Extreme CFS, MCAS, and Nervous System Issues To Vacations and Handstands | CHRONIC FATIGUE SYNDROME
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- Опубліковано 12 лип 2023
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Join us as we sit down with Niki, a remarkable thriver who has defied the odds and reclaimed her life from the grips of Chronic Fatigue Syndrome (CFS).
In this inspiring interview, Niki shares her incredible transformation, from being burdened with 14 different diagnoses to rediscovering the joy of living again. Witness the power of resilience and hope as Niki's story showcases the possibilities of recovery from CFS.
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue
DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.
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What is price . Thank you
he is changing lives! I know, as it changed mine! Healthy or not everyone needs these LEARNINGS!!
Thank you so much! 😊❤️
This lady went through hell i can really relate to the the struggle but she just on a different level. Im so happy for her
It's great to see that you can relate to Niki's struggles. It's inspiring to witness someone overcome challenges and find a path to healing. While everyone's experience is unique, it's important to acknowledge and celebrate each person's progress and success. I share in your happiness for Niki and her journey towards recovery. Keep holding onto hope and continue on your own path of healing.
your happy that she sold her soul to make a % of the $6500/scam treatment that they sell?
I'm absolutely disgusted with the medical establishment! Shame on them, they can't help because their not trained to understand the body if it can't be treated with a drug to repress, not heal symptoms yoyr dismissed as 'normal' from the tests! They dont t listen! 😮 what an amazing brave woman! Your an inspiration! This is true empowerment! We all need to become our own advocates regardless of how sick we are! We dont have to be indoctrinated slaves to Dr's and big pharma!
Absolutely, advocating for our own health and understanding our bodies is crucial. 🌟 It's unfortunate when the medical system falls short, but there are resources and communities like ours that can provide support and alternative approaches to healing. Empowerment is key, and you're right, we don't have to be slaves to the system. Keep seeking the best path to recovery for you! 😊👏🙌
Hi Miguel, thank you for shearing this video, Niki’s story is amazing. I have the same symptoms as Niki and I had already lost my hope of being able to recover. Thank you Miguel for making me understand that the problem is in my nervous system and giving me hope that recovery is possible. I am very grateful to be in your program. I highly recommend it ❤
Thank you for your kind words and for sharing your experience. I'm glad to hear that Niki's story resonated with you and gave you hope for recovery. Understanding the role of the nervous system in your symptoms is a crucial step towards finding a path to healing. I'm grateful that you're part of our program and I hope it continues to provide you with valuable support and guidance on your journey. Remember, you're not alone, and together we can work towards improving your well-being. Wishing you all the best in your recovery and can't wait to hear your own recovery story soon ❤
Oh Niki, i relate to your experience on a visceral level. I even had to put my beloved pet (of 16 yrs) down just 3 days before my severe covid symptoms hit in march 2020. Thanks for the interview, Youre such an encouragement. I cant wait to be on this channel someday telling my story.
Thank you for sharing your personal connection with Niki's story and the challenges you've faced. It can be incredibly tough to navigate through difficult times, especially when dealing with loss and illness. Niki's story is indeed inspiring, and I'm glad you found encouragement in her interview. I believe in your strength and resilience, and I hope that one day you will too have the opportunity to share your own story and inspire others. Keep pushing forward, and remember that there is always hope for healing and recovery.
Amazing! Thank you both for putting this incredible recovery story out into the world!
You're welcome. Glad it was helpful!
GOLD. Absolute GOLD! Thankyou for sharing your story Niki🥹 I pray it reaches all those it’s meant to reach❤
Thank you so much!! I hope so too
Amazing interview Niki. I’m so happy for you. I didn’t realise how bad things were for you. This is gold xx
Thanks on her behalf. So truly happy for how far she's come!
This was an emotional one. Thanks for sharing your story Nikki. All of the sudden this puts my own situation into perspective, and that are people with this illness, who had has it way worse. Congratulations on your progress, and your new life
Thank you for your heartfelt comment. Nikki's story is indeed inspiring, and it can provide perspective on the challenges faced by individuals with this illness.
Wishing you all the best on your own path to healing.
