaching out to support groups has helped me a bit. It’s worth looking into ❤ sending you love.
Whew. The last sentence, it brought tears to my eyes. I can't count the dark days I just kept looking at my cat thinking 'I can't leave her, gotta stay til she goes'. I'm alone out here too.
Long covid sucks, I'm right there with you.
And I hear you, keeping hope up is really hard.
Cheesy as hell phrase, but you're not alone out here.
Something that helped me get through some deeply dark times the last few years, was writing down what i did that day. Like, not even a gratitude journal because oh *please*, just a simple 'i got up. i fed my cat. i stayed awake an extra hour today. i fed myself. i'm still here.'
It helped keep track of progress too, slow as it can be. It gives me glimmers of hope to read back on them, on those days when the mind screams that we're not getting any better.
I'm proud of you for making it this far. For staying for your dog.
Take it all one day at a time. Find hope wherever you can - kitten/dog rescue videos are highly recommended (It soothes something in me to watch a dog/cat be so out of hope, so abandoned and lost and fearful, and then watch them heal. Like, if they can do it, so can I).
Or that guy who draws arms on birds here on youtube.
Find a smile, and hang onto it.
Sending you all the hugs.
Not sure if youll see this but please see a rheumatologist/neurologist about your symptoms. This could be autoimmune and there are treatments and meds out there that can slow the progression (sometimes even put you into remission). If theres no diagnosis, they can still do steroid treatments which are often used in bad flares. There is always something you can try before giving up (keep seeing doctors until one listens because rheums are known for their ignorance and make it clear that you are at a point of needing to treat your symptoms, and look at doctor reviews). Hope you are able to recover!
MTG claiming passing the budget was letting down the American people is comical AF.
Does she realize how many people DO NOT actually like her??!?
Imagine saying that not letting our economy plunge into nothing was "letting people down." I can't STAND her.
@@Toywins I don’t know how she got herself elected.
But I do think it HYSTERICAL that she & Boebert hate each other.
😂😂😂
For two seconds I was like do I agree with mtg because I hate Johnson. Then NOPE
I really want to know how you guys elected her into office. She seems like she has room temperature IQ measured in Celsius
She meant "Russian people".
I am so glad that people are talking about long Covid. I have been dealing with ME/CFS which is “virtually indistinguishable” since 2017. I only got diagnosed a few months ago even though I’ve been telling doctors I think I have ME/CFS for a couple years now. It has absolutely wrecked havoc on my life. I have made significant improvements over the years but I’m 29 and I still need to completely rely on my parents for almost everything. I tutor 12 hours a week and I spend the rest of my time zoned out on a couch trying to recover enough that I can get back to work the next day.
ME/CFS was officially recognized in the 80’s but there still isn’t any cure or treatment. I desperately hope this new attention on long Covid will lead to breakthrough that will allow me to return to normal life.
I got covid in 2021. My whole family did. It was already a very difficult time for me emotionally because my mother and my grandmother didn't make it. I was so depressed but I also couldn't even work to take my mind off of it. I had trouble breathing if I walked too much and I would get pain in places I didn't have it before.
I actually finally got a job again and started working yesterday. Because only now have the symptoms started to ease up. I'm still not back to where I was before covid, but I'm thankful my body seems to want to keep going.
Caught COVID for the first time in November of 2020. I was 22. It was like a mild cold, but it left me extremely fatigued for about 6 weeks. Immediately after, I started developing digestive issues - IBS + gluten intolerance. I still can't smell or taste certain things after 3.5 years.
Caught it again in April of 2023. Little worse this time, but still not bad. It's been almost a year now and I still can't do cardio without getting lightheaded. No breathing symptoms, just intense fatigue while exercising. I have no doubt the next couple of generations will see mass long-term impact from this virus, but we probably won't get real data on it for decades.
My brother has been out of work for a whole year now. He didn't even get unemployment because you can't even really prove that you have it.
but you can test for unnatural fatigue. this sounds like the healthcare system fucking him over. i wish you both the best.
Oh man. My step sister got long COVID, she developed POTS from it and for about a month she was in and out of the hospital passing out. She lives in a desert and pots causes someone to pass out in strong changes in temperature and when the body overheats. She started passing out in school in her freshmen year and immediately started getting bullied, she was taking drugs every couple hours to deal with other symptoms, so they started saying she was on drugs and alcohol and to stay away from her. I group of girls started bullying her for the changes in her body. Long story short, the most confident person I’ve ever met was diagnosed with depression and anxiety. And when she passed out in the middle of her last volleyball game they found so many cuts on her inner thighs it looked like fish scales, they started calling her mermaid. At the hospital she admitted she was suicidal and not to tell anyone, not even her mom because she was embarrassed. She had to drop out of school and home school for the past year. She was completely fucked up by long COVID and is still dealing with the reproductions she’s live with POTS for her whole life and the isolation will probably cause a lot of hours in therapy. She was still figuring herself out when this happened, it’s like she got hit by a truck. And government ignore situations like this. It’s so frustrating!
