My Endometrial/Uterine Cancer Story and Survival - Life is the Greatest Luxury
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- Опубліковано 28 вер 2024
- Please share this information to spread awareness of endometrial/uterine cancer, which has little funding and an increasing mortality rate. Be aware that sometimes there are no symptoms.
Follow up video: Cancer Three Years Later - Survivorship
• Endometrial Cancer Thr...
Email me: straling333@gmail.com
The thumbnail is from my last chemo in November 2020.
@@stephaniewilsonviolin It was seven months ago, title is Endometrial Cancer three years later
Being a doctor, I am sorry you had such less support from the doctor community than what you should have received. I came to realize this when my own aunt received a diagnosis of stage lV endometrial cancer. We are too late to do much about it but your story is truly inspiring. It really helps to see the other side of the spectrum and understand the real challenges that comes with a diagnosis like this. You are very brave to share your story and the encouragement you are providing to all these survivors or fighters is remarkable. I hope your health improves with every passing day and you completely heal from the mental and physical trauma that this disease incurred upon you.
Thank you so much! ❤️. My last follow up exam was in May, and I was fine. My next yearly scan (I was moved to yearly scans after 2.4 years) is in November. I am lucky to have eventually received great treatment and a caring team of doctors. I will never go back to the first doctor. I am so sorry to hear about your aunt. Endometrial cancer isn’t as well researched as other cancers and it should be so that more women will be able to live.
No doctors care there is so much medical gaslighting around women's pain and health complications it takes many years to get diagnosis
Dawn, yours is the best info on endometrial cancer.
I refer to this often.
I have st3c clear cell endometrial cancer. I had a hysterectomy nov. 2023. Started chemo in Jan. 2024, had my last chemo 2 weeks ago (6 sessions every 3 weeks) had my first radiation yesterday...2 more to go (once a week) then keytruda infusion(every 3 or 6 weeks) immunotherapy for at least 2 yrs.
So far the worst side effect is fatigue.
I really want to thank you Dawn for sharing your journey. You will never know how helpful you have been to me during this process.
I live in New Jersey, grew up in Philly.
I am being treated at Penn, Virtua and they are wonderful.
If I can help anyone like you have Dawn, i am here.
There is so much on breast cancer but not on endometrial cancer.
Bless all of us.❤
Hi Barbara! Thank you so much! 🥰. There is so little information available and most people think of only endometrial carcinoma without realizing there are more rare and aggressive types that need serious treatment. I’m so happy you haven’t experienced any severe side effects. I didn’t either. I don’t have any experience with Keytruda but I hope that goes well for you. It sounds like you are making great progress and I pray that you continue to heal and will be cancer free from here on!
PS I’ve heard great things about Virtua. Tell your treatment team that you would like to share your story. They might be willing to have you connect to other patients or talk about your experiences in their newsletter.
Thank you for sharing your journey. I have been looking for something to ease my anxiety. Diagnosed two days ago with endometrial cancer, yet to find out what stage/type. I’m trying to at least educate myself on the upcoming battle. Your video has been the most informative and encouraging so far. Thank you again for sharing. I pray for your continued recovery. I’m 54, and to those who are somewhere in this journey that may be reading this, I pray for comfort, peace and strength for us all. Stay strong and positive......We got this girls!
Thank you and best of luck. You’ll get through it! Just take one step at a time. Get as many facts as you can and continue living your life, that’s the best advice I can give!
@@dawnlovescouture2644 thank you for the encouragement. One day at a time is the perfect speed for me at the moment. The lord gives his toughest soldiers some of the hardest battles..... I’m suiting up and getting ready as best I can. 💜🦋
@@dawnlovescouture2644 How are you, Dawn? please, let me know.
From Ontario Canada....... I’m so glad I listened to your cancer journey. I have been diagnosed (September 2022) with stage 4 uterine/omentum/ lymph nodes cancer 😱! My 1st chemo was Oct. 13/22 & will go for chemo every 21 days (3 sessions, then CT Scan w/ another 3 sessions & CT Scan to determine further action). Your journey, is what resounded with me so much. I hope I’m able to bear with all that is coming ahead of me & not lose faith. You showed me how strong you were & are & I thank you profusely. 🙏
Hi Deb! I hope you have great results with your scan and find good treatment. It’s so scary to get any kind of cancer diagnosis. How did your first chemo go? I really think if you go into treatment with less fear about the treatment, it’s much easier to get through. Not everyone gets sick or has awful side effects. Taxol causes hair loss but believe me, there are worse things that can happen in life than losing hair. Just take it one day at a time and one session at a time. I hope you have good support. I’m glad that sharing my story helped in some way.
Thanks for your response ❤️. I’ve now had my 2nd chemo which was less excruciating than the first. My 3rd chemo is Nov. 24 w/ a follow up CT Scan to see if cancer is shrinking 🙏. I pray it is. Hope you are okay, although I think I saw your later video which was good news. I’ m 🙏 for you w/ all my heart.
@@debbrink6523 I hope it is good news for you! I am praying that it is! I’m sorry you had a hard time with the first chemo but glad that it’s gotten better. My last scan was clear, I don’t have to go back until next year but I will still be seen in six months for a checkup. It’s still scary but I’m hoping to keep doing well.
👍🏻❤️
@@debbrink6523 Omg Deb. I need to talk to you. I’m in MA have endometrial serous carcinoma.
They pushed me off for months because of normal CA125 =10, normal CT and no myometrial invasion. Put off 3 month and then they said can’t do surgery you have diverticulitis
After 6 months had surgery Nov 10th and oops you have cancer spots all over your extra pelvic area. WHAT
Now what. Chemo starts Dec. 6th.
I just came across your story and I hope you are still doing well. I was diagnosed with Ovarian Cancer in 2014. I had the same surgery you described. While doing the pathology they discovered a small endometrial tumor as well. I was extremely fortunate that my Ovarian cancer was caught at stage 1a. And my endometrial was 2a and had not perforated the wall of my uterus. I had 6 cycles of Taxol and Carboplatin. Followed by 3 treatments of high density radiation. This next year I will be 10 years post treatment with no evidence of disease. I also tolerated treatment quite well. Extreme fatigue and weakness were my worst side effect towards the very end. I, like you, did not look sick. I am so glad to hear your story. I pray your health continues. It’s always comforting to know we are not alone in our battles. God bless you!
Susan, I’m so happy for you! 💕. That’s excellent news for you and such a relief! That’s incredible luck to have been diagnosed so early with ovarian cancer. You have given me great hope that I will get a clear scan this time. I’ve been NED so far, but you know there’s always that fear that something will come up. Thanks so much for sharing your story!
Just like you, Dawn, I had no clue I had uterine endometrial cancer. I have had some fatigue I've lived with for almost 2 decades from fibromyalgia and later from stage 3 Chronic Kidney Disease. No bloating or pain, appetite robust. Only the bleeding as a clue, and at 66, no doubt was very abnormal. In early Dec 2022, I had blood test and everything looked great, better than last few tests. A month later, I woke up bleeding from the vagina.
Doing well with surgery except for a sluggish bowel and some problems pooping, not like any kind of constipation I've ever had.
I think losing all my hair, if that happens, might freak me out at first. I appreciate your frank narrative abt your journey and recovery. I hope I'll be as brave as you are.
Hi Beverly, I’m so sorry you have to go through this. Just think positive! The hair loss to me was not a big deal, I really focused on the end result. The fear of recurrence never goes away, but as time goes on, you learn to stay calm. I hope that helps!
Did you have any period like symptoms during bleeding like tenderness in your breasts or slight cramping in abdomen?
@@srijoni1237 No period like symptoms, none of the symptoms that others say alerted them that something was amiss. I felt great, had excellent blood tests, CKD went from stage 3 to stage 2. The bleeding was a shock.
Update. I'm done with chemo. Thank goodness! Now continue with 1 1/2 years of Keytruda every 3 weeks. I feel better but have some days I need more rest. Life is so precious! As long as I'm not in pain, have a pulse and still breathing, it's a great day.
Hi Beverly, how are you doing now?
Thankyou for sharing Dawn! Friends are such a blessing to have especially during those times. So glad for you that it was caught in an early stage...CANCER SUCKS! I am also a cancer survivor, I was an oncology nurse and also worked in infusion...my heart goes out to all the cancer patients. Glad you are doing well and I wish you all the best and good health! 🙏🏻❤
Thank you so much! ❤️. I have a scan tomorrow, and as usual I am holding my breath. You just never know. I was very lucky indeed, but it still weighs on me that I had a high grade cancer, so I just pray that it doesn’t come back. I really am so thankful for the oncology nurses at every level, they really help to keep patients calm and are so supportive. It’s such a hard job since you see so much pain and suffering. One of my nurses reminded me that they also see success stories, or they couldn’t work in that field. I hope I’m one of them.
