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@@WendyH-im7fz yes … absolutely!!! Happy New Year 🎊

Hi @hardtruth2039, Thank you so much for watching my video and for sharing your thoughts! I completely understand how frustrating it can feel when you don’t feel heard or respected by a doctor. Unfortunately, many people experience situations where they feel dismissed or misunderstood during their medical appointments, and it’s so important to find a doctor who truly listens and partners with you in your care. Here are a few suggestions that might help if you’re navigating a tough doctor-patient relationship: 1. Set Clear Expectations: Before your appointment, write down your main concerns and questions. This can help keep the conversation focused and ensure nothing important gets overlooked. 2. Bring an Advocate: Sometimes having a trusted family member or friend present can help ensure your concerns are communicated and taken seriously. 3. Explore Second Opinions: If you feel unheard or dismissed, seeking a second opinion can be empowering and provide clarity. 4. Research Patient-Centered Practices: Look for healthcare providers or clinics known for their patient-centered approach. Online reviews or recommendations from trusted friends can be a great starting point. 5. Consider Specialists or Integrative Providers: Some people find that certain specialists or providers focusing on holistic care can be a better fit for their needs. It can take time, but finding the right doctor who respects your voice and values your input is worth the effort. Remember, you deserve to be treated as an equal partner in your healthcare journey! Thank you again for sharing your perspective and for supporting my channel-it means so much to me! I hope this helps a little, and I’m wishing you the best as you continue advocating for your health! Disclaimer: This response is based on general information and personal experience. It is not a substitute for professional medical advice. If you have specific medical concerns, please consult a qualified healthcare provider.

Hi @Singonemonkey, Thank you so much for watching and sharing your experience! You’re right that my son’s orthotics look quite different from the ones you described from Biltlabs and Upstep. His orthotics are custom-made through a prescription-based process at Hanger Clinic (Orthotics & Prosthetics). These are specifically designed for his unique foot structure and needs, and they’re built to support his medical conditions, which might explain the heavier-duty, multi-layered design. Here’s what I can share about how we got them: 1. Prescription: We needed a prescription from his healthcare provider. This could be a primary care physician, orthopedic doctor, or podiatrist. 2. Custom Fitting: At Hanger Clinic, they took detailed molds of his feet (either plaster casting or a digital scan) to ensure a perfect fit for his orthotics. 3. Specialized Construction: These orthotics are made with specific materials and layers tailored to provide the right support, durability, and functionality for his specific needs. If you’re in the U.S., I recommend contacting a local orthotics and prosthetics clinic like Hanger or checking with your healthcare provider for a referral to a similar clinic near you. If you’re outside the U.S., look for clinics that specialize in custom orthotics made with a prescription. Online orthotics can be great for general use, but for more specialized or complex needs, a clinic-based custom approach might be a better fit. If the companies you mentioned offer a good return policy, you could always try them and compare. However, if you feel like you need something more tailored, a consultation with a healthcare provider would be a great first step! Disclaimer: This response is based on my personal experience and is not intended to replace professional medical advice. Be sure to consult with your healthcare provider for guidance specific to your needs. Thanks again for sharing your experience, and I really appreciate your support for the channel!

Hi @JapneetBajaj, Thank you so much for watching my video and taking the time to share your question! I’m not a medical professional, but I can share some general thoughts based on what we’ve learned during our journey with thyroid nodules. It’s good that you’re monitoring your nodule closely. For thyroid nodules smaller than 1 cm (like yours at 7-8 mm), most guidelines suggest that routine follow-up might not always be necessary unless there are specific features of concern, such as: • Suspicious ultrasound findings (e.g., calcifications, irregular borders, or increased vascularity). • Rapid growth over time. • New or unusual symptoms (like difficulty swallowing, changes in your voice, or unexplained fatigue). Because your nodule has grown slightly and calcifications were noted on ultrasound, it’s important to discuss these details with your doctor. They can determine whether further monitoring or testing, like a fine-needle aspiration (FNA) biopsy, is needed. Many benign nodules remain stable over time, but any changes should be evaluated by a healthcare provider. Here’s what you might consider discussing with your doctor: 1. Ultrasound Monitoring: Depending on your situation, they may recommend follow-up imaging in 6-12 months. 2. Endocrinology Referral: An endocrinologist can provide a more detailed evaluation and guidance tailored to your case. 3. Blood Tests: Thyroid function tests (like TSH and T4) might be helpful in conjunction with imaging. While many small nodules don’t require aggressive follow-up, being proactive about any concerns is always the best course of action. Disclaimer: This response is based on personal experience and general information. It is not a substitute for professional medical advice. Always consult your doctor or a qualified medical professional for concerns about your health. Thank you so much for commenting and supporting my channel-it really means a lot! I wish you the best on your health journey, and feel free to reach out if you have more questions!