I've actually been diagnosed with long COVID myself, and have been struggling with it since only having gotten COVID one time in 2021. I have worked four different jobs all of which ending in either being forced to resign, or straight out being fired. And the thing that sucks about that the most is I have not been able to apply for any unemployment or disability insurance as I have not been able to keep the job long enough. I've been just floating by and it's put an exhausting strain on my significant other that I live with. I'm hoping that something comes out about this and something can be done because I've been suffering for now almost 3 years
Shoutout to PhysicsGirl and her battle with long covid ❤
I was looking for a while for this comment. I first had to scroll through all the Royal drama comments. PhysicsGirl came first to my mind when Phil mentioned the long COVID. 😔 Hopefully she will get better soon!
Her story is heartbreaking every time I see it. It seems like her condition deteriorates ever further every few month. Her most recent post said that she's now using a mini blackboard to communicate since physically talking takes energy out of her.
There are a couple of update videos out there about her condition. She is basically bedridden but has been able to get up sometimes. On the healing scale of 0 to 10 she was sitting at a 0.5.
Yeah I thought of Dianna too. It’s disgusting to see people comment on every update about her how she’s just doing it to dupe people into giving her money on Patreon and she’s faking it. I hope those gross people have to deal with something awful someday so they understand how terrible they’ve been.
@@gateauxq4604 Ah yes, she's really milking it with those ~daily~ bi-monthly updates! /sarcasm
Edit: ~ = strikethrough text between
Thank you for covering Long Covid! It’s been devastating for so many people.
Thank you so much for covering long COVID, Phil!!
I got covid in January of this year. Fully vaxxed and never had covid before. I was a teacher and gigging musician. Now I can't remember anything, I'm constantly in pain and falling when I walk. I slept twenty hours yesterday.
Why does this episode feel like our teacher took us on a field trip?! 😂 thanks for still putting out a show when you’re out and about Phil!
Yes! It felt like that to me too 😂
I had covid at the beginning of the pandemic. I had long covid for about 2 years. My hair was falling out, my legs were swelling up randomly, I had dementia like symptoms and I started randomly passing out. My doctor told me it was just stress from the lockdown and I should have "a glass of wine and a zoom call with a friend". It was almost 8 months before I even heard the term long covid. I found out about it through Facebook. I went to dozens of specialists, switched doctors, and finally I had to pay out of pocket for a concierge doctor. My PCP labeled me a hypochondriac and wouldn't see me about my symptoms anymore.
I could barely get out of bed. My friends would have to come take care of me because I couldn't take care of myself or understand basic instructions some days. My daughter went to live with my mom for over a year because I couldn't care for her.
I finally found a mix of vitamins and concussion protocols that got me past the dementia. The vaccine helped minimize other symptoms and I'm almost back to normal 4 years later. I was lucky to get it when we had so many covid protections. I worked out a reduced rent with my landlord that fit in my long term disability budget, there were programs to help me pay healthcare costs, and my job was really flexible with me being out ( and 2 years accommodated work). I would have lost so much more if I had long covid now.
The worst is the lack of doctors who believed me and being treated like I was a problem/making it up when the tests were negative. Just because we don't have the right tests for this novel disease doesn't mean it's all in my head.
I'm so sorry you went through that. Wow. Just intense. Thank you for sharing.
Doctors not believing their patients needs to start being treated like malpractice. If it was just stress, they could have at least given you an anxiety medication, which would not have worked, and then they'd know there's something more serious to treat. Instead, they dismissed you, probably because their egos were too big for them to admit that they don't know what's wrong. If you ever decide to sue your old doctor, I hope you fall into the hands of a lawyer more competent than the doctor was. In any case, may God bless you.
Y’all are a bunch of bots making up stories. Y’all should be ashamed of yourselves
@@captainsmoka9864 Can't handle the truth, huh!
Hey Phil, thanks for covering the current Long Covid situation, as someone dealing with long covid for a year and a half now, I keep hoping for more news and research into it. The fatigue and the brain fog are the worst symptoms for me. I've been lucky that I've been able to see different doctors who believe me and have tried to help but so far no medicine or amount of 'pacing myself' has been helpful. I am currently a grad student doing my best to both continue grad school and recover from long covid. You can imagine how that's going.
Im suprised you did not bring up the situation in Moscow from over the weekend. All of the news I have gotten from there has been through social media and not traditional news outlets
I'm from New Zealand and I've been dealing with the side effects of long covid for a year now. I was working as a cycle courier, was physically fit and active, I had a thriving social life being able to go out with friends and do things with them. I now need the use of crutches to get around anywhere as my legs will just give out from underneath me due to my energy level being nothing compared to what it once was, and all the doctors that I have seen have told me it's all in my head. Since then I haven't been able to work and am struggling financially and I won't lie it's had me wanting to just give up on life on more than one occasion.