Thank you both so much for sharing this! Such an inspiration 🥰🙏🏼
Absolutely! ❤️ Your feedback motivates us to keep creating valuable content and providing support to this wonderful community. Your message serves as a reminder of why we do what we do. ❤️
🥲In tears over here! Awesome video! Thanks Nikki for sharing & thanks Miguel for continuing to put out great content!
Miguel, you briefly mentioned weight gain. Same here. Would love if you put out a video about that topic and how you lost it! Thanks again to both of you.
What an amazing woman & story! BRAVO!!
Thank you on Niki's behalf!
Thus is so great! This gives Hope.
Glad it was helpful and gives you hope. Keep going, you got this!
Truly inspiring, thank you for sharing your story Nikki!
Thanks too for watching!
This feels so much like my story from the time of infection on, the number of -ologists, scans, tests, symptoms, and eventually diagnoses. So happy that you have found a path back.
You are so welcome 😊
Thank you both! ❤
Thank you too!
Great to hear from someone else also having MCAS issues and resolving them : )
Sharing experiences and learning from each other's journeys can be so empowering and inspiring. Here's to embracing our strengths and celebrating the progress we make 🙌🥳
Wow!!! I have mast cell, cfs, and lupus!! So needed an interview like this!
Glad it was helpful! Don't despair. There's lots of hope for you too! Can't wait to hear your recovery success story someday!
Where is your pain?
I'm so sorry for everything you went through. I'm so happy for you to see where you're right now. You give ne so much hope that I can go through years and
years of CFS long covid. I feel I have hope now for a better future. I can overcome it, too. I can't wait to get started. Again , I'm so happy for you. Thanks Miguel ❤️🩹 🎉
Thank you so much! 😊❤️
She’s amazing! I’m SO thankful she found you Miguel❤️👏👏I hope she gets a new dog eventually❤
She is an incredible person. Thank you for your kind words 🌟❤️
I can relate to so much of this. It's so frustrating to know there is something wrong and for the doctor to tell you it's anxiety.
I completely understand. It can be frustrating when your experiences are dismissed. Trust your instincts, and don't hesitate to seek a second opinion if needed. 🤞🌟
Thank you so much for sharing your story. I am so happy you have recovered! I can relate to the symptoms you had. My story is a little different. I had Covid in 2021 and never recovered completely from it. The following year 2022 almost exactly a year apart and I got Covid again. 😢So it’s really hard to recover from Covid when you continuously get it. And it wasn’t mild the second time it was just as bad if not worse the second round because I have not completely healed the first time. I also had some different symptoms with each illness. Still working on recovering. I definitely agree with brain retraining. Blessings to all.
Thank you for sharing your journey. It sounds like you've been through a lot, and your resilience is truly inspiring. Keep focusing on your recovery and remember that your strength will guide you through. Sending you blessings and healing energy. 🌟🙏❤️
Wow, mine and Nikki’s stories are so similar! One thing - she mentions having Crohn’s Disease. My first Covid infection (which caused long Covid) also triggered the development of Crohn’s Disease and it’s something I’m really struggling with. If you ever interview Nikki again (or if she sees this!), I’d love to know what part that’s played in her illness/how she approaches it/if it’s improved along with CFS recovery.
Yes! Nikki is in what her doctors describe as "deep remission" from her Crohn’s and no longer has to take medication for it. She actually just posted a win a few days ago of all the foods she can eat without symptoms. There were brownies, ice cream, cake, and lots of junk food that she wasn't able to eat for years!
@@cfsrecovery thanks so much for your reply Miguel, that’s great to hear! To clarify - was this achieved through the work Nikki had done with the programme? I’ve been wondering for a while now to what extent the mindbody connection could play a part in Crohn’s, but for me it’s gotten severe even with medication so it’s quite difficult.
Wow I needed this encouragement. All of us with these conditions sure do seem to have that go go go push push push personality and hardcore exercise regimes to "relax" that sets us up for this huh?
You got it! It's common for people with conditions like CFS to have that "go go go" personality and intense exercise routines. But finding a balance is crucial. Listen to your body and take it easy when needed. Pacing, rest, and self-care are essential for recovery. Keep learning and be patient with yourself. You've got this!
