OH, my dear, thank you for sharing your experience! I'm currently having seton after fistulaectomy , I had extra absess, don't know how to call it exactly in English, it was extra bag connected with fistula and now it's being drained.The surgery itself was on the 28.06, every week I have my wound cleaned by my doctor (thanks God I found a real professional in Moscow) and there is a great anestasia that they use called Caudal anesthesia, it's an injection performed in your lower back nerve, but not in your spine which allows you not feel any pain during procedure . I don't know how long it will take to fully recover from this , but my life had changed significantly since it all started, I reappreciated a lot. Wish both of us fast recovery. God bless you❤
I totally understand what you mean about it changing your entire life. It really does. I’m so sooo sorry for what you’re going thru. Praise God you have a wonderful doctor and team supporting you! Praying for your recovery to be quick and complete! ❤
Thank you from France for sharing. You helped me a lot on my seeking for best options regarding my fistula. Especially "trusting your guts" when it comes down to the doctor you pick. Hope you're doing well.
Omg!!! Thank you for this. I am on day 3 post seton insertion. Pain is mad. We dont have that drug here in the UK. I am so scared to eat or open my bowels. This is rough. Praying for you and everyone going through this🙏🏾😢
Thank you so much for sharing your story. I am dealing with an anal fistula that developed from an improperly healing anal fistula that was cauterized a few months back but seemed to open again. This is hell on earth. This is one of the worst things I've gone through. It is nice to know I am not alone and it really is good to hear your story. Also I see you are now healed so I'm also very happy for you
I am so sorry this is happening to you again. To have it happen once is traumatic, I can’t imagine how you must be feeling going through it another time. I’m glad to hear my video brought you momentary peace. I know how hopeless things can feel during the times you’re in so much pain. Wishing you a quick recovery my friend. You hang in there…❤️🩹
I know this might have been a hard video to make but I appreciate your transparency. You hit the head on the nail on all aspects that you touched on. Having surgery to that area is so traumatic. I had 1 external hemorrhoidectomy for one large thrombosed external hemorrhoid. 4 years to now I'm now dealing with a abscess. It showed up a few days ago and actually ruptured on its own and I've been applying mupirocin(prescription antibiotics ointment) I also took oral antibiotics. The spot has healed up and my anxiety is just so high fearing it's going to come back and I'm going to have a fistula form but I'm praying it doesn't happen. My abscess showed up like a boil/pimple then formed a white head and then popped and released fluid. I'm praying it doesn't come back or a fistula doesn't form. The anxiety and ptsd that comes from these surgeries and that comes from issues regarding this area of the body of crazy. I appreciate your transparency in the video. Its crazy how this changes and humbles a person. It's hard knowing so many people take that process or their body for granted. It seems like my whole day/world revolves around how my bathroom habits are going.
@@kevintalley6697 My gosh I hate that for you, but you explained it so well. I’m praying that this works out in your favor as well. I’m hopeful that it will, it sounds like you have a great treatment regiment going. Hang in there my friend. And thank you for your kind words. ❤️🩹
😞 I'm so sorry.. I really appreciate you sharing your story.. I have alot of health and digestive issues and I've had some bad experiences so i can definitely relate.. I hope that things have gotten better for you ❤
You’re so kind to say that… breaks my heart to hear you’re suffering as well. Thank goodness for being able to connect with others who can relate and exchange comfort with. ❤
Great video, and thank you for sharing your experience. Fistulas are more common than you think (just under 10 years for me). Keep us posted on your progress.
Thank you so much for sharing! Hopefully you’re doing okay.. 10 years is such a long time to be suffering with this. And yes, you’re right! I’m just finding out how common this is. It’s comforting to know I’m not alone, but heartbreaking to see how many people are struggling. 💔
Awesome for you for being brave and posting this. I’m sure it wasn’t easy and I can only imagine how embarrassing this process was. I’m so sorry for how you were mistreated. You have no idea how much help this post can have for others. Hats off girl! Thank goodness you’re on the road to recovery!
Thanks, it’s hard when there isn’t anyone around who bothers to even ask how you are, you are blessed to have someone, even more than one person to ask “hey, how you doing?” I’m glad that you have a great support system.