One of my friends who has also dealt with long covid has also told me about a support group she was in where some of the other people were now needing to use wheelchairs to get around due to it and one of them used to run ultra marathons.
I understand that we aren't going to get the rapid fixes to it like we got with getting vaccines for covid but the way that we are getting told it's all in our heads is completely unhinged and the medical industry needs to do better. I understand every doctor in the world has been overworked and suffered more abuse than usual over the past couple of years but it feels like they are telling us it's all in our heads so they can simply avoid having more work to do.
My heart goes out to everyone else that has been having to deal with long covid also and I hope for us all that we are able to get back to some semblance of what our lives used to be like.
As a person who got covid in June of 2020, I have not worked since the day covid first attacked my body. My mom had me signed up for a covid study being conducted at UAB. I only went to one visit because I was charged $500+ for x-ray and labs. I didn't have insurance so I didn't come back and that might contribute to the studies lacking conclusive results. If they aren't providing services for people who aren't able to be covered, the solutions might be getting hindered.
Hey, researcher here in an academic lab. Typically, researchers compensate you for your time (gift cards, cash, etc.), and the labs/tests are usually covered by the grants that are given to support said research. Your situation sounds sketchy, so if you are able to participate in any studies in the future, make sure they at least cover all costs of the research tests. The subject should not be paying anything to participate!
@@lydiasmith2858 agreed. I was in a situation where my mom found it and shoved the phone at me while I was suffering through an episode with a recent diagnosis of congestive heart failure. She didn't do the thorough check I would and I barely made it to the appointments. Now I would take charge and do the research but I was incapacitated at the time.
Based on your description, that's illegal. Human studies are highly regulated and by law participants must be compensated a 'fair amount' which means not too much or too little
@@rickson50 it happened a couple of years ago and the study was being conducted at a relatively prestigious university hospital. I'm guessing it was an independent study not taking government funding but like I said, I was not at the top of my faculties as I was in severe distress due to swelling around my heart and the heart itself being enlarged.
I got COVID 3 times, 2 times confirmed and one time in 2020 that I believe now was COVID and not just a weird flu, and it sucks. My doctor basically said, "We don't know how to help besides treating the symptoms," and the symptoms for me, as someone who had asthma, chronic pain, and fatigue beforehand, is just a deep exhaustion and cloudy mental state. I'm talking BONE deep. I'll stand up, but sometimes my body won't move. I'll be frozen for a few seconds. Sometimes, I'll be walking, and my vision will go dark. My eyeglasses prescription got better overall, but some days, my eyes won't focus. Last Friday, my left eye was blurry all day, and by Saturday, I was back to normal... I'll sleep 16 hours and still feel tired.
The brain fog and mood changes got so bad, my therapist was like, "I think your anxiety before 2020 was just severe, but I'm leaning more towards OCD now... have some Prozac." and it's like, I WAS GETTING BETTER mentally in 2019. I was going to start my master's, have a 50k salary by 2022, and be in Seattle by 2024... I'm starting my masters now in 2024, I live in Houston, and this year alone I've had two separate coworkers come into my office and ask "...you okay?" just because the PHYSICAL toll of the exhaustion is bad. I don't qualify for disability in Texas... My doctor told me, "You could try, but it'd cut your salary in half..." and that's where I am. I'm working an okay job but at least twice a week, I'm mentally not there... thankfully most of my coworkers ALSO have long covid so half the time we're all just supporting each other.
UK Long covid haver here. With long covid it sucks, before covid I was energetic constantly going to the gym, working but then it felt like my life stopped. Getting covid 3 times it felt like I became a completely different person. Loosing all motivation even struggling to do daily tasks and trying several kinds of antidepressants to no avail, It just feels like I am spectating my life watching friends and family progress in life while I am left behind. We really need more support and research into long covid as its destroying countless lives.
As a cancer survivor myself, I feel horrible for Kate.
While it isn't the same thing she's been going through, I can relate to losing the ability to keep your personal heath private. The day before I was scheduled to start my chemotherapy treatment, my family, unbeknownst to me, put out posts on their social media asking for help, sharing stories, selling shirts, etc. At the time I had only told the very closest of my friends, with a plan to tell everyone myself when I felt ready. Instead, people I had barely talked to were reaching out, all when I had just planned on getting some rest before the next day.
I had to put out a hasty response, trying to tell my personal views on what was happening and how I'd be okay, responding to people whom I didn't talk to often assuring them I would be fine, trying to stay calm and not freak out, all while my parents offered little support, saying that my family had meant well by it and that I was being ungrateful.