@@dawnlovescouture2644 Praying your scan comes back clean! Yes, I was diagnosed the week I started working in Oncology, I was a research nurse so we saw mainly patients with 3-6 months to live...after 7 years I had to quit because I was always stressed thinking it will come back. Then my new jobs position was eliminated and I was sent to Oncology Infusion. I did that for several years. My daughter, Steffie, has MS and since we have been dealing with her illness for 20 years I decided to go into Neurology, I was lucky to get a position as an MS/ALS nurse. Stay positive and most of all eat healthy...have you read the China study? If not I highly recommend. We became strict vegetarians after my diagnosis. Positive thoughts and blessing tomorrow for your scans coming your way!
@@michellesteffie9462 Thank you! MS is terrible to live with but it’s wonderful that new treatments are always being discovered. What kind of cancer did you have, if I may ask?
@@dawnlovescouture2644 Thyroid cancer...I had a total thyroidectomy and Radioactive iodine therapy.That was 2008...I still have panic attacks and wake up in the middle of the night several time a month with a panic attack. I also had another cancer in my 20s that was caught early. Everyday is a blessing...time to enjoy all the "luxe" items I have collected as I have a little hoarder in me 🤣
@@michellesteffie9462 You are absolutely right! I’m so glad you beat it! 💕. Early detection is very, very important!
Thank you for sharing your story. I’m 59, about 3 years ago, I had some spotting, I went to my gynecologist, she had me doing all kind of test, I suffered from fibromyalgia, so I’m always in pain, I have 4 fibroids, I had them since I was a teenager. Getting back to my gynecologist… she wanted to do a hysterectomy.. soon as I told her… I wanted a second opinion, she got upset with me! She later told me to find another dr.! I received my test results, and I really didn’t need a hysterectomy, it was my fibroids!! What a huge relief!
That’s great! I’m sure you were relieved. I know I would have been! Never be quiet if you have a concern, it’s your right to get a second opinion. I hope you’re feeling better.
I watched your video several months ago when I was going through testing for endometrial cancer..well it is 4 months later and I have been dx with st. 3c clear cell endometrial cancer and had a hysterectomy 4 weeks ago, had a port put in and will be receiving chemo and radiation. I am 82 and anxious about all this. I look forward to keeping in touch with you and getting support from others.
Hi Barbara. 🥰. I wish you success in treatment and hope that you are able to stay strong. I know how scary it is. Just take one day at a time! Please stay in touch. Happy holidays and Merry Christmas!
Thank you so much for sharing your story! Very much appreciated!!! Happy to know you are cancer free and that you're currently healing well from everything you've been through. I'm just now going through all of that myself and I'm still in child bearing age so I'm frightened that I will not be able to have my own children, as my hubby and I, just found out in September of 2022 that this was my fated story for 2023. I did the DNC and it did not work so now they are saying hysterectomy and we'll see. It is scary and nerve wracking! I agree that people think you would be looking sick or feeling sick but sometimes, very few minor symptoms that can easily get misdiagnosed as something else. In fact, they kept telling me spotting was due to stress in 2020-2021 and ultrasounds didn't show anything at all, and I had at least 4 of them throughout the year in 2021. Paps came back clear as well. Moral is that if you feel something is going on, you know yourself best and you can keep searching for a Dr who will take you seriously. Don't wait because that is also detrimental to your health/outcome!
I hope you are ok and that if you need surgery that it goes well. A Pap smear can’t diagnose uterine cancer. I think it would only show if it spread to the uterus. Anytime something is abnormal it should be checked sooner than later. Best of luck to you!
If you have to have a hysterectomy see if you have any eggs you can retrieve and have frozen may be an idea for you to try to do??? And if you may still be able to carry your own still if you may be have only a partial?? Or if you can have a surrogate carry your and your husband's babies??? Just an idea for you & yours
Thank you so much for sharing your story, Dawn! I found myself nodding in agreement at literally everything you said. What shocked me was how the doctor you first saw treated you! And also that you weren't entitled reimbursement for a wig or home help. You are strong and courageous and I'm really glad I got to hear your story, because it's very similar to mine. I'm keeping my fingers crossed that you may keep doing well at your follow-up appointments and that you remain healthy. Love from Belgium 💕
It’s incredible how some doctors don’t put patients first. It makes me worry that some who are compliant by nature will accept what they hear because the message comes from a person with Dr in front of their name. Yes, we do have similar stories. Stay strong! Hoping that you have good news from here forward.
Hi Dawn, thank you for sharing your story. I am post-menopausal - haven't had a period for about 2 years, then suddenly, in August of 2021, I started having a period again! I was shocked but things were so busy at work, I didn't think a lot about it. In September, the bleeding started again, but it was much heavier. I was going through pads every 3 hours or so. The following months, it got worse - the bleeding increased, I was then going through pads every 2 hours, or even less. And because the bleeding was so heavy, I couldn't get any sleep. I was bleeding through my pajamas and everything. There were also huge clots, larger than the size of a quarter or fifty-cent coin. We won't even talk about the cramps. I finally was able to see a gynecologist a week ago. She did a pelvic exam, scheduled me for a transvaginal ultrasound and an endometrial biopsy - and you're right, the biopsy was horrible. The ultrasound showed that I have lots of fibroids - which I'm not too concerned about. What has happened is that the doctor's office called a few days after I had the tests done, to reschedule my follow-up appointment. She wants to see me sooner than the originally scheduled date of 2/25. My new follow-up date is 2/11. I will say, I'm terrified. I've been told that if a doctor wants to see you sooner than later after tests, it's usually not good. I'm still having bad cramping and bleeding and my mind is going everywhere. I've kinda resigned myself to the fact that I more than likely have cancer. My question is, how did you get through the entire process? I don't really have a support system so that scares me also. I'm so sorry for such a long post but am very happy that you're doing so well.
Thank you, I hope to keep doing well. I wish you the best for your appointment. Please let me know how it turns out if you can. I wish there were a secret that I should share as far as going through diagnosis and treatment, but there isn’t. Everyone reacts differently. For me, I have always been pretty resilient. I don’t have any family, and my friends are supportive but they have their own lives, so I knew I would need to depend on myself to do my normal routine. I think it helped that I went about life as normally as I could. I never had any problems after surgery and didn’t have problems with chemo. Yes, I had fear and anxiety, but I didn’t let it overwhelm me. I focused on things I enjoyed like movies, coloring, shopping. I will advise you to stay away from Google, and beware of support groups, where you will likely hear the worst stories. Everyone’s experience is different. I hope this helps. Believe me, I know it’s scary, but you will get through this!
You probably do not have cancer, it’s most likely the fibroids causing your bleeding. Request a hysterectomy.
@@anglophils645 How would you know what she has? Did you examine this woman? Please do not diagnose anyone!
@@dawnlovescouture2644 Thank you! I did end up having a hysteroscopy and a D&C done exactly one week ago. Currently waiting for the results. The thing is the doctor did mention that I will have some spotting for a couple of days afterward, and I will say, the bleeding has lessened; however, the intense cramping, spotting/and bleeding, even though lessened, are crazy. I'm just frustrated and tired.
@@chocolate82467 I’m glad it’s been better. So, the results will determine if you need a hysterectomy? I hope that all goes well if you do. It’s not like it was years ago, the recovery time is shorter in most cases.
Thanks for the information. I go to the Cancer Center in Ga.this week to start my journey with uterine cancer.I have 2 friends that will be there the same day having various treatments. Isn't that something! I feel like I'm going skydiving. I don't want to go and have no desire to jump out of a plane.But I will put my helmet and parachute on.Having faith in Christ I know I don't have beg or ask a thousand times he will be with me as I jump out of the plane.Now knowing that the parachute may not work.He will be skydiving with me.Thanks again for all your information. God Bless
Best of luck to you, Julie, and to your friends. It’s scary in the beginning, I know. I pray for you to have a good outcome.
Thank you so much for your honest, straightforward explanation of your treatment and recovery. I am having a transvaginal scan soon and due to my age (66) I’m expecting it may be endometrial cancer. I appreciate your advice so much and I’m absolutely certain you have helped many women with this vlog. Wishing you the best of health in your future and God willing you have seen the end of cancer for the rest of your precious life. Thank you. Hugs from the UK. xx
Freda, thank you so much! I hope I have seen the end of cancer, too. And, I hope that despite everything, your scan is clear and it’s not cancer.
I don't have cancer but I had some weird things happening with my period. I am learning about different people's experience and educating myself so I just want to thank you for sharing ❤
Please get checked if something is wrong. Don’t wait!
Thank you! Just diagnosed with endometrial carcinosarcoma and see my oncologist this morning. Have had breast cancer twice and now this.
I wish you the best of luck and hope your appointment is productive. Do you know what stage? I’m so sorry you have to go through this. Sending you positive energy.
@@dawnlovescouture2644 I had a CT scan. It showed no metastatic disease. Surgery is scheduled for December 6th. It is a Grade 3 cancer. Believe for Stage 1 but won't know until pathology from surgery is done
@@kristinasifers8821 I had the same type of cancer. Carcinosarcoma is grade 3. If it hasn’t spread, that’s great news! I was stage 1b after surgery. I was actually just at b because I had 53% myometrial invasion. The cutoff for 1a is 50%. Sending you positive energy that you are treated successfully!
@@dawnlovescouture2644 thank you for the information. It is so helpful to my mind.