Hi @skylarandathena7837, Thank you so much for sharing your experience, commenting, and supporting our channel! I’m truly sorry to hear about the difficulties you’re encountering. Whether your situation is related to an inpatient or outpatient experience, getting in touch with someone higher up in the chain of command can be challenging. Here are some steps you can take to connect with a real person and escalate your concerns: 1. Call the Main Hospital Switchboard: * Start by calling the hospital’s main line and asking for the administration office or executive leadership team. Be specific about your need to connect with someone beyond patient relations, such as the CEO, COO, or Chief Nursing Officer (CNO). 2. Check the Hospital’s Website for Key Contacts: * Most hospitals have a section on their website that lists their leadership team or administrative staff. Look for contact details under Hospital Administration, Executive Team, or Leadership. 3. Ask Patient Relations for Direct Escalation Options: * While patient relations has suggested snail mail, ask them if they can provide direct contact information for departments like the Office of Compliance, Risk Management, or Nursing Administration. These departments often handle serious patient care or service concerns. 4. Escalate to External Organizations: * State Department of Health: File a formal complaint with your state’s health department if you are not getting the help you need. They oversee hospitals and healthcare facilities and may be able to intervene. * The Joint Commission (TJC): If the facility is accredited by TJC, they are required to adhere to specific patient care standards. You can submit a complaint directly through TJC’s website. 5. Document and Follow Up: * Whether it’s an email, phone call, or letter, keep a record of every interaction, including names, titles, dates, and times. If snail mail is required, send your correspondence via certified mail to ensure it is received. Clearly explain the issue, include relevant details, and request a direct response via phone or email. 6. Consider a Patient Advocate: * If you’re still unable to get in touch with someone, consider hiring an independent patient advocate or reaching out to advocacy organizations. They can help you navigate the system and connect with the appropriate people. If you haven’t already, I recommend watching the other video I created about navigating the chain of command in hospitals-it provides step-by-step guidance for escalating concerns, which may also apply to outpatient settings. Thank you again for sharing your situation. I hope these steps help you to find a resolution. If you have any updates or additional questions, feel free to reach out-I’m here to help! Disclaimer: The information provided is for general guidance only and does not constitute legal or medical advice. Please consult with relevant professionals or organizations for specific assistance with your situation.

Hi @emilycoblentz4084, Thank you so much for watching the video and for taking the time to comment-I’m so glad you found it helpful! I also wanted to let you know that in the next few weeks, I’ll be releasing another video specifically about preparing for a five-day in-home EEG study. If that’s something you might find useful, keep an eye out for it! Your support means so much, and I’m grateful to have you following the channel. If you ever have questions or topics you’d like me to cover, feel free to share-I’d love to help however I can. Thanks again, and wishing you all the best on your journey!

@ how do you cope with the seizures? As someone who is newly epileptic I’m so scared of dying due to a seizure

Glad it was helpful!

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Thanks for watching 🫶🏼

Hi @sandrakhan2840, Thank you so much for commenting and sharing what you’re going through-I’m so sorry to hear you were dealing with such severe nausea from C. It’s truly awful to feel like nothing helps. While peppermint oil can sometimes be effective for easing nausea, here are a few other tips you might find helpful: 1. Ginger: Sipping ginger tea or chewing on ginger candies can help settle your stomach. 2. Stay Hydrated: Small sips of electrolyte drinks or clear fluids can help if dehydration is contributing to your nausea. 3. Acupressure: Applying gentle pressure to the P6 point on your wrist (about three fingers below your palm) may provide some relief. 4. Cool Compress: A cool cloth on your forehead or neck can sometimes ease nausea symptoms. 5. Light Meals: Stick to bland, easy-to-digest foods like crackers or rice, if you’re able to eat. I hope you had a speedy recovery. If you have any questions or other topics you’d like me to cover, feel free to let me know-I’m here to help however I can! Disclaimer: The information provided is for general guidance only and is not a substitute for professional medical advice. Please consult a healthcare provider if you have severe or persistent symptoms.