I know they meant well, just as I'm sure the people that reached out meant well. But losing the ability to share what you're going through on your terms, at your pace, is devastating while also trying to deal with something as impactful as cancer. And I'm just a nobody kid from PA. I don't have kids, let alone a partner that I have to break this too. I don't have millions of people around the world saying things about me that aren't true or creating conspiracies about me. That would've ruined me.
TL;DR: Let people who seem to be going through something tell their story when they're ready. The best thing you can do if you truly care is be there for them when they reach out to you. And if you don't truly care, like I suspect many people who spread those things about her do, then mind your business.
4 years and 12 days since c19 completely destroyed me. Thank you so much for covering Long Covid. We have been abandoned. My body is decimated and I need help that does not seem to seem to be coming. I'm about to loose my home and I'm just so tired. Please, everyone, you know someone who is suffering. Denial is not an answer because we are not expendable.
Sorry you’re struggling with it. It isn’t just Covid tho. My situation is very similar. Got some virus before Covid was even a thing and I’m still wrecked. Went from being able to work on my feet 8.5 hours a day to not being able to stand for 20 minutes without feeling like I’m gonna pass out. It’s been like 8 years and hasn’t improved at all. I sleep like 14 hours a day. No answers, no help aside from being a burden to my dad. So hopefully people bringing attention to long Covid can bring attention to all post viral syndromes.
You need a therapist to sort out why you feel the need to malinger like this.
Get up and go to work dog, it's what the rest of us have to do after c19. Take care of yourself, the govt isnt running to help you any time soon
Excuse the other two, but hoping for you. This was such a surprise of a situation to hear about, and to know it's been going on for this long is insane. Once again, hope you get through this and can eventually return back to life as you wish, take care
Thank you for covering Long Covid❤
I joined a study after having COVID in 2022 that’s been looking into the long term effects and was told that I’ve been experiencing some Long COVID symptoms, and given I already was recovering from a major injury that had delayed treatment due to COVID, my recovery time from both has been effected. I’m just so glad that more people are talking about and hope that this also gets more people to talk about Long Flu, something I also experienced in 2019 that lasted until 2021.
i have long covid and it is truly so scary and exhausting. constantly ill, no answers from my doctors, little to no support from the people in my life…. it’s so isolating. everytime i hear news about long covid it’s so exciting but has been disappointing thus far. i’ve been sick for four years and seen every landmark, from the beginning of “uhhh no there’s no such thing as long covid” to “well long covid isn’t that bad” and now we’re here. i hope we keep moving forward
Hey, Phil responded to you in the yesterday-today segment... well, a bot repost of your comment with an onlyfans link, but to your _experience,_ at least
@@Somnifuge Yeah I came here looking for this comment cause it looked like a bot repost... Looks like that one is gone now so hopefully Phil & team noticed after and will check
THE OG INTRO 🥹
Huge blast to the past
it gets me every time! LOVE IT!!
He has been doing more this last week. I also enjoy
love that monkey
@ragevsraid7703 I let an old girlfriend convince me to throw out my space chimp poster... something I regret to this day lol
Love how the Moscow situation is so complicated Philip is just ignoring it, probably waiting for things to settle a bit which is understandable
As someone living in the UK where covid is regarded as being over and where we have had recent newspaper articles minimizing covid and long covid, thank you so much for bring this up. I have long covid for about 4 years now I can tell you my worst symptoms are not going away and there is no help out there. It a bad situation that's only being made worse by people in authority not helping but also actively ignoring the problem. Just want to thank you again, I feel like I've been seen.
I wouldn't call it long Covid, but my overall health has definitely been affected by it. I caught Covid back in January 2022, and ever since then, I have struggled with any respiratory illnesses. Flu and cold season is brutal for me. I struggle with a wheezing cough and feel like i can't breathe. I'll be nearly bedridden for over a week. It's horrible and terrifying for my job. Thankfully, I only work 3 days a week, but with the way my job's attendance system works, I truly should be fired for missing that many days. I don't know what I would do without my incredibly understanding management team.
I'm very glad to hear some management teams are actually reasonable and understanding of the staff which make the companies money
Honestly, I definitely feel you. I developed chest pains after the first time I had covid, then the second time developed asthma during a period where I struggled with long covid and caught a really bad cold that developed into an upper airway infection. I'm now on a recommendation list for getting the flu shot. It's incredibly frustrating...
Why would you not call obvious long covid, long covid?
One of my favorite UA-camrs, Diana Cowern aka Physics Girl, has been suffering from CFS brought on by COVID since July 2022; she has been in a state of constant dependency on husband and family, and it’s truly heart wrenching to see.
I'll share my experience with long Covid.
I was disabled before Covid, and I knew getting it would be bad for me. I have a litany of autoimmune disorders and am immunocompromised.
