Surviving Schizophrenia In Stephen's Words

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  • Опубліковано 7 січ 2025

КОМЕНТАРІ • 60

  • @kl3625
    @kl3625 Рік тому +1

    You should be proud of this channel Steven! You are doing a phenomenal job! Sorry for what you are going through & for the anxiety. I have struggled with anxiety and it is very difficult to live with not even connected to Schizophrenia. You are an inspiration. What impresses me is how aware you are & the fact you have never missed your meditation. God bless you and your family. 💙🙏

  • @lisacastellanos4553
    @lisacastellanos4553 2 роки тому +6

    Stephen, I just want to thank you for all the work you put into your channel! My son is living with schizophrenia and your channel helps me understand him better. Keep up the good work and keep shining your light!

  • @anthonyd9426
    @anthonyd9426 2 роки тому +8

    Your dad is so kind and understanding :)

  • @franskel9647
    @franskel9647 Рік тому +1

    Oh we're about the same age Stephen! I have schizophrenia too but the illness developed when I was 18. Hope you stay healthy

  • @messpilo
    @messpilo 2 роки тому +4

    I enjoy watching your video I had strong anxiety since a child I am much older now . I do not have schizophrenia but I experience most of your symptoms feeling exhausted all the time etc.

  • @sonjavanheyningen5880
    @sonjavanheyningen5880 Рік тому

    In life, your relationship, which happens to deal with this challenge, is so beautiful and encouraging….. what an inspiration to share in how you’re dealing with life’s difficulties…. Which really should encourage anyone, dealing with anything…
    Both father and son being so gentle and sensitive, so mutually respectful, yet thorough and truthful in your expression, is just so nurturing to watch. Thank you for opening your deepest vulnerability to the world…
    Clearly you are as a family highly intelligent and through your flexibility have/continue to adapted and developed so well!! May God bless you with good health as you’re moving forward and experience continued life together 🙏🏻🕊️🌱

    • @sonjavanheyningen5880
      @sonjavanheyningen5880 Рік тому

      Just discovered your channel 2 days ago and working my way through from your first videos… 😊

  • @hayleyprice8345
    @hayleyprice8345 2 роки тому +2

    Coming from a country town then to the coast and within my late twenties learnt I had a mental illness and found it hard to navigate once being released from hospital care

  • @chelseyscanlon9660
    @chelseyscanlon9660 2 роки тому +3

    Your relationship is awesome 🥰 cutest dad and son!!

  • @Shellperson
    @Shellperson 2 роки тому +1

    Hi Stephen! Keep up the great work, the world surely needs more of it. I mean, seriously, thank you so much for being so honest about schizophrenia. It really is a struggle for all of us with it. I’m 21 and nowhere near where I imagined I’d be.

  • @noreenquinn3844
    @noreenquinn3844 2 роки тому +1

    A lovely honest video and very helpful for families. Not holding it in is so important and being able to remove yourself ( at school and in jobs too). Also having a routine and advocating on behalf of others in similar situations.
    I wonder if the sensory overload symptoms also mean coexisting autism. If this is the case ear buds and wrap around sunglasses sometimes helps. Running or some form of movement / stimming to reduce adrenaline and to increase endorphins also sometimes helps in stressful situations. Swimming can refresh and aid sleep. You are a lovely caring person bearing a difficult cross. No wonder those around you are so proud. Hopefully society and employers, educators etc., will learn through more videos like this and will be accommodating. Being part of community is so essential for anyone's mental health.
    Employment of well trained case workers / social workers / occupational therapists by healthcare systems is important in this regard. These can help assist with integration into society and jobs ( part-time or full-time) also help with educating society. You have a great family. Well done all!
    N

  • @beautifulg6886
    @beautifulg6886 2 роки тому +1

    Awesome relationship you and your dad have . I am deeply touched by your video. It has been a difficult journey since my son was diagnosed with schizophrenia. Thank you so much for helping break the stigma by sharing your story. Blessings to you and your father.