Glad it was helpful!

Glad it was helpful 🫶🏼

You’re so welcome 🫶🏼 Thanks for being part of our community!

Thank you 🫶🏼 Glad it’s helpful!

Thank you so much for watching. Let me get Jackie’s information/email etc so you can connect with her directly. 🫶🏼

Thank you for sharing your situation, and I'm glad you're engaging with the content. I want to start by saying that I’m not a doctor, so nothing I share should be considered medical advice-everything I discuss is based on personal experiences and general information I've gathered. In my videos, I focus specifically on thyroid nodules, not necessarily on broader thyroid symptoms. That said, it's definitely concerning to experience hypothyroid symptoms, especially with a normal TSH level. I’ve come across some information that might be helpful, but I strongly encourage you to discuss this with your healthcare provider to get advice tailored to your unique situation. Here are a few things I’ve found through my research: 1. Subclinical Hypothyroidism: Sometimes, people can have normal TSH levels but still experience hypothyroid symptoms. This might be due to subclinical hypothyroidism, where TSH levels are within the normal range, but on the higher side. This could be an early indication of thyroid dysfunction, and some doctors may consider treatment based on symptoms, especially if nodules are present. 2. Non-Thyroidal Illness Syndrome (NTIS):** In some cases, people with normal thyroid hormone levels might still experience symptoms due to other health issues. NTIS, for example, occurs when the thyroid gland is functioning normally, but other factors cause symptoms similar to hypothyroidism. 3. Thyroid Nodules and Symptoms: While most thyroid nodules are benign and don’t cause symptoms, larger nodules or multiple nodules can sometimes affect thyroid function or cause compressive symptoms like difficulty swallowing or breathing, which might be mistaken for hypothyroid symptoms. 4. Further Testing: If you're experiencing symptoms but your TSH is normal, it might be worth discussing additional tests with your doctor. They may check other thyroid hormones like Free T3 and Free T4 or look into possible autoimmune conditions like Hashimoto's thyroiditis. Again, it’s so important to work closely with your healthcare provider to get to the root of what’s going on and determine the best course of action. **Disclaimer:** This response is based on personal experiences and general information gathered from various sources. It should not be considered medical advice. Always consult with a healthcare provider for medical concerns and before trying any treatments or procedures.

@@TheOnAirAdvocate Thank you for your reply. I don't have hashimotos or any autoimmune disorder. I'm healthy, have 8 kids and just after I had covid ( I'm not vaccinated) when I was 7 months pregnant in 2020 I developed thyroiditis during post partum. This resulted in hyperthyroidism then a shift to hyperthyroidism and then normal function but a continued hypothyroid symptoms and nodules. Currently I'm sick with rsv and ny thyroid is so swollen I struggle to breathe and yawn constantly as it opens my throat to breath. It's so strange. Anyway, I hope to find a natural remedy because the NHS is absolute rubbish. I have been referred to an endocrinologist. Just waiting now.

@@MastooraBeautyProducts same boat waiting for an appt and I am unvaxxed as well and lost trust in the medical system fully! Hope we can do this naturally. I have one nodule.

@@laurengianna9944 are you sure you only have 1? I thought I only had 1 but that's because so many are enlarged they won't count them because they aren't ' significant' so it's like I have a swollen thyroid and a large nodule. Have you read about anything natural? I'm taking a few things... Tumeric with black pepper and ginger. Vitamin e complex. Cod liver. Spirulina. Bosweila. Prunella vulgaris tincture.

@@MastooraBeautyProducts Thank you so much for sharing your experience. It’s great to hear that you've been referred to an endocrinologist-my son with a thyroid nodule has been seeing one for a few years, and it’s been incredibly beneficial, educational, and helpful. I’m glad you’re getting the support you need, especially with everything you’re going through right now. Please take care of yourself, and I hope you find relief soon. Just a quick note: this isn't medical advice, but I'm sending positive thoughts your way. 🫶🏼

Thank You :)

You’re so welcome 🫶🏼 Thank you for watching & your kind words. Truly appreciated 🤍