In January of 2023, I went on a cruise with my boyfriend's family. At that point, I'd had three initial doses of the Moderna vaccine, and either one or two boosters. I had just gotten a booster in December.
I was doing better than ever physically, I was able to walk around on excursions without much issue. I had muscle fatigue and my normal chronic pain, but I wasn't in bed often.
I caught Covid while we were disembarking the ship. I took my mask off to do the face scanners, and then didn't put it back on after because it was so hot in the building. Huge mistake. It was normal for me to wear masks in crowds even before Covid, so I knew better. I was just so tired that day.
I don't remember the next few weeks very well. I know I had extreme vertigo for six weeks. It felt like I was on a small boat in 20ft swells. Like I'd fly up above my roof and then back down into the floor. Sometimes I'd gasp or tense up because it was so alarming. I'm very fortunate that I don't get motion sickness, because I would have had to have been hospitalized this entire time if I did.
I'd have visual hallucinations, especially if I watched anything fast-paced. I remember we were watching House of the Dragon at the time, and I couldn't understand the opening. I remember the dragons having odd patterns on them as they flew, or not being able to recognize characters or follow the story because I couldn't see what was going on.
I couldn't think or remember anything. I remember I spent the first few weeks playing Graveyard Keeper, as I'd started it on the cruise, and I'd have to take pictures of the items I needed for crafting so I could remember them long enough to pull them from my chests. I could barely hold a conversation. This lasted for at least three months, then slowly faded.
I had started skating with a roller derby team in late 2022 to build strength. I knew I'd never play with them, but I was training to be a ref on skates for games. I was doing really well then, but now I can barely even get my skates on. I'm now coaching on foot. Which, bless them for finding me a position off skates until I can skate again. But even getting out of bed and to practice twice a week is a struggle.
I spend all my time in bed now. I no longer have the energy to bathe my large dogs, so I have to take them to the groomer. I have a standard poodle who loves mud and dirt, so she's got a bird dog clip now. I can't brush her everyday anymore. I can't groom her myself, which I did before.
I've been working from home since 2018, but my productivity has dropped tremendously. I'm just now to the point where I can really handle my duties again. Even then, it's not the same. My job is creative and I was able to make things completely on my own before Covid, now I struggle to remember what needs to be done and what people have asked for.
I now have a painful allergic rash on my face that I'm on seven medications for. If I miss one of them for too long, it comes right back. From what my doctors have told me, this isn't even weird. Covid messes with your immune responses. Now I'm having a histamine response to nothing. I need to see an allergist about it, but that's more money and energy I just don't have.
It wasn't like my life was amazing before, and I'm very equipped to handle the pain and fatigue as I already had it, but it's like what little life I still had was ripped from me. I’m forever grateful to my friends, family, and bosses who stuck it out with me. I'm improving, but very slowly. I was basically useless for the rest of last year. It's getting better, but it's getting better very slowly. Even the level of energy and productivity I have now seems like a miracle. I was terrified that I'd be in bed for the rest of my life and never improve.
I got covid summer of 2022 at a Harry Styles concert and i haven't been the same since, doctors don't know whats wrong with me but they say its probably autoimmune. I've had kidney stones, I get debilitating migranes and vertigo, brain fog, fainting, I randomly cough up blood (that one tends to freak people out), I've lost over 30 lbs and am now seriously under weight and nothing I've done has helped it. Most food now makes me sick. I refuse all painkillers when I go to the hospital bc I'm terrified of them thinking I'm seeking them and turning me away. I've had test after test where they say that somethings off but nothing conclusive. It took me a year and multiple abnormal tests to convince them it wasn't anxiety or an eating disorder.
I havent been diagnosed with long covid but I was a totally healthy early 20s woman before I had covid.
Joint hypermobility is a predisposition for long covid! And, honestly, simplifying it all to "long covid" is harmful for all involved. We have a name for this thing and have had a name for it: dysautonomia. . . Specifically autoimmune autonomic nervous system dysfunction as a root of post viral/infectious/ trauma induced immuno dysregulation. The small fibers are being affected. Theres SO much past research that can be applied to the so-called "long covid" if you look at other post sequelae autoimmune disease from flu and ebv.
Great information!! I was left barely able to do pretty much anything for several months, and people thought I was on something or depressed. I didn't even understand what was happening. Lost a a huge amount of muscle mass. Slowly building back up. 🫂
I had Long Covid for all of 2023. I was extremely sick at the end of 2022 with Covid. For the full year I was extremely low energy, sore all the time, had a high resting heart rate that would not slow down and very high blood pressure. I only found out that I had some kind of issue when I had to go to the hospital for hypertension and extremely high blood pressure (200/120). I went from doing 18, 20k+ step hikes in the summer of 2022 to struggling to walk 2000 steps to work in 2023.
