'Grey's Anatomy' star reveals daughter's medical mystery
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- Опубліковано 20 жов 2024
- Chandra Wilson tells "GMA" her daughter, Sarina, now 23, suffered mysterious symptoms for nearly one year before finally being diagnosed with cyclic vomiting syndrome.
Chandra Wilson does not look old enough to have a 23 year old daughter.
cause black don't crack
^ 😂 true but she's 47
REALLY?? Omg she looks so good
Black don't crack bruh
A bitch
I LOVE that she took this experience and put it in Greys as awareness and turned it into something others could use and help people.
Wow, didn't know her daughter was 23, thought she was like a teenager
Tara Williams
Same here a 15 or 16 year old
Thank you for shining a a light on Cyclic Vomiting Syndrome I have been battling it since about second grade so I was 7 or 8. I am now 25 and have thankfully gone without an episode for about 6 or 7 years now, but I am always scared that it will come back, so again thank you for showing that this a syndrome that needs attention.
Katherine Brunt I agree completely, it is also extremely comforting to know that someone has beaten it because I am still battling it. I hope that this will bring a lot of awareness
Katherine Brunt my dad has CVS
Katherine Brunt God bless you🙏❤️
Katherine Brunt I found out that I have cvs 2 years ago and I have not had an attack in a while so I hope I can be attack free for a while now 😊
You don't just beat it. You can be in remission but no one beats it
she's just bailey to me, I can't really see her as chandra wilson. lol
becca marilyn good acting
Me too!
she really IS Dr.Bailey! Look at that binder! 😄
That’s what I said too!
As someone who is 16 years old and had CVS for 14 years and also a HUGE greys fan. This is something so special, hearing the name be said on my TV was something so incredible, thank you Chandra for everything you do and for raising awareness for Cyclic Vomiting Syndrome 💙
Chandra seems like such a cool person to hang out with
It's just so hard looking at her as not Dr. Miranda Bailey. It's difficult believing that SHE DID NOT TREAT HER DAUGHTER !
I was diagnosed with cvs when I was 10, it took a year and a half of testing and hospitalizations to finally be diagnosed. I know how awful it is and I wouldn’t wish it upon anyone. I got to meet Chandra Wilson in 2012 in Milwaukee at a conference about CVS!
I'm so glad she's speaking out about this! I also have CVS, thankfully not often, but it's very very scary and very painful.
Thank you so much for this. I am 14 and have had cvs for my whole life. I haven't had an episode for a couple years but when I do it lasts about a week. When I was younger they lasted a couple days but they were more frequent. I'm so glad people are finally shedding a light on cvs. Thank you so much.
I'm glad that they've come out and talked about this. I have suffered from this disease since I was 3. I'm 20 now. It's basically a diagnosis of elimination so it can take awhile. My episodes have subsided as I've gotten older but when one hits, it's like getting hit by a train and it can last for days. I hope that they discover some kind of treatment or cure in the near future for all of us who have to deal with this debilitating disease.
Chandra and her daughter look the same age 😂
michal keren black don’t crack
When I heard of CVS I thought of CVS pharmacy
Thank you to all involved for sharing Chandra's story. To Chandra herself. You're an amazing Mum with a strong girl. My 2 year old daughter has CVS, severely since 15 months old, and it has been so hard to see her so sick during so many episodes. Pre diagnosis was especially hard. She had brain MRI's, ultrasounds, bloods, exploratory scopes, barrium flow studies and the works done to her, just to try and figure out what was going on. She is the also youngest her specialist has diagnosed with the condition. She just had an episode last Tuesday and we are trialling new medication to see if it helps her. Fingers crossed this segment and that episode also helped others going throigh this condition undiagnosed.
Chandra's laugh makes me so happy
Thank you so much for shedding light on this horrendous disease. My husband has been dealing with the symptoms of CVS for 12 years now. I say symptoms because it wasn't until about a year ago that I found that CVS even existed. So now, we are in the process of finding a doctor that has dealt with this as can work towards a diagnosis. It has been a struggle for many years trying to find answers and not knowing where to look. Now that we have a direction it is a huge relief.
I'm so glad to see people are learning about cvs. It started with me at 2 years old and I'm now 62. I finally got a diagnosis a few years ago after being treated for every other condition or looked at like I'm crazy every time I have to go to the emergency room. When you get into support groups you realize it's not as uncommon as they say.
No mama should ever have to carry their own child's medical records.
Worked with her Sarina a few years ago. She's super sweet, very reserved and really tiny in height. I would know since I'm only 5'2" lol
Amber Perkins 666667777777777m90
You know her daughter!!!!!! Ok this makes me so jealous of you. I’m a kid and I have watched every episode your so lucky.
