6 Most MISUNDERSTOOD Causes of MCAS (MAST CELL SYNDROME)

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  • Опубліковано 22 гру 2024

КОМЕНТАРІ • 123

  • @reneeodayok859
    @reneeodayok859 Рік тому +29

    I was originally loosly diagnosed with catamenial anaphylaxis . Got lots of shuffling around from allergists in Indiana. I am sure i have mcas now from a young age. I wont bother fighting for an official diagnosis because i do t have time to teach doctors or the $ to do so. Best i can do is research and do the best on my own. It is nice to have some clue of whats been going on with me since childhood.

    • @SuperSpeedyToo
      @SuperSpeedyToo 9 місяців тому +1

      I feel the same...

    • @cynthiabrown2384
      @cynthiabrown2384 9 місяців тому

      I am working my way through this with the VA in Terre Haute and Indy. Just getting started. Battling on for my children and grandchild.

    • @TheIslandGirl63
      @TheIslandGirl63 5 місяців тому

      I too feel the same. Issues since childhood. Finally Dx with Crohn’s at 34. Years later I find out all the other issues are potentially connected to this. My niece got diagnosed. Highly certain I would test positive but not sure it’s worth the fight now.

    • @EaglePicking
      @EaglePicking 2 місяці тому

      Same here. I'm 44 and only realized the last few years that I've had digestion problems my whole life and now severe MCAS because of it.

  • @MAM-jw7lo
    @MAM-jw7lo Рік тому +32

    Thank you for this info. I’m dealing with MCAS big time but not one of my doctors will even address this. I do have Lyme, mold, parasites and viral reactivating this. It’s been awful.

    • @Ruktiet
      @Ruktiet Рік тому +1

      You claim to have AND mold toxin exposure, AND Lyme disease, AND chronic viral infection? That seems very unlikely… what tests did you take in order to verify this?

    • @belle42
      @belle42 Рік тому +9

      ​@@Ruktietwhat a rude comment

    • @Ruktiet
      @Ruktiet Рік тому

      ​@@belle42what the hell? Are you a toddler or something? I’m stating it seems very unlikely, because it ís, statistically speaking. It’s more rude to accuse someone of being rude when he’s making a very valid statement. What is the added value of your comment? How will the world change for the better through this comment? It won’t. The only reason you wrote it, is because you have nothing else to do then be bothered by the tiniest things that aren’t even about you, because your world is just thát small.
      Go bother someone else

    • @Reefers23
      @Reefers23 11 місяців тому +9

      Most people have multiple infections/toxin overload

    • @RubyRedDances
      @RubyRedDances 10 місяців тому +8

      @@RuktietThis comment belies a lack of empathy and understanding of how many of these issues can promote each other. You sound like someone the OP has tried to get help from.

  • @GrammaSheila5
    @GrammaSheila5 6 місяців тому +6

    Thank you for the video ... I feel my system is a disaster. I have under treated Lyme, very high SIBO, low thyroid, reverse T3 of 32, and mold. My doctor also suspects HaTs and MCAS. Trying to pluck away at these with a private clinic but it almost seems like a vicious cycle. My family doc still tells me I only have Fibromyalgia and all I need is an antidepressant, yoga and a good councillor. So thankful for access to good docs who actually understand and treat chronic illness. I like the idea of taking one brick off at a time.

    • @stellaancimer8505
      @stellaancimer8505 4 місяці тому +2

      Dont Listen to this ignorant doctor, who Said this to you..did you try gaps diet? Or carnivore? I also have chronic lyme.. carnivore really helps me😊

    • @annhenry1226
      @annhenry1226 8 днів тому

      there is no penalty to doctors for prescribing tons of unneeded treatments and charging insurance for it.

  • @RunningWithSauce
    @RunningWithSauce Рік тому +4

    I have systemic Mastocytosis. This advice works well for SM as well. Solid work doctor. I would add an additional trigger that stacks as a huge brick; sleep. We need quality sleep. Without it, the immune system seems to be more reactive. Also I don’t consider alcoholic beverages a food and those majorly signal the innate immune system.

