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I have had seizures since highschool but my mom never believed me. My last nicotine patch, which was causing seizures, I realized I really do have PNES. I have CPTSD and DID.
Seriously thank you for making all this information easy to access for the public. You have legitimately helped me stop smoking high TCH vapes and weed in general so I can stop these seizures, get my license back and change my life. Getting through the depressive stages is a LOT easier when you have an understanding of what is going on and that these feelings are only temporary.
I was diagnosed with PNES in 2014 follow the death of my mom, due to a lot of stress & anxiety I experience these seizure like activities. So many doctors in the ER’s have told my family & loved ones I was faking & needed to be hospitalised in pysch instead or would yell at me & rough me up telling me to stop wasting the time of doctors and nurses while treating me very horribly until I met my neurologist who explained to me why my body was experiencing PNES. Thank you for this video I truly wish more doctors and medical care “professionals” knew about this or took the time to learn about it.
I have been experiencing these due to Long Covid. 🙏🏼💗 Thank you for sharing your experience. The medical system needs to stop gaslighting us-it’s adding to these anxieties that cause it!
That heart breaking reading your story. I was diagnosed with these types of seizures. I'm medically fragile, on a ventilator, tube fed, legally blind, and have a slew of other medical conditions, and have since birth. Well, a few weeks ago, I was admitted to the ICU because of seizures, and they did many many evaluations, and heavily sedated me on Propofol. They told Mom that it was Psychogenic, and when I woke up, they were telling me that this was called Psychogenic, and I started accusing them of accusing me of faking seizures, and come to find out, that's now what they were saying. These were things I could not help. I'm still dealing with the PTSD from that last hospitalization. It was HORRIBLE! I've had many many hospitalizations, but this was the worst! And yes. Due to health deterioration, I have had a lot of stress the last year. It's been really bad!
I was diagnosed in 2007 and suffered with seizures until 2021, people never told me i was faking (if you have seen a full convulsive seizure you cannot say somebody is faking that) but after dozens of scans on my brain there was no sign of epilepsy, so what was the problem? After many years of seizures and many different tablets i was diagnosed with PNES! Im now seizure free and medication free but only because i completely changed my lifestyle and outlook on the trauma that was causing the problem! Anybody out there suffering with PNES just know there is a light at the end of the tunnel!
“They are not faking “…. “they cannot respond” …. “Non-epileptic seizures are real conditions and need to be treated appropriately”. I have been suffering since brain injury in 2018. I found your words validating and comforting, thank you.
I cannot tell you how much I appreciate these series of videos. A little over a month ago, I started having "panic attacks" that involved a sort of disassociated fugue state, deep, painful vibrating throughout my entire body, and then my tongue, lips, and legs go numb, and my arms tighten, my fingers lock up so tight it feels like they're going to snap, my hands are immobile, and it's hard to think or speak. Sitting makes it worse, standing seems to quell some of the "vibrating" feeling. I've been very scared, and my family is worried--I've been taken to the ER three times already, and I had a few more episodes that passed without medical assistance. My doctor says it's not a panic attack, my psychiatrist says it's not a panic attack, but the ER doctors said it was. I have a referral for a neurologist at the Michigan Neuroscience Clinic, and I'm really hoping to get some help. I can't drive, it seems to happen in the car frequently. It's become debilitating and these videos make me feel less....alone? More understood? Thank you very much Doctor.
Omg, I could have written this. I've been through a lot of tests and my neurologist keeps saying nothing is showing up on them, but I'm going to be on the lookout for a new one. Mine was related to PTSD and extreme stress where we were living, so I contacted a psychiatrist and MOVED out. Almost every symptom started reducing in frequency and intensity.
Have your spine looked at especially your cervical spine and Atlas bone. You may just need to have an adjustment. The Atlas bone could be pressing into your brainstem. There are arteries that run thru here that are the main blood supply to the the brain. Think of the brain stem as the Hdmi connector to the spine and brain. It sends out all signals. If bones are not in proper alignment then issues can arise. I'm not a chiropractor but someone with epilepsy that also had a car accident as well as was attacked by someone that picked me up by my neck and slammed me to the ground choking me. I've had a concussion and man hands around my neck vertebrae. Blunt force trauma will cause misalignment. Find a chiropractor that specializes in upper cervical adjustments. They should do xray and exam before working on you.
I lost my job and had to drop out of school because it was brushed off as panic attacks for a year. My neurology appointment is still 3 months out and I need help sooner
If you feel as if you have been misdiagnosed with PNES, I urge you to PLEASE find an epileptologist. I was told by 4 neurologists and 2 ER doctors that I had PNES. I went undiagnosed with temporal lobe epilepsy for years until I finally had a major seizure where I lost totally awareness and consciousness. I found an epileptologist in the largest city closest to me and he performed an VEEG and I had numerous seizure spikes and it actually recorded 1 simple partial seizure while I was talking with the nurse. I have finally been diagnosed with Left and Right Temporal Lobe Epilepsy. I also have diffusion to my frontal and parietal lobes. I experience both simple and complex partial seziures. No one would ever listen to me because of the label PNES on my medical records. I sat in many waiting rooms suffering from epileptic seizures because they "looked like PNES".
I had to fight for my own life because even being taken my ambulance to the ER, I was only put back into the waiting room after they put something in my IV and I could hear them say they weren’t equipped to help me. I was having them back to back, eyes rolling, couldn’t move and finally started crying in fear for them to help me. After 2 neurologist, the 2nd one did an EEG but I wasn’t having an episode. He just told my husband that I needed to distress. My new primary was able to get a diagnosis in his write up. It’s crazy how I’ve had to advocate for myself and still fighting. They used their fists in my chest and it hurt so bad!!!
I was misdiagnosed with PNES because my primary presentation is focal aware seizures w/ secondary generalized. Started to notice deja vu’s along side an unexplainable feeling; like a spiritual awakening or being on the cusp of realizing something very profound! I would tell people that I “don’t feel right and am scared”. Then I’d get quiet. I was still aware of my surroundings.They said it was anxiety/dissociation. Went to a psychiatrist who ordered therapy and antidepressants. My partner called an ambulance after my first tonic clonic. They almost didn’t bring me in, assumed I was on drugs because I was agitated. They FINALLY figured out I have epilepsy when I had a tonic clonic seizure that same day, in the ER, witnessed by medical staff. & got an abnormal EEG. I’m now on a high dose of lamotrigine, and my seizures are controlled for the most part.
I have major Dejevu prior to my seizures. I have a full video of one of my seizures. I looked awake and talked rubbish of people stealing and chasing my friend. I looked like I was chewing gum and kept saying I didn't feeI well. This seizure lasted 22 minutes until I was aware I had lost memory. I also had a seizure in my sleep and broke my back. I chewed my tongue quite a bit during that one. MRI/EEGs are all clear. I am under high stress and have had great loss of a child and grandchild. Could be stress induced but very strange I have had both jerking and alert seizures. Note: I drank Ayahauska for PTSD (4 time) prior to onset of seizures. I've read one other person that had this happy. Did the Ayahauska open up wounds we cannot handle? Question: Do you think microdosing psychedelics could help or induce the seizures? They greatly help with the PTSD but will not mix with all the meds they have me on now. Another thought... Could it be mold-induced Thank you for any follow-up you may have. I am happy to share my video with you. @@DrOmarDanoun
Currently working through testing to find out if my attacks are epileptic. My neurologist and I agree that it's unlikely- my attacks don't fit the profile of epilepsy. I have fibromyalgia, anxiety+ depression, and a dissociative trauma disorder. I appreciate this video a lot
the trauma disorder could be encouraging your seizures as it's a part of large amounts of stress. as well as your anxiety and depression if it's consistent. all of those emotions and trauma definitely aren't good for healthy neuron activity, but i dont think that would explain why your seizures started in the first place.
I was diagnosed with epilepsy in may of 2023 after my 3rd seizure. @DrOmarDanoun your videos have been an amazing help to understanding what is happening. I can not thank you enough for the valuable insight you have given me. Thank you
Thank you for this video! I'm a nurse and I found this very helpful as I see a lot of both epileptic and PNES and it is not always black-and-white what is going on. Great information for healthcare professionals!
I appreciate that you mentioned normal EEG in some cases of nocturnal seizures. My husband has most of his seizures falling to sleep or at the first part of the sleep cycle. They are focal aware for the most part, with every few years proceeding to a tonic clonic. The EEG shows something only on a sleeping EEG. Not sleep deprived, by the way, that is negative. He has had very good control on his current meds.
Thanks to you Dr Omar and your Staff at the EMU at Henry Ford Main Hospital. On November 7 I was admitted for a Long Term EEG. Thank you to the Nurses and Medical Assistant and Monitoring Staff for during a Great Job and being so Kind to me. Dr Omar Thank you for finally given me my final diagnosis. 🙏🏾 Please forward this to them I only remember a few names Pam and Shaylynn and the ladies behind the camera 🤷🏽♀️😁
@@DrOmarDanoun What if a person has BOTH types of seizures? My niece who is 27 (started at 12 with Seizures) she has Epileptic AND Psychogenic seizures. She lives with me and I can tell the difference in them. She is on Keppra for 14 years but doesn't seem to help. She has been to MANY specialists. MRI's, sleep studies, etc. Some seizures do not register any electrical abnormalities and some do. What treatment would help her??
I have been having these types of convulsive seizures since March 2022 sometimes with a Hemiplegic migraine and sometimes without. I've been through several different Specialists,had many tests performed along with video EEG and was finally given a diagnosis of Functional Neurological disorder in March this year. Along with that I've now been diagnosed as having functional seizures and have been referred to a Special functional seizures clinic for treatment of this extremely debilitating condition. I have a wonderful Neurologist and Headache Specialist who are helping me to take back control of my life. I value these videos so thank you for sharing them. I will also point out that I have Patent Foramen Ovale detected in March this year in association with the migraines and have had CPR performed 4 times from stopping breathing during these types of convulsive seizures.
I can not come out of my PNES seizures for up to 2 to 3 days sometime to the point that I have had to be Life Flighted 2 times to a a university hospital specializing in brain and spine. I was an extremely abused child to the point of a broken neck, a caved in skull, and I survived multiple attempts of infanticide. I can always tell that I am going to have a seizure before it happens because I see what I can only describe as a psychedelic light show starting up to a few hours before the seizures onset. I have these lights appear in my vision intermittently almost daily for short durations on and off. The most regular one is sets of blue waves of light rising one after another in the far left of my left eye only. I have had total loss of vision except peripherally, with vertigo a few times too preceding a seizure. It is just lights out, and then I wake up. No pain, no after effects. Just lights off, then lights back on, with a bunch of unknown doctors and nurses looking down at me? I have had to have trachial intubation, and be put into a chemical coma on occasions too.
@@DrOmarDanoun Thank you. Life is what you are dealt, but most importantly what you make of what you have. I am a very successful and happy person despite my health problems. I figured out as a young man that I could be weak and make excuses, or be strong and be as happy as possible. I chose the latter. Now I have 6 successful children, 11 grandchildren, and 3 great grandchildren!
I am so sorry and I feel your pain! My daughter 39 has been intubated 10 times and has a trach for 6 months what is the treatment? We are in hospital now
I've had PNES... But 1. Ive had them in sleep 2. I bite my tongue every time (but I am missing teeth on one side) 3. I have hurt myself passing out and my face hit a wood stove 4. never happened at doctors office 5. What is ASM's? I understand it is not easy to figure out and most doctors don't know the difference. Thanks for your informative videos.