Honest to god had it not been for that specific Grey’s anatomy episode I wouldn’t have figured out what to ask my 8 year old daughters doctor about if this could be what we were dealing with, and I cannot thank Chandra Wilson enough for putting the information in this episode to get us to this point. When her doctor walked in the room today and told us we had a diagnosis, after the 3 year fight with this monster of an illness, I literally wanted to hug her and just cry because we have fought for so long in the dark with this searching, and searching for the answer and who knew it would be a greys anatomy episode that would get me to say “omg I think that’s it” literally that’s exactly what I said! Now the fight is not over as this is a chronic condition and just like with all other chronic conditions what works for some may not work for others, but we now know, like she said, what direction to go in and what we can try to do to prevent these episodes. I’m so happy just to have an answer!
Hope it all goes well! Mothers are often the best at knowing if something's going wrong with their child, and this is an excellent example!
my niece is almost eight years old and was diagnosed two years ago we were so scared when we didn't know what was wrong with her it is the scariest thing to know this sweet little girl is so sick at such a young age knowing there's really no real information about the disorder and to know to treat it is really just a guessing game at this point. thankfully she has been almost a year without a episode (which is what her doctors call it) but its still so scary when she gets even the tiniest of upset stomach or stomach ache. hope Chandra knows she is not alone and that we all pray for a cure or not only her daughter but all the rest of the cvs suffers all over the world
I LOVE GREYS
Who doesn't?
Chandra talking about sharing the illness on grey's anatomy, really struck home for me.... i got diagnosed with hEDS, because i noticed my mystery illness matched up with the symptoms of their EDS patient in season 13... if it wasn't for that episode, i wouldn't have pushed for that testing to be done.
my sister has this. she’d throw up all the time and no one knew what was happening. teachers and family members thought she was faking it.
My second baby was born with Pyloric Sphincter Spasms and had projectile vomiting every time she was fed. The doctors ended up giving her medication to relax the Pyloric Sphincter and the symptoms went away. I wonder if that treatment might help with this condition.
Remarkable , she is truly an amazing woman
my mom has 3 4 inches binders with my medical papers and stuff I thought she was crazy but apparently that's normal
Austyn Reagan my mum does too!!! Haha
Oh my goodness lol my mom was like that all through my childhood since i have a bunch of rare diseases and chronic illnesses and now that im in my 20's I REALLY need to get organized like that again lol
Austyn Reagan so does mine 😂
I have Hydrocephalus, one kidney, scoliosis, eye surgery, brain surgery.
I still don’t think anyone should have that many medical papers.
My mom was a draw with all my heart problems forms and thingys from the hospital visits
Austyn Reagan my mom doesn't do that but I'm now starting to think about doing it for myself
Beautiful lady!
Omg I have CVS, It took years before I was diagnosed!!!
I hope her daughter gets a cure and help soon!!!
My mom has about 11 binders from 2014 and many more from before 2014, I’ve been struggling for years trying to figure out what I have, it turns out that when I was born they ruled it out as ehlers danlos syndrome EDS for short, I was given this at birth, and we never even knew I had it until 2015. I also have mytrovalvue prolapse which gives me horrible palpitations. I also have these crippling headaches, I’ve had them since about 2013 and when you go to the doctor they’re just saying “oh they’re migraines” but what people don’t understand is that no medication has helped my headaches, I’ve tried them all, including Botox. My headaches have never went away and they’re at a constant 10. Sometimes it’s even a 12 or a 15 or anything higher than 10, nothing helps me and it’s honestly so crippling. I’ve been to every doctor in my state and everyone just pushes us away like we’re psychotic or we’re lying, if I could afford to go to other doctors I would, and if I had so much more money than I did I’m sure I’d have a lead to what these headaches are by now. Sadly it’s not like that, I’m stuck with bs doctors, the same medications that do absolutely nothing, and no money to travel and receive better care. I get exactly how she feels and I’m happy that she actually got something that’s helping her control what’s wrong with her, I also love greys anatomy, all time favorite show ever.
My friend has it. She went into the hospital to learn tricks to stop it from happening. It’s not a guarantee, and she’s had relapses but at least she has the tips and tricks she learned at the hospital.