Made it through surgery yesterday. Home recovering. Any advice?
Thank you so much. Found out Friday. See oncologist Monday. I am 75 years old. Please pray for me. God bless you.
Good luck and prayers to you! ❤️
🙏
How are you doing
@@MrFunkadeIic I am down to 3 more chemotherapy treatments. My loving and supportive husband of 53 years passed suddenly in June. I continue to lean and depend on God. I know He is in control of everything, and He loves us. Please continue to pray for me and my family.✝️❤️❤️
@@birdervaughn5435 Prayers for you!
OMG! Dawn I went through the same exact thing with the OB-GYN I used to go to this is crazy. I was diagnosed with Uterine cancer stage 4. I have appointment 9/12/24 with Oncologist to see what my treatments will be. My journey was so stressful too. The waiting process. Thank you for sharing your story. Pray your doing well.
@@user-zs3gh2xl3q Are you in Philly??? That’s awful! It was the worst experience I have had with a doctor.
Thanks for telling your story. This will educate other women and to look at everything about these type of cancers. It just shows we all should choose to be proactive!
You are absolutely right, you have to be proactive. I hope anyone who is concerned gets to the doctor right away.
I was just browsing and saw this, so I wanted to hear your story. You are one strong woman. Your parents must have been very proud of you. So sorry you had to go through that alone.
Thanks, Cami. 🥰. I got through it. I just hope I won’t have to again.
@@dawnlovescouture2644 Just have to think positive. I know that's easy for me to say, I didn't have to go through that. The best way to keep your mind off of that is RETAIL THERAPY! Keep buying those bags:)
@@camiscloset2369 Haha!!! It’s a good distraction! 😁
Thank you Dawn for your honesty and your in-depth sharing.💟
You’re welcome! 🥰. Thanks for watching, I hope it was helpful.
I just had my complete hysterectomy on the 13 of November 2023 turned out I had cancer in my uterus that spread to my right ovary ( endometroid adenocarciomia) and a second rare cancer on my left ovary (Sertoli-Leydig cell tumor)! Also there was Endometroid Andenocarciomia cells in the pelvis washing ! I will find out what my treatment plan will be this coming week on the 29!
Best of luck to you! Adenocarcinoma is the most common type and historically the easiest to treat. I never heard of the other type you mentioned. Try to stay calm and take one day at a time! ❤️. I’m waiting for the results of my latest scan. It’s always stressful to think of the unknowns.
Dawn, thank you so much for sharing your experiences concerning such a personal issue. Very glad you are doing so well. The information in your video was very helpful.
Thank you, I hope it helps someone. I hope I continue to do well!
@@dawnlovescouture2644 You are helping so many people by sharing your story. Thank you!!🙏🏾💚
@@iamnotmyhandle Thank you, I hope so! 💕
I’ve just had a scan that’s come back abnormal and seen a consultant who wants to do a biopsy as I have issues with people touching my body currently due to domestic abuse I’m having that under general. I’ve a 2mm follicle they don’t know what it is. I declined the hysteroscopy unless under general. So that’s booked for the 21st Feb I lost my mother in December at her funeral in January what a year 2024 has been so far.
Oh my! I really feel for you! It will be much better under anesthesia. I hope all goes well and you don’t have cancer. Best wishes and hang in there!
Dawn, thank you for sharing your story! Hope you are healthy and doing well❣️I currently have some symptoms and going through the diagnostic tests. Keep your head high and be well!
Thanks so much! 🥰. Best of luck to you, I hope that your tests are ok. Be strong and have hope! I have a follow up video if you want to watch.
She is absolutely right about doctors who make mistakes. The problem is you can wait months to get an appointment for a second opinion.There are few cancellations and schedulers don’t take you seriously unless you’re bleeding. You can have a clear discharge with uterine cancer. Some Pap smear results do suggest cancer, such as abnormal glandular cells. Re help with lifting, etc., if you can pay, TaskRabbit has good people reasonably priced.
Yes, it can take a very ling time to be seen. I was very lucky to get an appointment quickly. You have to advocate for yourself. I know that Task Rabbit is a good service, but after surgery you can’t do much. You really need someone with you for at least a week after abdominal surgery. I can do whatever I want now that I am healed!
I’m waiting for the results of my biopsy. I’m a little nervous. I just had major surgery for carcinoid cancer. I can’t believe I might have another kind of cancer. This is unreal😢
I’m so sorry, Susan. Praying it’s negative or at least very early stage. I know it’s scary.
This really helps. I just discovered mine 5 days ago. Waiting for my OBGYN consult.
Best of luck to you! Sending positive vibes! Have you had a biopsy and do you know which type of endometrial cancer you have?
I am 36 years and I am just diagnosed with stage 2 and am going through a lot of emotions and I still can’t find a doctor to go the procedure
You posted this comment twice. Best wishes for you to get treatment.
Bless your heart Dawn! I just watched this video and brought tears to my eyes and a smile your doing so well now. I just had the biopsy and ultrasound. No cancer thank God but a full hysterectomy to come.
Hi Milissa, I’m here for you if you need to talk after the hysterectomy. It’s not like it was years ago but it’s still major surgery. I’m happy for you that there’s no cancer. The biopsy is horrible! I’m getting my next scan in April. I always hold my breath that it’s ok. My last exam in January was fine and I “graduated” from having to see the radiation oncologist to a survivor’s clinic. I will say that the whole experience changes your perspective on a lot of things. When is your surgery?
I had a complete hysterectomy, with ovaries and fallopian tube’s removed! Because I had a 22cm mass on my ovary! It was discovered by happenstance, I was in a terrible accident were we rolled four times! In the Er they did every kind of imaging study that they could possibly do! I had compression fracture of the back, bruised ribs, bruised hips, bruised heel, cut up and bruised knee and they found a 14cmx10cmx12 cm mass on my right ovary. Along with all the seatbelt bruising
Oh wow!!! That’s horrible!!! It’s good the mass was caught!
Thank you so much for this video. You are helping a lot of people. I wish you the best. 🌹🌹🤗🤗🌹🌹
Thank you so much! ❤️
Thanks Dawn. I have the type II serous carcinoma from a polyp at 63 found 6 weeks ago w little spotting went right away. Surgery in 3 weeks MA.
Best of luck to you!!! I hope your surgery goes well. I’m glad you went right to the doctor and will be treated quickly. 💕
First of all, I want to thank you for sharing your story and your advice. You are a true survivor Dawn. You are such a strong person. And lastly, I want to thank you for reminding us that life is the greatest luxury we have.
Thank you for that. I learned when I was very young that I had to be a survivor. It’s very true, there’s no better luxury than being alive.
Hi Dawn, just found your site again, you sent me a message, and I just wanted to let you know I am now cancer free, with a recurrence risk of 4%. I truly hope you are as well as I am. Really worth making dietary changes, fasting, removing toxins and improving my lifestyle. I plan to continue with positive changes, My goal is to ride my electric bike 50 miles in one go, next year. In the mean time, I have a good quality stationary bike to use in bad weather. So, hopefully, the cancer journey is behind me now.
That’s great news! 🥰. Have a very happy holiday season! What type of cancer did you have?
@@dawnlovescouture2644 Endomertrial Stage 1B
@@sjordan7085 But what type of Endometrial cancer did you have? There are different types. I was also stage 1B but I had Endometrial Carcinosarcoma, which is very rare and aggressive. Over years later and I am doing fine! I have a follow up video if you’re interested.
I've heard so many horrific stories about these biopsies for endometrial cancer. Do they even give you an option to be sedated even some laughing gas or something ? The radiation i cant even imagine what that process is because it's down there, do they knock you out for that? I had radiation for bc and remember how tender my skin was on my breast it must be pretty darn painful if its done through your vagina. Im going to have a pelvic scan soon been having spotting and i'm 60. Praying it''s maybe from a bacterial infection i had , group b strep which caused horrible irritation and yeast infection. Anyway thank you for listening nd i will speak up for myself if i have to.🙏❤
No option for any kind of sedation! The internal radiation is done while you are completely conscious. It doesn’t hurt, but having the tube inserted and remaining there is uncomfortable. But, the radiation is pretty quick. It didn’t hurt at all at any time. I hope your scan is ok, but better safe than sorry! Always a good idea to have it checked!
For an endometrial biopsy, I was given an option for a paracervical block both times. They are numbing shots around your cervix. Will help decrease the pain for about 6 hrs or so but does wear off & your cramping can increase then. But it made the biopsy a little more bearable.
Hi. I’m only 32 yrs old and my physician is indicating I may have Endometrial Cancer. I need to get a biopsy and I am so afraid of it. am super panicked and petrified. I have questions. Do you ever accept emails? I have questions and haven’t been able to find anyone with the same thing I am going through but glad I found your video. Your video is also quite informative. You’re so brave to have gone through this too 🙏🏼
Yes, I would be happy to answer any of your questions if I can! There are many types of endometrial cancer. Not knowing what’s happening is scary. You can email me at Straling333@gmail.com.
Thank you for sharing your journey with this cancer.
I hope it helps.
Dawn, I just came across this video. That first doctor you went to was terrible. She should be reported.