Now in 2024, my pancreas gave up and I am diabetic. I’m really struggling now; diabetic drugs are really hard on you, and I’m tired and cold all the time. The worst part is that after talking to the Long Covid Hospital here in Canada, I’m finding out that a lot of people are reporting to be diagnosed with diabetes after having long covid. There was no indication that I was pre-diabetic in 2022 or 2023 and no family history. Doc said that there is no evidence to support Long Covid leading to Diabetes, but it seems suspicious to me.
thanks for the LC segment
I have long covid and it is truly exhausting. I've never been so winded by walking a flight of stairs or walking my dog as I have been for the last 3 years. I've quit smoking, started maintaining a healthier diet and doing light resistance workouts, yet nothing improves my stamina or breathing issue. I can't afford to go to a doctor and I'm terrified that maybe my heart has been effected by this condition. I have a small child and I want to be able to run and play with him without needing to take breaks every 15 minutes
I have noticed that my personality changed after having COVID. I've always been an extremely patient person, but after having it I find that I get inpatient and frustrated very easily. I have to catch myself to keep from going off on people for what would've been minor things before. I work in a service field, where I'm having to deal with people that are sometimes frustrated themselves, so more often than not it feels like a burden to go to work because it's so draining to keep my temperament when helping people that aren't being easy to deal with. And then I come home and have to deal with family stuff, and sometimes I feel so overwhelmed with frustration that I want to just walk out the door and not come back because I don't want to take it out on them.
I can't say if personality changes are directly linked to Covid or result of the collective psychological trauma that we all incurred but rest assured you're not the only one who has noticed personality changes similar to what you described. I'm glad you shared this.
Couldn't it just be that a couple of years of lockdown filled your BS cup to the brink? It was a weird few years there after all. We all changed in some way or another.
Long covid was one of the worst experiences of my life. The initial infection was pretty mild. Like a cold for a few days but the mental effects were horrible. Memory, concentration, speech, and even my ability to process sounds and language were all affected. In total it took almost 9 months for the symptoms to go away. I still have speech problems every now and then where my throat/vocal cords will freeze mid word for a second. We definitely need to be putting more resources into treatment and research.
My sister is suffering from long covid. She caught it her last year of high school. She was athletic and ran track. But after she caught Covid she began to have heart palpitations, fatigue and other issues.
A close friend of mine in his 30s got hit badly by Covid. His coworkers thought he was sleeping at his desk but he developed blood clots in his brain and suffered multiple strokes at his desk. He ended up with massive memory loss and had to learn everything all over from scratch. Walking, talking, he even had to learn what colors were again. He also knew he had a connection to his mom and sister but didn’t know who they were. Funny thing though he remembered the McDonald’s “I’m loving it” jingle.
My GF has long covid, and it is so sad. According to the doctors, most patients are basically silent in appointments because of lack of belief, depression and exhaustion. Plus the medication to deal with it has very bad side effects. It's so frustrating.
This Easter marks three years since I tested positive for COVID-19. In February, I lost my voice for three weeks. I teach grade 7/8. You can imagine how easy my job was... so I had to go on leave due to persisting symptoms, and it's been an incredibly tough journey. The physical pain and mental strain are overwhelming, and it feels like there's little understanding or adequate support available. Unfortunately, my employer dismisses my condition as "all in my head," which only adds to the burden. Moreover, the situation has severely impacted my mental health, leading to a significant increase in suicidal thoughts. I worry I will never get my life back.
Among other things, long covid gave my partners mom severe reactions to mold. 60% of homes in my area have mold, it’s not something that impacts most people at low levels. Her reactions were so bad even after extensive mold remediation to the home the family has been forced to move. It took them forever to even find a house that didn’t have mold. Long covid literally forced her out of the home they thought they’d be living in for the next decade. They ended up finding a house an hour and a half further out than they were trying to go because it was so difficult to find something affordable AND mold free. Fuck covid.
I got Covid originally in 2019. I’ve had long-haul symptoms ever since fatigue tired brain fog some days are better. Some days are worse. My energy has never been the same since. I’m in my early 20s and I feel like I can’t do anything. It’s crazy what a simple virus can do.
Heyy Phil, This Was A Great Episode. Appreciate you taking all the effort. I love your face and will see you tomorrow.
A colleague of mine got Covid during the heat of the pandemic and he woke up one day without being able to walk. It took him 3 months to get better and walk again. I do hope for everyone who has Long Covid, they get better and get the help they need!
I got long covid before people even realized it was outside of New York, just as a time frame doctors had some of their own saying that long covid couldn't be a possibility,
And I still feel awful my lungs have never been the same I can't work out the same and the immense frustration I feel when I'm trying to do research for something or just having a conversation and then my brain just turns off and I can't think is astronomical,
I have muscle pain that I didn't have before I don't know if it is just related to my newfound restraints with exercise but my hands are weaker, mentally there are moments but the physical stays pretty much the whole time. In particular for me that was disappointing because I was in the best shape of my life, I had great stamina I was physically stronger than I had been in a while I hadn't had an asthma attack in 4 years and then I got long covid then suddenly it rip that away luckily I had people there for me because apparently when I would go to sleep there were times that I would be blue-faced and then shortly after I would wake up.
