Sanfilippo/MPS: The road to diagnosis.

The mom of a girl diagnosed with Sanfilippo describes the long journey to her diagnosis beginning at age 2. "I knew as soon as I read the description that that was what she had. . . . The doctor told us to go home and enjoy her. There was no treatment or cure that we could do at that point."
• Sanfilippo/MPS: The ro...
If your child has Sanfilippo or another pediatric life threatening illness, this mom shares her perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.