@@cfsrecovery And always looking for what's wrong, or the next thing to fix, etc etc
@miguel i am looking at this from the netherlands! What a story! How do you think about eczema & histamine problems. (Not mcas but very high in histamine). Is it possible it goed away when your nervous system is settled again?
If there is a God, may this woman be blessed for the rest of her life.
Thank you so much! 😊
The funny part is, the doctors were kind of right. Anxiety and this are so similar.
Not just regular any old anxiety I’m talking about debilitating wild stuff. All from the same thread…hyper sensitive nervous system.
They just don’t know how to fix that…
Hit the nail on the head there brother. It’s essentially anxiety but the most extreme version of it to the point where it starts at spill into physical symptoms.
@@cfsrecovery somitization
Yes it's a sensitized nervous system. Pretty much the same condition as panic disorder though symptoms may present differently. Regardless, the solution is the same. Gradually desensitizimg the nervous system.
Yes it's a sensitized nervous system. Pretty much the same condition as panic disorder though symptoms may present differently. Regardless, the solution is the same. Gradually desensitizimg the nervous system.
The thing is it is an anxiety disorder but to the max level that it literally shuts the body down from being so over sensitized
thank you. My story is the same only my symptoms started 5min after jab including paralysis. 2yrs later still only 3foods and fighting anaphylaxis everyday. Have started brain retraining. Crying thinking about travelling/eating choc or running again thank you =)
You're very welcome! Your determination and positive attitude are truly inspiring. Keep working on your recovery, and I hope you'll soon be able to enjoy all the things you've missed. Sending you strength and healing vibes! 💪😊
This story is incredible and asa 2 year long hauler I relate so much
Glad it was helpful and I hope it gave you some hope for your own journey!
I relate to this so much! MCAS started for me 6 months after Covid in the spring due to pollen. It has been a roller coaster. I’m brain retraining, but I have so many stressful triggers around me.
What about adrenal fatigue…if your cortisol shows low all day? And what if you still have mold toxins? Do we have to treat things to get relief or can brain training fix that too?
If any meds did help, which ones helped?
Your adrenal's aren't fatigued, the are making just the right amount of cortisol for the state your body is in. As long as your body thinks you are in a life threating state it will prioritize what systems need what. As you recover and reduced\ stress your adrenals will come back online and start normalizing. Keep working on the brain retraining, keep reducing stress you will recover. It just takes time.
To be honest it’s not my place to say because I don’t understand your exact situation and legally I can’t recommend you anything. I can only share what I’ve experienced. I would advise to reach out and discuss this with your doctor! Hope you understand 🙂
Omg I relate to everything she went through it was the exact same to the T
Glad it resonated with you 😊
This is exactly what I’m dealing with…MCAS type reactions. I can hardly walk at times because of the weakness. I can see what is happening now with the stress response and my immune system not being in a good place. As far as MCAS I’m not tolerating antihistamines at all and I’m just dealing with more POTS symptoms.
The issue I have is that I have three active sons and the two youngest ones play spring and fall baseball and we live in Southeast US so pollen is costing everything. I’m wearing a mask and trying to sit in the car but I have some internal battles because I am usually the score keeper and right behind home plate for my boys. We finally figured out MCAS since I had progressed and then once the pollen got here it’s like I’m back at square one. Trying not to feel hopeless.
Good for you. You got this! 💪
I had the same level of illness as her, and I’ve recovered some but if I stop taking my Chinese medicine formulas I go back nearly to square one. One symptom I have which she didn’t mention is severe insomnia. I feel really kinda frustrated that all these brain training programs assert that they know what’s going on, that this is just a nervous system dysfunction, but we can’t know that. I am also frustrated that she’s really not that well still and we’re supposed to be so excited. I want my life back, not just to get a little better.
I feel for you. Please check this video out: ua-cam.com/video/IP1r3urYgoc/v-deo.htmlsi=9hBg3Czqwy89ztnQ
Have you tried acupuncture?