ASM is antiseizure medications... The way to make the diagnosis is to do the epilepsy monitoring unit at an Epilepsy center to be sure like we explained all these signs are relative
I am exploring if I have PNES, my EEGS have been normal, but I have bit my tongue 3 times now, twice in my sleep, the first time I was awake but my injuries say I fell and hit my face off something, and then took me a full hour to realize I had put my teeth through both sides of my tongue
@@katrinabearinger7694 Hi, Did it also mess up your Memory?... Im 2 years in and just found Doctors that understand.... I started with my Doctor making appointments for MRI for blood clots or brain damage, then EEG to make sure it is not Epilepsy, I passed those test also..... then in Colorado, I had to set up my Doc with a Therapist with CBT therapy who both came together for a Psychologist who gave me meds, just 30 days ago.....Trauma was the main cause for me, Stress, unfortunate events, separation from children .... 68% of people with PNES had panic attacks in there past, 44% of those cured there PNES with Diazepam (valium) and CBT therapy, good diet and Exercise... I here Hypnosis can help but expensive... So I was prescribed Gabapentin for daily use and Valium (not much fear of addiction) for times of stress but mostly for deep therapy sessions.... Its hard to find Doctors to give proper meds, we had to go through Psychologist, took me a year and 1/2 to get Doctor who was familiar with PNES, Hope you can do it in less time with this information. ... I am 50 days Seizure free going for 90 days.... My average was every 42 days for last 2 years to this point... Stay mellow, drop people or places that stress us out. Sorry so long but, I think my experience can help others, open for Ques.... Its sooo lonely having PNES when nobody understands
@@thelymewarrior What other kind of Seizure you know of? Since this original post... I am still working on the PNES with docks ... Just realized I had a Hernia Mesh implant 2.5-3 months before my first ever Seizure.... It feels like I am having a allergic reaction to the mesh by having seizures, not infected, but cant find a neurologist with experience to recognize the difference between Allergic reaction and Infection, after the many tests there is no infection but Ive read Allergic reactions can come with Seizures, but not show up on CT scans, MRI or EEG...I had no idea how bad our health care is in the States, they will put my mesh in but they wont take it out. I have seizures avg. of every 45 days for 2.5 years. Had to stop my life and just prepare for Seizures, loosing house ( I flat out owned) now cause I cant pay my Tax bill on time. I am forced to rent it and find a place to live, I think they want me living in a Box next to the road before I get disability or assistance.
When I was in the EMU unit they took me off of all of my meds and I did not sleep for 4 days no joke they couldn't figure out why but I did have a couple of seizures and I got diagnosed with PNES and PTSD and conversion disorder and even though I take heart medicine before I go to sleep in case of a panic attack it doesn't stop the night terrors. But it does keep my heart in check.
My husband has hemiplegic migraines but he also has random spasmodic movements with vocalizations. His arms and torso jerks and he has a vocalization. It's not consistent with Tourette's but that's the most similar reference we have. It doesn't occur with any consistency but I do think it's a comorbid condition linked to the hemiplegic migraines and ptsd. I'm at a loss trying to find anything that comes close to what's happening. The non psychogenic myoclonus ptsd seems to be a close description but... truly. I had to research for years to find out there was such a thing as hemiplegic migraines, which he's had since I've known him and have progressed over time since I met him in 1994. It's difficult to catch them because they're so random but I'll work on that. These movements don't last for more than a second.
Wow I've had fibro for 15 yrs and started experiencing siezures about 8 years ago. Mine are repetitive movement, blacking out, spacing out annd some twitching. Oh and falling! I will walk or pace in circles for hours when in one and will fall repeatedly. They can last days! I go in and out of consciousness and only remember little bits. We were able to realize they were brought on by stress because they mostly occurred during a fibro flare when I was in horrible pain or during or a few days after a disagreement with someone. So iys interesting to see in ur chart that it's known for fibro and pnes to happen together. I Didn't know that! But it makes sense! When ur in that much pain and that amount of stress your brain just shuts off to try and relieve you of that stress. The brain is a crazy thing! Just wish more doctors were understanding and believed in it
I have both. Which can happened due to traumatic brain injury. Partial complex focal seizure with secondary generalization. But I am conscious in some seizures and then some I am not. Yes, my body hurts so much. When I wake up; I am confused and feel like I am drugged. I pee on myself sometimes cause my legs are weak.
I will be going for video eeg in a few weeks... Mine can last up to 8 hours. Lack of sleep is always a trigger. Whenever I was taken to the ER the doctors were clueless and just sent me home. This video is very reassuring...if you're taking new patients let me know.😊
I have frontal lobe epilepsy, and I have a forced fearful cry, without tears, at the beginning of my seizures, that lasts literally seconds, like less than 5 seconds. Then I convulse and what to me feels like my body slowly becomes tonic. I have an official diagnosis by a great epilepsy group in New Jersey, yet I still struggle with doctors at emergency departments, who try to give their own diagnosis of PNES. Because they don't show up on EEG, so they'll say, "Well, the EEG didn't say anything, and given your history of PTSD, it's most likely PNES." It's very frustrating, and scary. Before I was put on the correct med for my seizure type, I would have them in clusters and they'd be refractory to emergency meds, but now that I'm on the correct med, I only get auras before my menstrual cycle and I was prescribed a rescue med, just in case. I really wish doctors who don't specialize in this, would stop trying to make their own diagnosis, when I already have a diagnosis by a specialist, some doctors rely too much on the machines and not their own judgement I think.
100% Feel yeah. I get the same thing 15 years after a frontal lobe concussion. I kept getting misdiagnosed with narcolepsy/cataplexy etc. due to extreme sleep disturbances in the past. I finally had couple years to where I could function so went and did the sleep study and it was negative for sleep apnea and narcolepsy. Then things started to flare up again. My PCP suspected a brain tumor because it got really bad really fast so he ordered MRI. Like it wasn’t anything sleep related. The MRI ruled out a brain tumor but there are mass WM lesions in Parietal/frontal area where they meet. Around in there. At first it looked like complex migraines but with some stroke symptoms and some other stuff that didn’t quite fit in. So he put me on seizure meds. I still need to get EEG done but been trying this medication. In the meantime, things have been improving but also getting weirder at the same time. And also making sense of the past. Like the physical sensations I’m having are from the Parietal lobe. Like it’ll feel as if my finger tips are smashed by a hammer and my feet are caught on fire suddenly at the same exact time. Weird stuff. Crawling, prickling, etc. Now when it seems to move to the frontal, it looks different in the daytime if it happens vs at night. I’ve noticed that. And it can also impact my awareness differently. Either losing time completely or just impaired awareness it seems. But at first it was just staring and facial twitching which I thought was a migraine. But then that Ictal pouting started. Def not a migraine! It’s like someone turning my head and forcing my face to be sad even though I’m not
But I had history of sleep walking and all kinds of weird crap in the past so I don’t even wanna know what goes on when I’m actually sleeping. But it seems to act up while I’m still awake before I actually fall asleep and before I wake up which wakes me up out of a dead sleep
JUST 👏🏼 BECAUSE 👏🏼 THEY 👏🏼 ARE 👏🏼 NON EPILEPTIC 👏🏼 DOES 👏🏼 NOT 👏🏼 MEAN 👏🏼 ITS 👏🏼 PSYCHOLOGICAL 👏🏼 ‼️ **This can cause SEVERE medical gaslighting, medical trauma psychological abuse and PTSD in patients who have legitimate organic neurological causes to their seizures where the root is not psychological and is organic. Infections, chronic illness and diseases, encephalitis and encephalopathy are some.** Yes, both are real but think of it as an equivalent of being told your lung cancer is just a common cough or cold. You wouldn’t want to be misdiagnosed or ignored. Grouping fibromyalgia as a sign is ridiculous.
I have been diagnosed with PNES but my seizures last about 3-5 minutes, they wake me out of my sleep starting as a body spasm and then it may stop or it will turn into a full convulsing seizure. I have bit my tongue tip a few times.
@@DrOmarDanoun I recently had my Second seizure in the car as I was jerking my arms I went to the hospital my anxiety was so high I did have a seizure in the car but I don’t remember it I’m doing fine now I’m on medication haven’t had the jerking
i have been diagnosed with Pnes a few years ago, i only have ever have seizures in my sleep, when i first had them i wondered what the hell was happening to me, i used to suffer with bad migraines when i was at school so because i had bitten my tongue during the first attack and it felt numb, i just assumed it was a migraine. I was wrong, it took a while to figure it all out, appointments, MIR scan, epilepsy medication, to be honest i was less stressed before i knew i had this, now i just worry sick every night, the feeling of it coming on , it usually wakes me up and feeling paralysed is so awful to me, it just makes me cry. I also bite my tongue a few times which stops me from eating where it’s so painful, i do suffer with right arm twitches before i get a cluster of seizures aswell.
Discovered during my EMU stay last year that my original seizure type was incorrect, so I'd been getting treated for complex-partials for 8 years (by my prev. neurologist) when I was having myoclonic and generalized tonic-clonic. Thankfully, the epileptologist who ordered the EMU stay got me on different meds and my seizure count has reduced from hundreds a week to a few per day. We also learned I have nonepileptic seizures, too. So, that was a plot twist none of us expected.
My sister is going through seizures and even the doctors can't recognize them... Her EEG says 3hz spike and wave and is abnormal but her MRI is normal. She also shows nearly all signs of the non-epiliptic seizures (due to family issues she has been through alot) and she has a history of epilepsy when she was only about 2 years old. She is 11 right now. Kindly If possible so do guide me as me and my family are really worried about our little angel's health. Lastly, Please do pray for her... *btw, this is her channel, she uploads videos her on our supervision*
I have been diagnosed with both. Epileptic and Non Epileptic seizures. With so many different opinions they tell me PNES is calm and spazzing that’s it, but told me epileptic seizures were hardcore. Hitting shaking arching my back all that stuff so idk what is happening. I have been seeing a neurologist since I was 12. I’m confused
My son has a rare form of cerebral palsy called Schizencephaly. He quits breathing and we’ve seen his pulse ox gets down to around 46. If we don’t get him Xanax sublingually. He dies. He’s 30 now. Median age for a schiz kid is 20. He’s completely changed my and my families life for the better. Since tegretol came out with extended release and Depakote have been wonder drugs for us.
I keep waking up too early these past few days and now I’ve woken so early with the worst sore arms. I have a lot to do today and I just have to push through.. I’d love to see a person have an actual seizure during their sleep to know what it looks like
I have recently been diagnosed with Wilson’s disease. I was diagnosed by my genetic Doctor Who also tested my Family for the gene. I also have non epileptic seizures. I was recently told by a new neurologist that my non epileptic seizures weren’t caused by Wilson’s disease. But, I strongly believe it’s from the Wilson’s disease. I’m so confused. 😩
My child is suffering from all this symptoms you have mentioned of nonepileptic seizure, I have done brain MRI and EEG and the results are okay... I'm confused doctor what can I do because the episodes are frequent during the day?
Have a partner diagnosed with pnes as part of a larger condition, but they recently got an eeg because their new neurologist was suspicious. The results are in apparently but I swear we can’t get ahold of ANYONE. It’s frustrating because although their seizures are very specific and consistent, they don’t seem to match any known presentation I can find, including psychogenic. The closest I can find are myoclonic seizures. It’s the same tense rhythmic jerking of limbs (shoulders and head in their case) but their movement is rapid, and they lose consciousness, and I’m 90% sure they either stop breathing or intake very little oxygen
Have been experiencing seizure like activity for going on 5 months now. Still haven’t figured out what’s causing. Three EEGs have all been normal. No history of trauma, anxiety or depression, but the neurologist default to PNES just because of the EEG. Very frustrated.
