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This information needs to be given out by doctors when diagnosed.

Thank you so much for all the info

I noticed a few areas where I could help optimize your video to reach a larger audience. Would you be willing to discuss this further?

I absolutely love your videos! They're always spot on and seem to encapsulate everything I've learned over the years-great reminders with so much more added. With all the misinformation about POTS and EDS online, it's so refreshing to come here and recenter with accurate information and practical advice that genuinely improves quality of life. Thank you, Dr. Clair! I look forward to learning even more from you. 😊

thank you for all the info always! Would love to hear more from you about Dysautonomia, dysregulated nervous systems in EDS, how that relates to chronic fatigue, ME/CFS/PEM-like symptoms, bedridden states, and what steps we can take to become more functional again.

I went to a top allergist at a noted hospital yesterday and she straight up told me that Mast Cell Activation Syndrome is not real and is controversial. I just looked at her in disbelief. She also told me my fatigue probably came from the Zyrtec I was taking. I cannot express how difficult it is to deal with a chronic illness and find help from doctors

Hi I’m trying to raise to my geneticist the possibility of oxygen therapy, do you have a link to a study or guide for reference? Please 🙏

I have fat on my arms that makes it hard to tell on the arm test. Many of my joints are double-jointed, but the Beighton Test fails to address these...

Is this why getting tattooed doesnt bother me at all? I have CCI and AAI

Great video!!! Thank you!!

My husband & I got tested with our teenage daughter. All because she is a very picky eater due to AuDHD & I was concerned. I asked for some nutritional labs to be run by her pediatrician including amino acid panel. Shockingly her glycine was flagged high at age 15. They could not find the reason why. Now at age 18 they redid the glycine test & are doing another DNA sequencing test.

Seems that VUSes are something that need to be watched over time. Feels like we need to continue towards testing, because we need to find patterns...

What are the 3 signs?

I have heds, veds, mast cell, disautonomia, asthma, severe allergy, hypogamaglobulobinmia, and horrible life long pain. I take Zyrtec, clortab, Tylenol , and Sudafed almost daily. Was taken off pain management after 22 years on the same dose with no problems. That was over a year ago. Quality of life matters but not to these doctors in the medical industrial complex. Diet and lifestyle are definitely key as is moderation. Thanks for all you do. I’m glad I came across your channel. You definitely know what you’re talking about. Thanks for reminding me there are still good doctors out there. My truth is a nightmare. I have no trust or respect for doctors after what I have been through. I have a DNR on file. They can’t touch me or load me into an ambulance. Let me die anywhere but the hospital. Those places are not about compassion, dignity, and quality of life care. They kill more than they heal.

Thank you very much for your information, you seem very knowledgeable in eds connective tissues and tethered cord issues, l am a senior now 76 years old l was born with these problems l have been suffering from them ever since l was diagnosed with scoliosis at 10, years old , l have had so many medical problems from this but never diagnosed with them, except chronic fatigue, and fibromyalgia pain flu like symptoms l also was told recently that l have lumbar spinal stenosis and cervical instability but since my insurance will not cover certain test and of my age doctors do not give me a straight up diagnosis, they have made me feel as though lam nothing and gas light me , l feeling so sick l can not get up enough energy to find another doctor l am in so much pain even my fingers and hands are hurting not only in my lower back down my legs numbness and tingling and pain my cervical spine is very painful but thank you for everything ❤🙏

I am too old with too much pain , the medical society has failed me ! Sorry they didn’t catch this syndrome soon enough, but l would still like a diagnosis of Ahlers Danlos Syndrome for the sake of my mental health and my offspring also to for them to acknowledge my daily suffering with no quality of life just because lam old doesn’t mean that l do not deserve to be treated just as well as illegals that our able to do better then some one who was born and raised in the USA , my daddy was a warrior in WW2 he got his eyes blown out laying on his cheeks and shot he loved his country my fore fathers loved this country , if my father knew l was suffering right now and the professionals did not care l would hate to see what he would do and say 🙏🇺🇸🙏🇺🇸🙏

I don’t understand why there are not more doctors aware of “Ehlers Danlos Syndrome “ ❤🙏🦋🙏🇺🇸💜🦋

I don't understand which website this is. Can someone please write it down?

Non ho capito di quale sito si tratta

Dr. Clair you are a true godsend to me! I'm 56 and was just diagnosed with classical EDS, MCAS and POTS. Obviously, my life and health have been a crazy rollercoaster of symptoms etc but I'm so thankful to finally have a diagnosis that connects all the dots throughout my life in terms of health. But, wow, its also very overwhelming to understand my body under this new lens and get effective treatments. Your content is really helpful!!!

Thank you for all of the education that you are offering to the world - in your very limited free time!

Thank you “ you are so knowledgeable l wish that you were my doctor, could you be so kind as to tell me why my primary care doctor is so afraid to tell me anything about my condition? I am 76 years of age, and still have no diagnosis of my condition after years of being sick ever since a small child. , now l think lam too old for doctors to admit my problem of Ehlers danlos syndrome, l have had to search medical literature going to libraries when l became old enough to drive my hands and fingers are very painful so l will have to be brief, is there some reason why doctors could care less about my Eds now because of my age? Thanking you‘sweetheart for a reply in advance , l am so suffering not only with pain but all the other things caused from Ehlers and getting older has maxed out every thing and l am so sick ❤️❤️🙏🙏

Thank you 🙏🇺🇸🙏❤️🙏💜🦋

And how do we find someone to write or read that imaging? I’ve been trying since you left Baltimore

Low histamine diet has been a game changer for me ❤

Hi dr can you talk abut disautonomya pots and mcast and Heds .from were to start if i have this combo

Thank you so much for making this information available! 😇 I was Dx with hEDS (possibly cEDS- awaiting a geneticist) at 47yrs old. I’ve suffered most of the head, neck and back issues which you’ve explained so well, since my early teens. It wasn’t until I reached my mid 40’s however that I started to experience the neurological issues as well. I’m nearly 50 now and I’m so tired of having to fight to be taken seriously by doctors who just don’t yet know. Your videos are so informative and helpful! Thanks again!