  • @mrstudio8237
    @mrstudio8237 Рік тому +9

    I have been struggling 22 months after Covid but just now found out my triptase is high. I am going for a bone marrow test soon. Praying it’s not mastocytosis. I can no longer run my dance and fitness studio or walk my dogs. Now I can step out into the sun. Are there any treatments that help these things improve???? I pray so.

    • @detectivewiggles
      @detectivewiggles 6 місяців тому

      Yes, you have to fully remove yourself from all society. The illness monetization industry exists solely to serve the economy, NOT to heal anyone. My severe MCAS is fine as long as I remain in endless solitary confinement. If doctors actually bothered to fight for us, a long list of chemicals commonly found in consumer products (especially laundry and toiletries, as well as many inactive interacts in all medications) would be banned on a federal level. Only then would we be safe. But this will never happen as most healthcare workers are too lazy to even wear a respirator in year 5 of a pandemic that has killed millions and disabled millions more.

  • @GoingGreenMom
    @GoingGreenMom Рік тому +4

    I was actually diagnosed with histamine intolerance, I found avoiding lectins in the diet was helpful to keep so much getting through the gut lining and causing mast cell degranulation to deal with the histamines. I don't have sals issues, and only occasionally have issues with oxolates when my electrolytes get out of whack.

  • @JamieR
    @JamieR Рік тому +2

    These videos are a goldmine. Thank you so much for sharing.
    Would it be possible to get case studies in some videos? To see how you approach in a structured order?
    I know it's different for everyone, but if there's a set of steps you usually go through to get to the root it could be immensely helpful to bring to physicians in the hope of getting some help.
    MCAS is not talked about or even on the radar in Norway. Its very challenging to find anyone who can help. Be well! Thanks once again! 🙏🏻

  • @shaku55
    @shaku55 Рік тому +5

    Awesome stuff Dr Anderson! I've watched a few of your videos, and have been crawling out of my own hole. Who would I engage in Arizona to help me do some diagnostic testing? Through a food elimination diet I've identified issues with histamine, salicylates, oxalates and soy. I have regained a ton of energy and brain by observing a very limited diet - it is so challenging to avoid seed oils and soy!!! I've also identified many places where environmental toxins like soaps and perfumes were causing issues. I've got a great vitamin protocol going with MSM and DMG and NAC and P5P and K2, and a fun variety of B's so I FEEL a lot better. Even better than how I feel, I'm a better human now - it's ridiculous how irritable this condition can make a person! I love being nice like my old self on the daily, it's been life-changing. Anyway, my GP suspects chronic Lyme as I grew up in NH, but I have not found anyone who can help me dial in a protocol. How can I find someone to help me get the last 30% of my life back?

    • @shaku55
      @shaku55 Рік тому +2

      P.S. video liked and I subscribed! 👍

    • @DrA-Online
      @DrA-Online  Рік тому +2

      Try Protea Medical in Tempe

  • @cathyeads4193
    @cathyeads4193 Рік тому +2

    Thank you so much Dr. Andrrson for providing this valuable information about MCAS that we can share with providers, as well
    as other patients, looking to find and resolve the underlying causes of our MCAS symptoms!

  • @HDblumoon
    @HDblumoon Рік тому +2

    I was diagnosed in 2009 with systematic mastocytosis my tryphase level has been right at 30. GI issues have certainly been an issue. For weight and cholesterol issues I was perscribed a weight loss medication. It was like a miracle how many of my GI issues calmed down, yet one symptom has become a greater challenge. My hope is to be prescribed low dose naltrexone to maintain the positive relief and hopefully alleviate the negative issue.

  • @reachruthanne752
    @reachruthanne752 Рік тому +1

    Thank for this information. I like the idea of removing "bricks" off. Thanks for mentioning oxalates and salycilates. Already, a low histamine diet really makes a difference. I'll try out the other two categorie as well. It' worth it for the time being to put out the "fire". Most appreciated!