I had seizures 2 times and I consulted a doctor..he didn't find anything wrong. I have triggered anxiety and stress related to personal life..and I think I have non epileptic seizures..(because of this stress). I would like to know more about what you're going through..because we have this same case. I've gone through a lot!🙃
@@jayshriraval4590 my doctor also couldn't find anything wrong he said that I might have a form of PTSD from the hunting accident but I was diagnosed with PNES
@@jayshriraval4590 it's okay I honestly shouldn't have even told you this it's nothing personal I need to forgive and forget honestly that's part of why I had the seizures I just stress about everything sometimes you just got to get up and move on
My seizures are as you described for being difficult to detect on EEg. I have physical sensations that usually occur on one side of the body..Facial twitcing on one side. Arm jerking on one side. I also have frontal lobe ones where I wake up to a hallucination and I automatically scream. I had an aura with rising in my stomach and felt spacey and then had an arm jerk episode at my last neurologist appointment. I think it happened twice. I don't lose consciousness and I can speak, but sometimes I forget words or can't pronounce some things. They last maybe a few seconds each. But, I usually have them in clusters. Aftward, I get weakness on the left side that causes me to be kind of unsteady. My neurologist told me they do not look like seizures. You only talked about shakes in the video, but do people with PNES have what feels like a partial seizure and retain consciousness? Thank you for doing this series. It is extemely helpful.
I get these too, and they picked up an interictal wave on mine in ther right frontal lobe. Mine are well controlledwith neurontin and topamax.@@nicolejohnson829
I have the same type seizure disorder. I was diagnosed PNES a few months ago after suffering with what looked to be a partial stroke on my left side, then trembling all over my mouth begins to twitch then drooping of the eye lid & mouth, left arm draws close to my chest. But I am aware of what is happening but can’t speak.
Can you have both? If so how would some tell while at home. I've watched this person have 2 or 3 back to back but have seen the other that don't add up.
My seizures are nothing like what's being described. I get panicked, fall to the ground, lose the ability to move and vocalize loudly. Lasts maybe 2 minutes. Then i will typically vomit after. They are happening more when I sleep. My MRI and EEG were normal. Im going to a new doctor in December.
I was diagnosed with JME at 16 and managed to get it under control for 11 years then all of a sudden the seizures came back. Luckily I have been seizure free for 2 years now but the neurologist thought I might have non epileptic seizures as well but no one’s ever managed to record one. So it’s confusing
I had a seizure about a month ago, and I don't know if this seizure was epileptic or psychological, my heart was beating very fast and my eyes were closing gradually, then I lost consciousness and had a seizure like the one at 2:32, and I bit my tongue and when I regained consciousness, I discovered that he was bleeding, but the seizure lasted for a minute or a little less, and it was not 5 minutes or more. What is your explanation for this issue, Dr. Omar, and thank you very much ❤
It is best to see the neurologist instead of my perspective. If it gets repetitive it can be epilepsy but if it's happened only once it's likely a nonepileptic or the beginning of developing epilepsy. You can develop epilepsy at any age in life.
I have tonic-clonic seizures and I do not have an aura. I was diagnosed with epilepsy. I have done all the tests available and with the VEEG my neurologist was able to confirm. Mine come front lobe.
This is strange my seizures are a little strange, my most recent seizure happened during sleep however i had bit my tounge as well it still hurts. so based off of this video i cant really diagnose it because i have had both symptoms from both sides of your chart at the beginning of the video, however most symptoms are pointing towards epileptic which is strange because i've done an ekg, no brain damage or anything, i still have one more neurologist appointment to go to.
I am considered to be an person with epilepsy. I take meds and they have gotten better but I was told I look like the one of the example cases when I have a seizure. Doctors don’t take me seriously my neurologist diagnosed me earlier this year and I have been taking keppra. But I have up to 30 in I 3 day period could someone please help me!!!
I have a question! I have been diagnosed with both PNES and Epilepsy. I can usually tell which is which when it happens. I'm wondering how common it is for Epilepsy patients to also have PNES. I'm assuming the PNES with people who have anxiety and chronic pain conditions is a stress response I'm curious to see if this is also true with epilepsy as it is also a very mentally and physically draining condition
I have MS and I get seizures every 3-4 months, epilepsy was diagned and I was commently told that my seuzyres was because of my MS and I would alwas get MRIs and a bunc of white spots shoul on my brain scan I always thought that was becuase of the damages. ty for the cideo.
I first started having Petit mal seizures around 11yrs old. Then when I was 13yrs old I had my first grand mal seizure. Within a year I was having countless seizures. I had an eeg and monitored for one day in a children's hospital. The doctor diagnosed me with epilepsy. In my early 20's I had heard about pnes. I decided because my diagnosis had been quick. I would get a second opinion just I case I really didn't have epilepsy. I spent a week in hospital being monitored with eeg and camera. They said I had a focal seizure. I don't remember having a seizure in hospital. I didn't know what a focal seizure is? They explained it, but i can't remember what they said? I still don't know what a focal seizure is? My anti seizure medications was changed. I kept having seizures. So the nuerologist had me come back to the hospital, stay on my medications, and be sleep deprived (4hrs sleep every night) The doctors and nurses at the end of the week said they saw I had another seizure. I don't know when. I was diagnosed with epilepsy again. The neurologist said they don't use the terms grand mal, and Petit mal seizures anymore. He told me the two new names of seizures I have, and the name of a condition I have after a seizure in which I am completely paralysed for less than a minute.
I would like to have an appointment with you Dr Omar. I suffered of nocturnal zeisure. For many years. I’m depressed don’t know what to do. Take lomatragine 300 mg .
How can I identify seizure behaviour during sleep in comparison to dream movement? My daughter has focal seizures during the day along with absence seizures and secondary generalisation. I've been monitoring at night and I've noticed she will randomly sit up and tap the wall multiple times then go back to sleep. Or she will do like the macarina hand movements (hard to explain)
EXCELLENT TEACHING DR🙏🏼🙏🏼🙏🏼. In PNES-usually semiology of seizures like GTCS with some characteristics. >>>>Few doubts Dr 1.,Any PNES has semiology of Focal Seizures without LoC? 2.In PNES usually Eyes closed. Any possibility Of ATYPICAL PNES> Eyes opened &Starring eyes look ,short duration PNES. 3.Any possibilities of slow waves in EEG of PNES Patients due to hyperventilating. 3
There is no one sign that is universal. The neurologist should put everything together to make the diagnosis. EEG slowing in hyperventilation is normal
I think I'm prone to this when I've got hormone stuff going on coming into time of month. I can have one from leg cramp, upset or taking medication that didn't suit me like amatriptylene
hey dr omar love the video I have non- epileptic seizures but am also currently being going through more testing as I was admitted to hospital after having what doctors say was a possible epileptic seizure. With my seizures they present a lot like epileptic seizures and when ive been given anti-epileptic medication it has worked. Doctors also say during PNES most of the time your oxygen doesn't change, I was intubated because my oxygen during my seizure went down to the high 60s! what do you think?
I was misdiagnosed with these until family could describe the and a neurologist in my hometown understand the TCs were just random. They’ve not them on EEG but he said that wasn’t uncommon in people with epilepsy cause I wasn’t in an event. The morning one’s annoy me. They last for like 10 seconds but still annoying. They monitored me at the university hospital in Lubbock for like 3 days but I didn’t have any seizures. Lol so I was like no. My tongue was all bit up to the point the back left side almost through it. Woke up confused and legs were numb and soooo tired. I had ONE once that was 30 minutes but it was not a PNES. Ugh I kept telling mom that I hadn’t had one. One minute I was talking to my mom, and the next, I was arguing with her about it. Not sure what set it off but my eyes were open and rolled up and the shaking was rhythmic in my arms and legs. That was horrible. My mom has been taught to recognize a seizure and yeah. She had no idea it was an emergency. I’m really really lucky. I hope those with this condition know PNES it is a seizure and that it just doesn’t happen from brain electrical stuff. You Al aren’t crazy, and no neuro should EVER make you feel that way. Your condition is valid and distressing and if your neuro has been making you feel that way. Please find another, more compassionate. The seizures are very real but can be treated more easily than epilepsy. Mine are currently intractable since we haven’t found the right med for me. Dilantin, tegratol, keppra and phenobarbital and gabapentin… too horrible side effects, which is kinda normal with a lot of medications. I’m weird I guess. 😂 Anyway sir, thank you for your compassion , empathy, and kindness to those who have PNES. I hope those patients who you work with with this can find comfort and peace and understand they’ve done nothing to cause them and that they have a real condition, but much hope to stop them. Huge hug y’all and I wish the best of everything for y’all.
@@DrOmarDanoun I try to. I felt very alone when we were trying to figure it out. Sorry for the typos. I have been awake for 4 days, because, insomnia. So I going through the twitches. (That is the term I use with my son. He is absolutely amazing. He is seven years old and knows exactly what he should do if I have a seizure. Luckily, it doesn’t frighten him and he knows it’s going to be OK after everything is over.)
@@shaniad1a7 I did, thanks to a neurologist who actually took time to listen. Lamictal lessens the tonic clonic seizures but the focal aware/unaware ones don’t seem to respond to them. Luckily, I have auras for both so I can get myself to safety with the TCs, even if that means lying down in the middle of the supermarket. 😂 the unaware ones for me are the scariest. I have been walking, totally miss my mom’s driveway, and ended up like 4 houses down or so. I have good neighbors who understand what is going on. I hope you have and awesomely awesome day!
Whenever my daughter is stressed and wakes up all night she has a seizure. Doc said it is because of anxiety and lack of sleep. MRI and EEG are normal. She takes anti anxiety pills. Will she have to take these medicines all her life ? She is taking therapy which is helpful.
In my sister's case 1. She only had them during sleep at night. 2. She bites her tounge every time . 3. Some times her seizure stopped around 5 mins some times seizures come again and again after 5 mins for 4-5 hours and we have to admit her in haspital. Please advise us what should we do . She is a mother of a son ( age 2 years ) . Her husband's family did not treat her well for that . We are from a poor family in India .
My daughter has been diagnosed with NEAD and she bites the inside of her mouth and bleeds a lot and loses control of bladder. I’m still questioning if she has the right diagnosis and is on epilepsy medication too.
I have seizures not frequently like 3 times a year and comes with crying, holding of head, shaking, it lasts like 10-15 minutes though I haven’t really had the privilege of recording it. I did the scans and came back normal but I do not know if it can be concluded as PNES though I have the symptoms similar. This year I not had any episode. So I would like your thought on this
I’ve been suffering with these for over 3 years and my drs have been very rude and told me I’m a liar as I live alone, and if I went to A&E they would send me away, and one said he could start me with antidepressants now, I eventually got to see a specialist and told it was non epileptic, but then left with no help or support, I’ve had a good few falls and smashed my face in a couple of times, I can have as many as 15 a day, I’m scared to go any where and scared to be on my own as no one will know if I’ve fallen and hurt my self
@@Rainbowqueen500 thank you for your kind words, a year later and I’m still being ignored and no help, it’s got worse in this time, now my body just jumps with out warning and goes on all night, I get hardly any sleep and I’m worn out
@micheldawnsummers1452 oh gosh that must be so frustrating! i’m in my thirties when my non epileptic seizures started, i always get a twitching arm around the same time (the right arm). My seizures have only ever happened in my sleep apart from one time. I have been a year and a half without any until the other week in october, they started again, i have been back to see the neurologist and thinks i might have Functional neurologic disorder, i have a lot of the symptoms.
@@Rainbowqueen500 wears me out, no quality of life any more, I hope you soon get sorted out and on the right meds with lots of help too, it’s not fare so many go through this alone x
Hi my brother has seizures and also my dad . both been told it’s not epilepsy and on medication but my brother is still having them even more now on the meds . Any advice ?
