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Bifida Blog
Приєднався 31 гру 2014
Spina Bifida can be a life changing experience - Follow the highs and lows of our trip to giving birth to our little baby boy NoLo! Watch uplifting vlogs compiled from parents Stuart and Louise's (with some help from 3-year old Heidi!) experiences with daily life from birth onwards.
Trachy Update - 10 June 2016
Bifida Blog - 10 June 2016 - Trachy Update
After some positive news about Noah's vocal chords in March, we were eagerly anticipating Noah's MLB. Would things be better? Could he almost be ready to go trachy free?
More Information on Spina Bifida
www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida
Shine Charity
www.shinecharity.org.uk/
Cots for Tots
www.cotsfortots.org.uk/
CotsForTotsAppeal
Children's Hospice South West
www.chsw.org.uk/
Care for Kids North Devon
www.careforkidsnorthdevon.org.uk/
Find Us on Facebook
groups/976336529061658/
Music Provided by Kevin MacLeod
www.incompetech.com/
See you tomorrow!
After some positive news about Noah's vocal chords in March, we were eagerly anticipating Noah's MLB. Would things be better? Could he almost be ready to go trachy free?
More Information on Spina Bifida
www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida
Shine Charity
www.shinecharity.org.uk/
Cots for Tots
www.cotsfortots.org.uk/
CotsForTotsAppeal
Children's Hospice South West
www.chsw.org.uk/
Care for Kids North Devon
www.careforkidsnorthdevon.org.uk/
Find Us on Facebook
groups/976336529061658/
Music Provided by Kevin MacLeod
www.incompetech.com/
See you tomorrow!
Переглядів: 207
Відео
Noah's Dedication Video
Переглядів 6359 років тому
The video that was shown at Noah's Dedication on 28th June 2015. Song is 'For this Child' Ken Blount.
A Room With A View
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Bifida Blog - Day 44 - A Room With A View After a long night of recovery we find ourselves somewhere new! Not content with having been in all but one room on NICU, Noah completes the grand tour by having a spacious side room! More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www...
The Hardest Day Yet
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Bifida Blog - Day 43 - The Hardest Day Yet We're well into our stay at Bristol now but could any of those days prepare us for the decision we would get today? Noah's breathing continues to go downhill and something finally has to be done... More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Co...
Shunt Surprise
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Bifida Blog - Day 42 - Shunt Surprise It's well known that we all like surprises but this time we'd rather pass! We get some very big news and big changes in super quick time! More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org.uk/ CotsForTotsAppea...
Trach-y or Not to Trach-y
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Bifida Blog - Day 41 - Trach-y or Not to Trach-y It's a foggy day today outside but it's about to get a whole lot more complicated for Noah. Breathing difficulties continue to cause problems for his recovery. More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org....
How Much Milk?!
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Bifida Blog - Day 40 - How Much Milk?! So we have just a few bottles of frozen milk in the hospital freezer and our job is to get it all home without defrosting, good luck! More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org.uk/ CotsForTotsAppeal A...
Deteriation
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Bifida Blog - Day 38/39 - Deteriation We have a brand new bouncer raring to go for Noah unitl..... More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org.uk/ CotsForTotsAppeal Antenatal Results and Choices www.arc-uk.org/ Find Stuart on Facebook faceb...
One Month In
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Bifida Blog - Day 36/37 - One Month In We are already one month into our journey with Noah and we are in a reflective mood as we get our first suggetions of a possible move from NICU. More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org.uk/ CotsForT...
A Settled Midweek
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Bifida Blog - Day 34/35 - A Settled Midweek Despite Noah have some breathing difficulties over the weekend he starts the week well and continues to do well during the week. More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org.uk/ CotsForTotsAppeal A...
One Night Only
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Bifida Blog - Day 32/33 - One Night Only So our stay at Bristol this weekend was cut slightly short and we still try to cram as much in as possible but trouble is on the horizon... More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org.uk/ CotsForTots...
Nebulised
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Bifida Blog - Day 30/31 - Nebulised Some things never change - It's Friday night and we are visiting the hospital but something looks a bit different to normal! More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org.uk/ CotsForTotsAppeal Antenatal Res...
Progress
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Bifida Blog - Day 29 - Progress We're keeping it quiet but today we are feeling really good about Noah's progress and hoping it continues to get us home! More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org.uk/ CotsForTotsAppeal Antenatal Results an...
Moving Forward
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Bifida Blog - Day 27 - Moving Forward It's midweek and we finally look like we are making progress with Noah! More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org.uk/ CotsForTotsAppeal Antenatal Results and Choices www.arc-uk.org/ Find Stuart on Fac...
COMPETITION RESULTS
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Bifida Blog - Competition Results Well done to everyone who entered...let's find out who can guess the best! More Information on Spina Bifida www.shinecharity.org.uk/spinabifida/more-about-spina-bifida/types-of-spina-bifida Shine Charity www.shinecharity.org.uk/ Cots for Tots www.cotsfortots.org.uk/ CotsForTotsAppeal Antenatal Results and Choices www.arc-uk.org/ Find Stuart on Face...
I hope that Noah improves soon ♡ hugs to you all x
So pleased to see him and so pleased that it went well you are such a inspiration to so many good bless X
God bless x
I think that he will have brown hair and that he will weigh around 6lb 4oz and that he will be born on monday my head is telling me 23:30 but I think he will make hes appearance much sooner knowing my kuck hehe ♡♡♡
23:20 not 30!!!
So sorry for the typos xx
Black hair 6lbs 7oz Tuesday 8:30am was going to say 6lbs 6 but Stuart nicked it x
Love this, again have shared this as much as possible xxx
Another brilliant episode, you are both amazing, x
Your a amazing family nolo is very blessed to have you it's been a privilege to see your journey so far x
Very brave of you to put this all on video - look forward to seeing the next part of your story. Best wishes to you Stuart, Louise, Heidi and bump :-)
Lovely vid. Looking forward to the next one.