Thank you for this! My 19yo daughter is living with an inoperable meningioma which is causing terrible drug resistant grand mal Seizures. They did manage to get a small tissue sample during what became a very risky crainiotomy 2 years ago. Is there any way to work with you to learn about any upcoming drug trials or is this something her current neuro oncologist should be fully informed of?
Thank you for this! My 19yo daughter is living with an inoperable meningioma which is causing terrible drug resistant grand mal
Seizures. They did manage to get a small tissue sample during what became a very risky crainiotomy 2 years ago. Is there any way to work with you to learn about any upcoming drug trials or is this something her current neuro oncologist should be fully informed of?
Thank you! I am specifically interested in neuro-oncology and there enough many videos that focus on this.