Hi. Dr. Omar. I am Watching All your videos and learning a lot from your videos. Thank you so much. I have a son recently starting to shaking during the sleep. started last November and symptom is getting worse. We did EEG twice and MRI done recently. Everything came out normal and doctor said they couldn't find anything wrong with tests. Checked with two doctors but both them said they can't do anything. I thought he has nocturnal seizures beginning because has seizure about 5 times a day during a sleep and 3 times are worse. Especially 3 hours before he wakes up. I want to show you a video clip if that's possible.
Hello Dr. Omar Danoun, I just came across your channel and it's very imformative. You've mentioned somethings I've never heard about, I also watched a video were you spoke about the Ketogenic Diet for helping your epilepsy. I've seen many doctors in my life and everytime I get an E.G.G. every doctor tells me it's a different kind of seizure, so I don't know what kind I have, all I can do is watch your videos and get your advice. I looked you up and seen that you work in Michigan and Flordia, I'm from Southern California; do you work with out of state patients like California or do you know any Neurologist as educated as you in San Diego, California? I have found some Neurologist here but they only work with children. Thank You for all of these amazing videos. Take care of yourself.
You're wrong because PNES stands for psychogenic nonepileptic seizures which means that you may feel as if you're having a seizure, but your brain doesn't have any electrical activity, meaning no damage is being done. I would know because i had a glial neuronal tumor that caused me seizures daily. Once it was removed, I was diagnosed with PNES.
Lol that chart with the differences... I've got about half of each column 😑 I've never had EEG leads attached while having a seizure and they're infrequent for me so I still have no idea what type of seizures I have 🤷
After seeing the symptoms, I have these types of seizures so how would you skip the diagnosis part and get to the treatment part? If I was to go into a diagnosis room, I wouldn't have any seizures because they only happen when I get extremely stressed out/ panic attacks/ sleep deprivation etc. While being in one of those rooms and hooked up to the EEG machine, is there a way to "stress" the patient to trigger a seizure?
Dr Omar You are most entertaining and relate to regular people like me. I have several questions. What percentage of patients do you normally see with PNES? Also, does taking Veneflexan cause non epileptic nocturnal seizures? What is the difference between a unknown convolution and PNES? Can you have Dystonia or dyskinesia exclusively at night mostly upon falling asleep? If a Unknown Convulsions doesn’t show up on overnight EEG brain study, should that person just accept they need treatment for PNES?
Great to know. Thank you for your education. I am still waiting for a diagnosis for What is unknown convolutions. That seems like a catch all term that could mean just about anything except you aren’t elliptic. Which the the very best news. People with seizures have my prayers. My heart truly goes out to them, and Thank you for everything you do to help them.
Getting a 2nd opnion from a different epilepsy doctor im being told i have pnes even though i have an adnormal eeg and the man literaly has me on no medication when im having seizures sometimes daily he has confirmed i have dual pathology meaning epileptic and non epileptic seizures but he completely ignores the epileptic portion i will be seeking a 2nd opnion
Can you have these in your sleep? While crying in your sleep? Arms being pulled up to you and stiff and not be able to wake up until it's over? But being able to hear what's going on around you?
PLEASE update your video - Dissociative Seizures are no longer called Psychogenic - it is so important that the correct terminology is used. Thank you.
THIS!!!!!!!!!!!! JUST 👏🏼 BECAUSE 👏🏼 THEY 👏🏼 ARE 👏🏼 NON EPILEPTIC 👏🏼 DOES 👏🏼 NOT 👏🏼 MEAN 👏🏼 ITS 👏🏼 PSYCHOLOGICAL 👏🏼 ‼️ **The reason why correct terminology is needed is because it can cause SEVERE medical gaslighting, medical trauma psychological abuse and PTSD in patients who have legitimate organic neurological causes to their seizures where the root is not psychological and is organic. Infections, chronic illness and diseases, encephalitis and encephalopathy are some.** Yes, both are real but think of it as an equivalent of being told your lung cancer is just a common cough or cold. You wouldn’t want to be misdiagnosed or ignored.
What country you in ??? Dissociative seizures are a type of nonepileptic seizure resulting from non-epileptic factors. They cause episodes of involuntary movements or behaviors. In the United States, doctors refer to these seizures as psychogenic nonepileptic seizures (PNES).
@@junipersnow1 the USA but the whole point is dissociative seizures aren’t always psychogenic. Can be autoimmune and not psychogenic/psychosocial which PNES implies. It’s just dead wrong and dangerous.
I've experienced All of these seizure phases and I've been having seizures for 8 years now and I'm 49 now and will be 50 in July of this year God's willing and why do they happen mostly in my sleep?also why does the brain machine always don't show nothing about my Brainwaves?
Am I understanding him correctly? A normal EEG reading will accompany a NON-epileptic seizure, whilst an abnormal reading (visible throughout the entire brain) will accompany an epileptic seizure?
Yes, EEG tests, flashing lights, weird sounds with electrodes to your head, try to trick your brain to have an epileptic seizures..... Negative result makes the doc look to PNES or other ways to look for Seizures from Root canals gone wrong, infection or allergic reaction to surgical procedures, including putting in Hernia mesh or foreign objects in body (leg break metal etc)
Question: I was diagnosed with lone PNES in september of 2023. Fast forward to a month ago, my new psychiatrist is in disagreement and thinks I might have both due to childhood epilepsy, abnormal EEG and a few other factors. My seizures represent what would be called an epileptic focal aware seizure that dont normally show on EEG. I was only in the EMU for 2 days back in september and because I also have migraines, psych put me on depakote. I'm currently on 1,000mg dose and have been 8 days seizure free. This is the longest I've been seizure free in over a year when this all started. My question is, does a response to an AED mean my initial PNES diagnosis was wrong?
I wasn't diagnosed with pnes or epilepsy but I don't know how to read a EEG and I wish doctors would explain to me about my EEG and I was monitored in a hospital for 3 days and I had 9 seizures. Seizures do cause me to experience anxiety and I know anxiety can escalate seizures. I had my dad video record the VEEG to have but I don't know how to read it because I'm tired of being jumped all over without a proper diagnosis
@@DrOmarDanoun I have a video of the time I was admitted to the hospital and I put the EEG on it. Not this UA-cam channel my other one with the same name but the other one has way over 200 followers Meditogofilm Production
My daughter has been dealing with this for over a month and has been in the hospital. Dr are telling us they don't know what's happening. She is like a stroke victim and can't walk or talk.
Hello doc. Good day. its been a year that my daughter started having seizure. It will actually occur when she is sleepy or any sudden sounds. what would be the best treatmrnt?
I literally want to stop taking my medication cause my doctors doesn’t believe I have epilepsy, but says my seizures are provoked .. I didn’t get you bring up the idea of PNES to him last time I got to speak to him. I’ve read that if your seizures are non epileptic that the medication doesn’t make a difference is that true ?
I do have a question. If anyone can give an opinion that would be most appreciated I honestly don't know what I have. I do have PTSD, trauma, and anxiety. I had 4 seizure in my life and ever since I had my first seizure i started having tremors throughout my body. Sometimes I can't even hold certain things. I even throw my phone- I drop things. I even fall down. Ever since I got on this medication it has completely stop my tremors. When I'm off it, it comes right back. They have done an EEG in the past. The results are, no Epilepsy. With my seizures i do remember sometimes falling right before. I remembered I could've breath each time when having one. Plus my vision was cut in half. I always bite my tongue to. Can anyone expect why I have tremors, and why I had those seizures? (Sorry if didn't explain well. I can't explain things accurately)
They have been monitoring for epilepitic seizures for over a year and every episode it's the same incident and all they do is give me more epilepisy medicine even though they've found nothing everytime they've monitiored me on an EEG. I'm getting irritated and I'm at the point where I don't even want to fall a sleep at night anymore bc this was suppose to stop once certain health issue was resolved and it hasn't and it's interfering with my education.
Thank you dr. Omar. My husband’s had seizures and it lasts 10min, but after he woke up it took him 7-10min to respond. He had the bite in the side and drawling. Is that considered a epileptic seizure or PNES? Thank you
I'm saying this here because I'm too afraid to talk about it but last year i got a panic attack so bad that my hands seized up and i couldn't move them and my tongue felt thick. lately I've been coping very badly with a lot of stressors and triggers and I think i had a small seizure in my bed a few minutes ago from anxiety and exhaustion . My back started paining and aching and i started getting my tics (i have a mild case of tourettes) and after that i started shaking and spasming on my back.... are these causes for concern and should i seek any help?
Had the video done had 7 of them got got diagnosed with non eplitic seizures the epileptic medication was making it worse got taken of epileptic medication xcopri went back to normal was taking a 1000mg Keppra twice a day made it worse started taking just 500mg Keppra bavk too normal Had a tumor removed and radiation scar tissue was reason for everything
✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment now (for age 16 years and older) appointment.dromardanoun.com/
In USA, please call the clinic
I have had seizures since highschool but my mom never believed me. My last nicotine patch, which was causing seizures, I realized I really do have PNES. I have CPTSD and DID.
Seriously thank you for making all this information easy to access for the public. You have legitimately helped me stop smoking high TCH vapes and weed in general so I can stop these seizures, get my license back and change my life. Getting through the depressive stages is a LOT easier when you have an understanding of what is going on and that these feelings are only temporary.
I was diagnosed with PNES in 2014 follow the death of my mom, due to a lot of stress & anxiety I experience these seizure like activities. So many doctors in the ER’s have told my family & loved ones I was faking & needed to be hospitalised in pysch instead or would yell at me & rough me up telling me to stop wasting the time of doctors and nurses while treating me very horribly until I met my neurologist who explained to me why my body was experiencing PNES. Thank you for this video I truly wish more doctors and medical care “professionals” knew about this or took the time to learn about it.
What were ya symptoms if you don't mind sharing.
That sounds like a terrible experience. I’m so sorry you went through that.
I have been experiencing these due to Long Covid. 🙏🏼💗 Thank you for sharing your experience. The medical system needs to stop gaslighting us-it’s adding to these anxieties that cause it!
That heart breaking reading your story. I was diagnosed with these types of seizures. I'm medically fragile, on a ventilator, tube fed, legally blind, and have a slew of other medical conditions, and have since birth. Well, a few weeks ago, I was admitted to the ICU because of seizures, and they did many many evaluations, and heavily sedated me on Propofol. They told Mom that it was Psychogenic, and when I woke up, they were telling me that this was called Psychogenic, and I started accusing them of accusing me of faking seizures, and come to find out, that's now what they were saying. These were things I could not help. I'm still dealing with the PTSD from that last hospitalization. It was HORRIBLE! I've had many many hospitalizations, but this was the worst! And yes. Due to health deterioration, I have had a lot of stress the last year. It's been really bad!
I was diagnosed in 2007 and suffered with seizures until 2021, people never told me i was faking (if you have seen a full convulsive seizure you cannot say somebody is faking that) but after dozens of scans on my brain there was no sign of epilepsy, so what was the problem? After many years of seizures and many different tablets i was diagnosed with PNES! Im now seizure free and medication free but only because i completely changed my lifestyle and outlook on the trauma that was causing the problem! Anybody out there suffering with PNES just know there is a light at the end of the tunnel!
“They are not faking “…. “they cannot respond” …. “Non-epileptic seizures are real conditions and need to be treated appropriately”. I have been suffering since brain injury in 2018. I found your words validating and comforting, thank you.
I have epilepsy due to traumatic brain 🧠 injuries. Caused mine do toa brain infection inflammation of the brain in the spinal cord.