    • @SurvivingSchizophrenia
      @SurvivingSchizophrenia  2 роки тому +1

      Thank you for your wonderful comment! Have a happy and healthy rest of your day

  • @sonjavanheyningen5880
    @sonjavanheyningen5880 Рік тому

    Question: I know you have said you have never skipped your meds. I would like to know:
    1) from the outset when in psychosis, how were you convinced to take your meds? Especially when it did not ‘break the psychosis’ and you’re thinking people are ‘out to get you’? How did you process ‘taking meds’ when you did not believe you were sick, and that lasted for up to 2 /3 years?
    2) since getting better, have you never felt, you are doing so well, you could stop the meds? Never contemplated it?
    3) as the meds do make you so tired, and the psychosis has not returned, have they researched at all being weaned off /scaled down of the meds while maintaining a healthy life-style and managing the anxiety /depression? Or is this really life-long meds?
    4) lastly: prior getting sick as a primary school kid, did you perhaps suffer anxiety /were you stressed about doing well /getting A’s or did your early achievements come to you in quite a relaxed, easy way? Just wondering if there was some anxiety prior ….
    Kindly
    Sonja

  • @cherylmiller2272
    @cherylmiller2272 2 роки тому +2

    Another great video! My son struggles with sleep, and anxiety. Just today his doctor added another antipsychotic med, so he has 2. We're hoping it will help with the voices he's hearing. That's his main problem. Thanks again for your superb work.

  • @abrandnewvoidchannel4364
    @abrandnewvoidchannel4364 2 роки тому +3

    That was an excellent point towards the benefit of mental health and illness awareness. In the Canadian education system, we did not really touch base on topics related to our mental health until our senior year. The only chance that I had to learn about mental health was from a Grade 12 Psychology class. I hope there is far more awareness on some of these issues in society.

    • @SurvivingSchizophrenia
      @SurvivingSchizophrenia  2 роки тому +1

      Thank you! I hope so as well! Thank you also for all your comments and joining me on my journey

  • @pamc7307
    @pamc7307 2 роки тому +2

    You two are awesome! Keep up the good work,to educate us.thank you

  • @markussjostrom3699
    @markussjostrom3699 2 роки тому +2

    Hi Steve and Stephen
    Greetings from Sweden

    • @SurvivingSchizophrenia
      @SurvivingSchizophrenia  2 роки тому +1

      Thank you very much for watching! I would love to visit Sweden one day! Have a happy and healthy rest of your day!

  • @kzl7711
    @kzl7711 2 роки тому +1

    Great job with the UA-cam channel! I appreciate you sharing your experience with us. It take so much courage👍

  • @johnv1176
    @johnv1176 2 роки тому +3

    thanks guys, great video, I can relate

  • @barbaramartinetti
    @barbaramartinetti 2 роки тому +3

    Informative video. Interested in your diet, beyond sugar, salt and alcohol avoidance. Your videos have helped me enormously as a mom of a similar son.

    • @SurvivingSchizophrenia
      @SurvivingSchizophrenia  2 роки тому +2

      Thank you! I try to eat regular and healthy meals, while trying to limit my food intake at night.

  • @congguo4429
    @congguo4429 2 роки тому +1

    thank you for your video

  • @catherinemccarty2307
    @catherinemccarty2307 2 роки тому +2

    I was wondering....do you ever mourn the boy who was lost to schizophrenia? I was in my mid-20s when I was diagnosed so I had a lot of life experience and education and I miss the person who I was then. I'm not able to work a traditional job either. i'm in my 50s now and I try to do whatever side jobs I can - those I can do when I am not in an episode (like translating/writing/office support for my brother...etc.) It sounds like you aren't experiencing hallucinations right now. One thing I am interested in is how people deal with ongoing hallucinations and separate reality from psychosis. I use my phone a lot to do reality checks...i sort of take a pic then look on the phone to see if its really there. Do try to check on vitamin B12 shots...you will be amazed!

    • @catherinemccarty2307
      @catherinemccarty2307 2 роки тому

      ohhh one more thing... I would love for you to cover the list of meds and foods that are contra-indicated for people with psychosis. You guys mentioned grapefruit and antihistamines. I have been taking benedryl for many years now. It used to be a common drug suggested by psychiatrists. Now I am wondering....