That broke my heart reading your comment… I can’t begin to imagine how difficult that must be for you💔… If it helps, you have a virtual friend right here who cares and is rooting for you! 🙋🏼♀️❤️🩹
@@oo0itsmaria thank you so very much. This past year has been very illuminating, it’s amazing how quiet your social media gets when you are no longer the one calling, or the stop who stopped lending folks $5 or $10, or taking those folks to lunch. 10 years ago, in my throes of PTSD/ depression I don’t believe would have bothered to stick around. While I don’t condone that kind of “quitting”, I can certainly understand why people would want to do it. The vast majority of people have no idea how much impact words have on others, it took only one person to ask me how I was feeling to give me motivation to keep seeking treatment. As you have discovered, perianal/perirectal pain is indescribable to anyone who has never found themselves curled up on the bedroom floor, whimpering, searching for breath. I don’t bother trying anymore, I had so much dread of the pain post BM’s that, for several months, I stopped eating altogether and dropped 40lbs. Thank you again for your kind and supportive words, they mean the world to me.
First of all, you are a lovely young woman..second, I had a hemorrhoidectomy a couple years ago and the healing process was brutal, but I got through it...I can't imagine going through all you have! Thank you for speaking about this, you have helped so many people!
I just had 2 draining setons put in 3 days ago. Pain before was at a 9-10. Pain after the surgery i was at a 5-6. So much more managable. The abscess i had was very painful, until they drained it and set the setons. Bowel movements havent been that bad, im more scared than anything, lol. I have follow up in 1 more week. I havent gotten any info from the doctor before or after the surgery, so im just going with the flow. Evrythign went so quickly, i went into the ER for the pain, they did a CT scan, and then sent in a surgeon to speak with me about getting the procedure. Theybhad me fast for a few more hours and then wheeled me over to the operating room. All my info has come from UA-cam! Your video helped a lot. Its very embarrassing! I have a bunch of questions written down now to ask during my follow up appointment.
@Blessed_22 did you end up getting the infusion treatment? My doctor suggested prednisone to help with crohns disease symptoms as well. Have you done either?
I really appreciate you speaking on your experience. I had to 2 setons placed in me today and currently dont feel anything yet due to the anaesthetic. Im hoping my recovery isnt hard 🙏🏽
I’m 34 and got a fistula around age 21. Only just got the seton in yesterday. No pain yet. But it’s uncomfortable feels weird. But had to get it. So sorry for all you went through. I delayed this surgery for 4 years due to creepy surgeons. I ended up getting a female and going ahead with it. But on the day of the surgery it was a man. Which I’m not happy with them changing the surgeon on me without my consent. But a public hospital in Australia you don’t get to choose your surgeon as it’s free
I had two incision and drainage surgeries from abscess , I went to a general surgeon and he never listened to me , finally seeing a specialist, I get an MRI to see if there’s a fistula, it’s been a very difficult 5 months
Oh man I am so sorry… a general suggestion set me back as well after my abscess burst. I’m going to be sending you prayers that you are out of the woods and that this clears up soon! Hang in there!!!!
Gurrrl I had my abscess last yr and I was just like you and thought it was hemorrhoids. Started in May and I never knew these things existed. I would bleed then go awhile month or 2 and it would burst again and drain. Finally in October I had my surgery and my Dr. tied my abscess off and sliced my fistula open to drain and heal from inside out. I have been on pain meds before this happened so my pain was not bad at all. It was a process though. I’m just now getting to the point where I feel normal again. God bless!!
Ugh I am so sorry!! I know how difficult it is to be in so much pain and not understand what it is! But I’m relieved to hear that you are in the home stretch of it all!! Wishing you continued healing! ❤️🩹
@@Blessed_22 Thank you! It really is a terribly embarrassing thing to have isn’t it? I put off going to the Dr. because I was so embarrassed and I’ve worked in the medical field most of my life! I can’t imagine having this done and having small children to care for! I don’t know how you did it.
@@myralawson4543Aww honey I know, it really is! But we did it!! ❤ And I am blessed to have a very supportive husband and family that carried me through it all! Fortunately the worst of it was also during the summer so that was helpful not having a school schedule to follow.
I had a wee fistula that was easily done with local. Recovery was awful. I cannot imagine what you went through, omg. I now have something draining years later and trying to clear it up myself. I am a nurse so hopefully it works out but if not I will definitely ask for that block.