  • @sarahhallman1911
    @sarahhallman1911 7 місяців тому +2

    Sooo happy 😊 I found you. Blessings keep it up. MCAS PATIENT

    • @DrA-Online
      @DrA-Online  7 місяців тому +1

      Thanks so much for the support! - Team Dr. A

  • @DR-ee5ul
    @DR-ee5ul Рік тому +2

    I find your videos so informative. I enjoy how you break down the areas and explain why your practice looks at different areas and what may or may not be going on. Sadly, so many ill patients end up bouncing from doctor to doctor with no one willing to look at the whole person. How do you suggest finding a doctor in the patient's local area who would have a similar approach to your practice and hopefully accept insurance?

  • @Ruktiet
    @Ruktiet Рік тому +3

    What do you think about checking copper:zinc ratio? Dietary histamines are detoxified/neutralized in the duodenum by the diamine oxidase enzyme, which requires copper as a cofactor. People often supplement zinc, whether it be for immune system support, or for the GI tract (e.g. zinc-L-carnosine) which is antagonistic to copper, and thus a copper deficiency could theoretically lead to reduced production of this enzyme. I’ve seen testimonials of people seeing tremendous improvement doing this.

    • @DrA-Online
      @DrA-Online  Рік тому +5

      Yes, my support of DAO is usually Cu,P5P, C and Mg.

    • @Ruktiet
      @Ruktiet Рік тому +1

      @@DrA-Online thanks for replying! I’ll look into P5P. Great videos!

    • @vivacemaxvictor2765
      @vivacemaxvictor2765 Рік тому +2

      @@DrA-Online can you please be more specific? Which brands? How much of which? Thank You

  • @chrystenerae
    @chrystenerae Рік тому

    The 48yr old patient describes my issues, its unbelievably tough & challenging ! Multiple Stealth infections, C Diff, MCAS , mould allergy, oxalate issues. I am on a LCHF low oxalate diet mainly animal based and find I am having periods of intense flares then short remission. I really appreciate your intelligent and educational discussion of these pathways in helping my understanding of what is occurring. Do you have a link to your pathway sheet? Thanks again

  • @its.k10
    @its.k10 11 місяців тому +1

    I def want to hear more about this 48 yr old patient she sounds like a lot of stuff I deal with! So she did histamine diet fixed hormones and what else? It kind of cut off at end lmk if you make another video that goes deeper on the case :) thanks!

    • @DrA-Online
      @DrA-Online  10 місяців тому +1

      Yes, check out Dr. A's MCAS playlist and histamine videos for more information.
      - Team Dr. A

  • @pvallarta1166
    @pvallarta1166 6 місяців тому +1

    Thank you for such a complete and rich content. I stabilized my mast cells 2 years ago (first trigger was an untreated jaw fracture). Now again…I had to get a spinal fusion…asked for pure titanium ….a few months post op I wasn’t feeling well, I checked the composition on the implants: an alloy made of titanium, aluminum and vanadium. Now I need to have a metal allergy test (Melisa?). I am living in Mexico and don’t find a place to have these metal allergies tested…I am pretty sure I will have to have my implants removed from my spine as even with mast cells blockers and anti histamine h1 and h2, my condition is getting wildly worse.

    • @SK-jq8um
      @SK-jq8um 4 місяці тому +1

      I have issues with my implants as well. I guess I should have thought about it more beforehand since I can't wear any jewelry, except maybe .99 silver.

    • @pvallarta1166
      @pvallarta1166 4 місяці тому

      @@SK-jq8um so sorry to read your story, can’t you get a surgery to remove your implants? Having pure titanium reduces highly the risks of MCAS triggers (unless you had an LLT test which shows a titanium allergy. Hope you manage it well?

  • @koridunlap7396
    @koridunlap7396 Рік тому +4

    Do you have a DR trained by you I can work with? Recently diagnosed mold toxicity and Hashimotos. Ty for this wonderful info!