That episode of greys anatomy gave me my diagnosis
Greys talked about Eherlers danlos syndrome nobody Knows what it is (I have it) I WAS SO EXCITED
she's lucky her mom was such a great advocate for her daughter. Many doctors at family practices don't really know shit. Ask for referrals. Doctor tend to try to make you feel like they know better, follow your gut, look them in the eye and tell them you want a referal to specialist or want that MRI. literally yelled at a doctor because she said my mom's knee pain was arthritis from aging. We knew it was not that because it came sudden and ended up being something she needed surgery for and it fixed the issue. I tell you though, me and that doctor went rounds. she wouldn't give us a referal for an MRI bc the X-ray didn't show anything. She wanted to give my mom a prescription for opiods to "help the pain". We said, "no" she got angry and after a squabble she yelled flinging her hands in the air, "what do you want me to do? give you a referal for an expensive MRI?" I said sweetly, "Why yes. thank you. we'll wait right here." there was something torn in her knee that the xray didn't show and only could be seen with the mri. IT was not old age (she was only 64) keeping her down for a couple weeks. If we listened to this "well respected" doctor my mom would have been another casualty of opioids and never gotten her knee back to normal. be your own or someone's medical advocate. it's very important bc medical people, while they initially care, really don't care unless it's their family. it's a job and they are extremely detached from a lot.
My son has suffered with this since he was 14 months. We could not figure out what this was. He would vomit (as Chandra says a very violent type of vomiting) every 15 minutes (to the second), for 8 hours straight, every 2 months. He always had the same pattern. I was racking my brain, what did I feed him, why is he doing this? I blamed myself as the mom since none of the doctors knew what this was. I kept a diary about this for years. At age 15 it stopped (he is 32 now). I was told this syndrome is similar to a Migraine of the stomach. This is a very tough syndrome. Some kids do this for days on end (I considered us lucky with only 8 hours). After the 8 hours he would sleep an hour and a half, then be able to eat anything. I did not learn about this until my son was in 4th grade by a newspaper article.
i have the same thing and i'm 12. i've had it since i was one it took FOREVER to diagnose
how do you remember having it when you were one
Instead of CVS I have FV. I guess they are kind of similar. I'm really grateful that she is spreading awareness. For ages doctors were saying its an eating disorder or "all in your head" I'm sure you can all relate. It isn't really fair because Unfortunately when healthcare providers aren't educated about these things, they tend not to treat them. Nausea : I'm sorry, there is nothing we can do, Try breathing. Oesophageal burns from the acid: if you stop vomiting, it won't hurt anymore. Pain: there is nothing we can do / sedatives/ try some colouring . Antidepressants instead of antiemetics, antipsychotics instead of pain relief. You feel like you are going crazy and that if it's all in your head, why can't you just stop? The guilt you get when you go to hospitals where there are "actual sick people " . None of it is fun and I wouldn't wish it upon anyone. They say that 53%+ of patients with these diseases have psychiatric illnesses. This is interesting, especially as 75% of the population is mentally unwell at some point in their lives and that what they are going through is incredibly tough and traumatic. They feel like people aren't listening to them, like they are making it up. It would be unusual if they weren't anxious or depressed. Especially due to the lack of treatment resulting in a lower quality of life. Rant over, if you read this far: thank you :) I appreciate it. Have a good day and if you are battling these diseases - stay strong
Edgar Cayce was using arkasic record to diagnosis diseases and find cure, i.e. the access of supersymmetric mind; he was doing more than just hypnosis therapy, that technique becomes rare now
Anyone suffer with cycles of horrific nausea but can’t be sick? My cycles last up to two weeks and I’m totally fine in between.
The nausea isn’t just “feeling a bit sick”. It’s EXTREME. The only way I can describe it is as such a severe discomfort that you can’t think straight, you’re lying on the floor squirming and begging for it to end, trying to make yourself sick for relief, and if there was a button to end it all you would press it! No anti emetics work. It’s a living hell.
I have CVS and I’ve had it since I was five, but I was diagnosed when I was eight. I mostly have migraines but I used to have really bad vomiting episodes. I call us CVS sufferers CVS warriors. We power through so many different stages and have different ways to cop, but one thing most of us have in common is that we all hate it!
I was diagnosed at around the age of six. I started suffering at the age of three. I've been hospitalized over fifteen times. My doctor made a journal about me and my episodes. I've busted the blood vessels in my face, ripped my stomach lining open, thrown up all of my stomach acids, and have been deathly dehydrated. It's pretty fucking rough.
Chandra Williams, if you happen to read this..Bless you and Family hope your Daughter feels better soon. In your statement to GMA you said your Daughter has chronic pain issues too,my question is...How does she deal with that on a day to day basis?with this highly political crusade that all patients must suffer when it comes to pain meds??
This is truly overkill.
I have cvs and it took 2 years to diagnose and I threw up every night.