Thanks for watching 🫶🏼

Thank you for reaching out and sharing your concerns. Complex medical conditions refer to health issues that require specialized, multifaceted, and often long-term care due to their intricate nature. Examples include conditions like Ehlers-Danlos syndrome (EDS), which can involve various body systems and require coordinated care from multiple healthcare providers. Given your concerns about your son's symptoms, I strongly recommend discussing this with your primary care physician. They can guide you on the next steps and, if necessary, refer you to a specialist, such as a genetics doctor, who can provide more specific insights and potential diagnostic tests for EDS. For more information and support, you may find these resources helpful: - **The Ehlers-Danlos Society:** [Ehlers-Danlos Society](www.ehlers-danlos.com) - **Genetic and Rare Diseases Information Center (GARD):** [GARD](rarediseases.info.nih.gov) - **National Organization for Rare Disorders (NORD):** [NORD](rarediseases.org) Please note that my advice is based on general information and should not replace professional medical consultation. I wish you and your son the best on this journey, and I hope you find the support and answers you need. 🫶🏼

Thank you for sharing and watching 🫶🏼 You can find me on all platforms at The On-Air Advocate!

Thank you for watching 🫶🏼

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How do we shrink or get rid of thyroid nodule naturally?

@@laurengianna9944 Thank you for your question! First, I want to make it clear that I'm not a doctor, and nothing I share should be considered medical advice. Everything I discuss is based on my personal experiences and information I've gathered. From our family's experience, we haven't encountered any natural methods to shrink thyroid nodules. During one of our discussions with the medical team, a procedure was mentioned that could potentially reduce the size of the thyroid nodule. However, since we haven't pursued that option yet-especially considering my son's young age and the possibility of the nodule growing back-we haven't explored this process in depth. We're planning to learn more about it at our next appointment in January 2025. As for medical procedures, there are a few options that doctors might consider depending on the size and characteristics of the nodule: 1. Radiofrequency Ablation (RFA):This is a minimally invasive procedure where heat is used to shrink the nodule. It's an option for some patients, but it’s generally recommended for nodules that are causing symptoms or are cosmetically concerning. 2. Ethanol Ablation:In this procedure, alcohol is injected into the nodule to reduce its size. It's typically used for cystic thyroid nodules. 3. Surgery:For larger nodules or those that are suspicious, surgery to remove part or all of the thyroid may be recommended. Regarding natural remedies, some people explore options like dietary changes, certain supplements, or alternative therapies, but there’s limited scientific evidence supporting their effectiveness. It’s crucial to consult with a healthcare provider before trying any of these, as they can provide guidance based on your specific situation. **Disclaimer:** This response is based on personal experiences and general information gathered from various sources. It should not be considered medical advice. Always consult with a healthcare provider for medical concerns and before trying any treatments or procedures.

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Thanks for watching and sharing your story 🫶🏼

Glad it was helpful! Thanks for watching 🫶🏼

Glad it was helpful 🫶🏼

YESSSS!!!!

Glad it could be helpful 🫶🏼 Thanks for being a part of our community.

So glad this information could be helpful. I also did a few other videos on this topic. I am making a patient advocate playlist to make them all easy and accessible to find. Thank you for sharing and being a part of this community 🫶🏼

In a hospital setting, the hierarchy above a Patient Relations Manager typically includes positions such as: 1. Director of Patient Experience or Patient Relations: This individual oversees the patient relations department and may manage multiple patient relations managers. 2. Vice President of Patient Experience or Chief Patient Experience Officer: This is a senior leadership position responsible for developing and implementing strategies to enhance patient satisfaction, engagement, and overall experience across the hospital or healthcare system. 3. Chief Operations Officer (COO) or Chief Executive Officer (CEO): These top-level executives have ultimate responsibility for the hospital's overall operations, including patient relations, and they may provide oversight and guidance to the patient relations department indirectly through other senior leaders. If that is not successful, you can reach out to a Hospital Administrator. Hospital administrators play a crucial role in managing the overall operations and strategic direction of a hospital or healthcare facility. Their responsibilities include overseeing financial management, personnel management, facility operations, regulatory compliance, strategic planning, and ensuring high-quality patient care. They often collaborate with medical staff, department heads, and other healthcare professionals to optimize efficiency and effectiveness in delivering healthcare services. You can typically find out who the hospital administrator is by contacting the hospital directly. You can call the main hospital number and ask to speak with someone in administration or inquire at the hospital's front desk. They should be able to provide you with the name and contact information of the hospital administrator or someone who can assist you further. The same goes for Patient Relations. Additionally, you may be able to find their number and information on the hospital website in the directory. Hope this helps!

Thank you for sharing and being a part of this community. I so sorry to hear that something like this has happened to you or your loved one. Are there steps you have already taken in reporting the incident?

