Let's SMASH Spasticity!
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- Опубліковано 19 тра 2024
- In this video I teach you how to SMASH Spasticity!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
I learn more from these videos than from my own doctor. Thank you so much!
I learn more from these videos too but wait he is my doctor =)
But we still learn more from a boster video even with him as our doctor cause he can talk about more in them
Since Apts are on a time crunch but still u be surprised how much dr b can cover in an appointment
Godbless
Sincerely,
Cynthia larsen
Thank you for this topic! There are few worse things than a calf cramp that won't quit! Especially in the middle of the night.
I was having terrible cramps in my left calf that would wake me. I take magnesium during the day and thc edibles at bed. The cramps were very persistent and wouldn't leave me be. So, I found some magnesium cream on amazon. I apply the cream at bedtime every night. It's been my salvation.
What kind of magnesium do you take ? My doctor recommended magnesium oxide but I read that other types might work better?
thanks! I'm gonna look for this!
What cream do you use?
@@Edhymbss21I take oxide myself. I don’t notice it does much though. I tried to take glycinate but it messed with my stool consistency too much unfortunately. The majority of spasticity issues that effects my quality of life is in my pelvic floor which causes a world of other issues when it’s too tense such as gastroparesis, motegrity that I’m on helps but not when my pelvic floor is super tense. Haven’t found anything to really work with it yet. I may end up going to botox route
Take the edibles and legit get a delta 8 pen (northern lights is great for pain, sleep and anxiety). For real, these doctors don't actually know what we go through. You gotta mix & otherwise it's not going to help as much. It sucks. I hate it. Good luck ❤
Thank you for this video, Dr. Boster.
Oral Baclofen only does so much for the spasticity in my left arm and both thighs. I take 240 mg of magnesium glycinate in the morning and at night. Helps tremendously with bowel movements, sleep, and overall attitude. I feel lucky to be able to walk under my own power. The head part has been the hardest. Just finished my second year of Mavenclad. It's rough on my mental state. Last summer was the worst, for so many reasons. Knowing what I know, I'm working to keep from going through the insomnia that was so horrible last year. Determined that low dose Naltrexone made my mental state worse, so I took myself off last year and my head is mostly my own again.
I can't tell you how much I hate this disease. Thank you for helping to find a way through it all.
I’m going to try this thank you. I agree baclofen only does so much and sometimes nothing at all.
How does that dose of glycinate affect your stool if I may ask? I tried a low dose in the morning, 120, not long ago but it made my stool too firm to get out. My spasticity is in my pelvic floor which can cause me to get easily mentally drained and gastroparesis. The motegrity I’m on helps but not when my pelvic floor is super tense. But I hear so many are on glycinate so that’s why I tried it then.
This was so helpful for me! I was just diagnosed with RRMS and I’m trying to find ways to help my spastic muscles. I appreciate you sharing this with those of us who are new to MS. 🙏🏻
Nice video. My experience is people don't have great results with CBD alone. Nabiximols (Sativex), approved for treatment of spasticity in Europe, contains 2.7 mg THC and 2.5 mg CBD. It's possible to get a similar formulation in the US (I am in California where it is legal). Of course, THC has its own side effects and is not necessarily better tolerated than baclofen/tizanidine.
CBD does not help my cramps. Luckily I discovered THC does. I also take Mg/Melatonin/GABA prior to bed. Godsends but only last while they are in mysystem.
About 6 months ago I started alpha lipoic acid. It *seems* to be healing, not just treating my cramps! (All other symptoms unchanged.)
Thank you Dr Boster - this is awesome 😊 comprehensive and informative 🔥🔥❤️🔥🔥🔥
I did a year of neuro physio for my spasticity, and it did help a lot. Mornings are the worst, but I was shown by my physio how to do simple stretches so I could eventually start trying to exercise, as the stiffness was too much. What helped the most was aerobic exercise, I started to use the spin bike at home - and this was a game changer, but I have to do it daily for 30mins minimum to get a days worth of relaxed limbs.
Excellent addition to our arsenal of spasticity fighting weapons.