Any tips on how to feel better . our doctors up here wont listen. Me and all 3 of my kids have stuff going on ,may even be long covid, not sure but something is off. I first thought it was toxic mold exposure because we all got soooo ill . I was so confused how all of us could be having heart problems ,brain swelling and bad mental issues ,hypoxia in the lungs ,bad circulation,my leg veins are blowing out , like huge thick extension cords in each leg from thigh to cal , really bad gi problems ,reflux ,severe constipation, mental impairment . I have brain swelling , i cant think straight . double vision and lightening effects,my flight or fight is severely stuck on , i have huge panic / anxiety/ ill / overly weak shakey feeling .weird allergic response all of the sudden like anflxc type, was so jumpy , then panic feeling ,skin burning , Chest and abdominal pain and palipations ,pounding like drum,i feel like i got punched in the upper left chest , weird issues with my mouth/ growths ,swelling fingers/joints. I just dont know what to do. I just wish I could rest . I don't have help that way . Nobody believes how sick we are because we look fine . I even felt suicidal multiple times , but I want to live so bad. I want to beat this, How can we beat this ? How can i help myself and my children . Ages 4-16 . Im 41 and perimenopausal . So my hormones are soooooo outta wack to. My cycles cause flares for sure. Around my period and ovulation i got sent to the hospital multiple times. Had histamine ,sugar, blood pressure ,circulation,blood clots .severe dehydration and fluid retention issues , i lost 60 pounds really fast not trying , Pleeease im desperate how can i save us 😭😥😢 my kids have this to ... anyone ... please ...
I always recommend going through the questionnaire and if you qualify, booking a strategy call to see if you're a good fit for the program! www.cfsrecovery.co/apply
Can I still walk during an adjustment period or should I cut way back on activities? I was up to 7-10k steps daily. Think I pushed too much.
You should stop if you are uncomfortable and continue if you can handle the symptoms.
@@djean53 thanks!!
During adjustment periods, it might be beneficial to take it a bit easier, but staying active with gentle walks can still be a positive choice. Listen to your body and make choices that support your overall health.🚶♀️😊
I been there and is still there with some lingering symptoms.. my appetite is not back to normal, I have daily generalize body ache, temp sensitive,vision issue,sleep issues,sometimes comfused feeling n brain fog, some kind of restless leg. Its not easy.I had covid 2x last time about 3 months ago.
I'm sorry to hear you're still experiencing lingering symptoms after battling COVID twice. 🌟 Your resilience is admirable. Remember to give yourself the care and patience you deserve. 💕
Hey bro Miguel, I have severe Fatigue, Whole body Heaviness, Walking causes the heaviness more, Brain as if draging me down, Even Jaws, Teeth, Back, Chest, Torso, Legs, arms, All as if super heavy, sometime it gets loose enogh, that i dont have control on walking, body sways either side, Panic, Anxiety, Depression, Hopelessness... I never went through all thr tests... Though 2022 April i had done head ct, neck Xray, Lipid profile,LFT, Vit d was only low... This year liver enzyme is little high, dont know if it is due to using Phych medicine... I stopped all Phych medicines... This time i didn't do any test... This time whole thing is much more terrible, with a new feeling as if my whole body muscles are cotton, weight loss, Horrible stomach, since a year never had a normal stools,b someday blood in stool...
My main problem is conginitve issue & whole body Heaviness Fatigued...
Now i dont know is it because of any diseases or what... Ya i have rashes off & on... Plzzzz suggest if i shud join ur programme?? Can it be cured ... What i feel that if i can come out of the hopelessness & Panic, Anxiety, it may be can be cured completely.. Yaa my Whole brain i feel like it is stone, Heavy, tight, Only one expression & emotion can be made in head which is negativity, crying, I am nt able to become happy, not able to make any 2nd emotions like happy, Enthusiastic, energetic... I feel gravity 5X more ... Plzz suggest a lot more to say ... Already this text is long I wrote...
I have had many of the same symptoms. I started the program in Jan with over 35 symptoms in 6 months I am down to two and I living a pretty normal life. I am not 100% but I am close. The program is awesome and 100% works.
@@djean53 , How long it takes, down to two only?? What is the cost joining His program?? Have u followed any diet with that too ?!