    • @DrA-Online
      @DrA-Online  Рік тому +4

      Hi. Go into the 'description' under the 'more' link below the videos and the link tom "mold Literate" providers would be good

  • @mariasself2793
    @mariasself2793 29 днів тому

    This is so extremely helpful!!!

  • @jackiecollins7782
    @jackiecollins7782 Рік тому +1

    Fabulous info i have both salicylate sulphites sulpher MCAD N much mre thyriod oxcylates much better than! I was but still very hard to deal with shared u really do know ur stuff thk u very helpful

  • @Needless2say
    @Needless2say Рік тому +14

    My MCA symptoms went down by 20-30% after finding a hidden tooth infection.

    • @ibanezgirl4623
      @ibanezgirl4623 Рік тому +1

      What do you mean by hidden? I have a tooth that has been hurting for months (deep nerve pain). Dentist can’t find anything wrong. How did you find out?

    • @Needless2say
      @Needless2say Рік тому +8

      @ibanezgirl There is a special type of X-ray that can be done. Try to find yourself a biological dentist if there's one available in your area. Check out IOAMT certification. Herbs and higher dose vitamins and minerals have helped me a lot. As well as neck exercises, Vegas nerve toning and things that activate a parasympathetic state.

    • @clemensh6214
      @clemensh6214 Рік тому

      Get it out .could be a root cause.
      There are also bloodtests out there :
      - RANTES
      - Mercaptane / Thioeter
      @@ibanezgirl4623

    • @clemensh6214
      @clemensh6214 Рік тому

      If you have rootcanals that can be the cause also@@ibanezgirl4623

    • @Needless2say
      @Needless2say 9 місяців тому

      ​@ibanezgirl4623 IMO Consider looking for a biological dentest. These things have helped me. Taking a shower after getting an exposure it helps the body to move toward parasympathetic state. Higher dose vit C, Quercetin, Rutin, other Antioxidents higher dose B vitamins, methylene Blue, Sunlight-grounding mirrors help but be careful. High sugar-carb intake makes me burn alot faster. I keep phone,wifi, mobledata, to a minimum and use the speaker phone. Potassium and magnesium (citrate form) and mag. Glycinate. Betain HCL, bile salts, fasting, mild exercise, eating clean. Digestive enzymes-bile salts-tuddca. Look for mold in the house. Avoid high ,oxalates-detox them slowly so you don't dump. avacados,tomatoes, leftovers, sugar-high carb foods, milk products, etc check out Dr. Ben Lynchs videos on yt. Vagus nerve toning as in Accupuncture, neck exercises, and humming-growling, chiropractic make sure they are a good one.

  • @quitemountainwoman1592
    @quitemountainwoman1592 4 місяці тому +1

    Thank you 🙏 ✝️

  • @Ruktiet
    @Ruktiet Рік тому +1

    Thank you a lot for this video!

  • @GabrielleJacobsen
    @GabrielleJacobsen 6 місяців тому

    Very good, Dr. Paul Anderson.
    So informative. Thank u so much

    • @DrA-Online
      @DrA-Online  6 місяців тому

      Glad it was helpful. Thank you for your support! -Team Dr.A

  • @angelikasusanne2830
    @angelikasusanne2830 7 місяців тому

    Very helpful content. Thanks!

    • @DrA-Online
      @DrA-Online  7 місяців тому +1

      Glad you're liking it! - Team Dr. A

  • @gypsygarner2413
    @gypsygarner2413 Рік тому +4

    Would taking compounded estrogen make MCAS worse?

    • @ava.artemis
      @ava.artemis 4 місяці тому +1

      It could. When I had MCAS it could be set off by anything: chlorella, melatonin, milk thistle, methylated b vitamins, even glutathione, and many more things. High estrogen is one of the main causes of MCAS. I got it at least partially because my estradiol estrogen was sky high. It’s very inflammatory when it’s too high in relation to progesterone.