#StrongerTogether
🔥🔥🔥🧘♀️🥼
You’re a good man.Thank you ❤
I appreciate that
The arches of my feet cramp so much easier now... even when moving a bed comforter.
Spasticity causes so many problems. My bad side is on the right. This makes the left side work harder to compensate for the right.
This causes problems with the left.
I hurt like hell.
I time every thing I do out, use mindfulness, exercise, stretch, and more. I get sciatica. On the left.
My "good" muscles are overworked. I'm not using baclofen right now. I didn't care for it because it did nothing for me over a two month period. I dropped it. Today I went to my neurologist and begged for Flexaril (sp?) just to loosen those funky muscles. Now take I have taken one, I feel 70% better. What I have noticed without the pain not due to MS being gone is I am all loosely all over the place when I "walk". I have muscle memory loss and I know it for sure.
Is there any way you would consider doing a video on muscle memory loss and multiple sclerosis?
Thanks ever so much.
i feel like death in morning.. takes about 1 hour stumbling to get to point where i can move in something which resembles walking! stretch exercises on bedroom floor?? starting the morning with incontinence issue would really make the sun shine for me! by the time i stretched and cleaned my urine spills up, i would have to lay down and rest for about an hour or so.........
Stretching, Neuro PT, and Chiropractic are my go-to. I wake up every morning starting all over again with doing all the prior things in order to keep walking. Like you say, movement is key. Thanks for the video.
I found these tips very helpful.... except the "getting on the floor to stretch" part....sorry but I've had PPMS since 2018....if I get on the floor....I AIN'T getting back up without help. Bending is not my "thing" anymore....I even had to get the "lace less" shoes...so I could still put on my own shoes... because I can't tie them.
My spasticity manifests itself as stiffness but also intense and persistent pain and a pre-crampy sensation. Nothing seems to help with the pain. Not sure how common this is as the descriptions of the symptoms don't seem to tally with my experience.
Howdy…Thank you Dr B for all you do 😁🔥🔥🔥🔥
You are so welcome
Thank you for these educational videos, they are so helpful in explaining to others about MS.
One of my chief complaints and honestly first noticeable symptoms...
As an Arizona Native, being self aware in your surroundings and mindful of your body's needs is vital to Symptom Management.
Stretching and staying moving now a decade later has helped me come so far... I can tell ya, the days I don't stretch or go for a walk, I pay for in the end...
Might as well kick MS in the @$$ 💪🏽🦵🏽
I have to deal with spasticity on my right leg and also had a right leg hip replacement. Stretching has been key to avoiding unnecessary pain and had to take my oral baclofen often. ❤
I love all of your videos. Thank you for all of your education. You've helped me so much. Thank you!❤
I took notes while watching this.
Thanks doc!!👍👍
Glad it was helpful!
Thank you I seem to have bad spasticity if I'm mega busy moving or stressed 🤯
Castor oil and weighted laps are helping me. SPms and chair bound
Thanks Dr B!
Stiff limbs.. and spacticity sucks.. so thanks...
I get them all the time in the arch of my right foot- btw it is slowly becoming foot drop - btw I where an ASO
I've been watching your vids for some time. I've recently had bloods done as my legs were so bad. Apparently I have Vitamin D Toxicity. Love to stretch.
Hey, you nailed my duty complaint. 🎯 Spend all morning stretching, all evening too - sometimes 3-4 30 minute chair exercise classes a day, all types. Never liked pills, but I would consider one for a night's sleep. And I only take 100 mg. magnesium per day, never considered trying 2 x 400. 🤔
I get hip spasms that wake me up during the night 😢🇨🇦
Thank you Dr. Boster, this information is very necessary!!!!
The legs not bending started in early July of 2023 for me. I'm out in NJ. When my legs started not bending when it was too hot and humid; my feet started swelling and burning SOOOOO bad at night. I really need you as a specialist. No one is really helping me and I'm progressing
Great video, this is what I suffer with most. I will up my stretching game for sure
I stretch and I get leg cramps.