I wonder if the best way to equate for people is to compare it to lupus because lupus has different types and comes in varying degrees like my mother is basically a vampire with how easy she sunburns and on this channel I was talking to someone who his wife has lupus and she has different issues completely,
I wonder if that's the best way to compare it for people.
I feel like there is a link between long COVID and dysautonomia/POTS. Or at least that's what I've read. One of the causes of POTS is a viral infection. Anyways, I have POTS and it got significantly worse after COVID, but the symptoms felt the exact same.
Thank you for covering long covid! Millions of people (like me) have been suffering for months or years and need real research and real treatments!
I have long Covid, it is hell. I spend all day in bed sometimes, and still exhausted. Brain fog is an understatement, I feel like I have dementia. I am 38, I can't remember words, I can't remember things I need to do like pick up medications, I can't eat, and my mental health has taken a nose dive.
Thanks for posting today sorry it was so hard!!
I get what people are talking about with not being able to talk about Long Covid because everyone wants to move on. I’m immune compromised and my life has been made very small by how little people want to care about it or wear masks if they’re sick etc etc and it makes it terrifying to go out anywhere and it has changed everything for me, especially my ability to work as I do events/ weddings for living. I’m so lucky my spouse and family are so supportive but I know not everyone is so lucky!
Outside Phil?! Cool!
Crazy right? I didn't even know he could go outside. 😂
Don't worry, he will be contained once we have gathered the resources..
Thank you for covering long covid. Its just as bad in the uk. I got covid jan 2021. Have had long covid ever since.
I had to move back in with my mum and 3 years on I still cant consider living on my own because I cant look after myself fully due to my symptoms.
I have to use mobility aids to get around and have days where I cant speak correctly because the brain fog is so bad. Im still waiting for my referral to my long covid clinic, have had countless tests in the meantime and have lost any semblance of a social life.
Its hard work to just try and survive day to day and theres still so many people that dont believe it exists.
I have had COVID-19 three times which has left me with long COVID, and it has completely ruined my life. I have an honors degree from university, but when I went back for an evening class two years after graduation, I couldn't even get through one 300 lv session due to the brain fog caused by COVID, but I used to do and pass hounors classes. It's frustrating that doctors don't believe long COVID exists. The breathing issues, cough, and fatigue never seem to go away.
People feel the need to shame other people for their own egos. It’s an awful practice that I myself done in the past. We need to do better. I need to do better.
10:55 one of my favorite creators physics girl has been diagnosed with long Covid. it has been heartbreaking to watch her quality of life just become completely gone, I watch her old videos and see how happy and how much fun she was having, and now she can barely sit up, she barely can talk, or even have the lights on in her room. I never really understood what long Covid was until saw her affected by it. my heart truly goes out to any person or any family that is dealing with this right now I cannot imagine the difficulty that would bring in the heartache ❤ I pray that we figure this out and we can help these people that do not deserve to be suffering like this ❤
I've had COVID 4 times. I mask, and am fully vaxxed. After the 3rd time, I never got better, and eventually my doctors told me I had long covid. It's a massive drain on life, and daily struggle. The constant full body pain, difficulty focusing, and exhaustion that sleeps hardly helps. I wouldn't wish on my worst enemy. Back in November my medical team put me on Duloxetine, oddly enough, and it helped. It was like a breath of fresh air...until it wasn't. The past month or two, the symptoms have returned, and it feels hopeless. I do everything I can to help ease the pain and discomfort, but nothing provides much relief. I really hope that we can find some kind of help for myself and others in the same situation.
The long covid story angers me. I have fibromyalgia, hyper mobility and extreme fatigue, and for years have been pushed from pillar to post with no real hopes of long term improvement. So while I may not have long covid, I fully understand how debilitating it is. We need better research, support and funding for ALL long term conditions like fibromyalgia, ME, long covid etc. The sheer number of people with long covid is just making their fight more public. I hope it improves things for all of us with similar conditions.
As a physician who sees some people with long Covid the symptoms and disability from it are absolutely real. People need both support for physical health and mental health. The statement of “it’s all in your head” just reflects the continued stigma of mental health. As suggested by the teenager with hospitalizations for SI, we need to provide mental health support, in addition to other interventions.
Diana from Physics Girl has long COVID and it's very sad. She's unable to do almost everything.
its so painful to see someone full of life being a husk of their former selves.
0:00 WE OUT SIDE!!