Thank goodness your ok now. Almost the same time you were going through this I also was in some medical trouble. September 2020 I was going for pre op for a knee replacement. Something showed up on my chest X-ray. Long story short November 2020 I had open heart surgery. I had a valve replacement and also had a aortic aneurysm, they put a sleeve on that. Ten days later I came home. And I had no symptoms, just knee pain. So I’m lucky they found this or I may not be here now. Knees are not done and you know what I mean when I say I’m not ready mentally for another surgery.
Sorry I went on about me, I’m just happy your clear now.
Oh and Tiger went in behind the cushions, a nice little cozy spot.
OMG! Thank goodness the aneurysm was found!!! That really saved your life! I need surgery on my ankle but it’s been put off so many times it’s not even on my radar. I really can’t blame you for not wanting another surgery.
I hope you're feeling better 🙏❤️🙏❤️...
Yes, tomorrow it’s four years since my surgery and 3 1/2 years post treatment, and I am well!
You are amazing and so strong 🌟
Thank you, that’s kind of you to say. Sometimes we don’t know how strong we are until something happens and we are forced to deal with it.
Thank you so much for sharing of your own, deeply personal and difficult experience. Everything you shared came from a place of great humility, kindness and intelligence - so thank you for all of it. How are you now? Best. M
Thank you! I am doing very well, no evidence of cancer, and I’m up to yearly scans. Just living my best life and having fun with my UA-cam channel. ❤️
@@dawnlovescouture2644 you're so welc9me and I am so very pleased to hear that you are well and moving right on along!!👍👍 I would very much like to ask your advice, but I will for obvious reasons, not sure of anything on a public platform. Oh my god, I've seen just how vile and vicious and wicked people can be over the last few days just posting about other nonsense so, I am not in the least inspired to talk about anything remotely personal so that anybody can see it. How can I reach you? Where can I send you a longer message with some questions Etc? I've never done this LOL. Thanks
@@mariannes.6023 My email address is in the description box, feel free to write!
I just had a consultation yesterday. They plan to do a D&C. Another women said this is bad, due to the fact that it made her CA metastasize. I worked in a radiology office years ago. The mamo tech said never let a Dr. use the same needle with both breast in a needle localization. It would technically be spreading the CA from one breast to the next. Would love to know if anyone else has researched D&C?
A D&C removed the uterine lining. It has no effect on whether it will influence cancer growth in the future. Any cancer that would be present afterward would have already started prior to the procedure. A D&C is sometimes used diagnostically to learn more about the cancer and to decide next steps. I’m not sure what a breast needle biopsy has to do with a D&C. It would be bad practice to use the same needle for any two areas because it could introduce germs, but you don’t “catch” cancer from a used needle.
I had so Long 4th stage so bad body produces too much propyl alcohol so u cant tolerate anything with alcohol which os most things bled for most part 15 yrs neice prayed blood stopped Jesús has been by me helpn me thru suffering awful endeo down spine that already had scolios n degenerativa disc diseases n arthiritus etc so i relate Lady n bible Jesús healed that bled 12 yrs
I’ve had a cervical biopsy it hurt so bad. I guess uterus hurts way worse...😰 i hope you are ok. I have had ultrasound too and doc said no worries but my periods are still heavy and clotting and I still worry. I can’t eat certain foods and throw up if I do. It’s very weird. I’ve also got weird black spots and one was precancerous (had a biopsy). So yea my body is acting odd. I feel it is a cancer but don’t know where- my body is just so odd it could be anywhere...I feel so crazy and want to just get a uterus removal just bc. Ever felt that crazy lol? As scary as cancer is I wish I knew what and where...and if it is there.
I have no insurance now so I can’t even go to a doc yet. Hopefully Medicaid will accept me. Jobless due to my scoliosis now. 32 yrs old. Thanks for pap smear knowledge I needed to know that. I thought it related to uterus too.
Oh my, I seriously pray that you don’t have cancer! We’re you checked for fibroids? They can cause heavy periods but aren’t a concern unless they get too big. I hope you find out what’s causing your problems and get good treatment.
@@dawnlovescouture2644 Thank you. I just finished my Medicaid application so am with high hopes it goes well for me. I will ask my doc about fibroids when I can!
ua-cam.com/video/_k3B0y0tjCg/v-deo.htmlsi=6Plj79COfgF_HZWA
2024, super helpful. Thank you for sharing your story.
Thanks for watching! 🥰
Thank you Dawn! You sure seem strong. Any issues from the hysterectomy, and all?
I’m not as lucky as you-- with adeno... but no doctor prescribing my 15 years of Low dose HRT ever ordered pelvic ultrasound....so it was too advanced for surgery by time they found.
Lots of unhappy doctors out there, I found. Maybe Covid? Or large hospital take overs... hard to know. Are you a nurse? You should be!
Thank you! I try to be strong, but it’s not easy. I am so sorry, I know that some doctors are idiots. I don’t know what their problem is. I worry about the cancer returning. It’s so rare and the prognosis is generally poor, but it’s typically found very late. Are you getting any treatment? I will keep you in my prayers.
I haven’t had any issues with my hysterectomy. My doctor tried to do it laparoscopically but my uterus was too large, but she was able to make a bikini incision, so I healed quickly compared to an abdominal cut. Luckily I didn’t have any infection and after the first week I didn’t have too much pain. I just felt uncomfortable.
Ladies, please ask for pain relief for hysteroscopy! I have a low pain threshold and they used local anaesthetic and gas & air (Entonox) and it was fine....
That was great! I’m glad you were offered something. I wasn’t told there was an option.
Thank you for your story 🙏❤️🙏❤️...
Thanks for watching!
Im 61 i have endometrial adeno carcinoma grade 1. Thanks to my heart dr my gyno oncologist doesnt want to do my hysterectomy now cause shes afraid ill die on the table so what she preposes is for me to get an IUD the progesterone supposed to kill the cancer really?????
I’m sorry to hear that you have cancer. Adenocarcinoma is a grade 1 cancer, which is not aggressive. I’m assuming you are stage 1. That can sometimes be cured by scraping your uterus. It can also be managed with hormones for some. Many young women with this cancer do not need a hysterectomy and can go on to have children. I would get a second opinion before making a decision.
Glad you have overcome
Thank you for sharing, God bless 🌹
Thank you!
Just finished my 6th chemo. Now onto radiation and immunotherapy.
Not easy but manageable.
Hi Barbara! 🥰. Congratulations on finishing chemo! 🎉. That’s a big step! Radiation is painless but a bit uncomfortable. I didn’t have immunotherapy and I would love to know your experience with it. Best of luck to you, I hope you do well! ❤️
Newly diagnosed with carcinosarcoma, scared to death
I’m so sorry to hear that. Do you know what stage? I was terrified and I understand how you must be feeling. But have hope! 💕💕💕
@@dawnlovescouture2644 waiting to have my 1st oncology visit on 7/15, but by the looks of my vaginal ultrasound it’s in my ovaries, and I also had cells bleeding into my cervix, so I’m thinking best case would be 111C3. Ugh. Thank you so much for posting this video. I’m glad that you’re doing well 😊
@@dawnlovescouture2644 I haven’t had a PET scan or any additional tests yet, but my ovaries are full of cysts, and they detected cancer cells from my uterus, in my cervix, so my best case scenario is probably lllC
Once I know my full staging I’ll be looking for any clinical trials I can find. It’s so weird I can feel completely fine 1 day, and the next have intense cramping. I wish I had pushed for answers sooner.
Thank you for sharing your story. I live in SC but I’m originally from the Delaware Valley. My grandmother had her cancer treatment at Fox Chase, they were awesome. Is it crazy that I’m just hoping that if it’s lVB that I can to live long enough hopefully see the Phillies win the WS this year, and the Eagles win the SB.
Thanks again 🫶🏻
Thank yo for sharing,
Thanks for watching!
G-d bless you! 🙏👍
Thank you! ❤️
Hi mam.... My Girlfriend got diagnosed with stage 1endo cancer.... I'm just clueless that I'm so far from her I don't know what she going through...doctor said to remove uterus we didn't got child it's so painful
Maybe she should get a second opinion. In some cases surgery isn’t necessary, but depending on the type of cancer it can be the only option.
Hey there wanted to get your thoughts about my moms situation she got diagnosed on 5/20/21 with stage 1 endometrial cancer and they decided that to do a total hysterectomy was the solution on 9/13/21 she got the surgery done they did do a wash and never said if bad cells came back up to where she would need more treatment to them she was cured her bleeding stoped for a couple months till about around 6/15/22 started experiencing a light bleeding and burning sensation when she peed I took her back to the oncology doctors they came to a conclusion that on how it looked she needed estrogen therapy they proscribed her estrogen therapy on 8/1/22 witch made things worse on the bleeding symptom took her back 12/2/22 things didn’t go so well they were saying she had an un normal tissue forming at the vagina cuff they performed a biopsy and requested to do an MRI .
