DECISIVE: Developing a Decision Support Tool for Individuals with Pseudomyxoma Peritonei (PMP)

Take the survey: redcapynh.ynhh...
The peritoneal surface malignancy team at Yale knows that individuals with peritoneal tumors like PMP and their loved ones have far fewer resources and support available to them than individuals with more common cancers when they are making big decisions about treatments like cytoreductive surgery and HIPEC.
Dr. Godfrey’s project DECISIVE aims to address this problem by comprehensively understanding the decision-making experiences of individuals and their caregivers considering cytoreductive surgery and using that knowledge to develop a decision aid that would support and improve the decision-making process.
The Yale team behind this study looks not just at clinically-oriented experiences like complications, costs, and days in the hospital, to learn from your personal perspectives of the efforts you made to self-advocate, the work you did to prepare and recover for surgery, and how it affected your day-to-day lives and priorities, with the objective of changing the way clinicians approach cytoreductive surgery to optimize support to all those affected.
The DECISIVE Survey is open and interested in the participation of anyone who has:
(a) undergone CRS (with or without HIPEC, EPIC, or other forms of intraperitoneal chemotherapy)
(b) been offered CRS and declined
(c) been offered CRS but had health or cancer-related changes and ultimately was not able to have it - and anyone who has been a caregiver or co-decision-maker for someone who fits into one of those categories.
Take the survey: redcapynh.ynhh...