I am currently going through a very similar situation to yours and I am only about 3 months in and still have an active abscess and what I believe to be a horseshoe fistula tract which is now draining from inside my anus and two external openings that can become excruciatingly painful as you already know. However, I have found some amazing things to help with the pain naturally as of late and even found a few studies that suggested what I am now using can be even more beneficial at healing a complicated fistula than surgery but I'm still testing that all out. I'd be more than happy to chat with you some more or anyone else about it but just wanted to know how you are doing now? I am still considering a Seton drain but heard they can be extremely painful so like you I am terrified to have one put in, I have Crohn's disease so a Seton so far according to the first colorectal surgeon that I saw would be the only permanent solution she would be willing to offer me to try to stop the abscesses because she will not do a fistulotomy on me or any other procedure to try to close the holes because she says people with Crohn's don't tend to heal very well. So with that said, I will be looking for another surgeon because I think that's bullshit because I've already managed to reduce a lot of the inflammation myself doing various alternative treatments. Plus, a seton drain being my only option at this point isn't really an option for me long term because like you I'm still young and don't want to have a drain sticking out of my butt for the rest of my life! In the future, I may still consider getting a drain put in or at least having another surgery to clean out the infection and possibly necrotic / scar tissue but for right now I'm just trying my best to heal this on my own with what I know and using things like medical grade manuka honey you may want to look into this for fistulas or anything else down there, IV nutrients, detoxing, high doses or liposomal supplements with antimicrobial properties, free radical scavengers, antioxidants and things to help repair connective tissue and collagen, as well as homeopathic remedies. Fiber is also super important to keep my bowels moving properly and formed so that nothing passes through the fistula and I experience what you called the ring of lava fire!!! I can so relate to that and screaming on the toilet or in the bathtub in my sits bath after a bowel movement! My god the pain!!! However, the fiber you need to use is equally as important I have found because some will cause constipation or rip up the gut even further. I'll be making my own homemade anal suppositories as well this week to help my healing along as well, plus doing a lot of hyperthermia treatments for infection, red light and laser light therapy for healing the area, and rectal ozone insufflations (I drink ozonated water every day as well) and so far I am seeing some progress. I do other things as well, but a huge part of what I've had to do to try to maintain my spirits and my health is stress management since this experience has been beyond stressful. Plus, I think this all started in the first place because I had several traumatic experiences that took place in my life leading up to all of this but I'll save you the story because it's long. So far I am three months in and things do still get pretty bad on some days but they are nowhere near where I was 3 months ago when I first developed the perianal abscess and fistula tract. My GOD I HAVE NEVER BEEN IN SO MUCH PAIN IN MY ENTIRE LIFE and like you I was convinced I was going to die of sepsis or anal cancer, it was terrible! The pain would get so bad at times that I couldn't sit, walk, or even lay down without screaming and bawling my eyes out. At one point when I finally went to the ER to have it lanced I even went into shock because my body couldn't handle the pain anymore. Man, I wouldn't wish this crap on my worst enemy and I've been through my fair share of pain over the last 15 years having been diagnosed with multiple autoimmune diseases and Lyme disease. This is by far probably one of my worst experiences to date in terms of the pain, that's for sure! Like you, I now have extreme PTSD not only of going back to the hospital to have this dealt with even further but of having anything going near my butt in general or even going to the washroom. So this whole experience has felt extremely isolating, daunting, and depressing to say the least because like you said there aren't a lot of people talking about this, let alone women. Plus, unless you've had the "pleasure" of feeling this kind of pain people really don't know what you are going through from day to day or what it takes to care for a wound like this on a daily basis. It's like my whole life can't start every morning until after I go through my 1-2 hour washroom routine or how I get anxious every time I am away from home. Well anyway, I would love to hear how you are doing now, and thank you so much for sharing your very personal experience with us. When I figure out how to heal this damn thing I hope to share mine as well someday so that others don't feel so alone. Can I get the name of your surgeon and where he is located? All the best and God Bless! Jess
In your corner. Currently navigating much the same with abscess, surgery a few months ago, seton, heading for MRI next week to see what the current state of the fistula looks like so they can schedule the fistulectomy. First MRI noted superficial fistula, so fingers crossed it stayed that way during the first surgery and seton draining. Your are right, pain was excruciating with the abscess, was taking baths up to 3x a day and feared just going to the bathroom. How have you faired since your post?