I cannot tell you how much I appreciate these series of videos. A little over a month ago, I started having "panic attacks" that involved a sort of disassociated fugue state, deep, painful vibrating throughout my entire body, and then my tongue, lips, and legs go numb, and my arms tighten, my fingers lock up so tight it feels like they're going to snap, my hands are immobile, and it's hard to think or speak. Sitting makes it worse, standing seems to quell some of the "vibrating" feeling. I've been very scared, and my family is worried--I've been taken to the ER three times already, and I had a few more episodes that passed without medical assistance. My doctor says it's not a panic attack, my psychiatrist says it's not a panic attack, but the ER doctors said it was. I have a referral for a neurologist at the Michigan Neuroscience Clinic, and I'm really hoping to get some help. I can't drive, it seems to happen in the car frequently. It's become debilitating and these videos make me feel less....alone? More understood? Thank you very much Doctor.
This is me !!! Happened after a car accident ..working w drs currently looking forward to follow ups
Omg, I could have written this. I've been through a lot of tests and my neurologist keeps saying nothing is showing up on them, but I'm going to be on the lookout for a new one. Mine was related to PTSD and extreme stress where we were living, so I contacted a psychiatrist and MOVED out. Almost every symptom started reducing in frequency and intensity.
@@Steffi.EchoGraphixthis is me. updates???
Have your spine looked at especially your cervical spine and Atlas bone. You may just need to have an adjustment. The Atlas bone could be pressing into your brainstem. There are arteries that run thru here that are the main blood supply to the the brain. Think of the brain stem as the Hdmi connector to the spine and brain. It sends out all signals. If bones are not in proper alignment then issues can arise. I'm not a chiropractor but someone with epilepsy that also had a car accident as well as was attacked by someone that picked me up by my neck and slammed me to the ground choking me. I've had a concussion and man hands around my neck vertebrae. Blunt force trauma will cause misalignment. Find a chiropractor that specializes in upper cervical adjustments. They should do xray and exam before working on you.
I lost my job and had to drop out of school because it was brushed off as panic attacks for a year. My neurology appointment is still 3 months out and I need help sooner
If you feel as if you have been misdiagnosed with PNES, I urge you to PLEASE find an epileptologist. I was told by 4 neurologists and 2 ER doctors that I had PNES. I went undiagnosed with temporal lobe epilepsy for years until I finally had a major seizure where I lost totally awareness and consciousness. I found an epileptologist in the largest city closest to me and he performed an VEEG and I had numerous seizure spikes and it actually recorded 1 simple partial seizure while I was talking with the nurse. I have finally been diagnosed with Left and Right Temporal Lobe Epilepsy. I also have diffusion to my frontal and parietal lobes. I experience both simple and complex partial seziures.
No one would ever listen to me because of the label PNES on my medical records. I sat in many waiting rooms suffering from epileptic seizures because they "looked like PNES".
I had to fight for my own life because even being taken my ambulance to the ER, I was only put back into the waiting room after they put something in my IV and I could hear them say they weren’t equipped to help me. I was having them back to back, eyes rolling, couldn’t move and finally started crying in fear for them to help me. After 2 neurologist, the 2nd one did an EEG but I wasn’t having an episode. He just told my husband that I needed to distress. My new primary was able to get a diagnosis in his write up. It’s crazy how I’ve had to advocate for myself and still fighting. They used their fists in my chest and it hurt so bad!!!
I was misdiagnosed with PNES because my primary presentation is focal aware seizures w/ secondary generalized. Started to notice deja vu’s along side an unexplainable feeling; like a spiritual awakening or being on the cusp of realizing something very profound! I would tell people that I “don’t feel right and am scared”. Then I’d get quiet. I was still aware of my surroundings.They said it was anxiety/dissociation. Went to a psychiatrist who ordered therapy and antidepressants.
My partner called an ambulance after my first tonic clonic. They almost didn’t bring me in, assumed I was on drugs because I was agitated. They FINALLY figured out I have epilepsy when I had a tonic clonic seizure that same day, in the ER, witnessed by medical staff. & got an abnormal EEG. I’m now on a high dose of lamotrigine, and my seizures are controlled for the most part.
Interesting!
I have major Dejevu prior to my seizures. I have a full video of one of my seizures. I looked awake and talked rubbish of people stealing and chasing my friend. I looked like I was chewing gum and kept saying I didn't feeI well. This seizure lasted 22 minutes until I was aware I had lost memory.
I also had a seizure in my sleep and broke my back. I chewed my tongue quite a bit during that one. MRI/EEGs are all clear. I am under high stress and have had great loss of a child and grandchild. Could be stress induced but very strange I have had both jerking and alert seizures.
Note: I drank Ayahauska for PTSD (4 time) prior to onset of seizures. I've read one other person that had this happy. Did the Ayahauska open up wounds we cannot handle?
Question: Do you think microdosing psychedelics could help or induce the seizures? They greatly help with the PTSD but will not mix with all the meds they have me on now.
Another thought... Could it be mold-induced
Thank you for any follow-up you may have. I am happy to share my video with you. @@DrOmarDanoun
Currently working through testing to find out if my attacks are epileptic. My neurologist and I agree that it's unlikely- my attacks don't fit the profile of epilepsy. I have fibromyalgia, anxiety+ depression, and a dissociative trauma disorder. I appreciate this video a lot
Glad it was helpful
the trauma disorder could be encouraging your seizures as it's a part of large amounts of stress. as well as your anxiety and depression if it's consistent. all of those emotions and trauma definitely aren't good for healthy neuron activity, but i dont think that would explain why your seizures started in the first place.
I was diagnosed with epilepsy in may of 2023 after my 3rd seizure. @DrOmarDanoun your videos have been an amazing help to understanding what is happening. I can not thank you enough for the valuable insight you have given me. Thank you
Thank you for this video! I'm a nurse and I found this very helpful as I see a lot of both epileptic and PNES and it is not always black-and-white what is going on. Great information for healthcare professionals!
I appreciate that you mentioned normal EEG in some cases of nocturnal seizures. My husband has most of his seizures falling to sleep or at the first part of the sleep cycle. They are focal aware for the most part, with every few years proceeding to a tonic clonic. The EEG shows something only on a sleeping EEG. Not sleep deprived, by the way, that is negative. He has had very good control on his current meds.
Thanks to you Dr Omar and your Staff at the EMU at Henry Ford Main Hospital. On November 7 I was admitted for a Long Term EEG. Thank you to the Nurses and Medical Assistant and Monitoring Staff for during a Great Job and being so Kind to me. Dr Omar Thank you for finally given me my final diagnosis. 🙏🏾 Please forward this to them I only remember a few names Pam and Shaylynn and the ladies behind the camera 🤷🏽♀️😁
Glad to hear that.. Thank you. I will
@@DrOmarDanoun What if a person has BOTH types of seizures? My niece who is 27 (started at 12 with Seizures) she has Epileptic AND Psychogenic seizures. She lives with me and I can tell the difference in them. She is on Keppra for 14 years but doesn't seem to help. She has been to MANY specialists. MRI's, sleep studies, etc. Some seizures do not register any electrical abnormalities and some do. What treatment would help her??
@@thesinginsweep2259 I have this and take keppra I need help
I have been having these types of convulsive seizures since March 2022 sometimes with a Hemiplegic migraine and sometimes without. I've been through several different Specialists,had many tests performed along with video EEG and was finally given a diagnosis of Functional Neurological disorder in March this year. Along with that I've now been diagnosed as having functional seizures and have been referred to a Special functional seizures clinic for treatment of this extremely debilitating condition. I have a wonderful Neurologist and Headache Specialist who are helping me to take back control of my life. I value these videos so thank you for sharing them. I will also point out that I have Patent Foramen Ovale detected in March this year in association with the migraines and have had CPR performed 4 times from stopping breathing during these types of convulsive seizures.
I can not come out of my PNES seizures for up to 2 to 3 days sometime to the point that I have had to be Life Flighted 2 times to a a university hospital specializing in brain and spine.
I was an extremely abused child to the point of a broken neck, a caved in skull, and I survived multiple attempts of infanticide.
I can always tell that I am going to have a seizure before it happens because I see what I can only describe as a psychedelic light show starting up to a few hours before the seizures onset.
I have these lights appear in my vision intermittently almost daily for short durations on and off.
The most regular one is sets of blue waves of light rising one after another in the far left of my left eye only.
I have had total loss of vision except peripherally, with vertigo a few times too preceding a seizure.
It is just lights out, and then I wake up.
No pain, no after effects. Just lights off, then lights back on, with a bunch of unknown doctors and nurses looking down at me?
I have had to have trachial intubation, and be put into a chemical coma on occasions too.
Sorry to hear that
@@DrOmarDanoun Thank you. Life is what you are dealt, but most importantly what you make of what you have. I am a very successful and happy person despite my health problems. I figured out as a young man that I could be weak and make excuses, or be strong and be as happy as possible. I chose the latter.
Now I have 6 successful children, 11 grandchildren, and 3 great grandchildren!
I am so sorry and I feel your pain! My daughter 39 has been intubated 10 times and has a trach for 6 months what is the treatment? We are in hospital now
I've had PNES... But
1. Ive had them in sleep
2. I bite my tongue every time (but I am missing teeth on one side)
3. I have hurt myself passing out and my face hit a wood stove
4. never happened at doctors office
5. What is ASM's?
I understand it is not easy to figure out and most doctors don't know the difference. Thanks for your informative videos.
ASM is antiseizure medications... The way to make the diagnosis is to do the epilepsy monitoring unit at an Epilepsy center to be sure like we explained all these signs are relative
I am exploring if I have PNES, my EEGS have been normal, but I have bit my tongue 3 times now, twice in my sleep, the first time I was awake but my injuries say I fell and hit my face off something, and then took me a full hour to realize I had put my teeth through both sides of my tongue
@@katrinabearinger7694 Hi, Did it also mess up your Memory?... Im 2 years in and just found Doctors that understand.... I started with my Doctor making appointments for MRI for blood clots or brain damage, then EEG to make sure it is not Epilepsy, I passed those test also..... then in Colorado, I had to set up my Doc with a Therapist with CBT therapy who both came together for a Psychologist who gave me meds, just 30 days ago.....Trauma was the main cause for me, Stress, unfortunate events, separation from children .... 68% of people with PNES had panic attacks in there past, 44% of those cured there PNES with Diazepam (valium) and CBT therapy, good diet and Exercise... I here Hypnosis can help but expensive... So I was prescribed Gabapentin for daily use and Valium (not much fear of addiction) for times of stress but mostly for deep therapy sessions.... Its hard to find Doctors to give proper meds, we had to go through Psychologist, took me a year and 1/2 to get Doctor who was familiar with PNES, Hope you can do it in less time with this information. ... I am 50 days Seizure free going for 90 days.... My average was every 42 days for last 2 years to this point... Stay mellow, drop people or places that stress us out. Sorry so long but, I think my experience can help others, open for Ques.... Its sooo lonely having PNES when nobody understands
Just because it’s nonepileptiform does NOT means it’s psychogenic!!!!!
@@thelymewarrior What other kind of Seizure you know of?
Since this original post...
I am still working on the PNES with docks ... Just realized I had a Hernia Mesh implant 2.5-3 months before my first ever Seizure.... It feels like I am having a allergic reaction to the mesh by having seizures, not infected, but cant find a neurologist with experience to recognize the difference between Allergic reaction and Infection, after the many tests there is no infection but Ive read Allergic reactions can come with Seizures, but not show up on CT scans, MRI or EEG...I had no idea how bad our health care is in the States, they will put my mesh in but they wont take it out. I have seizures avg. of every 45 days for 2.5 years. Had to stop my life and just prepare for Seizures, loosing house ( I flat out owned) now cause I cant pay my Tax bill on time. I am forced to rent it and find a place to live, I think they want me living in a Box next to the road before I get disability or assistance.