    • @SurvivingSchizophrenia
      @SurvivingSchizophrenia  2 роки тому

      Yes I do mourn the life and person I was before my schizophrenia. I think about it every day even though I don’t want to and actively try not to. Thank you for your kind comment!

    • @catherinemccarty2307
      @catherinemccarty2307 2 роки тому

      @@SurvivingSchizophrenia I have never given that point of view much thought but you might be right...maybe embracing who she was instead of always thinking about what I missed out on might be a healthier way to think of things. Can you tell I'm stil working on the therapy part of my diagnosis. Thank you for the insight.🙂

  • @Katejournalsofjunk
    @Katejournalsofjunk Рік тому

    I know this is an older video but I would love to know how you or maybe your parents told and explained your diagnosis and how symptoms effect you to your extended family including your cousins. I know you enjoy spending time with them. I’m guessing they understand and support you. Thank you for all your videos.

  • @maryplacencio6350
    @maryplacencio6350 2 роки тому +2

    Hi Steven I gained a lot of weight on respiridone now I am taking abilify and I am not gaining more kls but I can not lose weight I am so depressed I got my diagnosis of schizophenia in 2020. What can I do?

    • @SurvivingSchizophrenia
      @SurvivingSchizophrenia  2 роки тому

      Thank you for sharing. I can’t give any advice on that. Thank you for joining my journey!

  • @rafatfarooqui3982
    @rafatfarooqui3982 2 роки тому +2

    very informative

  • @riseabove3133
    @riseabove3133 Рік тому

    Very helpful. Thank you!

  • @ishadow6044
    @ishadow6044 2 роки тому +2

    I overdo coffee and take Zyprexa hopefully that’s not too much

  • @hayleyprice8345
    @hayleyprice8345 2 роки тому +2

    Well said

  • @thuhatran1013
    @thuhatran1013 2 роки тому +1

    What other medication beside Clozapine control your psychosis? And why you need second medication? May I ask?

  • @user-wb2yv7ll9d
    @user-wb2yv7ll9d Рік тому

    Stephen, do you ever listen to music? I'm curious how that works with folks that have schizophrenia. Is there any music that sounds good to you? Thanks in advance!

  • @sandywhat2429
    @sandywhat2429 Рік тому

    So wait a minute, how long after the camping trip did the schizophrenia start?

  • @c.marmion8430
    @c.marmion8430 Рік тому

    Nice dad. Very supportive..

  • @lenovovo
    @lenovovo Рік тому

    Just wondering, you having schizophrenia and all, is it possible for someone like you to have an intimate relationship with another person

  • @Denise.lussier01
    @Denise.lussier01 Рік тому

    You make me understand myself so much!! I’m have different diagnoses. I’m proud of you! I wish I had suck a support system! Your dad is bad ass!! 💕💕💕

  • @yoga_iaini
    @yoga_iaini 2 роки тому +1

    Congrats for your grade! 🤍 Have you consider practicing yoga? The practice of a dynamic yoga such as vinyasa or ashtanga and simple conscious breathing may help with the anxiety and depression symptoms, it also helps to cultivate body awareness and grounding and improves cognitinion. And yoga nidra it's and interesting resource that may help with sleep issues as well 🤍

    • @yoga_iaini
      @yoga_iaini 2 роки тому

      There is some debate wether meditation is safe in cases of schizophrenia, so I would avoid it. Check if yoga nidra and yoga asana are safe, I do think so, specially the asana pratice, but just in case 🤍

    • @shri4867
      @shri4867 2 роки тому

      Can it be cured by yoga and meditation???

    • @SurvivingSchizophrenia
      @SurvivingSchizophrenia  2 роки тому +1

      Thank you for your comments!

    • @yoga_iaini
      @yoga_iaini 2 роки тому +1

      @@shri4867 I haven't done such an statement. But I do believe that a dynamic yoga practice with simple conscious breathing (more complex pranayama is not recommended in this case, neither meditation) can help by improving mental health and cognition in general. There is recent scientific evidence that confirms that, as suggested by neuroscientist Nazareth Castellanos, among others.