My Disability || charcot marie tooth
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- Опубліковано 10 вер 2024
- ** i will have a seperate video up next week answering your questions as i had a brain fart and did not include it in this video.. if you have any other questions be sure to leave them below **
›› Even though a was diagnosed 7 years ago, I still struggle every day with my diagnosis. However, I just keep carrying on and hope this video reaches those that need it. I went through my diagnosis alone and didn't have anyone to really relate to. I also hope people don't see this as me complaining etc, i'm simply sharing my story and how it effects me.
›› Hey, my name is Sophie and welcome to my channel! I post all sorts of equestrian videos like show vlogs, training videos, barn vlogs and more. If you want to keep up to date with me and the horses then be sure to hit that subscribe button :)
›› My Horses:
Eddy: 16.1hh Bay 19 yr old standardbred gelding
Penny: 14.1hh Brown 17 yr old standardbred mare
Chilli: 15.2hh Chestnut 7 yr old thoroughbred mare
Wonk Donk: 15.1hh Bay 5 yr old standardbred mare
›› Social Media:
Email (Business Inquiries Only): halfhalt92@gmail.com
Instagram: @pow.equestrian
Facebook: Ponies on Wheels - Домашні улюбленці та дикі тварини
You keep on keeping on, you are such an inspiration to everyone who has a disability. I have spinal stenosis in my l4 and l5 I have ridden horses all my life you inspire me to go after my dreams NEVER GIVE IN AND NEVER GIVE UP
What a gorgeous girl and so positive
I actually loved the frankness of this video. I'm searching for information on CMT and you are the first that I've seen that I can relate to more. I'm still older than you, but am wondering if I will be a later in life diagnosis of CMT. I would love to find more of your videos. I will be looking, tomorrow, right now I have to finish getting my class ready.
This makes me so happy to read! Hope you're doing well, if there is anything you'd like me to make a video on let me know :)
You're so brave 💙 I honestly admire your determination on you doing what you love. And although it may get you into more trouble when you over work yourself, it's incredible to watch and read and hear all about it.
Thank you! 🥺 I love seeing your comments all the time, it really does mean the world. Like most horse we are forever in trouble anyways haha
I feel this so much 😭 having to change what we want in life because of chronic illness is so disheartening. I wanted to break in horses as a career but have had to face the reality it’s just not going to happen.
I definitely grieve the person I was. Could go and ride multiple horses a day, compete every weekend, work crazy hours and not have to think about how it would affect me over the next weeks.
Having people who understand the importance of not overworking ourselves and listening to our bodies is so so so important!
It’s taken 20 years to find someone who will listen to me and not say I’m mad. In less then a month I’ll hopefully have my long overdue diagnosis of Ehlers-Danlos syndrome.
So much love for you Gemma, I'm keeping every crossed you can get that diagnosis soon x
You are a dead set legend. So happy to have found your channel! Keep it up!
Chronic illness fucking sucks. I have Cystic Fibrosis which affects my breathing, digestive system, and energy levels. I relate so much to this video, it can be really difficult trying to find your way in the world when each day is a struggle. I think people often forget about the mental health aspect of chronic illness, it's a lot to deal with esp when you have physical symptoms from another condition. You're doing wonderful things, you have a voice and you're sharing your experiences with a lot of people. Kinda funny, I'm actually moving into vet nursing next year! I'm super keen to work with animals and start a career that actually accommodates my health, unlike literally every other job i've ever had. I tried to do the working student thing too, but it absolutely wrecked me and I could barely function (especially in the hot AUS summers)
Hi I have Cerebral palsy i was wondering if you have an NDIS plan i used to work for them I'm really sympathetic to the neuromusculars as my friend had muscular dystrophy
Yes! I am currently under NDIS - I am thankfully very well supported.
First of all, I absolutely love how honest and real and to the point you are! Second, I’m so sorry that you’ve got CMT, it sounds like an awful thing for your body to have! 🥺❤️
I don’t have CMT, however I struggle with extremely weak knees, and Likely early onset arthritis, as I struggled with being a very heavy weight as a really young child. Which in turn, put lots of pressure on my weak knees, the doctor believes what I’ve got is called patellofemoral. I don’t need a wheelchair or anything major thankfully! However I completely relate to you when you said about how it causes you’re mental health to turn to shit and to have no motivation, confidence or will to live anymore. 100% agree, I’ve struggled for quite a while with my mental health. Not to mention owning horses can do two things, triple the pressure, pain, and stress you already feel, or take it all away! ❤️
I also have a few ponies with health issues, 2 with laminitis, 1 with Arthritis, 1 that was a free rescue, that costed me $1500 in vet bills, and the rest are just fat money munchers. And I don’t even ride any of them! Most of them are too small for me, as I’m a plus sized rider. Which also heavily affects my mental health as 90% of horse people no matter the discipline, are “skinny” or in general fit, because horses certainly keep you moving! 😅
I actually also wanted to be a groom/stable hand! As I’m not interested in competing, I’m not a good rider anyway. And I’m not good Enough in school to become anything better like a vet.
Anyway, apologies for the massive message. Thank you and I appreciate it if you read the whole thing 🤣
Anywho, I love your videos. Definitely make more if you could, please. ☺️
I'm so sorry to hear your silly knees hold you back. I had an MPFL (Medial Patellofemoral Ligament) reconstruction probably around 2 years ago now and it was the best thing I did, but I assume you're probably aware of surgery options and it may not be viable.
There is always plenty of options for study as well, perhaps horsey journalism is right up your ally or even equine nutrition since you mention laminitic ponies!
I hope you're doing ok, my instagram DM's are always open to anyone that just needs a chat or a vent x
I don't have CMT but I have EDS/POTS/GP/Spinal instability and I can SO relate on not using my aids because I don't want to be seen as weak. People treat me differently when I use them and I kinda would prefer people to think I'm not as disabled as I am because they see me without aids rather than them perceive me as weak because I use them. It's something I'm working on.
It's been great following your journey (it's been at least 3 years now, I won a comp of yours in 2017 for some hoof balm... that's how I remember lmfao) and you do amazing!
I remember that giveaway! HAHA $40 aud in postage for a tiny tub of hoof balm. and from that moment on I decided to hold AUS only giveaways..
It's so good (well bad!) to hear someone else is conscious of their aids. People definitely see an aid before they see the person usually and it bugs me to no end!
Thank you for being such a loyal subscriber, I always see your username pop up in my comments and it means the world x
Feel this! I had a career as a racehorse and sporthorse groom for 15 years till I got diagnosed with a chronic Illness/disability and had to give it all up 😑 I'm still trying to find what to do with life 🤣but I'm old as heck now so who knows 🙈 I haven't been able to ride for years and I don't know if I ever will again or not