I feel you bro. You can definitely check our programs so you can see if it's a good fit: Www.Cfsrecovery.Co/apply
@@cfsrecovery Already applied today... I answer all quesion u asked on the video question... But i donno if i can afford or not ... That where is the issue... Cuz since 2019 April I am jobless... Although i have applied with a hope if it can be affordable for me then i will surely join ur classes & protocols ... Which i am hugely desparate to join...
@@AHMEDShOaib12RAmaybe you can start a gofundme? With the help of friends and family? Take care
What is the 6 week adjustment period ? I also think having support and mentoring is a huge bonus. I am trying on my own, its v tough.
It can really be tough if you're doing it all on your own. We're here to help and support you. 🤗 May I ask what symptoms you may be struggling with ATM?
I would like to connect with her, and learn from her. Does she do mentoring?
We always recommend going through the questionnaire and if you qualify, booking a strategy call to see if you're a good fit for the program! www.cfsrecovery.co/apply
@@cfsrecovery 6500 dollars btw
This was me. ... mine started Nov 2022. But i believe it started before that looking back . Ya it totally was the weirdest process
Thanks for sharing! How are you doing now?
Does a reinfection make long covid worse ?
Ive had it BAD since Nov 2022.just got reinfected Dec26 When did it calm for u
Please check these links. I hope they help!
ua-cam.com/video/1p3k_G43T3Q/v-deo.htmlsi=vu431BdPdbKIikdd
ua-cam.com/video/ezqz4TbJSN8/v-deo.htmlsi=WltXRnc1P18FDC7W
I don´t know what to do with my daughter. She cannot even leave bed to go on a toilet chair, she cannot sit up, she is afraid of people - of everyone but me. No one can visit or talk on the phone with her. And even me - when I sit quietly for 5 Minutes by her bed, she needs to rest. No way she could "reacht out" to someone for help. It is heart breaking. Following any program is so far away.
I'm sorry to know about this. How long has this been happening?
@@cfsrecoveryBedridden since Feb 2023 (Covid infection Jan 2023). I have since learned that you exploit the people you say you want to help. I am not interested in your help anymore. I dont know if you actually started your program to help people, but at the moment it rather looks like a mission to become as rich as possible and not to help the sick. Wish you well anyway - hope you find another purpuse in live then party and money.
Are you premenopausal ? Mine flares happened around my ovulation and periods
Please check this link. I hope it helps! ua-cam.com/video/r93hU0aJWV0/v-deo.htmlsi=hV3W23kdc1ZK957a
I wonder if these conditions would’ve gotten better on their own after some time anyway?
Me n haven't years though symptoms.have changed
Back in the day I had extreme symptoms and I couldn't even walk, I had to use a wheelchair. Now I'm better so it is possible to come out of this. 👍
@@cfsrecovery yes just get the subconscious brain to work I've found out why I have this Asperger's the subconscious brain spinal chord endocrine are very sensitive I now no I had sensory processing disorder as a child.the forrunner to CFS fybromyalgia pots etc thankyou I bet are lot if you're clients do to albeit undiagnosed with eds
@@cfsrecovery you didn't answer the fucking question
How much does the thriver community cost?
In terms of the cost, it really depends on access to me and I have to see if we can even help you first. I always recommend going through the questionnaire and if you qualify, booking a strategy call to see if you're a good fit for the program! www.cfsrecovery.co/apply.
Looking forward to connecting with you! 😊
Anyone else get liver area pain ? I need help with my kids , i dont even have help to take a nap. Im trying my hardest to make people understand something is not right with us . And i get treated really bad about it . I dont even try to convice anyone anymore because im disregared alot on how i feel and what i think it is. We sound identical ....
