I have Marfans. My version includes effects of my eyes, lungs, feet, bones & joints, and, a few other markers. I have broken 9 bones in 3 years, and have osteoporosis from head to toe. I too, have an aortic aneurysm, as well as lens implants. It's not fun, but God gives me strength for everyday. So, for the young man, I say: You hang in there, kind Sir. Fight the good fight. Take one day at a time. I'll be praying for you. :)
This is literally my thought process, as someone who has had 11 surgeries due to this syndrome and has experienced the worst kind of pain i definitely would not want to inflict this onto my children.
@@phenomdesigns4006 What’s the worst pain? I’ve had half a dozen chest drains with just local anaesthesia and pleurodesis on both sides. I think you’re being a chicken.
Disabled people are all WORTHY of life. Marphan´s is POTENTIALLY deadly...not deadly. With intervention, I have been advised by my own doctors that I can LIVE a NORMAL life expectancy with some help and support, not extended hospitalizations, etc.. I am getting a diagnosis of a mystery illness that could be Marphans. I am GLAD MY PARENTS didn´t listen to the odds given by doctors and their family history and instead gave me a HAPPY and productive LIFE even though I am DISABLED.
@@prueXothey can have kids they just have to be smart and go to prenatal care. This would allow which of their kids have marfans and they can chose to terminate the pregnancy accordingly.
So deaf people should not have kids ? Blind people and achromates too ? People with many cases of cancer in their families too ? What about people with a history of asthma ? People of weak constitution etc. ? So who ever is not fit enough s Must not have kids... Eugenics shall never be brought back. This ideology is one of the worst humanity has ever created
For years I always wondered why my scoliosis was so much worse than everybody else is and why all my joints dislocate so easy. Super beta prostate I've always been very skinny
I mean bro let them have kids and I’m not gonna argue with someone like you but don’t get me wrong I can turn Marfan syndrome into a strength by peer pressuring my entire body but not in a bad way
No-one with Marfan Syndrome should get married, it is a death sentence. Be careful babies, you are stronger than you could ever imagine, look after your hearts and protect them. I know you, I know your suffering and I know why. Self love❤ is all you need and I will love all of you always because you all take on so much, I feel it. I have Marfan syndrome, I am 34 years old and I have overcome my disability and I'm only getting stronger and I believe you all have the power to do the same. Increase your energy, be fearless, be strong. You are loved more than you know. Whatever happens you are protected and you will learn in time how powerful you really are. Understanding duality is essential, we have both light and dark aspects of our subconscious and our thoughts change the world. Be the change you want to see. Be the miracle❤
Parents should be ashamed. Why bring children knowing they have a literal 50% chance to be sick. I would have a hard time understanding the logic even if the percentage chance was lower but at 50%, to still bring children, thats absurd. Unbelievable. I wish people could monitor who is allowed to parent and who isn't. Absolutely disgusting.
I have Marfans. My version includes effects of my eyes, lungs, feet, bones & joints, and, a few other markers. I have broken 9 bones in 3 years, and have osteoporosis from head to toe. I too, have an aortic aneurysm, as well as lens implants. It's not fun, but God gives me strength for everyday. So, for the young man, I say: You hang in there, kind Sir. Fight the good fight. Take one day at a time. I'll be praying for you. :)
God bless you brother, i dont have those kind of problems but still have half of your strenght i wish have.
Honestly if I knew I had marfan syndrome, I personally wouldn't have kids because I wouldn't want to risk ruining my kid's life.
Lol
This is literally my thought process, as someone who has had 11 surgeries due to this syndrome and has experienced the worst kind of pain i definitely would not want to inflict this onto my children.
i have marfans and its fine because no one wants to have kids with me because of it anyway. guess ill just be alone lol
@@ricwhite612cap 🧢
@@phenomdesigns4006
What’s the worst pain? I’ve had half a dozen chest drains with just local anaesthesia and pleurodesis on both sides. I think you’re being a chicken.
One day the kid will be like, you knew I would turn out like this.. still you brought me here to suffer.
I mean if they’re mature they’ll realize it is better to live this life than never exist at all.
Disabled people are all WORTHY of life. Marphan´s is POTENTIALLY deadly...not deadly. With intervention, I have been advised by my own doctors that I can LIVE a NORMAL life expectancy with some help and support, not extended hospitalizations, etc..
I am getting a diagnosis of a mystery illness that could be Marphans. I am GLAD MY PARENTS didn´t listen to the odds given by doctors and their family history and instead gave me a HAPPY and productive LIFE even though I am DISABLED.
Please don’t breed
@@canyougetthat507من فضلك كل كندره
He seems so sweet I hope he's ok
Disgraceful parents. Wishing the kids all the best
The only person disgraceful is you.
@@prueXo I cannot relate.
@@prueXothey can have kids they just have to be smart and go to prenatal care. This would allow which of their kids have marfans and they can chose to terminate the pregnancy accordingly.
Pro-Eugenics?
@@marc_2690It's a slippery slope mate. 😂
"That was a risk WE were willing to take"? How selfish is that, you just can't bet on people lives like that, specially your own children. Wtf
Everyone is entitled to their own children... disabled or not. as if only completely healthy people can have kids
So deaf people should not have kids ? Blind people and achromates too ? People with many cases of cancer in their families too ? What about people with a history of asthma ? People of weak constitution etc. ? So who ever is not fit enough s
Must not have kids... Eugenics shall never be brought back. This ideology is one of the worst humanity has ever created
@@Dee--Jay they coulve adopted
@@justaturky2890 Yes they could have adopted but they didn't and that's their choice. Not everybody wants to adopt, most people want their own seed
I know. I was floored hearing this mom say that. Of course it’s not her going to go through a life of hell. What a mom!
I was told I would never see 40. I am 57 going on 58 and I am still going strong!
Is that why my wrist is smaller than my large hands?
I used to put my pills in a grape and chew the grape 😂 now I can swallow
For years I always wondered why my scoliosis was so much worse than everybody else is and why all my joints dislocate so easy. Super beta prostate I've always been very skinny
Wow horrible people gambling with their children’s health
I mean bro let them have kids and I’m not gonna argue with someone like you but don’t get me wrong I can turn Marfan syndrome into a strength by peer pressuring my entire body but not in a bad way
Send BIG HUG
Incredibly selfish parents
So they had kids?
It’s a risk you’re willing to take? What about bringing a life into the world full of torture to that kid? Not cool.
That’s my uncle aunt and cousins!
Disgraceful parents.
Thank you Jesus Christ for letting me know I probably have this disorder. Or the doctor. Or both, thank you for sharing. Space Aliens. That's all.
O
No-one with Marfan Syndrome should get married, it is a death sentence.
Be careful babies, you are stronger than you could ever imagine, look after your hearts and protect them.
I know you, I know your suffering and I know why.
Self love❤ is all you need and I will love all of you always because you all take on so much, I feel it.
I have Marfan syndrome, I am 34 years old and I have overcome my disability and I'm only getting stronger and I believe you all have the power to do the same.
Increase your energy, be fearless, be strong.
You are loved more than you know.
Whatever happens you are protected and you will learn in time how powerful you really are.
Understanding duality is essential, we have both light and dark aspects of our subconscious and our thoughts change the world.
Be the change you want to see.
Be the miracle❤
Parents should be ashamed. Why bring children knowing they have a literal 50% chance to be sick. I would have a hard time understanding the logic even if the percentage chance was lower but at 50%, to still bring children, thats absurd. Unbelievable. I wish people could monitor who is allowed to parent and who isn't. Absolutely disgusting.
Relax babes, we’re fine 😂