Megan Barber yes it was I also have abdominal migraines and that’s why it was every night. Few years after that diagnosis I was diagnosed with Crohn’s disease so I’m sure that also was a factor
oOf
i have cyclic vomiting syndrome, it legit is the worst. no joke. it really is, because it mostly revolves around on from anxiety, but you know all about it now.
i have moments where i get sick and continue nonstop until my stomach is empty, it took me and my family about like 2-3 years to find out because of visiting the hospital nonstop from it....
oh crap, i am nauseous, brb-
the therapy that Dr Bailey was promoting on Grey, Gene actually is a statistical technique; building a gene database to record and pre-identify the gene seq of specific recorded diseases, we could use supersymmetric mind system to figure out the cure for specific gene pattern
I just watched that episode
Katie80 which episode is it
Which episode?
zoe.z season 9 episode 6
Comment section
%20 "her daughter is so old she so young tho"
%80 "I have that to"
Anum Kay this is the 10th video I have seen about this as I am researching my sympotoms and this hits everything and then some and actually asked my doctor about this and they don't even know.
Don't knock people for connecting.
Greys anotamy is actually the reason i found out that what i have is OCD
Sarah F You should never self diagnose. That’s a slippery slope.
the brave bartender she probably meant she recognized herself in another case and went and seeked help.
beenlovingyoutoolong Hopefully.
Omg I have CVS too but I am almost cured of it
How are you almost cured of it? Just asking bc my brother has it and he suffers a lot from it.
like I am growing out of it
Ingrid Lannister
I've been told that I can a) grow out of my illness entirely b) be blessed enough to just have migraines or c) have the illness forever.
She’s gorgeous
i love bailey 💀💀💀
Wht ep did they feature the diseases
Season 9, Episode 6 I believe. Called "Second Chances". My daughter is 2 and has had this since at least 15 months old.
hell yea dr bailey
I think I might have this. Starting in February this year every month for one day ever three months I had this awful pain and I was puking it was really awful and It was like around the same time and I've read through symptoms and they all add up...
I hope u get the answers you're looking for
Me too... Prayers
Cyclic vomiting syndrome sucks! I've got it and it has been hell
That's what we could do with gene database, record & pre-identify; but figuring out a cure is another method
I started watching and stopped before the middle of the video, I feel so uncomfortable watching into people's life like this...
posi55 it's to spread awearness I'm in the middle of getting diagnosed and everything from fibromyalgia to kidneys. I think this is what I have and had she not been willing to share I would have no idea to telly doctor who btw are not listening to me. 😫😫 So it's ok to watch this and maybe you will help someone else who is suffering and won't hear about be this. Xoxo
There was a homeless guy with CVS that Karev diagnosed on the show a few years back
I have cyclic vomiting syndrome
I seriously feel this is what I have.... The pain, non stop nasea.. even zofran isn't really helping me... It's not even the vomiting isn't the problem it's the non stop nasea I can't even think. All those times I thought I had food poisoning... Could have been episodes. 😫😫😫 My doctor won't listen to me.
danae hernandez I agree. It's the nausea that's the worst. It took a few days to as me.. 3 episodes in 2 months
If you haven’t already you should see a new doctor or go see a specialist. Some specialists need referrals but they should be easy to get.
Megan Barber What?
I have it. Im 41 had since was teen. Got worse as got older
what episode
Interesting
I’ve got a medical binder
When she said Chief Richard Besser did anybody else think she said Chief Richard Webber xD
I was dx last week
I say her daughter and me would be friends cause I have it to
I didn't know they made an episode lol but yes very true! So annoying! 😭😭
I might have it......
Never mind
My little boy has CVS. Once a week, same time, same day, no matter where we are.. migraine, throws up, sleeps, wakes up fine.. bastard illness
No offense but that is no mystery but I actually have an unknown disease so yeah. But I have so many chronic illnesses vomiting sucks so much. I waited five years to get diagnosed with rare childhood arthritis
I don't know why but I imagined her daughter being a real, skinny, blonde white girl?!😂 🤦
I try so hard not to do this shit!
It's not that rare 🙄
Fran DeFilio That's not what she said.
If it's "so hard to diagnose"... it often times isn't a real thing..
It took me 18 months to get diagnosed with lupus and I was diagnosed via blood test, so it's indisputable. Try again.
Wow... And it's people like you who took 1 yr and a half to diagnose my lichen sclorosis via biopsy! Ohh I wonder why they didn't think of that in the first place? Psh grow up.
Not always the case. I went to 11 DRs for chronic pains in my knees for all but one to just tell me "you're just overweight. This happens to most girls" and the other one said "there's something there but not sure what it is." Then, I found a 12th DR who finally diagnosed me with IT Band Syndrome on both and a loose ACL on my right side. Sometimes it's "hard to diagnose" because a DR may not know what to look for, or what the problem is. Maybe they haven't seen it before. Or, in my case, they were all DRs who were too focused on me being a little heavy set to even think there may ACTUALLY have been something wrong with me. Or "they all have the same problems too." So, no, you're wrong.