0:20 We not outside
I've caught COVID three times since the start of the pandemic. After my first time catching COVID-19, I felt the initial hit it took to my wellbeing but thought it would pass and the symptoms would fade out just like a cold. I ended up waiting weeks for the "symptoms" to go away, past the number of days my job provided for people to be out due to it. I went back to work and struggled to do my job for the first time EVER... I eventually got used to it. Finally, after I caught it the third time it was like I didn't even notice I was sick. I felt only a little worse than usual.
Long Covid Story -
I’m a former ICU nurse. I caught covid from working with very very sick people in my city in September of 2020.
I, at 25 years old ended up with pericarditis- a swelling of the sac around your heart.
I wasn’t medically cleared to work out until late 2021. And even now though I can weight lift with moderate intensity - any intense cardio is still impossible. ANY. I’m 28 now and I look like a sweaty ghost about 4 minutes into “adult time”.
I had to leave the ICU setting because doing chest compressions on patients made me nearly black out a few times.
I guess what all this is to say is that, Covid never left. For some of us, we’re stuck with it, and I’d love to just go back to being a normal dude.
I feel for Selena Gomez. Until my mid-20s I was a size 2. Then I developed several chronic illnesses. The treatments and medications, as well as the physical limitations, have caused me to gain weight. I'm now a size 12 and much less confident. I can't imagine going through that as a public figure. She's beautiful no matter what her weight is, and she should be proud of the fact that she has maintained her career despite her health struggles. I wish people would focus more on that.
Fibromyalgia also seems to be somewhat similar to long COVID, so I feel like I understand to an extent what people with that condition have gone through. We also deal with doctors not believing us, chronic fatigue, and losing friends, goals, and careers. I was hoping that having such a large number of people become suddenly disabled at once would make people more aware of the difficulties chronically ill people face and maybe trigger advancements for the community, but I think those people have just been left behind as well as people "move on" from COVID.
What baffles me is that Selena is still gorgeous. Her extra weight suits her face, and she has an hourglass frame. Beauty shouldn't be the determining factor in whether someone gets respect or not, but these people are also out of their minds if they think she's not beautiful.
@@hopelessromantic3786❤
Maybe because "Long Covid" is just malingering.
I feel exactly the same way as you. I was super super skinny growing up. I couldn't gain weight if I tried (and I tried). Since going on medications that make my life livable, I have gained a ton of weight and now my body doesn't really feel like "me". I try my best to still find myself beautiful, but it's a real struggle. I can only imagine feeling this way and then having thousands of people validating my worst thoughts
@@hopelessromantic3786 This. I saw that photo and thought, "what do you mean, that woman is gorgeous!" But, people just want to find things to pick on people about, and the net makes that so much easier to do.
I hate to say that I have long covid because my symptoms are way milder than the normal case, but it hits me where I hurt the most, my taste. I still have not been able to taste food since I first got sick back when it started to make its rounds. I love to cook and entertain people with my food and I have to make sure I keep the taste in check with either my wife or one of my guest to make sure the food is still good for them and not overly or underly seasoned. I also hate how everything sweet smelling, just smells foul to me now and my smells being mixed up. The constant reminder of telling people, "Sorry, my taster and sniffer is still off because of covid" is a bit sad at times, and I have just learned to live with it.
As someone with chronic fatigue, I can relate to the long COVID experience and frustrations - it's crushing having doctors repeatedly tell you there's nothing they can do to help you live life like before. I'm glad it's something we're talking about now though, I don't remember the last time other chronic illnesses were talked about like this so I'm hopeful that will help move the timelines up
Thank you so much Phil for continuing coverage on Long Covid. My life got completely turned upside down by it after getting Covid in April of 2020. (NYC “essential worker” my superior unwittingly brought me and my colleagues into contact). Wasn’t believed throught most of it wile I continued to work, winding up in the hospital on my days off and then going right back cause everyone is short staffed. I am WAY better then I was for the first two years but still feel I will never be myself again. And wonder if whatever is causing this will shorten my lifespan. (And yes, it feels really bad when the whole world seems to have moved on from Covid, wile it’s still directly affecting so many of us every day).
Guy with long COVID, here, 2 1/2 years later and I still can't taste or smell, just walking gets me winded, and I had a heart attack six months after getting COVID. Dr doesn't care, judge didn't care I lost my job, still had to pay $368/Mon child support. Ended up homeless for awhile. I'm still unemployed, no one will hire me because of my medical issues, but my medical issues aren't enough for disability. It all sucks.
As someone who works in healthcare what helped my long covid symptoms go away was doing NAD+ 1000mg IV infusions, it repairs molecular damage down to the cell level and after a number of IV infusions I began taking the NAD as subcutaneous injections twice a week and honestly it has helped me tremendously I now have much more mental clarity and don't experience brain fog anymore
It's so odd seeing Phil outside
Definitely not his natural habitat.
Don't be tricked by the green screen technology!