Biopsy results came back and came back as positive for recurrence of EC . Now she is being referred to a radiation specialist and we are waiting for are first consult on 2/3/23 . I don’t know what went wrong if the estrogen had any effects to where it made things worse I need help on thoughts I’m helping my mother find her way out of this situation I’m an only child male and all this is killing me I don’t know what could of possibly went wrong. All these next treatments are gonna be out of pocket because mom doesn’t have any insurance or can’t get any so that’s another situation that makes things even worse I hope we can cover the cost of radiation therapy and I hope it works
Hi, I’m sorry to hear about your mom. Recurrence is something everyone is afraid of, but probably your mom had early stage and a low risk cancer and didn’t need more treatment at the time. I’m not a doctor, so I can’t give you any medical information or advice. You should talk to a social worker at the hospital to see what kind of financial assistance your mom might be eligible for. Best of luck to you!
Appreciate your reply . Yes it’s been tough to hear this new things that came up . Did you by any chance get put on estrogen therapy after your total hysterectomy as well ?
@@karlitoskingtv8084 No, I wasn’t given any hormones. It was never discussed.
Info I read online “In postmenopausal women, administration of estrogens prevents osteoporosis and fractures “ would you know if your body would still require estrogen . They proscribed it to my mother cuz she was having light bleeding and dryness to their look but made things worse . It would be a good question to ask . One oncology doctor said that your body would normally get use to postmenopausal and produce it in other ways . Cuz I asked if her body still needed the estrogen cuz that’s why they proscribed it right but they wanted her to stop it so that’s how my question came up .
@@karlitoskingtv8084 I really don’t know. I have osteoporosis unrelated to cancer. I’ve never had my estrogen checked as far as I know.
God bless u with MANY years of health...i thank u for sharing, hopefully i will have the guts 1 day to make a video sharing my story to warn and encourage others regarding prebreast ca and now bordering on endometrial adenocarcinoma. Unlike yourself my trust has been shaken completely with my gyn and oncologist...at the time i need to trust the most i feel betrayed and not heard.
I went from having a low pre-breast CA which i had removed, radiation then took lowest dose of tamoxifen for 3 years (some pt now have option of monitoring instead of treatment i took) to my gyn and Gyn oncologist reccomending hysterectomy for complex endometrial hyperplasia w atypia bordering on endometrial adenocarcinoma.
Im 54 and as u can imagine if i now believe that i was over treated for the pre-breast cancer which there is plenty of evidence that taking tamoxifen has a direct high risk for uterine CA to now im"...bordering on endometrial adenocarcinoma" i want to be sure that indeed a hysterectomy is the right treatment for me and this dx at this point in time. I asked gyn can i get another d&c and hysteroscopy to make sure and the resistance i got and how quickly i was talked down to was shocking and while this doctor has been short before i always try to be respectful without me being a push over. My husband and i kept asking her, really there are no additional tests that can be done to get a more accurate dx and her answer was no! She said the standard of care is the hysterectomy then they can confirm if there was or wasn't cancer, she also said that 50% of the time there is CA and the other 50% none is found. I share this part of my story because i want to reiterate what u said about not enough funding for uterine ca and its awareness.
If youre a person that prays please think of me because im heartbroken/devastated and daily i ask God to give me strength and to put good ppl in my path. I asked my oncologist if i could get a ct scan to perhaps better help them figure out what is happening with me and he said an MRI was better which im scheduled for at the end of the month. Lastly today i saw a gyn oncologist which i was hoping could help me better understand my dx and he was worse than my regular gyn, i asked if my diagnosis was aggressive and he almost seemed bothered by my questions and i didn't feel he answered anything directly...he simply said oh its a continuum. Im getting 2nd opinion.
From pt to pt im hoping u can share any additional insights to testing or anything else u might think is helpful to ask physicians?
I understand how hard it is and frustrating to feel unheard. Go and get a second opinion. You should be able to get a uterine biopsy right in the office. I do know that if you have other issues with your uterus if you are past menopause and not going to have children, most doctors will recommend a hysterectomy to be safe. Especially since adenocarcinoma is the least aggressive uterine cancer and usually cured with surgery alone. But your doctor should be able to tell you why this is the only option. I didn’t have a choice, I had the biopsy and knew it was endometrial carcinosarcoma, which is a very high grade, rare, and aggressive cancer. The only thing that wasn’t certain was what stage it was and I had chemo because I had cancer cells in my abdomen even though it was stage 1. Adenocarcinoma can sometimes be treated without surgery in younger women who want to have children, but in older women often it’s recommended to have a hysterectomy to be safe.
Ca-125 blood test
🙏✝️🙏❤️
Thank you for your story. My journey is almost exactly like yours. I'm 3 years out. The difference is I had no bleeding. I had menstrual like cramping for a few weeks. I was 10 years post menopausal. Made an appointment with my gynecologist. Luckily he was very aggressive. Ultrasound then attempted biopsy but no way could he even insert the speculum. 1 week later hysteroscopy. 1 week later, grade 3 serous carcinosarcoma. He called the onc surgeon before he called me. Robotic hysterectomy a bit more than a week after. Back to work in 3 weeks. During covid! I'm a nurse in community mental health. Worked through chemo and 25 external radiation. Like you not a whole lot of support but I definitely survived. Chemo was no picnic but certainly doable. The mental side of all of this has been the hardest. My faith got me through. All I can say is yeah us survivors!
Wow!!! What stage were you? Did you have carcinosarsoma or serous cell carcinoma? I’m so happy that your treatment went well. I was working from home so I was able to work after my abdominal surgery (I had the old fashioned kind, the doctor couldn’t do a laparoscope). I don’t know how you handled such a stressful job while in treatment. I was fine because I was home, I think working outside of home would be very difficult. You are so right, the mental part is the worst!
Dawn, thank you for your story. I am currently going through what has been labeled stage 4 non-curative uterine cancer. I was diagnosed in Feb 2021, and after chemo, a full hysterectomy, more chemo and then immunotherapy it's October 2022 and I am still here. My infusion sessions have been filled with watching youTube I love Autumn and she eventually led me to you, Yota, and Winnie Bee. I love you guys! But today while scrolling I found your cancer story, you encouraged me. Keep making lux videos, but thank you for using your platform to bring attention to this issue.
Char, you have really touched me! I can only imagine how scared you must have been to hear your diagnosis, and how happy you are to be here now to talk about it! That’s wonderful news! I hope you have successful treatments and plenty more birthdays! These is too little awareness about women’s cancers other than breast cancer. I really wanted people to know what to look for so that they can hopefully be seen early and treated. I was so scared in the beginning that I had a death sentence, and as of my last scan this week, I’m still ok! Don’t worry, I am still going to make videos! Keep fighting, Char! Sending lots of love and positive energy your way!
I am Tess and same strory of u Ma'am..i am scared that i have appointment in cancer center on Nov.10,2022...i am so nervous i dont know yet what theraphy for me..i'll always praying and praying😪plss advise more,thank you
@@samueltayamora3016 Even though it’s scary, you have to go to the appointment and follow the treatment that’s prescribed. Do not think that any natural and alternative treatment will treat you. It won’t. I can’t give you any other advice as far as treatment. Do what the doctor says.
My cancer journey is quite expectional & unique so i think i would share it here so others can learn a thing or two from it! my journey began in May 2013 when I was first diagnosed with Stage IIIA uterine cancer. A radical hysterectomy, followed by several months of daily radiation and several weeks of chemotherapy were administered after my surgery. In November of the same year, I experienced a ruptured appendix and then in January of 2014 a portion of my colon was removed, all due to the hypersensitivity I have to chemo and radiation therapy and the harsh chemicals that had weakened my body. My life returned to a somewhat typical pace and I was able to return to a regular teaching schedule where I strive to meet the demanding, but rewarding satisfaction of touching the lives of elementary students. Unfortunately, several years later the cancer returned. It seemed to respond to chemotherapy at first, but then I suffered a terrible reaction. Meanwhile my liver tumor continued to grow by 60%. Local doctors refused to operate on my liver or to find a surgeon, stating they had “hit a brick wall,” and that surgery was not an option for me. I refused to accept their refusal, and through a dear friends found a surgeon who agreed to remove 60% of my liver. Because of sheer determination, I quickly recovered from the surgery and returned to teaching and daily work out routines. Scans revealed that my cancer continued to occur in my peritoneum and lungs. For several months, beginning in January 2020, medications were prescribed by my Dr to try and kill the cancer cells, complying with my wishes to please use any method of treatment other than chemotherapy but this meds never seem to be effective as my Dr promised. Anxiously and persistently pursuing a cure for my cancer, I learned about Dr Dennis natural herbal clinical centre through another friend who convinced me to let Dr Dennis order a molecular profile report of my cancer. The molecular study revealed that I had 20 genetic mutations. Dr Dennis recommended i tackle this sporadic mutations with natural formulated herbs that would help fight& kill the cancer cells in my system gradually. i was convinced after much research on the ingredients and properties that makes up his C4 Formula herbs and also going through his Facebook page at ( Dr Dennis Naturopathic Physician ). At first the herbs helped fight the symptoms and I started to see good outcome, I had to use it for 13 weeks just as the Dr prescribed and my response has been amazing, I am astounded at the return of energy I feel, the color back in my face and my general appearance is that of wellness. The herbs is phenomenal! For your sake, the future of a cure for cancer and your family. continue to FIGHT until you have explored every option.