It feels good to stretch, but then the cramp comes and then it's like NOPE, I'm not going to feel too good, today.
Thank you! I had heard about magnesium on the forums but so happy you confirmed.
Thank you so much for this video Dr. B. Having spasticity stinks!
I take Baclofen (20mg in pill form 3x daily) to help but I still have serious spasticity. I do stretch throughout the day and it really does help, but it seems that as soon as I stop, the muscles tighten up again. I could go up to 30mg but it will make me feel loopy, and that’s not good when you’re at work.
Bomb information Dr.! Can learn from you all day long! Thanks for being you!
Is choking a part of spasticity ?
The foot arch cramps are the worst!!
THANK YOU VERY MUCH, DR. BOSTER, FOR THIS FANTASTIC, INFORMATIVE VIDEO!
Thank you so much for this video
Great information. Thank you!
Awesome video again Doctor Boster Thank You 😊
Thank you for all you do.
Very informative
Hi from Israel thanks for the informative video mooving as much you can and massage every day is helpful
Yoga worked awesome
I love your videos - thank you for sharing this information. I actually tried Baclofen - and will probably need to someday go back on it - but it was really hard on my GI tract. I am actually taking Cymbalta (90 mg) a day to help with the spasms. I have noticed a big improvement - and it has helped my depression as well.
Love my baclofen pump! Game changer
Yay I was your 1k thumbs up!
also I agree "stretching"
like doing lunges or I used to before my cancer got worse and stretching is the difference between my Arm going to the ceiling or it being stuck at the half way point ....
Guys keep stretching it really is the best way
U would be surprised just how much a little stretching does.
If u think u can't or ur too tired even just doing a yawning stretching even helps
I do this with my legs and arms every time I get up
Ps
I use slow mag n it really helps
(Way less spasms n can move better)
Godbless you
Sincerely
Cynthia larsen
# we have m.s. but not alone
#boster 💪 strong
Thank you so much for this informative session.
Glad it was helpful!
@@AaronBosterMD I will get out more on the powerchair as the vibrations will help as a substitute for exercise. I am lucky to have carers to help with passive physio which helps so much.
I'll be getting around with shorts T-shirt at zero degreees celcius because not only am I less crippled I start to watch summer symptoms vanish. There was a short pereiod when cold weather affected me. I got over that and so should you. (Might be hard if you still eat carbs)(
This is bad in my left leg. The cold has cause frozen knee 3 times being hospitalized
I use Bacolfin, and it works great for my leg. It just makes me really dizzy.
Great information 🙂 But I wonder what is your opinion about intrathecal cortisone against spacicity in the legs? I was offered to try it.
I find when I'm low on hydration I have more issues
Dr Boster thanks for this recording I have been stretching and it has been helping a lot I do have a question though what can I do for hammer toe if you could help me out on this I would really love that thank you
Thank you for the excellent presentation in this YT Video, Dr. Boster! I assume that post-stroke patients (including me) who experience spasticity, would benefit from your recommended protocol? I take 20 mgs of Baclofen in the morning with 200 mgs of Kal Magnesium Taurate and at night I take 20 mgs of Baclofen with 200 mgs of Kal Magnesium Glycinate. I had been taking 20 mgs of Baclofen 4x a day, but I have slowly decreased the Baclofen. My night time spasms have largely dissipated, so I credit the combination of Baclofen with the Magnesium Glycinate.
Hello , just been diagnosed last year, trying to understand the symptoms and how to manage them
Hey Dr. B! I wanted to reach out to you and see if you could do a video on childhood MS - presentation, risk factors, treatment (holistic as well) and anything that can be done for prevention if family member has MS (mom) My 5 year old has had some intermittent symptoms that are pretty troubling since she was about 18 months. I know it's very rare in this age range. Bilateral fingers and hand contractures, intermittent limping episodes, vertigo/dizziness running into a wall, chest wall pain and various joint pains. All symptoms come and go and I had her evaluated by neurologist and rheumatologist - all labs WNL. But curious your thoughts on MS in children in general and if it's possibly underdiagnosed
What is your opinion of my doctor using Buprenorphine for pain?