When I was in the EMU unit they took me off of all of my meds and I did not sleep for 4 days no joke they couldn't figure out why but I did have a couple of seizures and I got diagnosed with PNES and PTSD and conversion disorder and even though I take heart medicine before I go to sleep in case of a panic attack it doesn't stop the night terrors. But it does keep my heart in check.
My husband has hemiplegic migraines but he also has random spasmodic movements with vocalizations. His arms and torso jerks and he has a vocalization. It's not consistent with Tourette's but that's the most similar reference we have. It doesn't occur with any consistency but I do think it's a comorbid condition linked to the hemiplegic migraines and ptsd. I'm at a loss trying to find anything that comes close to what's happening. The non psychogenic myoclonus ptsd seems to be a close description but... truly. I had to research for years to find out there was such a thing as hemiplegic migraines, which he's had since I've known him and have progressed over time since I met him in 1994. It's difficult to catch them because they're so random but I'll work on that. These movements don't last for more than a second.
Wow I've had fibro for 15 yrs and started experiencing siezures about 8 years ago. Mine are repetitive movement, blacking out, spacing out annd some twitching. Oh and falling! I will walk or pace in circles for hours when in one and will fall repeatedly. They can last days! I go in and out of consciousness and only remember little bits. We were able to realize they were brought on by stress because they mostly occurred during a fibro flare when I was in horrible pain or during or a few days after a disagreement with someone. So iys interesting to see in ur chart that it's known for fibro and pnes to happen together. I Didn't know that! But it makes sense! When ur in that much pain and that amount of stress your brain just shuts off to try and relieve you of that stress. The brain is a crazy thing! Just wish more doctors were understanding and believed in it
Medical gaslighting to group them together
@@thelymewarrior
What do you mean? Could you explain your comment? Are you a patient or health care professional? Thanks
I love coming to this channel to learn
Thank you.. Happy to hear that
I have both. Which can happened due to traumatic brain injury. Partial complex focal seizure with secondary generalization. But I am conscious in some seizures and then some I am not. Yes, my body hurts so much. When I wake up; I am confused and feel like I am drugged. I pee on myself sometimes cause my legs are weak.
I will be going for video eeg in a few weeks... Mine can last up to 8 hours. Lack of sleep is always a trigger. Whenever I was taken to the ER the doctors were clueless and just sent me home. This video is very reassuring...if you're taking new patients let me know.😊
I have frontal lobe epilepsy, and I have a forced fearful cry, without tears, at the beginning of my seizures, that lasts literally seconds, like less than 5 seconds. Then I convulse and what to me feels like my body slowly becomes tonic. I have an official diagnosis by a great epilepsy group in New Jersey, yet I still struggle with doctors at emergency departments, who try to give their own diagnosis of PNES. Because they don't show up on EEG, so they'll say, "Well, the EEG didn't say anything, and given your history of PTSD, it's most likely PNES." It's very frustrating, and scary. Before I was put on the correct med for my seizure type, I would have them in clusters and they'd be refractory to emergency meds, but now that I'm on the correct med, I only get auras before my menstrual cycle and I was prescribed a rescue med, just in case. I really wish doctors who don't specialize in this, would stop trying to make their own diagnosis, when I already have a diagnosis by a specialist, some doctors rely too much on the machines and not their own judgement I think.
This describes mine to a tee. My MRI and EEG came back normal. The neurologist just said PNES and sent me out the door.
Your experience sounds like mine. Oh my goodness. ❤
Hi. I don’t know if you’ll read this after so long, but can you tell me the name of that epilepsy group you go to?
100% Feel yeah. I get the same thing 15 years after a frontal lobe concussion. I kept getting misdiagnosed with narcolepsy/cataplexy etc. due to extreme sleep disturbances in the past. I finally had couple years to where I could function so went and did the sleep study and it was negative for sleep apnea and narcolepsy. Then things started to flare up again. My PCP suspected a brain tumor because it got really bad really fast so he ordered MRI. Like it wasn’t anything sleep related. The MRI ruled out a brain tumor but there are mass WM lesions in Parietal/frontal area where they meet. Around in there. At first it looked like complex migraines but with some stroke symptoms and some other stuff that didn’t quite fit in. So he put me on seizure meds. I still need to get EEG done but been trying this medication. In the meantime, things have been improving but also getting weirder at the same time. And also making sense of the past. Like the physical sensations I’m having are from the Parietal lobe. Like it’ll feel as if my finger tips are smashed by a hammer and my feet are caught on fire suddenly at the same exact time. Weird stuff. Crawling, prickling, etc. Now when it seems to move to the frontal, it looks different in the daytime if it happens vs at night. I’ve noticed that. And it can also impact my awareness differently. Either losing time completely or just impaired awareness it seems. But at first it was just staring and facial twitching which I thought was a migraine. But then that Ictal pouting started. Def not a migraine! It’s like someone turning my head and forcing my face to be sad even though I’m not
But I had history of sleep walking and all kinds of weird crap in the past so I don’t even wanna know what goes on when I’m actually sleeping. But it seems to act up while I’m still awake before I actually fall asleep and before I wake up which wakes me up out of a dead sleep
Useful for us working in the ambulance service. Thank you!
Glad to hear that!
JUST 👏🏼 BECAUSE 👏🏼 THEY 👏🏼 ARE 👏🏼 NON EPILEPTIC 👏🏼 DOES 👏🏼 NOT 👏🏼 MEAN 👏🏼 ITS 👏🏼 PSYCHOLOGICAL 👏🏼 ‼️
**This can cause SEVERE medical gaslighting, medical trauma psychological abuse and PTSD in patients who have legitimate organic neurological causes to their seizures where the root is not psychological and is organic. Infections, chronic illness and diseases, encephalitis and encephalopathy are some.**
Yes, both are real but think of it as an equivalent of being told your lung cancer is just a common cough or cold. You wouldn’t want to be misdiagnosed or ignored.
Grouping fibromyalgia as a sign is ridiculous.
I have been diagnosed with PNES but my seizures last about 3-5 minutes, they wake me out of my sleep starting as a body spasm and then it may stop or it will turn into a full convulsing seizure. I have bit my tongue tip a few times.
Thank you for sharing your experience
😒I'm so sorry you have to go through this
My sister long lasting seizure attacks and take epilepsy medicine
Are you completely sure that is nat epileptic?🤔
That you describe looks most of an nocturnal frontal lobe seizure more than PNES!❤
@@DrOmarDanoun I recently had my Second seizure in the car as I was jerking my arms I went to the hospital my anxiety was so high I did have a seizure in the car but I don’t remember it I’m doing fine now I’m on medication haven’t had the jerking
i have been diagnosed with Pnes a few years ago, i only have ever have seizures in my sleep, when i first had them i wondered what the hell was happening to me, i used to suffer with bad migraines when i was at school so because i had bitten my tongue during the first attack and it felt numb, i just assumed it was a migraine. I was wrong, it took a while to figure it all out, appointments, MIR scan, epilepsy medication, to be honest i was less stressed before i knew i had this, now i just worry sick every night, the feeling of it coming on , it usually wakes me up and feeling paralysed is so awful to me, it just makes me cry. I also bite my tongue a few times which stops me from eating where it’s so painful, i do suffer with right arm twitches before i get a cluster of seizures aswell.
Discovered during my EMU stay last year that my original seizure type was incorrect, so I'd been getting treated for complex-partials for 8 years (by my prev. neurologist) when I was having myoclonic and generalized tonic-clonic. Thankfully, the epileptologist who ordered the EMU stay got me on different meds and my seizure count has reduced from hundreds a week to a few per day. We also learned I have nonepileptic seizures, too. So, that was a plot twist none of us expected.
Yes best to see an Epilepsy Neurologist
My sister is going through seizures and even the doctors can't recognize them... Her EEG says 3hz spike and wave and is abnormal but her MRI is normal. She also shows nearly all signs of the non-epiliptic seizures (due to family issues she has been through alot) and she has a history of epilepsy when she was only about 2 years old. She is 11 right now. Kindly If possible so do guide me as me and my family are really worried about our little angel's health.
Lastly, Please do pray for her...
*btw, this is her channel, she uploads videos her on our supervision*
I have been diagnosed with both. Epileptic and Non Epileptic seizures. With so many different opinions they tell me PNES is calm and spazzing that’s it, but told me epileptic seizures were hardcore. Hitting shaking arching my back all that stuff so idk what is happening. I have been seeing a neurologist since I was 12. I’m confused
Hi Dr. Danoun. I really appreciate your videos; I consider them to be great learning tools. I’m most interested in PNES. Thank you very much!!!
My son has a rare form of cerebral palsy called Schizencephaly. He quits breathing and we’ve seen his pulse ox gets down to around 46. If we don’t get him Xanax sublingually. He dies. He’s 30 now. Median age for a schiz kid is 20. He’s completely changed my and my families life for the better. Since tegretol came out with extended release and Depakote have been wonder drugs for us.
A very helpful video, thanks!
I keep waking up too early these past few days and now I’ve woken so early with the worst sore arms. I have a lot to do today and I just have to push through..
I’d love to see a person have an actual seizure during their sleep to know what it looks like
I have recently been diagnosed with Wilson’s disease. I was diagnosed by my genetic Doctor Who also tested my Family for the gene. I also have non epileptic seizures. I was recently told by a new neurologist that my non epileptic seizures weren’t caused by Wilson’s disease. But, I strongly believe it’s from the Wilson’s disease. I’m so confused. 😩
Mine manifest as a few hours of not being able to move anything except my eyes, can’t react or talk but am completely conscious.
I haven't worked from I had My first seizures and that is basically 8 years 😊😊
Yes my son just had one in his doctor's office today
My child is suffering from all this symptoms you have mentioned of nonepileptic seizure, I have done brain MRI and EEG and the results are okay... I'm confused doctor what can I do because the episodes are frequent during the day?
Beautiful work doctor
Have a partner diagnosed with pnes as part of a larger condition, but they recently got an eeg because their new neurologist was suspicious. The results are in apparently but I swear we can’t get ahold of ANYONE. It’s frustrating because although their seizures are very specific and consistent, they don’t seem to match any known presentation I can find, including psychogenic. The closest I can find are myoclonic seizures. It’s the same tense rhythmic jerking of limbs (shoulders and head in their case) but their movement is rapid, and they lose consciousness, and I’m 90% sure they either stop breathing or intake very little oxygen
Have been experiencing seizure like activity for going on 5 months now. Still haven’t figured out what’s causing. Three EEGs have all been normal. No history of trauma, anxiety or depression, but the neurologist default to PNES just because of the EEG. Very frustrated.
I don't have epilepsy but I have seizures caused by stress they usually last about 15 to 30 seconds.
I had seizures 2 times and I consulted a doctor..he didn't find anything wrong. I have triggered anxiety and stress related to personal life..and I think I have non epileptic seizures..(because of this stress). I would like to know more about what you're going through..because we have this same case. I've gone through a lot!🙃
@@jayshriraval4590 my doctor also couldn't find anything wrong he said that I might have a form of PTSD from the hunting accident but I was diagnosed with PNES
@@jeremiahmason5183 I'm sorry that you have to go through all this🫂
@@jayshriraval4590 it's okay I honestly shouldn't have even told you this it's nothing personal I need to forgive and forget honestly that's part of why I had the seizures I just stress about everything sometimes you just got to get up and move on
2 X. ICU
2000 1st Time GBS Totally Paralyzed
AWFUL!!