I've got an abscess drained in January through GA..it didn't heal..then i got diagnosed with fistula..i have a nurse come over daily for packing and my seton attachment surgery will be on Friday...and i took care of my husband who had complex fistulae since 2019.. our lives have completely changed and I'm scared for my seton attachment.. plus I have kids who are only 7 and 4.. anxiety is really kicking in so badly.🥺
That’s so incredible hard and I’m so so sorry you are both suffering with that! I can’t imagine both myself and my husband having to go thru it at the same time with children. I hope you have a supportive family/network to help you get through this. I know how life altering this is for you both. Please be kind and patient with yourselves. Sending so much love and prayers to you.❤️🩹
Hi, I’ve had my chronic anal fissure turn into an abscess recently. Now my doctor is saying he needs to place a seton and wait for at least 2 months for the drainage to be done I guess? And after it’s done he’s going to do a laser surgery to close up the seton tract. I’m really scared that the seton is going to hurt and going to make things worse. There’s no visible fistulas and I don’t understand why I have to get the setons if I don’t have fistulas… I don’t know what to do : (
I’m so sorry to hear what you’re going through. The seton is a drain for the abscess. He needs to wait because you probably have a lot of inflammation. It won’t make things worse. It’s going to get rid of the infection. Make sure you have a Surgeon who explains everything to you, who is very experienced and who you trust. Everything is going to be okay. ❤️🩹
@@Blessed_22 I’m having a really hard time trusting doctors like you did after the treatment I’ve gotten for my fissure which eventually caused it to become worse and chronic. I guess I have no choice but to get the setons even though it’s probably going to be really uncomfortable
@@Blessed_22 That’s really great to hear. I don’t know you but I honestly feel how you felt months ago and I’m very happy that you’ve gotten through your hard times, truly. Thanks for putting this video on YT btw. It somewhat helped me mentally to know I’m not the only person experiencing it.
Can you elaborate because at times I thought I was going into shock as well which is why I started ozone treatments. Even did IV ozone and DMSO but that was way too strong so now I'm doing ozone myself with my ozone generator. I drink ozone water daily, do hyperthermia and do ozone insufflation, plus ingest and use medical grade manuka honey anally and I've been feeling a whole lot better and noticed these things make my abscess feel a lot less painful, and make them drain very quickly, plus reduce the inflammation drastically.
There’s no more horrendous and excruciating pain than anal abscess… totally in this path as well, right now dealing with a cut seton which is very painful
Thanks for sharing! It’s been a while since you posted, did you end up having the advanced flap surgery? Would love to hear your experience. I’m having mine in August Xo
@@Blessed_22thank you so much! I appreciate it. Glad to hear it went well for you. I’m worried about the pain and the healing process and the chance of it failing/returning but am gonna think positive and hope it heals properly and I don’t have any further issues 🤞🏻🤞🏻🤞🏻
@@Mac42203 I understand and honestly that’s still always in the back of my mind too. But remember, all we have is today. And if God forbid that does happen, we will be okay and make it through again!
@@Blessed_22 well said. I’ve learned to live with my fistula and seton waiting for surgery. And I’ll deal with whatever is thrown at me after that, although I hope it just goes well and everything is healed! 😂😅
My god, what an awful experience. I’m telling you, most people just trust that all doctors are competent. Some are not and this kind of stuff happens. It’s sad
OH, my dear, thank you for sharing your experience! I'm currently having seton after fistulaectomy , I had extra absess, don't know how to call it exactly in English, it was extra bag connected with fistula and now it's being drained.The surgery itself was on the 28.06, every week I have my wound cleaned by my doctor (thanks God I found a real professional in Moscow) and there is a great anestasia that they use called Caudal anesthesia, it's an injection performed in your lower back nerve, but not in your spine which allows you not feel any pain during procedure . I don't know how long it will take to fully recover from this , but my life had changed significantly since it all started, I reappreciated a lot. Wish both of us fast recovery. God bless you❤
I totally understand what you mean about it changing your entire life. It really does. I’m so sooo sorry for what you’re going thru. Praise God you have a wonderful doctor and team supporting you! Praying for your recovery to be quick and complete! ❤
@@Blessed_22 Thank you dear and wish you and me and all people suffering fast recovery!
Thank you from France for sharing. You helped me a lot on my seeking for best options regarding my fistula. Especially "trusting your guts" when it comes down to the doctor you pick. Hope you're doing well.