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I am 53 & thought I was in menopause, I had months of horrendous bleeding nonstop.. did the uterine biopsy (that is from the Devil). That was the most gruesome pain for sure. Luckily it came back negative. I had adema swelling in my legs every night but never was tired & was extremely busy living on 4 hours sleep. I was overweight, my body was screaming inflammation! Though I am vegan/vegetarian.. I didn't eat healthy. I didnt like vegetables, fruits, only carbs & junk. So I decided to incorporate saurkrat, mixed canned greens every morning with my breakfast. Before I knew it, weight was dropping off, swelling disappeared, bleeding stopped! My gut bacteria must have been off & this corrected it! I was 153, now 121.. no diet, no exercise, I still eat Icecream, chips, etc but in moderation & the weight stays off! Of course God is to be Praised for His healing to my body as Prayer is very important to me. I am glad you're doing well & thank you for your story~
Healthy eating is good for everyone, but it will not cure cancer if you had cancer. Nor will it cure inflammation from autoimmune diseases. I’m happy that your biopsy was negative. It is truly an awful thing to go through.
How are you doing now Dawn 2 years later? I am praying you are better
@@AnchorMoments Hi! It’s over three years after treatment ended, and I am NED and doing great! I do have a follow up video on my channel.
i came across this video i too have uterine cancer stage 1 i am scared not knowing what to expect.. i am dealing with insurance denials for tests ordered by my cardiologist to clear me for a complete historectomy and lympth noid removel.. i have been dealing with this for almost 1 year now i am discouraged because i have new symptoms and this cancer could be spreading because of the insurance red tape,, i just started my own you tube channel to document my journey . i am no professional just a 63 year old disabled women trying to find ways to cope with all this.. i want to survive this and i pray i do.. my prayers are with all who are dealing with this cancer or any other ones.. thank you for this video..glad i found it.. i know i am not alone.. my family is 3 hours away from me and its scary doing this alone..
I pray that everything goes well. I don’t know how anyone could make you wait a year to have surgery if you have a cancer diagnosis. I know it’s not easy to be alone through this. Try to stay calm and stay hopeful. ❤️
November 2023 I started having irregular long menstrual cycles 25-31 days... 47 and I've had no children but I do have endometriosis 4 years ago had fibroid removal. I knew something was wrong immediately I made the first available appointment to my gynecologist who have been with since I was 20 he knew right away all the tests that I would need thank God I do not have endometrial cancer. The fibroids have returned four more in a four-year expand time . What they didn't tell me is I have 5 symptoms that completely set me up for fibroids 1. Overweight 2.No children 3. Starting your menstrual cycle at an early age I was 10 . 4. Vitamin D deficiency 5. genetics.
My sister received a hysterectomy at the age of 47 I will be the same age March 15th 2024 I will be receiving a hysterectomy.. my uterus is the size of a woman who's anywhere from 4 to 6 months pregnant all my health issues are due to my female health in my body being out of wack. Ladies find the best gynecologist. I pray for us as women❤🙏🏽
Best of luck to you! All women need to be checked. It’s a relief that you don’t have cancer. I never had any issues until I had bleeding after menopause. Always get checked right away if something seems wrong.
When a woman loses her uterus it is very emotional. Even if you don't realize it. I am also a survivor of the same cancer. Much love and prayers for you! 💗💗😇
Thank you! I’m always happy to hear of other survivors!
Thank you and God bless you for taking the time to tell your story even though it must have been difficult for you to talk about me.... I really give you so much credit for doing so. My biopsy came back positive, but have yet to see my oncologist doctor in 3 days and have been scheduled for a hysterectomy. I don't know what stage I'm in, and need more tests done before the surgery. But your story has inspired me to be strong and be positive. Again thank you for your candidness and may God bless with a long life.
Thank you for your kind words! I wish you the best of luck with the surgery. You will be surprised that it’s much less scary than you think. Be strong! I wish you a long and happy life!
Thank you for sharing all of your journey I have just had surgery and chemo for stage 4 uterine cancer and experienced the same as u hun I totally agree on those biopsies they are so painful , I have had my last CAT scan results last Friday and all looks well thank goodness I'm so grateful the chemo seems to have moped up any rogue cells that were remaining so fingers crossed I wil be like u a survivor,good luck and best wishes for your future , well done 👍🍃🦋🍃🇬🇧xxx
What great news!!! 🥰. I sure hope you stay well!
🙏
I am a male a women I know just informed me that she was diagnosed with this and I wanted to learn about it. Thanks for sharing.
I hope it’s helpful and that she will be well.
Hi Dawn, your story resonated with me, I was diagnosed with type 2 uterine cancer, stage1a last October and had the same surgery you had with radiotherapy. I didn't have chemo. I agree with you that the awareness for this type of cancer is poor. I was also at menopausal age and didn't think too much of the symptoms for a months. There is not enough information given to women about what symptoms to look out for. I think the same could be said for ovarian cancer too. Thank you for sharing your story.
Hi Daisy, I think it’s important for people to be aware of what to look for and to understand what treatment is like. How are you doing now? I’m always afraid that the cancer will return no matter what good news I get. I suppose that’s normal. I hope you are doing well.
@@dawnlovescouture2644 Hi Dawn, thank you for replying. The radiation treatment has caused thinning bones to my pelvis and subsequently hairline fractures have appeared which is pretty painful but I'm hoping this will settle down. I think, like you, I'm always going to be afraid the cancer is going to return
@@daisychain4503 Hi Daisy was it serous or clear cell? Also why didn’t recommend chemo because of the stage 1A? I have serous polyp at 63 and surgery was cancelled because I had divaticulitis i
On CT scan.
Thank you for your testimony. My wife who’s 41 just had her biopsy and we’re currently waiting for results. Scary, but I’m encouraged by your story and others here in the comments.
Best of luck to your wife! I had a very rare cancer, but any type is scary. Some types of endometrial cancer can be cured with very non-invasive treatments, but many people like myself have gone through more and have done well.
When garlic was poured on cancer cells, it destroyed them. Eat lots of garlic and eat healthy.
Omg. You have helped me so much. I thought for sure this was a death sentence and you have helped me to consider another way of looking at this. I’ve been an emotional wreck since the diagnosis. So thank you. So much. ❤
Hi Karen! 🥰. Best of luck to you and hope you have a successful treatment. What was your diagnosis? (What type of endometrial cancer?). I was a mess at the beginning too, even when I learned it was early stage, because I had a type with a poor prognosis. But, I was early stage and treated aggressively. I have a follow up video if you would like to watch.
@@dawnlovescouture2644 carcinosarcoma. I haven’t even had the hysterectomy yet. I have my first appt with gyn onc a week from today. I’m still trying to process it, honestly. The CT shows no other signs of it other than the uterus, but I’m in the medical field so I know some about oncology, I worked as case manager for onc for several years.
@@dawnlovescouture2644 yes. I will watch it!
I’m 57 and after 6 yrs of menopause, I started bleeding on Friday. I’m scared, my family is scared and my gynecologist appt is Tuesday afternoon. Prayers appreciated. Thanks for sharing your story.
I hope it goes well, sending good thoughts and prayers your way!
I went through the same thing. It's good you caught it early. You got this!!!
🙏🙏🙏🙏
@@diannamarr6411 hey did you bleed frequently.
Prayers sent
Hello,
Diagnosed with Endometrial Cancer Stage 3. Will start chemo soon. I will stay positive and faithful. Thanks for your video. I hope you are well.
Hi Carla! 🥰. Best of luck and prayers for you! Try to stay positive and take it one day at a time! I’m doing very well, thanks. I do have a follow up video from a few months ago on my channel.
Dear Carla, I am hoping the best for you. I was diagnosed with same on 2/27/24. Had my total lap hysterectomy last Friday & go in next Wed to see what chemo/immunotherapy/ & radiation plan will be. May things go smoothly for you & we look back on this many years in the future with gratitude for our strength, good health, & our cure/remission. Take good care ❤
That OBGYN was really unprofessional not telling you the results of the first biopsy. Thanks for your story.
It was terrible, I would never go to that doctor again.
I have been diagnosed with uterine cancer. I had a radical hysterectomy (everything removed including cervix and lymph nodes) I find out next week what stage I have. So scared and your video comforted me. I have family to support me, I cannot imagine how you did this alone. God bless you 🙏🏻🙏🏻🙏🏻. Love you and appreciate you making this video.
I’m so sorry to hear this but happy that you had the surgery, that’s a help. I had everything removed as well. They took lymph nodes from several areas to see if there was any evidence of cancer. Do you know which type of Uterine cancer you had? I’d great that you have family, I’m sure that will be a huge help! I posted a follow up video a few weeks ago if you want to watch that, too.
The test shows: Endometrial adenocarcinoma, endometrioid type,
FIGO grade 1, with secretory features.
(Endometrial polyp showing focal atypical complex
hyperplasia.)
I find out on 12/21 what stage I am in and if I have to have Radiation / Chemo.
I will check out your other videos. Thanks for letting me know!