    • @gypsygarner2413
      @gypsygarner2413 4 місяці тому

      @@ava.artemis Thank you! I'm in menopause but I can't take a lot of progesterone because I get side effects from that. So the ratio estrogen to P is probably higher because of that . But it definitely is a double-edged sword because I feel better when I take estrogen for the most part..How did you fix your MCAS?

    • @ava.artemis
      @ava.artemis 4 місяці тому

      @@gypsygarner2413 oh I did a LOT of work. One of the main things that helped me is a hydrogen generator from brand promolife. It helps to detox and rejuvenate without side effects. As you probably know, one of the awful things about MCAS is that everything we need to heal also makes us sick. Hydrogen helps heal without any negative effects.

    • @ava.artemis
      @ava.artemis 4 місяці тому

      @@gypsygarner2413 I did a ton of work. One of the things that helped most is a hydrogen generator by brand promolife. I used it 2-5 hrs a day for a while. As you probably know, one of the cruel things about MCAS is that all of the things we need to heal also make us very sick in the short-term and we have to move forward at a glacial pace. Hydrogen acts as an incredibly powerful antioxidant and anti-inflammatory while improving ATP production, which means more energy, which means you feel better - and it has no bad side effects. It was the key for me, tho I did much, much more as well.

    • @gypsygarner2413
      @gypsygarner2413 4 місяці тому +1

      @@ava.artemis Thank you so much for responding♥️ I have have done a ton of research myself as well and and have tried things. I have heard of the hydrogen water and didn't know if was a"gimmick". You hear so much on the natural health field. I do know when I started supported my mitochondria I felt more energy and less brain fog. I take ACL,NAC,Alpha lipoic. I also take PC & Fatty acids. I have but since a ton of detox. I'm still responding to food (already did low histamine and lost to much weight) and getting migraines in the middle of the night due to Histamine I think. Have not tried a lot of detox cause that can cause migraines for me as well 😐 Ive heard it's a mitochondria dysfunction to begin with. 🤷‍♀️

  • @hostile-rx3198
    @hostile-rx3198 5 місяців тому +1

    Great video

  • @Covariante87
    @Covariante87 9 днів тому

    Can Alpha-Gal Syndrome worsen MCAS symptoms?

  • @silentmoments4799
    @silentmoments4799 7 місяців тому

    great info, thank you

  • @SouthIslandSk8
    @SouthIslandSk8 7 місяців тому +2

    Is there somebody like you in the UK?

    • @pvallarta1166
      @pvallarta1166 4 місяці тому

      @@SouthIslandSk8 I actually heard about one nutritionist in the UK who is excellent (from a very severe patient point of view)

    • @SouthIslandSk8
      @SouthIslandSk8 4 місяці тому

      @@pvallarta1166 go on!

  • @patriciapagan7461
    @patriciapagan7461 Рік тому

    Thank you, Dr A!

  • @tracyhasty6506
    @tracyhasty6506 Рік тому

    Thanks for sharing!

  • @Silveryyyy
    @Silveryyyy 2 місяці тому

    I have increased mpv, pdw and p-lcr. could it be related to mcas?

  • @Agnes-en4lb
    @Agnes-en4lb 9 місяців тому +4

    When you get better on the right diet and supplements and go back to your old ways every thing comes back with the vengeance. My own experience.

  • @snowps1
    @snowps1 2 місяці тому

    I have felt horrible and reacted to everything Food and Drugs for years. I finally went to a functional medicine doctor the other day. He thinks I have this and took 16 vials of blood. Hopefully this is the start of me getting better!

  • @victorandrushkiv7467
    @victorandrushkiv7467 10 місяців тому

    Thank you!

    • @DrA-Online
      @DrA-Online  10 місяців тому +1

      Thanks for the support! - Team Dr. A

  • @Success4u247
    @Success4u247 2 місяці тому

    There is an old saying. What you name you can tame. Thanks for helping me To put a name on something I have had to live with for 40 years.