Glad it was helpful! I hope everything works out for you my friend 🤍
Omg!!! Thank you for this. I am on day 3 post seton insertion. Pain is mad. We dont have that drug here in the UK. I am so scared to eat or open my bowels. This is rough. Praying for you and everyone going through this🙏🏾😢
❤️🩹 You’re not alone ❤️🩹
Your reply means so much 😢 @@Blessed_22
Thank you so much for sharing your story. I am dealing with an anal fistula that developed from an improperly healing anal fistula that was cauterized a few months back but seemed to open again. This is hell on earth. This is one of the worst things I've gone through. It is nice to know I am not alone and it really is good to hear your story. Also I see you are now healed so I'm also very happy for you
I am so sorry this is happening to you again. To have it happen once is traumatic, I can’t imagine how you must be feeling going through it another time. I’m glad to hear my video brought you momentary peace. I know how hopeless things can feel during the times you’re in so much pain. Wishing you a quick recovery my friend. You hang in there…❤️🩹
I’ve had 12 operations and seton stitch my journey is not over…🥶😳🤬 no one knows unless you have had one!
Thank you for sharing! Great tips for anyone going through it! It helps to not feel alone but I’m so sorry for all you have been through! ❤
I appreciate that so much!
I know this might have been a hard video to make but I appreciate your transparency. You hit the head on the nail on all aspects that you touched on. Having surgery to that area is so traumatic. I had 1 external hemorrhoidectomy for one large thrombosed external hemorrhoid. 4 years to now I'm now dealing with a abscess. It showed up a few days ago and actually ruptured on its own and I've been applying mupirocin(prescription antibiotics ointment) I also took oral antibiotics. The spot has healed up and my anxiety is just so high fearing it's going to come back and I'm going to have a fistula form but I'm praying it doesn't happen. My abscess showed up like a boil/pimple then formed a white head and then popped and released fluid. I'm praying it doesn't come back or a fistula doesn't form. The anxiety and ptsd that comes from these surgeries and that comes from issues regarding this area of the body of crazy. I appreciate your transparency in the video. Its crazy how this changes and humbles a person. It's hard knowing so many people take that process or their body for granted. It seems like my whole day/world revolves around how my bathroom habits are going.
@@kevintalley6697 My gosh I hate that for you, but you explained it so well. I’m praying that this works out in your favor as well. I’m hopeful that it will, it sounds like you have a great treatment regiment going. Hang in there my friend. And thank you for your kind words. ❤️🩹
😞 I'm so sorry.. I really appreciate you sharing your story.. I have alot of health and digestive issues and I've had some bad experiences so i can definitely relate.. I hope that things have gotten better for you ❤
You’re so kind to say that… breaks my heart to hear you’re suffering as well. Thank goodness for being able to connect with others who can relate and exchange comfort with. ❤
Great video, and thank you for sharing your experience. Fistulas are more common than you think (just under 10 years for me). Keep us posted on your progress.
Thank you so much for sharing! Hopefully you’re doing okay.. 10 years is such a long time to be suffering with this. And yes, you’re right! I’m just finding out how common this is. It’s comforting to know I’m not alone, but heartbreaking to see how many people are struggling. 💔
Awesome for you for being brave and posting this. I’m sure it wasn’t easy and I can only imagine how embarrassing this process was. I’m so sorry for how you were mistreated. You have no idea how much help this post can have for others. Hats off girl! Thank goodness you’re on the road to recovery!
@@allisonglasson6915 That’s so kind of you to say, thank you so much!
Thank you so much for sharing your story
Thanks, it’s hard when there isn’t anyone around who bothers to even ask how you are, you are blessed to have someone, even more than one person to ask “hey, how you doing?”
I’m glad that you have a great support system.
That broke my heart reading your comment… I can’t begin to imagine how difficult that must be for you💔… If it helps, you have a virtual friend right here who cares and is rooting for you! 🙋🏼♀️❤️🩹
@@oo0itsmaria thank you so very much. This past year has been very illuminating, it’s amazing how quiet your social media gets when you are no longer the one calling, or the stop who stopped lending folks $5 or $10, or taking those folks to lunch. 10 years ago, in my throes of PTSD/ depression I don’t believe would have bothered to stick around. While I don’t condone that kind of “quitting”, I can certainly understand why people would want to do it.
The vast majority of people have no idea how much impact words have on others, it took only one person to ask me how I was feeling to give me motivation to keep seeking treatment. As you have discovered, perianal/perirectal pain is indescribable to anyone who has never found themselves curled up on the bedroom floor, whimpering, searching for breath. I don’t bother trying anymore, I had so much dread of the pain post BM’s that, for several months, I stopped eating altogether and dropped 40lbs. Thank you again for your kind and supportive words, they mean the world to me.
First of all, you are a lovely young woman..second, I had a hemorrhoidectomy a couple years ago and the healing process was brutal, but I got through it...I can't imagine going through all you have! Thank you for speaking about this, you have helped so many people!
