Co-host Mahsa and Lindsey continue discussing Lindsey's journey with IgG4-RD, and all the other diagnoses she received in the process, such as Still's disease, cancer scares, and the fibro-inflammatory mass biopsy that finally confirmed her diagnosis for IgG4-RD.
Lindsey discusses the treatments that have helped her get to today and all the wonderful and inspiring outdoor activities that she has immersed herself in, while representing for our rare disease community.
Be sure to watch/listen to the end, as Lindsey has some very important messages for our patients, caregivers, and medical communities out there!
Remember to check the transcript if you want to read along.
Resources:
- Living with IgG4-Related Disease (facebook group): groups/igg4rd
The International IgG4 Support Group (facebook group): groups/623572183028526
- IGG4 (facebok group): groups/1545123538859845/?mibextid=NSMWBT
- IgG4-RD CONNECT (apply to join): bit.ly/4cXap8B
- Igg4 related systemic disease Australia user group (EXCLUSIVE TO PATIENTS RESIDING IN AUSTRALIA ONLY): groups/1545123538859845/?mibextid=NSMWBT
- ERN RE-CONNECT: reconnet.ern-net.eu/disease-igg4/
- IgG4ward! Community (apply to join): igg4ward.org/community/