    • @heidiwheeler5352
      @heidiwheeler5352 9 днів тому

      Yes I was life of crazy til I got diagnosed life has been a ride

  • @skyizz069
    @skyizz069 10 місяців тому

    I need you in my life dr, none of my drs have looked into why im having this issue. They just said well seems like you have it...k bye..... i am struggling bad with this, its affecting every part of my life and i have 0 idea why or what is going on.

    • @DrA-Online
      @DrA-Online  10 місяців тому +1

      Check out the links in video description to find a good integrative doctor you can work with - Team Dr. A

  • @isabellkazimierczak4208
    @isabellkazimierczak4208 Рік тому

    Great!

  • @mgr2599
    @mgr2599 Рік тому

    If I can ever work up the money I’ll come see you. I’ve had MCAS for 10 years. I’m 43 now.

  • @purplepassionateblue
    @purplepassionateblue 9 місяців тому

    I think birth control caused mine, I was okay before that. Working now to get some fixes

  • @marysample7049
    @marysample7049 6 місяців тому

    Best thing I did for this is the same supplements but I add lots, lots of vitamin C. And eating healthy food.advoiding processed food and no high fructose corn syrup syrup. And no tap water not even cooing with .. Zero floride. My health improved

  • @stellaancimer8505
    @stellaancimer8505 4 місяці тому

    I wouls sugest going gaps diet to heal the gut for real😊

  • @reinotsurugi
    @reinotsurugi 2 місяці тому

    Fasting. For me, nothing else compares. Even just skipping breakfast does wonders for my condition.

  • @1Vesta1
    @1Vesta1 Рік тому

    Having a hard time getting a decent screen shot of the chart...can you post on in comments for us? 👀

    • @DrA-Online
      @DrA-Online  Рік тому +1

      Having trouble posting a graphic. Will attempt

    • @DrA-Online
      @DrA-Online  Рік тому +1

      I had to post it on my IG

  • @MamaMia914
    @MamaMia914 3 місяці тому

    If you remove foods high in salicylates, histamines, oxalate and with high GI, you are left with nothing to eat. 😞

  • @Lala0328
    @Lala0328 Місяць тому

  • @Purplesky923
    @Purplesky923 15 днів тому

    Do you see patients for MCAS? Can I please be your patient 😫

  • @ClareBoyd-f8c
    @ClareBoyd-f8c 3 місяці тому

    White William Allen Margaret Moore Paul

  • @johnpalmer9211
    @johnpalmer9211 8 місяців тому

    ! figure it out yet ? chemtrails

  • @audreylgreen5502
    @audreylgreen5502 9 місяців тому +1

    Hard to find a immunologist

    • @DrA-Online
      @DrA-Online  9 місяців тому

      Check out the links in description for doctor referrals - Team D.r A

  • @roelofvanwyk4437
    @roelofvanwyk4437 Рік тому +1

    Sound like money making business!

    • @maryr7593
      @maryr7593 8 місяців тому

      Check the research, it's a real medical condition. Esp leonard weinstock interviews. This channel might be trying to make money by explaining it...but finding drs that know about mcas...is difficult. It has only been officially recognized since 2016. It has taken to 2022/2023 to actually get info about it.

    • @Texasgirlinacrazyworld
      @Texasgirlinacrazyworld 4 місяці тому +2

      You mean like western, traditional medicine? You're a bright one, huh? 🤡

    • @heidiwheeler5352
      @heidiwheeler5352 9 днів тому +1

      Until you suffered for years.

    • @HalfBlackSahraoui
      @HalfBlackSahraoui 4 дні тому

      Till you're stuck

  • @erinlee2598
    @erinlee2598 7 місяців тому +1

    What are the names of the blood tests that I need to have done I can't seem to find that Information

    • @DrA-Online
      @DrA-Online  7 місяців тому +1

      It's something you can discuss with your integrative doctor. (There are different levels of complexity when it comes to testing) You can use the links in description to find a good local one - Team Dr. A