Thank you for all your kind words! ❤
I just had 2 draining setons put in 3 days ago. Pain before was at a 9-10. Pain after the surgery i was at a 5-6. So much more managable. The abscess i had was very painful, until they drained it and set the setons. Bowel movements havent been that bad, im more scared than anything, lol. I have follow up in 1 more week. I havent gotten any info from the doctor before or after the surgery, so im just going with the flow. Evrythign went so quickly, i went into the ER for the pain, they did a CT scan, and then sent in a surgeon to speak with me about getting the procedure. Theybhad me fast for a few more hours and then wheeled me over to the operating room.
All my info has come from UA-cam! Your video helped a lot. Its very embarrassing!
I have a bunch of questions written down now to ask during my follow up appointment.
I can totally identify with your story! Hang in there! You’ve got a bit of a road ahead, but you seem to be on the right track!
@Blessed_22 did you end up getting the infusion treatment? My doctor suggested prednisone to help with crohns disease symptoms as well. Have you done either?
@@gamer30005 I actually didn’t do the fusions, but yes I did the seton drain 2x . One for each abscess I had. ❤️🩹
I really appreciate you speaking on your experience. I had to 2 setons placed in me today and currently dont feel anything yet due to the anaesthetic. Im hoping my recovery isnt hard 🙏🏽
Hang in there! It’s a process for sure, but keep the faith, it will help you stay strong.❤️🩹
How’s your recovery going if you don’t mind answering?
@@larac.8281Happy to report I’ve made a full recovery! Thank you for asking!
I am currently recovering from a fistulotomy and wow it is painful. For sure listening to your recommendations! Thank you so much for sharing!
Happy to help! You got this!! ❤️🩹
Thank you for sharing your story
Thank you for sharing. I understand, I had a few fistulas. It’s very painful
I’m so sorry to hear that and hoping you’re recovered ❤️🩹
I’m 34 and got a fistula around age 21. Only just got the seton in yesterday. No pain yet. But it’s uncomfortable feels weird. But had to get it. So sorry for all you went through. I delayed this surgery for 4 years due to creepy surgeons. I ended up getting a female and going ahead with it. But on the day of the surgery it was a man. Which I’m not happy with them changing the surgeon on me without my consent. But a public hospital in Australia you don’t get to choose your surgeon as it’s free
I had two incision and drainage surgeries from abscess , I went to a general surgeon and he never listened to me , finally seeing a specialist, I get an MRI to see if there’s a fistula, it’s been a very difficult 5 months
Oh man I am so sorry… a general suggestion set me back as well after my abscess burst. I’m going to be sending you prayers that you are out of the woods and that this clears up soon! Hang in there!!!!
Thank you for the video its very brave and helpful
# me too, I had 2003 never been the same. Your story touching my soul. Sorry you endured 😢
Same to you ❤️🩹❤️🩹❤️🩹❤️🩹
Thank you for sharing. ❤
You are so welcome❤️🩹
Gurrrl I had my abscess last yr and I was just like you and thought it was hemorrhoids. Started in May and I never knew these things existed. I would bleed then go awhile month or 2 and it would burst again and drain. Finally in October I had my surgery and my Dr. tied my abscess off and sliced my fistula open to drain and heal from inside out. I have been on pain meds before this happened so my pain was not bad at all. It was a process though. I’m just now getting to the point where I feel normal again. God bless!!
Ugh I am so sorry!! I know how difficult it is to be in so much pain and not understand what it is! But I’m relieved to hear that you are in the home stretch of it all!! Wishing you continued healing! ❤️🩹
@@Blessed_22 Thank you! It really is a terribly embarrassing thing to have isn’t it? I put off going to the Dr. because I was so embarrassed and I’ve worked in the medical field most of my life! I can’t imagine having this done and having small children to care for! I don’t know how you did it.
@@myralawson4543Aww honey I know, it really is! But we did it!! ❤ And I am blessed to have a very supportive husband and family that carried me through it all! Fortunately the worst of it was also during the summer so that was helpful not having a school schedule to follow.
I had a wee fistula that was easily done with local. Recovery was awful. I cannot imagine what you went through, omg. I now have something draining years later and trying to clear it up myself. I am a nurse so hopefully it works out but if not I will definitely ask for that block.
Oh no!! Fingers crossed that clears up for you dear!