😢😢😢😢😢😢😢😢😢😢😢😢😢
❤❤❤❤❤❤❤❤❤❤❤❤❤
Get MRI ❤️ LOVE you❤️ PROTECT All
My seizures are as you described for being difficult to detect on EEg. I have physical sensations that usually occur on one side of the body..Facial twitcing on one side. Arm jerking on one side. I also have frontal lobe ones where I wake up to a hallucination and I automatically scream. I had an aura with rising in my stomach and felt spacey and then had an arm jerk episode at my last neurologist appointment. I think it happened twice. I don't lose consciousness and I can speak, but sometimes I forget words or can't pronounce some things. They last maybe a few seconds each. But, I usually have them in clusters. Aftward, I get weakness on the left side that causes me to be kind of unsteady. My neurologist told me they do not look like seizures. You only talked about shakes in the video, but do people with PNES have what feels like a partial seizure and retain consciousness? Thank you for doing this series. It is extemely helpful.
Possible. Please review the rest of the series
My partner gets these as well. Same symptoms. Have you found any answers yet?
@@gerardwolfe I am still waiting for my next eeg. I have not seen a therapist yet.
I get these too, and they picked up an interictal wave on mine in ther right frontal lobe. Mine are well controlledwith neurontin and topamax.@@nicolejohnson829
I have the same type seizure disorder. I was diagnosed PNES a few months ago after suffering with what looked to be a partial stroke on my left side, then trembling all over my mouth begins to twitch then drooping of the eye lid & mouth, left arm draws close to my chest. But I am aware of what is happening but can’t speak.
Can you have both? If so how would some tell while at home. I've watched this person have 2 or 3 back to back but have seen the other that don't add up.
My seizures are nothing like what's being described. I get panicked, fall to the ground, lose the ability to move and vocalize loudly. Lasts maybe 2 minutes. Then i will typically vomit after. They are happening more when I sleep. My MRI and EEG were normal. Im going to a new doctor in December.
Can vasovagal syncope cause a seizure ?
I was diagnosed with JME at 16 and managed to get it under control for 11 years then all of a sudden the seizures came back. Luckily I have been seizure free for 2 years now but the neurologist thought I might have non epileptic seizures as well but no one’s ever managed to record one. So it’s confusing
Probably best to see an Epilepsy center for evaluation
I had a seizure about a month ago, and I don't know if this seizure was epileptic or psychological, my heart was beating very fast and my eyes were closing gradually, then I lost consciousness and had a seizure like the one at 2:32, and I bit my tongue and when I regained consciousness, I discovered that he was bleeding, but the seizure lasted for a minute or a little less, and it was not 5 minutes or more. What is your explanation for this issue, Dr. Omar, and thank you very much ❤
Best to see a neurologist for evaluation and treatment. I can't provide medical advice without evaluating the patient in my clinic
It is best to see the neurologist instead of my perspective. If it gets repetitive it can be epilepsy but if it's happened only once it's likely a nonepileptic or the beginning of developing epilepsy. You can develop epilepsy at any age in life.
@@certainperson6613
It's been over a year and it never happen again
I have tonic-clonic seizures and I do not have an aura. I was diagnosed with epilepsy. I have done all the tests available and with the VEEG my neurologist was able to confirm. Mine come front lobe.
This is strange my seizures are a little strange, my most recent seizure happened during sleep however i had bit my tounge as well it still hurts. so based off of this video i cant really diagnose it because i have had both symptoms from both sides of your chart at the beginning of the video, however most symptoms are pointing towards epileptic which is strange because i've done an ekg, no brain damage or anything, i still have one more neurologist appointment to go to.
I am considered to be an person with epilepsy. I take meds and they have gotten better but I was told I look like the one of the example cases when I have a seizure. Doctors don’t take me seriously my neurologist diagnosed me earlier this year and I have been taking keppra. But I have up to 30 in I 3 day period could someone please help me!!!
Can epileptic seizures cures by medicine or by brain surgery
I passed the eeg but was still diagnosed as epileptic because it was my 7th seizure
I have a question! I have been diagnosed with both PNES and Epilepsy. I can usually tell which is which when it happens. I'm wondering how common it is for Epilepsy patients to also have PNES. I'm assuming the PNES with people who have anxiety and chronic pain conditions is a stress response I'm curious to see if this is also true with epilepsy as it is also a very mentally and physically draining condition
About 10 percent have both
I have both as well. I learned how to differentiate too which is helpful.
Don't worry Allah will save you, Recite this "Rabbi Inni Lima Anzaltha Ilaiya min hairin faqeer"
do you think i should get revalated for epilepsy if im staring and falling over
I have MS and I get seizures every 3-4 months, epilepsy was diagned and I was commently told that my seuzyres was because of my MS and I would alwas get MRIs and a bunc of white spots shoul on my brain scan I always thought that was becuase of the damages. ty for the cideo.
I first started having Petit mal seizures around 11yrs old. Then when I was 13yrs old I had my first grand mal seizure. Within a year I was having countless seizures. I had an eeg and monitored for one day in a children's hospital. The doctor diagnosed me with epilepsy. In my early 20's I had heard about pnes. I decided because my diagnosis had been quick. I would get a second opinion just I case I really didn't have epilepsy. I spent a week in hospital being monitored with eeg and camera. They said I had a focal seizure. I don't remember having a seizure in hospital. I didn't know what a focal seizure is? They explained it, but i can't remember what they said? I still don't know what a focal seizure is? My anti seizure medications was changed. I kept having seizures. So the nuerologist had me come back to the hospital, stay on my medications, and be sleep deprived (4hrs sleep every night) The doctors and nurses at the end of the week said they saw I had another seizure. I don't know when. I was diagnosed with epilepsy again. The neurologist said they don't use the terms grand mal, and Petit mal seizures anymore. He told me the two new names of seizures I have, and the name of a condition I have after a seizure in which I am completely paralysed for less than a minute.
hi how do u feel today and what help?
i have a constant ringing in my head that doues not belong there and i know becaues i meditate. thats why i think i am in psychosis now.
I would like to have an appointment with you Dr Omar. I suffered of nocturnal zeisure. For many years. I’m depressed don’t know what to do. Take lomatragine 300 mg .
can seizure be an odd sensation deep in the brain, therefore can not be measured with eeg
How can I identify seizure behaviour during sleep in comparison to dream movement? My daughter has focal seizures during the day along with absence seizures and secondary generalisation. I've been monitoring at night and I've noticed she will randomly sit up and tap the wall multiple times then go back to sleep. Or she will do like the macarina hand movements (hard to explain)
The neurologist should be able to.. Also can do epilepsy monitoring unit evaluation and record the events
EXCELLENT TEACHING DR🙏🏼🙏🏼🙏🏼. In PNES-usually semiology of seizures like GTCS with some characteristics. >>>>Few doubts Dr 1.,Any PNES has semiology of Focal Seizures without LoC? 2.In PNES usually Eyes closed. Any possibility Of ATYPICAL PNES> Eyes opened &Starring eyes look ,short duration PNES. 3.Any possibilities of slow waves in EEG of PNES Patients due to hyperventilating.
3
There is no one sign that is universal. The neurologist should put everything together to make the diagnosis. EEG slowing in hyperventilation is normal
I think I'm prone to this when I've got hormone stuff going on coming into time of month. I can have one from leg cramp, upset or taking medication that didn't suit me like amatriptylene
hey dr omar love the video I have non- epileptic seizures but am also currently being going through more testing as I was admitted to hospital after having what doctors say was a possible epileptic seizure. With my seizures they present a lot like epileptic seizures and when ive been given anti-epileptic medication it has worked. Doctors also say during PNES most of the time your oxygen doesn't change, I was intubated because my oxygen during my seizure went down to the high 60s! what do you think?
Hard to judge without evaluating the patient myself. We monitor vital signs during the seizure so they should be able to tell
I was misdiagnosed with these until family could describe the and a neurologist in my hometown understand the TCs were just random. They’ve not them on EEG but he said that wasn’t uncommon in people with epilepsy cause I wasn’t in an event. The morning one’s annoy me. They last for like 10 seconds but still annoying. They monitored me at the university hospital in Lubbock for like 3 days but I didn’t have any seizures. Lol so I was like no. My tongue was all bit up to the point the back left side almost through it. Woke up confused and legs were numb and soooo tired.
I had ONE once that was 30 minutes but it was not a PNES. Ugh I kept telling mom that I hadn’t had one. One minute I was talking to my mom, and the next, I was arguing with her about it. Not sure what set it off but my eyes were open and rolled up and the shaking was rhythmic in my arms and legs. That was horrible. My mom has been taught to recognize a seizure and yeah. She had no idea it was an emergency. I’m really really lucky.
I hope those with this condition know PNES it is a seizure and that it just doesn’t happen from brain electrical stuff.
You Al aren’t crazy, and no neuro should EVER make you feel that way. Your condition is valid and distressing and if your neuro has been making you feel that way. Please find another, more compassionate. The seizures are very real but can be treated more easily than epilepsy.
Mine are currently intractable since we haven’t found the right med for me. Dilantin, tegratol, keppra and phenobarbital and gabapentin… too horrible side effects, which is kinda normal with a lot of medications. I’m weird I guess. 😂
Anyway sir, thank you for your compassion , empathy, and kindness to those who have PNES. I hope those patients who you work with with this can find comfort and peace and understand they’ve done nothing to cause them and that they have a real condition, but much hope to stop them.
Huge hug y’all and I wish the best of everything for y’all.
Thank you for sharing your experience
@@DrOmarDanoun I try to. I felt very alone when we were trying to figure it out. Sorry for the typos. I have been awake for 4 days, because, insomnia. So I going through the twitches. (That is the term I use with my son. He is absolutely amazing. He is seven years old and knows exactly what he should do if I have a seizure. Luckily, it doesn’t frighten him and he knows it’s going to be OK after everything is over.)
*hug back* ❤ I hope you get the proper diagnosis, and are treated with care and compassion!
@@shaniad1a7 I did, thanks to a neurologist who actually took time to listen. Lamictal lessens the tonic clonic seizures but the focal aware/unaware ones don’t seem to respond to them. Luckily, I have auras for both so I can get myself to safety with the TCs, even if that means lying down in the middle of the supermarket. 😂 the unaware ones for me are the scariest. I have been walking, totally miss my mom’s driveway, and ended up like 4 houses down or so. I have good neighbors who understand what is going on. I hope you have and awesomely awesome day!
Whenever my daughter is stressed and wakes up all night she has a seizure. Doc said it is because of anxiety and lack of sleep. MRI and EEG are normal. She takes anti anxiety pills. Will she have to take these medicines all her life ? She is taking therapy which is helpful.
After brain surgery partial focal seizure treatment plz tell me right perasagital meningioma regrowth again
In my sister's case
1. She only had them during sleep at night.
2. She bites her tounge every time .
3. Some times her seizure stopped around 5 mins some times seizures come again and again after 5 mins for 4-5 hours and we have to admit her in haspital.
Please advise us what should we do . She is a mother of a son ( age 2 years ) . Her husband's family did not treat her well for that .
We are from a poor family in India .
My daughter has been diagnosed with NEAD and she bites the inside of her mouth and bleeds a lot and loses control of bladder. I’m still questioning if she has the right diagnosis and is on epilepsy medication too.