Please check this link. I hope it helps! ua-cam.com/video/xNBGY9RLv7g/v-deo.htmlsi=zryG2tml4RyICo-Z
HI MIGUEL YOU HAVE TALKED ABOUT INSOMIA AND VERTIGO AND DIZZINESS IN MANY OF YOUR VIDEOS BUT IN MY CASE IT IS JUST OPPSITE
I AM DEALING WITH SLEEPINESS EVEN IN THE DAY TIME . MY DOCTOR IS GIVING MEDICATION FOR INCREASE AWAKEFULLNESS
I DONT HAVE ANY IDEA WHAT IS THE REASON . I AM SUFFERING FROM FIBROMYALGIA FROM LAST 3 YEARS
IM VERY GLAD IF U CAN GIVE SOMR REASAON
Where is your fybromyalgia all.over or diffarant places any hypomobility?
Im her , my home , husband gone . In upper room at 80yr mom , existing on 800 disability. Every food ,water , smell. Cfs ..pots ..dystonia..No money, do u do any scholarships or anything please i want to live ❤
I've got tons of free videos here in my UA-cam channel - testimonials and guidelines. 😊
The feeling is a weird ill/weakness / an adrenaline like feeling that grows in intensity till the point of feeling of insanity or heart attack. Is soooo horrible . Nobody would help me .
Have a look at these videos to get a better understanding of what's going on and how the body is trying to recalibrate itself.
ua-cam.com/video/Z5Bd6uM_oWE/v-deo.html
Also, here's a playlist I created that will help you deal with symptoms if you're looking for more info on specifics: ua-cam.com/play/PLJT8-UVmfsmKHgGkCQPKkmHgZL11LqvJa.html
i got covid the exact same day.
until now
I'm sorry to hear that you got COVID, but I hope you're recovering well. If you have any questions or need support, feel free to ask. 💪🙏
I just want to see Physics Girl recover like this :/
I’ve been reaching out everyday for the last 2 weeks to try and help! Trying to think of different ways I can reach their team
"I’ve been reaching out everyday for the last 2 weeks to try and make money off them! Trying to think of different ways I can become a millionaire!"
Would be cool to see a non Covid success story since most long Covid people recover in time anyways with or without any treatment. Even here in Sweden they have official data for this now.
like 6 months?
@@sekischro5093 yeah average time 6-7 months. Some up to 2 years in worst case scenarios
Where’s that data coming from? Any reliable sources you can share?
@@mariapalacio8570I would like to know too. I had mold illness and got Covid almost a year ago and am so much worse.
@@Mandance haven't seen these studies and many of my Long covid friends are 2+ years including me -- long haul is effecting so many of us and Miguel is really shedding some light
So many stories of people who have not been ill for long. No offense, but 2 or 3 years is nothing in the scheme of things. And you can tell she pushed herself beyond what her body could handle, classic case. I wish I could connect with people who've had the experience of ME for decades like myself despite trying all the practices. We need support because society gives up on you after a few years.
Had CFS diagnosed neurosthenia.thrn 1997 2017 it's more fybromyalgia now I've had pots in the middle all started after a fall.foynd out have Asperger's hsd highly perfectionist.nervous system
I agree mostly stories of people who had Chronic Fatigue for a short while
And not those with ME who have had this for awhile
I recommend Daniel Van Loosbroek's program. It really gets to the root cause (trauma), for those of us with more complex cases that don't respond to anything else.
Omine started around 30 years ago. Took this long forcdiagnosis
I have long covid I need help how do I get intouch with you
Instagram
Please reach on DM via Instagram or facebook:
instagram.com/cfsrecovery/
facebook.com/cfsrecovery
Jesus helped huge to
Thank you 🙂
I relate so much to her story. There is nothing worse than reacting to water alone. No human should be restricted from life necessities such as eating and drinking 🥹
Absolutely, it's heartbreaking to see someone suffer to the point of reacting to basic necessities like water and food. Chronic conditions like CFS and MCAS can be incredibly challenging, but it's also inspiring to see how people like Niki are pushing through and finding ways to improve their lives. Let's hope for more research and support for those dealing with these conditions, so they can have a better quality of life. 🙏❤️
I still have shortness of breath and extreme tiredness headaches anxiety but glad to be alive.
Yes. Perspective is everything! Your symptoms are common, nothing to worry about. It's one of those many symptoms that you throw under the umbrella of "hypersensitive nervous system issue"
As long as you don't mentally panic it'll just go away and pop up here and there. Keep it strong! 👊