Hi Karen, I just saw your reply. I’m hoping it’s early stage!
@@dawnlovescouture2644 stage 1A and was all contained in the inner uterine wall and exactly where they took the biopsy. He says it is a miracle they caught it at such an early stage! No chemo or radiation needed. I have to get checked every 6 months for 5 years to make sure it does not come back! Thank you for making your videos they really comforted me. God bless you always!
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I have had a polyp in my uterus for about 14 years now. It bleeds pink blood every month. It was first found when I was 28 when I was being looked at because of my ongoing chronic infections. When it was found, the tech said my doctor would need to further investigate it. She did not. In fact I wondered if she had even read my ultrasound report. He saw it sooo clearly that he was able to say exactly what I was experiencing every month (light bleeding of pink blood between periods). Now, at age 43 I’m having all kinds of extremely debilitating symptoms and I’m severely anemic. I’m going for another pelvic scan in October. I feel very let down and quite worried. That doctor I had in my 20s is no longer my doc and I never liked her as she had committed malpractice on me before even the polyp thing happened but I’ve just been far too timid for far too long. That’s ending now. I’m going to take your advice and start advocating for myself! At this point I have nothing to lose. I can barely even function anymore and even walking is excruciating and difficult due to this strange, intense foot pain I now have (has been increasing over the last year and has been extra bad for the past 6 months). Headaches, extreme weakness, extreme fatigue and exhaustion, the pink blood which I’ve had for about 14-15 years now. Extreme shortness of breath. Cramping legs, bloated abdomen, like a pregnant lady (I’m neither large nor really small, just average sized). A lot of really exhausting and frustrating symptoms.
Best of luck to you. Change doctors if you have to and get another opinion. You really need to speak up. These doctors need to keep our best interests in mind when looking for a solution. No one should live with not knowing what’s going on.
@@Shimmer_n_Shine It is removed now. And it was tested. It was a “polyploid bloody mass” and thankfully, it was benign. I feel MUCH better now.
Thank you so much for sharing!
You are so brave and courageous, an inspiration to say the least! Your beauty and Ora shines through and it’s so lovely to see! Keep being you! Thank you 🙏 ❤️
Thank you! I just want others to be aware of the danger and to be vigilant with their own health. It’s probably all that I can do to really help someone else.
Thank you for sharing as a survivor , I'm on this same journey, diagnosed mid last year from lower back pain of all things and it can be daunting, I hope more awareness is raised about this type of cancer and people like yourself will keep sharing . Prayers
Thank you! I’m doing well. I hope that I will never have to make this kind of video again.
@@dawnlovescouture2644 same here, I hope you remain healthy and well
I just found I have cancer in my ulerus pray for me I'm so scared
I’m so sorry! I will say prayers for you. 🙏🏻💕
So glad that you are doing well now 😊. Hope that you stay cancer free. God bless you and thank you for sharing your story 🙏 ❤️
Thank you! 💕. I sure hope so, too!
Thank you for sharing your journey. I am a survivor too. Mine was less aggress Figo 1b, Stage 1. Hysterectomy and Brachytherapy (1 session left to go). I totally agree with you that there is little support for Uterine Cancer patients. My provider Kaiser Permanente had none. I am going to advocate for them do more education for women about Uterine Cancer but don't know how well they will listen and make changes to their protocol. One thing I noted was the response to the biopsy. Mine was the same and I asked for pain meds as I had biopsies prior with and without pain meds and my gynecologist denied me medication! It was so brutal I still have PTSD from the experience. If men suffered this kind of pain then pain meds would be an absolute part of the protocol. Leaving us lying on the table like wounded animals sadistic at best! I don't understand why there is no help for you. After my hysterectomy (complicated by 2 C-sections and extensive scar tissue) I was totally worn out at the beginning. Luckily I had a supportive husband, if not I don't know how I could have made meals or take care of myself or the house. FYI I recently read that Mayo Clinic is working on a swab test for Uterine Cancer and I hope it is developed and put into use soon. God bless you for sharing your experience and helping educate those who need help understanding what this is all about. One other thing, you might like to look at Dr. Goodenowe's website and see his cancer presentation. He talks about the cancer "Prodrome" which is a metabolic dysregulation that increases the likelihood of getting cancer and recurrence. I have changed my diet to adjust my labs and not be in a pro-cancer environment. It is a real eye-opener.
@@ramireztiger So happy that you are a survivor! 🥰. It’s always easier when you have someone to help. I was mostly alone and it was a struggle. I hope there are advances in detection soon! I don’t know what type of cancer you had, but I was also 1b. The FIGO stage is how advanced it is. It’s lucky it was caught early. I also had chemo and brachytherapy. So happy it’s over and will be for you soon!
I am 36 years and I am just diagnosed with stage 2 and am going through a lot of emotions and I still can’t find a doctor to go the procedure
What type of endometrial cancer do you have? I don’t understand why the doctor who diagnosed you can’t refer you for surgery. Are you in the US?
Thank you so much for posting this! Even though it’s 3 years old, it’s just what I needed to see for encouragement & hope. 54 yr old hospice RN diagnosed 2/27 with endometriod cancer, initially grade 2 but waiting for final pathology after my total lap hysterectomy 1 week ago. 3/20 will have my f/u visit with Gyn-onc re: treatment plan. Found + lymph nodes so likely stage 3C2. Will likely be starting cis-taxel, Keytruda, & pelvic radiation soon. I also live alone, & am so thankful for my BFF who is able to come stay with me when needed & other friends who help as they can. This was not how I planned to spend my 2024, but c’est la vie. I’m planning to add some complementary therapies to help mitigate symptoms where I can (fasting, accupuncture, etc). I’m glad to know that I won’t be so debilitated that I can potentially return to work part time to conserve my FMLA. Did you have any issues with peripheral neuropathy? I’m motivated to do all the things (including rest 😉) to keep my quality of life as good as possible. Well, thanks again! 🙏
Hi Patty, what type of endometrial cancer do you have? I hope you’re recovering well after the surgery. You’re lucky that someone was able to stay with you. I had one of my friends stay for a few days. It helped a lot. I don’t have any neuropathy and other than joint pain a few days after each round, I didn’t have any side effects. You will likely be prescribed medicine for nausea. You mentioned fasting. That’s not something the doctors would recommend, because if you are too weak they will have to stop treatment and you don’t want that to happen. Best of luck to you! ❤️
hi i am a nurse just got diagnosed march how are you doing were you able to work
@@mjbmcgbkb1 I’m doing well. I was working from home and I took three weeks off because I couldn’t sit for a long time but then I went back to work. I only took off when I had chemo or a doctor’s visit.
Thank you so much for sharing this story, I hope you never ever have to go through that again
Thank you! ❤️. I sure hope not, either!
Thank you so much for sharing your cancer survival story and bringing more awareness to endometrial/uterine cancers! My mom passed away many years ago of metastatic breast cancer at age 46, and that was largely due to not being diagnosed until after it had spread beyond the point of any effective treatments. You are so strong and beautiful (with and without hair or the wig shall not be named 😊) and I’m so glad you were so proactive in getting evaluated, educating yourself, and advocating for yourself in your treatment (that OBGYN was truly, truly horrible). Looking forward to the lux self-care video in the future!
Thank you! Yes, it’s always better when any cancer is found early. 46 is far too young to leave! I think there are much better tools now to make a diagnosis earlier because the scans are so sensitive and there’s better information about tumor makers, etc. I feel like it’s a miracle that mine was still early stage. I am still so terrified that the cancer will return just because of the type it was, but I tell myself that any person can keep worrying about cancer regardless if they’ve had it. Ugh, I paid over $500 for that wig, I think I was too in a hurry to look around more. I could have gotten a much nicer one on Amazon! Thank you for watching! Feel free to check out the rest of my channel for some other luxury content in the meantime! 🥰
@@dawnlovescouture2644 l am so happy for you stay healthy God bless you
@@margaretmurrell9071 Thank you! I’ve been doing really well! Always hoping that my scans are clear, but so far, I’m ok!
I'm 31 years old and I've been bleeding for 3 years. If I'm lucky I'll get a day break every once in awhile but my old obgyn just wanted to push birth control. I go in tomorrow for my ultrasounds to see if anything has changed from 3 years ago
Definitely get checked, that’s not normal. Good luck!
Thank you for sharing your story and raising awareness Dawn 🙏🏻 - I haven’t seen my gynecologist in a while and really should catch up on my regular preventive appointments. There‘s nothing more important than our health.
I‘m so glad you made it through this 🙏🏻❤️ and I hope from now on life only has the sweet sunny side left for you ☀️
Yes, make that appointment and keep notice any time something seems unusual. I hope I never have to experience this again. Believe me, I’m grateful for every day, bad hair and all!
Thank you for sharing your journey. I had colorectal cancer stage3. I had my 4th year in remission Nov. 2nd. Happy 2 year your doing well. All the best.
I’m so happy for you!!! ❤️
What a fabulous video, Dawn! I watch your bag videos and stumbled upon this one a year after you made it. I so admire you. You insisted on taking care of yourself when your physician failed you. I hope you have a healthy rest of your life. I’m 71, and let me tell you: all the time I’m learning new ways my body can malfunction.