I am currently going through a very similar situation to yours and I am only about 3 months in and still have an active abscess and what I believe to be a horseshoe fistula tract which is now draining from inside my anus and two external openings that can become excruciatingly painful as you already know. However, I have found some amazing things to help with the pain naturally as of late and even found a few studies that suggested what I am now using can be even more beneficial at healing a complicated fistula than surgery but I'm still testing that all out. I'd be more than happy to chat with you some more or anyone else about it but just wanted to know how you are doing now?
I am still considering a Seton drain but heard they can be extremely painful so like you I am terrified to have one put in, I have Crohn's disease so a Seton so far according to the first colorectal surgeon that I saw would be the only permanent solution she would be willing to offer me to try to stop the abscesses because she will not do a fistulotomy on me or any other procedure to try to close the holes because she says people with Crohn's don't tend to heal very well. So with that said, I will be looking for another surgeon because I think that's bullshit because I've already managed to reduce a lot of the inflammation myself doing various alternative treatments. Plus, a seton drain being my only option at this point isn't really an option for me long term because like you I'm still young and don't want to have a drain sticking out of my butt for the rest of my life!
In the future, I may still consider getting a drain put in or at least having another surgery to clean out the infection and possibly necrotic / scar tissue but for right now I'm just trying my best to heal this on my own with what I know and using things like medical grade manuka honey you may want to look into this for fistulas or anything else down there, IV nutrients, detoxing, high doses or liposomal supplements with antimicrobial properties, free radical scavengers, antioxidants and things to help repair connective tissue and collagen, as well as homeopathic remedies. Fiber is also super important to keep my bowels moving properly and formed so that nothing passes through the fistula and I experience what you called the ring of lava fire!!! I can so relate to that and screaming on the toilet or in the bathtub in my sits bath after a bowel movement! My god the pain!!!
However, the fiber you need to use is equally as important I have found because some will cause constipation or rip up the gut even further. I'll be making my own homemade anal suppositories as well this week to help my healing along as well, plus doing a lot of hyperthermia treatments for infection, red light and laser light therapy for healing the area, and rectal ozone insufflations (I drink ozonated water every day as well) and so far I am seeing some progress. I do other things as well, but a huge part of what I've had to do to try to maintain my spirits and my health is stress management since this experience has been beyond stressful. Plus, I think this all started in the first place because I had several traumatic experiences that took place in my life leading up to all of this but I'll save you the story because it's long.
So far I am three months in and things do still get pretty bad on some days but they are nowhere near where I was 3 months ago when I first developed the perianal abscess and fistula tract. My GOD I HAVE NEVER BEEN IN SO MUCH PAIN IN MY ENTIRE LIFE and like you I was convinced I was going to die of sepsis or anal cancer, it was terrible! The pain would get so bad at times that I couldn't sit, walk, or even lay down without screaming and bawling my eyes out. At one point when I finally went to the ER to have it lanced I even went into shock because my body couldn't handle the pain anymore. Man, I wouldn't wish this crap on my worst enemy and I've been through my fair share of pain over the last 15 years having been diagnosed with multiple autoimmune diseases and Lyme disease. This is by far probably one of my worst experiences to date in terms of the pain, that's for sure!
Like you, I now have extreme PTSD not only of going back to the hospital to have this dealt with even further but of having anything going near my butt in general or even going to the washroom. So this whole experience has felt extremely isolating, daunting, and depressing to say the least because like you said there aren't a lot of people talking about this, let alone women. Plus, unless you've had the "pleasure" of feeling this kind of pain people really don't know what you are going through from day to day or what it takes to care for a wound like this on a daily basis. It's like my whole life can't start every morning until after I go through my 1-2 hour washroom routine or how I get anxious every time I am away from home.
Well anyway, I would love to hear how you are doing now, and thank you so much for sharing your very personal experience with us. When I figure out how to heal this damn thing I hope to share mine as well someday so that others don't feel so alone. Can I get the name of your surgeon and where he is located?
All the best and God Bless!
Jess
😢😢😢😢😢🌹. Incredible
In your corner. Currently navigating much the same with abscess, surgery a few months ago, seton, heading for MRI next week to see what the current state of the fistula looks like so they can schedule the fistulectomy. First MRI noted superficial fistula, so fingers crossed it stayed that way during the first surgery and seton draining. Your are right, pain was excruciating with the abscess, was taking baths up to 3x a day and feared just going to the bathroom. How have you faired since your post?
Stay strong my friend 🙏🏼 Praying your MRI results are in your favor ❤️🩹 Thankfully I have made a full recovery since my final surgery in December. 🙏🏼
Where can I see photos?