You're so welcome! Glad it was helpful 🫶🏼

The heat is just on/off with only one heat setting. It gets warm not hot when on. Hope this helps. :)

Thank you so much for sharing. That definitely seems like it would be difficult. I truly hope the more open discussions we have about family general health and mental health history over time and generations things will change. Thanks again for sharing and being a part of this community 🫶🏼

Hi Kim, Thank you so much for sharing and being a part of this community. My son’s thyroid nodule has been steadily growing over the last year we are just about to 3.5cm. Judging by the growth we have seen over the last year and a half we would estimate that we will be over or reach 4cm in about another year. As I stated in one of the videos, our doctor has shared that if the placement of the thyroid nodule is not obstructing the airway or area around it you have more flexibility on when you actually move forward with any action. How large is your nodule?

hello i have .50 thyroid nodule is it dangerous ? and also if you have thyroid nodule is it not ok to eat spicy food? hope you notice my me..thanks​@TheOnAirAdvocate

@@TheOnAirAdvocateI’m watching your videos now but why not taking it out now before is so big the whole thyroid would be removed. Doctors don’t care and they say you don’t need it but God put it there for a reason and if you can save it, do.

@@cghrios783 Thank you for your comment and for watching the videos. I want to start by saying that I'm not a doctor, so nothing I share should be considered medical advice. Everything I discuss is based on my personal and our family’s experiences and information I've gathered from various sources. I understand your concern about the thyroid and its importance. The videos in this series specifically focus on thyroid nodules, which are growths within the thyroid gland, rather than on broader thyroid conditions or the function of the entire thyroid gland. From our own experience and the information shared with us by doctors, it's often the case that a thyroid nodule is closely monitored before any intervention is considered. Just because a nodule is growing doesn't necessarily mean it will continue to grow indefinitely. In fact, thyroid nodules can sometimes stop growing, or their growth can slow down over time. The decision to remove a thyroid nodule-or the entire thyroid-usually depends on several factors, such as the size of the nodule, whether it's causing symptoms, or if there's any suspicion of malignancy. If a nodule is large enough to cause symptoms like difficulty breathing or swallowing, or if it has suspicious characteristics, then surgery might be considered. However, if the nodule isn’t currently causing any issues, many doctors prefer to monitor it with regular check-ups and ultrasounds rather than opting for immediate surgery. The goal is to avoid unnecessary procedures unless there is a clear medical need. Removing the thyroid, or even part of it, can have lifelong implications, such as the need for thyroid hormone replacement therapy, which is why doctors are often cautious and prefer to monitor the situation unless intervention becomes necessary. It’s crucial to continue monitoring any thyroid nodules with your healthcare provider and to discuss the best course of action based on your individual circumstances. **Disclaimer:** This response is based on personal experiences and general information gathered from various sources. It should not be considered medical advice. Always consult with a healthcare provider for medical concerns and before making decisions about treatments or procedures

@@Lyca-qn1zf Thank you for your question! First, I want to make it clear that I'm not a doctor, so nothing I share should be considered medical advice-everything I discuss is based on personal and family experiences and information I've gathered from various sources. Regarding your thyroid nodule, a 0.5 cm (or 5 mm) nodule is relatively small. In many cases, small nodules like this are not considered dangerous, especially if they are not causing any symptoms or showing signs of being suspicious during an ultrasound. However, it’s important to have regular check-ups with your healthcare provider to monitor the nodule over time, as they can give you the most accurate advice based on your specific situation. As for dietary concerns like eating spicy food, there isn’t a direct link between thyroid nodules and the need to avoid spicy foods. Generally, diet doesn’t have a significant impact on thyroid nodules themselves. However, some people with thyroid conditions might find that certain foods or spices can aggravate symptoms like heartburn or acid reflux, but this varies from person to person. It’s always a good idea to discuss any dietary concerns with your doctor, especially if you notice that certain foods seem to affect your symptoms. I hope this helps, and I encourage you to keep in touch with your healthcare provider to ensure you get the best advice for your health. **Disclaimer:** This response is based on personal experiences and general information gathered from various sources. It should not be considered medical advice. Always consult with a healthcare provider for medical concerns and before making decisions about treatments or dietary changes.

Glad you found it helpful 🙂

Thank you glad it could be helpful 🫶🏼

Goodmorning Friend !!! Thanks for visiting 🫶🏼

Good morning! ☀️

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