I absolutely get relief from canned oxygen but can’t afford to buy it for myself bc I need a lot to feel a difference. Do you think insurance will cover this at some point?

You mean the creak/crack when I get my head fully back and it pinches my spinal column a bit and things start tingling?

What type of doctor can diagnose this? Our family doctor seems lost and borders on gaslighting.

Thank you so much for these videos. They're giving me the right language to explain what's happening to me in ways my specialists can understand, and also helping me know what to ask for re:testing. I have an intake with neurosurgery in 2 weeks to evaluate for tethered cord, and I feel much more confident going into it now that I've listened to your videos. On behalf of all ignored EDSers everywhere -- THANK YOU!

This is incredibly helpful . Thank you for making this information available. It answers so many questions I have .

I so wish you were my doctor. Here in uk- medical staff are not interested. I have symptoms of all 3. Clear liquid out or ears, other times the nose, sometimes the throat. I wear a neck brace due to pain. It's having to be worn more frequently. Nobody wants to help. This condition sucks as much as medical ignorane. God help.us! Thankyou for your compassion and your inciteful knowledge of EDS. At 53 and only diagnosed earlier this year. It's been a long hard road with multiple problems and comorbidities. Living day to day is all we can do. The future does not look so bright in my opinion.

Is there an upright MRI for other joints, like such as ankles, knees, etc.?

Do you have a website? Just saw this video and it has really good info to share with my GP. It was succinct yet had meaningful. Problem is is that there is zero likeliness that my GP would watch it. Hoping you have a website to correlate with these videos she can scan?

Dr. Clair l am 76 years old have had Ehlers Danlos hypermobile type but can’t seem to get a straight forward answer from my primary doctor, he’s been head honcho for many years and a few years behind me , in age , l guess he thinks he’ll take all that money with him when he goes, l am suffering with eds now ‘worse because of getting older l guess ! but l deserve to be treated better then what l have been treated and just do not have the strength to keep going back and forth to different doctors for what the eds has caused through the years and that (l am too sick to even go to a doctor) all they want to do now is treat me for all the issues l have acquired through the years from the undiagnosed ehlers! the popping out of my joints the pots terrible, fogggy headiness , l have no quality of life plus my small fiber neuropathy is a lot of pain there too and connected tissue disorders, gastrointestinal disorders all kinds of things going on’ l can’t seem to make a decision on what to do because the medical system has treated me terribly, on top of everything ! “l Pray that Jesus Christ will intervene for me for l am tired of suffering, 🙏🌹🙏

What a clear, succinct video explaining a complicated subject. Thank you!

I came across your videos and really enjoyed them. I’d love to discuss a potential collaboration with you. Looking forward to hearing from you!😊

Thank you. I found out I have heds . This is ssomething I have and it interferes with my work as a mail carrier. I had no clue about this. I am

I have suffered with eds all my life , trying to explain to doctors how I felt , from nervous stomach having gastrointestinal problems to fibromyalgia and then some, l am 76 years old still suffering with the symptoms l have been treated so bad by my recent primary doctor now l just don’t feel like could go anymore! Thank you so much for addressing the Ehlers Danlos syndrome! 🙏💜🦋

Thank you Doctor Clair. You are giving me hope along with valuable information and advice through your straightforward, clear, concise, no-frills, simple explanatory and obviously well-researched highly informed videos. I wish you well, bless you. Your high quality work and very apparent compassionate care are contributing goodness and wellness to the world.

Thank your so much for sharing your knowledge with us all over the world 🌍

Excelente este canal para comunicar y divulgar sus grandes conocimientos. Soy Hisvet Fernandez mama de Arlen Daza. Dra ella esta empeorando sus síntomas y yo no he podido viajar para allá y poder ayudarla mas en los cuidados cotidianos que necesita para no empeorar tan rapido. 🙏🙏🙏!

Very good ❤🙏

What a wonderful human you are? Dedicating your life to help us EDSers. Thank you for your dedication and content. May God bless you 🙏 ❤ P.S I have been binge watching your videos all day due to EDS flare. Love it.

What about eating the maximum amount of protein? 1.7Grams of protein X body weight should help the muscle.. Who has the knowdledge on this? I workout 6 days a week and this part seem to be a big factor for my muscles

What’s the best treatment for brain fog in EDS / POTS?

Doctor, I love your videos bc they talk about issues no one else does or cares ❤❤❤

Important to EAT THE WATER--water that's part of water-rich foods. Drinking water into a dehydrated body is like a storm in the desert--it can't sink in. I tried eating more salt when I realized I was dysautonomic, but it just dehydrated me and made my many symptoms worse. It's easy to get enough organic water if you just eat a bunch of grapes with every meal, and maybe in between. I've gotten dehydrated from night sweats in recent days, and have been able to reverse the resultant tachycardia just by eating a lot of grapes. (Of course, other water-rich fruit is also good, but grapes are so available.)

Getting POTS after Covid has explained 25 years of pain and other odd symptoms. Found out I have EDS at 49 years old! But, luckily my kids now have a diagnosis! They are super bendy and always in pain like I was. Maybe they will be able to get help that I never got!