I've got an abscess drained in January through GA..it didn't heal..then i got diagnosed with fistula..i have a nurse come over daily for packing and my seton attachment surgery will be on Friday...and i took care of my husband who had complex fistulae since 2019.. our lives have completely changed and I'm scared for my seton attachment.. plus I have kids who are only 7 and 4.. anxiety is really kicking in so badly.🥺
That’s so incredible hard and I’m so so sorry you are both suffering with that! I can’t imagine both myself and my husband having to go thru it at the same time with children. I hope you have a supportive family/network to help you get through this. I know how life altering this is for you both. Please be kind and patient with yourselves. Sending so much love and prayers to you.❤️🩹
🎉#1🎉🎉🎉
Think I lost my seton not sure if ifs it’s in or out
Also it hurts to go to the bathroom. So I think subconsciously it makes hemorrhoids. Because you are in pain and eating habits are different.
Hi, I’ve had my chronic anal fissure turn into an abscess recently. Now my doctor is saying he needs to place a seton and wait for at least 2 months for the drainage to be done I guess? And after it’s done he’s going to do a laser surgery to close up the seton tract. I’m really scared that the seton is going to hurt and going to make things worse. There’s no visible fistulas and I don’t understand why I have to get the setons if I don’t have fistulas… I don’t know what to do : (
I’m so sorry to hear what you’re going through. The seton is a drain for the abscess. He needs to wait because you probably have a lot of inflammation. It won’t make things worse. It’s going to get rid of the infection. Make sure you have a Surgeon who explains everything to you, who is very experienced and who you trust. Everything is going to be okay. ❤️🩹
Also can you talk a little bit more about how you are doing? Have you gotten the flap? Thanks
Grateful to say I did have the advanced flap, the surgery was a success and I have made a full recovery ❤️🩹
@@Blessed_22 I’m having a really hard time trusting doctors like you did after the treatment I’ve gotten for my fissure which eventually caused it to become worse and chronic. I guess I have no choice but to get the setons even though it’s probably going to be really uncomfortable
@@Blessed_22 That’s really great to hear. I don’t know you but I honestly feel how you felt months ago and I’m very happy that you’ve gotten through your hard times, truly. Thanks for putting this video on YT btw. It somewhat helped me mentally to know I’m not the only person experiencing it.
How are your scars after surgery? What do you do if you have no tub? Hot tub?
My scars are amazing. Not noticeable at all. And the tub I’m referring to is a sitz bath. A hot tub would be a big no no with this situation for sure!
I almost died from this. I went septic and ended up in a coma
Seeing this is so upsetting to me. I can only imagine the horror you and your family endured. I’m grateful to see you are still here. ❤️🩹
Can you elaborate because at times I thought I was going into shock as well which is why I started ozone treatments. Even did IV ozone and DMSO but that was way too strong so now I'm doing ozone myself with my ozone generator. I drink ozone water daily, do hyperthermia and do ozone insufflation, plus ingest and use medical grade manuka honey anally and I've been feeling a whole lot better and noticed these things make my abscess feel a lot less painful, and make them drain very quickly, plus reduce the inflammation drastically.
There’s no more horrendous and excruciating pain than anal abscess… totally in this path as well, right now dealing with a cut seton which is very painful
Speedy recovery my friend.. Hang in there!!
How long do those usually take and where did you get that done because I only thought those were available in India?
Thanks for sharing! It’s been a while since you posted, did you end up having the advanced flap surgery? Would love to hear your experience. I’m having mine in August Xo
I did! So blessed to say I made a full recovery! You’ll be in my thoughts and I’m wishing you the same for your upcoming procedure in August!❤️🩹
@@Blessed_22thank you so much! I appreciate it. Glad to hear it went well for you. I’m worried about the pain and the healing process and the chance of it failing/returning but am gonna think positive and hope it heals properly and I don’t have any further issues 🤞🏻🤞🏻🤞🏻
@@Mac42203 I understand and honestly that’s still always in the back of my mind too. But remember, all we have is today. And if God forbid that does happen, we will be okay and make it through again!
@@Blessed_22 well said. I’ve learned to live with my fistula and seton waiting for surgery. And I’ll deal with whatever is thrown at me after that, although I hope it just goes well and everything is healed! 😂😅
My god, what an awful experience. I’m telling you, most people just trust that all doctors are competent. Some are not and this kind of stuff happens. It’s sad
You are so right. It is sad and it’s really scary! That’s why trusting your instincts is crucial.