I have seizures not frequently like 3 times a year and comes with crying, holding of head, shaking, it lasts like 10-15 minutes though I haven’t really had the privilege of recording it. I did the scans and came back normal but I do not know if it can be concluded as PNES though I have the symptoms similar. This year I not had any episode. So I would like your thought on this
Best is to get a formal evaluation at an Epilepsy center
I’ve been suffering with these for over 3 years and my drs have been very rude and told me I’m a liar as I live alone, and if I went to A&E they would send me away, and one said he could start me with antidepressants now, I eventually got to see a specialist and told it was non epileptic, but then left with no help or support, I’ve had a good few falls and smashed my face in a couple of times, I can have as many as 15 a day, I’m scared to go any where and scared to be on my own as no one will know if I’ve fallen and hurt my self
I’m so sorry that you’re going through this, you are certainly not alone even though you might feel like it X
@@Rainbowqueen500 thank you for your kind words, a year later and I’m still being ignored and no help, it’s got worse in this time, now my body just jumps with out warning and goes on all night, I get hardly any sleep and I’m worn out
@micheldawnsummers1452 oh gosh that must be so frustrating! i’m in my thirties when my non epileptic seizures started, i always get a twitching arm around the same time (the right arm). My seizures have only ever happened in my sleep apart from one time. I have been a year and a half without any until the other week in october, they started again, i have been back to see the neurologist and thinks i might have Functional neurologic disorder, i have a lot of the symptoms.
@@Rainbowqueen500 wears me out, no quality of life any more, I hope you soon get sorted out and on the right meds with lots of help too, it’s not fare so many go through this alone x
Hi my brother has seizures and also my dad . both been told it’s not epilepsy and on medication but my brother is still having them even more now on the meds . Any advice ?
❤ Thank you!
Hi. Dr. Omar. I am Watching All your videos and learning a lot from your videos. Thank you so much. I have a son recently starting to shaking during the sleep. started last November and symptom is getting worse. We did EEG twice and MRI done recently. Everything came out normal and doctor said they couldn't find anything wrong with tests. Checked with two doctors but both them said they can't do anything. I thought he has nocturnal seizures beginning because has seizure about 5 times a day during a sleep and 3 times are worse. Especially 3 hours before he wakes up. I want to show you a video clip if that's possible.
Thank you.. I can evaluate patients in my clinic but I am not able to provide medical advice online.. Please discuss with your neurologist
Hello Dr. Omar Danoun, I just came across your channel and it's very imformative. You've mentioned somethings I've never heard about, I also watched a video were you spoke about the Ketogenic Diet for helping your epilepsy. I've seen many doctors in my life and everytime I get an E.G.G. every doctor tells me it's a different kind of seizure, so I don't know what kind I have, all I can do is watch your videos and get your advice. I looked you up and seen that you work in Michigan and Flordia, I'm from Southern California; do you work with out of state patients like California or do you know any Neurologist as educated as you in San Diego, California? I have found some Neurologist here but they only work with children. Thank You for all of these amazing videos. Take care of yourself.
I am not sure about a specific name but you want to see an Epilepsy center for full evaluation and treatment
You're wrong because PNES stands for psychogenic nonepileptic seizures which means that you may feel as if you're having a seizure, but your brain doesn't have any electrical activity, meaning no damage is being done. I would know because i had a glial neuronal tumor that caused me seizures daily. Once it was removed, I was diagnosed with PNES.
Lol that chart with the differences... I've got about half of each column 😑
I've never had EEG leads attached while having a seizure and they're infrequent for me so I still have no idea what type of seizures I have 🤷
After seeing the symptoms, I have these types of seizures so how would you skip the diagnosis part and get to the treatment part? If I was to go into a diagnosis room, I wouldn't have any seizures because they only happen when I get extremely stressed out/ panic attacks/ sleep deprivation etc. While being in one of those rooms and hooked up to the EEG machine, is there a way to "stress" the patient to trigger a seizure?
Dr Omar You are most entertaining and relate to regular people like me. I have several questions.
What percentage of patients do you normally see with PNES?
Also, does taking Veneflexan cause non epileptic nocturnal seizures?
What is the difference between a unknown convolution and PNES?
Can you have Dystonia or dyskinesia exclusively at night mostly upon falling asleep?
If a Unknown Convulsions doesn’t show up on overnight EEG brain study, should that person just accept they need treatment for PNES?
Venlafaxin should not cause seizures. Other questions are related to one case which I can't answer without knowing the patient in my clinic
Great to know. Thank you for your education. I am still waiting for a diagnosis for What is unknown convolutions. That seems like a catch all term that could mean just about anything except you aren’t elliptic. Which the the very best news. People with seizures have my prayers. My heart truly goes out to them, and Thank you for everything you do to help them.
Getting a 2nd opnion from a different epilepsy doctor im being told i have pnes even though i have an adnormal eeg and the man literaly has me on no medication when im having seizures sometimes daily he has confirmed i have dual pathology meaning epileptic and non epileptic seizures but he completely ignores the epileptic portion i will be seeking a 2nd opnion
Can you have these in your sleep? While crying in your sleep? Arms being pulled up to you and stiff and not be able to wake up until it's over? But being able to hear what's going on around you?
I had a seizure in my sleep and broke my back.
Yes and they might be classified as nocturnal seizures.
PLEASE update your video - Dissociative Seizures are no longer called Psychogenic - it is so important that the correct terminology is used. Thank you.
THIS
👏🏼 ‼️
THIS!!!!!!!!!!!! JUST 👏🏼 BECAUSE 👏🏼 THEY 👏🏼 ARE 👏🏼 NON EPILEPTIC 👏🏼 DOES 👏🏼 NOT 👏🏼 MEAN 👏🏼 ITS 👏🏼 PSYCHOLOGICAL 👏🏼 ‼️
**The reason why correct terminology is needed is because it can cause SEVERE medical gaslighting, medical trauma psychological abuse and PTSD in patients who have legitimate organic neurological causes to their seizures where the root is not psychological and is organic. Infections, chronic illness and diseases, encephalitis and encephalopathy are some.**
Yes, both are real but think of it as an equivalent of being told your lung cancer is just a common cough or cold. You wouldn’t want to be misdiagnosed or ignored.
What country you in ???
Dissociative seizures are a type of nonepileptic seizure resulting from non-epileptic factors. They cause episodes of involuntary movements or behaviors. In the United States, doctors refer to these seizures as psychogenic nonepileptic seizures (PNES).
@@junipersnow1 the USA but the whole point is dissociative seizures aren’t always psychogenic. Can be autoimmune and not psychogenic/psychosocial which PNES implies. It’s just dead wrong and dangerous.
I've experienced All of these seizure phases and I've been having seizures for 8 years now and I'm 49 now and will be 50 in July of this year God's willing and why do they happen mostly in my sleep?also why does the brain machine always don't show nothing about my Brainwaves?
Am I understanding him correctly?
A normal EEG reading will accompany a NON-epileptic seizure, whilst an abnormal reading (visible throughout the entire brain) will accompany an epileptic seizure?
Yes, EEG tests, flashing lights, weird sounds with electrodes to your head, try to trick your brain to have an epileptic seizures..... Negative result makes the doc look to PNES or other ways to look for Seizures from Root canals gone wrong, infection or allergic reaction to surgical procedures, including putting in Hernia mesh or foreign objects in body (leg break metal etc)
Question:
I was diagnosed with lone PNES in september of 2023. Fast forward to a month ago, my new psychiatrist is in disagreement and thinks I might have both due to childhood epilepsy, abnormal EEG and a few other factors.
My seizures represent what would be called an epileptic focal aware seizure that dont normally show on EEG. I was only in the EMU for 2 days back in september and because I also have migraines, psych put me on depakote. I'm currently on 1,000mg dose and have been 8 days seizure free. This is the longest I've been seizure free in over a year when this all started.
My question is, does a response to an AED mean my initial PNES diagnosis was wrong?
If a person suffering from Epilepsy undergo through EEG on a normal day when he didn't had seizure on the same day. Can that EEG come Normal?
Yes possible. Review the video on normal EEG in epilepsy
I wasn't diagnosed with pnes or epilepsy but I don't know how to read a EEG and I wish doctors would explain to me about my EEG and I was monitored in a hospital for 3 days and I had 9 seizures. Seizures do cause me to experience anxiety and I know anxiety can escalate seizures. I had my dad video record the VEEG to have but I don't know how to read it because I'm tired of being jumped all over without a proper diagnosis
Sounds frustrating
@@DrOmarDanoun I have a video of the time I was admitted to the hospital and I put the EEG on it.
Not this UA-cam channel my other one with the same name but the other one has way over 200 followers Meditogofilm Production
Epilepsy have sleep night seizures
My daughter has been dealing with this for over a month and has been in the hospital. Dr are telling us they don't know what's happening. She is like a stroke victim and can't walk or talk.
Hello doc. Good day. its been a year that my daughter started having seizure. It will actually occur when she is sleepy or any sudden sounds. what would be the best treatmrnt?
Best to review the video on treatment for PNES at the end of the series.
Happy to do a consult if you want. Details in the first comment
I literally want to stop taking my medication cause my doctors doesn’t believe I have epilepsy, but says my seizures are provoked .. I didn’t get you bring up the idea of PNES to him last time I got to speak to him. I’ve read that if your seizures are non epileptic that the medication doesn’t make a difference is that true ?
I do have a question. If anyone can give an opinion that would be most appreciated
I honestly don't know what I have. I do have PTSD, trauma, and anxiety. I had 4 seizure in my life and ever since I had my first seizure i started having tremors throughout my body. Sometimes I can't even hold certain things. I even throw my phone- I drop things. I even fall down. Ever since I got on this medication it has completely stop my tremors. When I'm off it, it comes right back. They have done an EEG in the past. The results are, no Epilepsy.
With my seizures i do remember sometimes falling right before. I remembered I could've breath each time when having one. Plus my vision was cut in half. I always bite my tongue to.
Can anyone expect why I have tremors, and why I had those seizures?
(Sorry if didn't explain well. I can't explain things accurately)
Can there be sensory non-epileptic seizures? I have weird sensations in my left shoulder sometimes when thinking hard
They have been monitoring for epilepitic seizures for over a year and every episode it's the same incident and all they do is give me more epilepisy medicine even though they've found nothing everytime they've monitiored me on an EEG. I'm getting irritated and I'm at the point where I don't even want to fall a sleep at night anymore bc this was suppose to stop once certain health issue was resolved and it hasn't and it's interfering with my education.
I saw another video on another chanel and it completly confused me about the possible differences now I am not sure if my loved one has PNES or not =(
Sir, is Valparin chrono good medicine?
Please tell me Side effects of Valparin chrono medicine please
Please review the video on Depakote it has the full explanation
I had two PNES after eachother, the first lasted 5 hours, the second 6😔😔😔
Thank you dr. Omar. My husband’s had seizures and it lasts 10min, but after he woke up it took him 7-10min to respond. He had the bite in the side and drawling. Is that considered a epileptic seizure or PNES? Thank you
Hard to tell without evaluating the patient.. Please discuss with your neurologist
@@DrOmarDanoun Thanks
It could be an unrelated question but you said white spots happen in diabetes...etc, I’m type one diabetic and I’m interested to know why
Not clear why
I'm saying this here because I'm too afraid to talk about it but last year i got a panic attack so bad that my hands seized up and i couldn't move them and my tongue felt thick. lately I've been coping very badly with a lot of stressors and triggers and I think i had a small seizure in my bed a few minutes ago from anxiety and exhaustion . My back started paining and aching and i started getting my tics (i have a mild case of tourettes) and after that i started shaking and spasming on my back.... are these causes for concern and should i seek any help?
Had the video done had 7 of them got got diagnosed with non eplitic seizures the epileptic medication was making it worse got taken of epileptic medication xcopri went back to normal was taking a 1000mg Keppra twice a day made it worse started taking just 500mg Keppra bavk too normal
Had a tumor removed and radiation scar tissue was reason for everything