Sadly I have tried just about everything including Baclofen and Zanaflex for spasticity and found the side effects just add even more problems without much relief.😥 Keep on truckin
Hi Dr Boster! Does it have to be mag oxide or can it be any other formulation like glycinate?
Thank you Dr Boster! 🧡🧡🧡 Re baclofen, even at 5mg this med would make my weakness and mobility significantly worse. I need it especially at night but end up taking an Amprya at bedtime so I have movement but it obv can affect my sleep... Is there a way to use baclofen and not have this worsening effect?
Right leg spasms once a day or every other day and left occasionally. Tried Baclofen didn’t work, Pregablin side effects, Diazapam didn’t work, Botox didn’t work, Tizanadine made me sleepy and Sativex still didn’t work. So at the moment I just have to go with the ride. Don’t know of any triggers, happens any time of day, whether lying down or sitting. Do you have any other suggestions I could discuss with my neurologist here in the uk? or am I just destined to suffer as my receptors are no good.
I have a question about stretching in the morning. My physical therapist told me never to stretch "cold" muscles, as they could tear, he likened it to trying to stretch cold taffy. So I'm confused if I should warm up a bit first before any stretching, especially in the morning?
What are the herbal potions and lotions you are talking about?
Hello! Could you please tell if rrms always turn into spms? I have read several articles. Majority of them state, that 80 percent of people with rrms get spms eventually. Is that really so? And are the diet and excises additionally to dmt helpful to prevent this transition?
Are you aware of the treatment of the brain with FES functional electrical system, with a brain implants, can be a viable treatment for MS or other diseases?
Which magnesium do you think is best? My neuro recommended Oxide. But on the forums everyone says something different.
🤟🏻🤟🏻🤟🏻
Off topic ; you are sitting in what I think must be the slowest construction project I’ve ever seen. Looked the same last December when we were visiting you . Useful video,.
I have had what they believe to be bells palsy 3 times . I feel like the tension or spasticity " moves " and tightens the harder im trying to think ? Is that an M S sign ?
Can Botox be given for lower back spasms?
Can Flexiril be used as a spascity tmt option?
I went to my ms doctor because I have double vision only when i look side to side. He didn’t care much and refused to give me steroids, so I went to the ophthalmologist and he said that we don’t give steroids in this case, knowing that I have multiple sclerosis and it may be a relapse. No one cared much about this, and now, a year and Five months later, I am still suffering from it and it has never gone. This worries me very much because i read the symptoms may last weeks to 6 months not a full year and half. What should I do? How can I make it improve? It really bothers me. Double vision is an annoying and frightening thing. I’m newly diagnosed just 2 years ago if the double vision was a relapse i didn’t know but i went to them they don’t give me anything.
Hello.
I cache cold but l loose all my functions and mobility, specially my feet. Whar should i do???
Off topic but, besides many other ms related symptoms I find that sometimes I can be doing the most mundane thing like eating or trying to sleep and my FACE will start crying or laughing. Real tears and all. But my emotions don't agree, and I don't understand why it's happening. Is this a symptom, is it normal?
ua-cam.com/video/3Tkdu843C0k/v-deo.htmlsi=yMcu1Wu-5iPmEzsN
Any spasticity medicine I take, is a falls risk and you know... after watching this, I may try it again, not where I'm already crashing into everything, but with meditation... ok but I'm not very hopeful. Nothing in this video is. Sorry.
I just injur and reinjure myself to successfully keep things active and muscles tones. The challenge to is to accept 2 steps forward 2.5 steps backward.
There are drugs that would work. Nothing like the path offered here. If I knew I'd be taking them, and all I need is an expert who actually studies what the chemical reactions are. I'm sure it's not hard, plus there is a buck to be made, so we'll see.
Why can't we just take GABA?
it would probably get broken down in the gut while baclofen won't.
🛌👩🦽🚶♀️🏊♂️🏃🚴♀️🤸 🥳
Thank you Doc for incredibly effective protocols 🙏