Thanks so much, Maria! 🥰. This video is almost two years old now. So far, I’m doing well! I have another scan in November. I was moved to yearly scans early, usually that doesn’t happen for three years. I’m hoping to get more good news! Always, always question things if you feel you aren’t getting proper treatment. You have to speak up! I would have waited longer for another needless biopsy while this cancer spread and I didn’t have that time to waste! I’m sure we all learn about our bodies all the time. I hope to make it at least to 71! 🥰🤗. Wishing you good health and bright days!
My mom was diagnosed with it 3 weeks ago she’s young and I’m so scared.
Do you know the type and stage? If it’s not an aggressive type and early, she should have an excellent prognosis.
Thank you. I’m just beginning this journey. Had what I thought was a uti. Then polyp - now come the tests. Low grade pelvic pain since and yes I’ve googled it all. So ultrasound next. And want to thank you for the “stop” sign. I too feel they just pass you off from doctor to doctor without any real sharing. I’ll ask for oncologist right away. Very helpful. I’m setting my space up for rehab and preparing for worse case.
In my case it wasn’t that I was passed off to different doctors, the gynecologist that I originally saw wanted to do a cervical biopsy after knowing that I would need a hysterectomy instead of referring me to an oncologist. I hope that your ultrasound turns out ok and that you don’t need any surgery or chemo. But please advocate for yourself, if you aren’t satisfied, move on to another provider.
Request a Dilation and Curettage (D&C) procedure, if you have heavy or unusual bleeding. You are put to sleep for this, no pain, and it is much more thorough for checking pathology, than is an endometrial biopsy. An endometrial biopsy is painful, and it just checks a tiny portion of your endometrium for cancer. A D&C removes the entire endometrium, and checks all of the tissue for cancer.
What are you talking about? I had a rare cancer that would have killed me. I had a complete hysterectomy, chemo and radiation right after I was diagnosed. I wasn’t given a choice about having a d &c first. Waiting for that procedure prior to a hysterectomy would have killed me. Please don’t offer advice about what should be done because you clearly don’t know enough to say anything.
I'm sorry that your doctor didn't offer you a choice of an endometrial biopsy that caused you horrific pain, versus a D&C, for more thorough diagnosis, right away. Mine did, when I had unusual bleeding, at age 61, in 2017. I was also told, "Assume that you have endometrial cancer, with unusual vaginal bleeding at your age.". I was lucky. My diagnosis was limited to endometrial hyperplasia, and I have been treated with progesterone. Unfortunately, I am now having unusual vaginal bleeding again, at 66. I'm calling my gynecologist tomorrow about it. So wish me luck. I hope that I'm still pre-cancerous.
And I do know what I'm talking about. My brother is a radiation oncologist, my brother in law and niece and nephew are surgeons. I am highly educated, and have a very strong medical background, myself. My doctor suggested the D&C versus the in-office endometrial biopsy, for more thorough diagnosis---but I did not have to wait, he got me in for that right away. It's an outpatient procedure that's painless and allows for a much more thorough pathology. If I had been positive for cancer, I would of course, had to return for a total hysterectomy, plus, omentectomy, etc., as you did. I may have that coming up now.
@@anglophils645 Hope your ok🌸
Thank you, Pam. I am still doing well on the progesterone. I have a Mirena IUD, which gives off progesterone in the uterus. Progesterone opposes estrogen, and thereby keeps the endometrium thin and healthy.
@@anglophils645you are absolutely correct about d&c vs hysteroscopy for diagnosis..I think Dawn misunderstood that you are proposing d&c in place of hysterectomy as a treatment
Dawn... I appreciate your video.. i just got diagnosed with the same endometrial adenocarcinoma cancer two weeks ago. Im 41 healthy female fit health nut and im still in disbelief. I guess that doesnt matter anymore. My appointment to the oncologist is in two weeks. I wish it was sooner but unfortunately its not. I am hopeful have faith but still hella scared. I do have a great support system in my corner but im hoping for the best of course. My story is pretty similar to yours and after i get on the other side of this i will definitely share more. You are a strong women and thank you for the information even if i was told to stay off the internet. Thank you again for sharing your story. May i ask how are you doing today?
Hi Maria, I didn’t have adenocarcinoma, I had endometrial carcinosarcoma, which is a very rare high grade tumor. It was luckily stage 1. I needed chemo and radiation because of the type of cancer that it was. If you have adenocarcinoma, it is very likely that surgery will be curative. Of course, I’m not a doctor, just sharing what I know. I hope you do well and that you will get through this with no problems. I’m doing well. I have yearly follow ups now but I still have two more years of surveillance.
@@dawnlovescouture2644 so glad to hear you are doing well. I apologize it sounded the same during your video. Again thank u for sharing 🙏
@@mari-4475 Best of luck to you!
I survived 5 cancers from what I was told I had. My birthday gift to myself
That’s great! I hope you continue to do well.
Dear Dawn,
My sister has a big scare going on as she has post menopausal bleeding, her the scans shown a huge 24mm thickish anything over 3 or 4 is biopsied, obviously 24 is very worrying, she is waiting for biopsies to be done.this is known as a silent cancer in most worrying as you say you don’t look Ill at the beginning.
Do you feel that cancer has become more prevalent I lost my brother with liver cancer 2 years ago. I had to have radical hysterectomy for grade 4 invasive cervical cancer, luckily I a ten year clear from that Xx
How are you doing now Dawn, I found this very helpful x
I am so sorry you are alone I also live alone although I’m not alone family wise.
I’m sorry to hear about your sister. My endometrium was 35. I hope that whatever is happening with your sister is addressed yucky and that she is in an early stage. Coincidentally, two of my closest friends also have cancer. One has lymphoma and one has breast cancer. Hopefully both will be treated successfully. It is very strange that we are all had cancer in the last three years. That’s great news that you survived cervical cancer at a late stage. Thankfully, I’m doing well I hope it continues to stay that way!
@@dawnlovescouture2644 really appreciate you messaging me, it has given me some hope that her thickness doesn’t mean it’s inoperable xx
I also had a 8cm hurtle cell carcinoma on my thyroid had half of that removed.
It was encased within the tumour but I am now other having voice and my thyroid levels have dropped. Going to ent beginning of June, so cancer related issues both ends excuse the pun, although I have had a radical hysterectomy so I am clear as far as I can tell because there is nothing there anymore.
What a lot we ladies and men not to be sexier go through.
I lost my beloved partner of liver cancer just under 2 years ago, it was very very quick xx
@@Tomas-major Wow! You are really having problems. I’m so sorry! I hope that all goes well for you at your visit. Yes, the thickness doesn’t indicate how bad it is. But more than likely she’ll be having a hysterectomy. It will be a relief to have anything removed and not worry.
Thank you for sharing your story. It will benefit soo many women.
I hope so!
Dawn well that algorithm is crazy. This video popped up today just after you mentioned about your cancer and your hair. OMG 😮. THANK YOU for sharing I’m so glad you are well thus far. I had to have a radical hysterectomy as well on an urgent basis for similar symptoms. They took everything I ended up having a cyst the size of a softball according to my doctor. I had to switch doctors as well because I had a gyno who just wasn’t taking it seriously. My blood levels where at the point where it showed I almost needed a Transfusion. My primary had to call and threaten to put me in hospital if the doctor didn’t do something. By the grace of God she was tied up so I was referred to another doctor in the same practice. He was wonderful he told me this is an urgent matter we need to take care of it right away it’s not an emergency yet but if you would have waited another day I would have more serious complications. He was well versed in treating women with RA so he was able to take all the precautions and knew what game plan to go by. Honestly Dawn I’ve pretty much have blocked the entire experience from my mind so detail are blurry. He knew it was serious because I had family history my mom had survived cervical cancer then 20 years later passed away from endocarconoma -sp? Of the stomach. So my memory is fuzzy because internally I was petrified. I am so very sorry you had to go through it alone I was there for my mom each step and I know how difficult it was. As for me they said they got everything and the subsequent test showed I was clear so I didn’t have to go through any chemo or radiation. They keep a close eye on me ever since. I understand the hair loss not because of this but because of the RA treatments. I take a lot of vitamins supplements etc so it mostly has stopped falling out so quickly it grows back a bit faster now but it’s so thin. Thank you so much for sharing and now I understand why you comment about your hair being long enough for twillies now. God bless you ❤ and stay strong I’m so glad you are here to make content I can enjoy and get cheered up from.
Dee Dee, I’m so sorry! It’s a very scary experience when it’s an emergency. But, when I went to gyn oncology, she treated it as an emergency and I am very grateful now. It sounds like you were able to see just who you needed to see. When you have a family history it’s even more important to do very thorough follow ups and not wait. I’m so happy you are ok. I also lost hair when I was on Rituxan. It wasn’t all over but I eventually had some bald spots, which I was able to hide. That was actually more frustrating then losing everything all at once, but really, that’s just a side effect and just a small price to pay for health. Looking at if now, all those years of infusions prepped me for chemo. Hopefully never again!