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Lived. Learned. Blogged.
Canada
Приєднався 8 лют 2017
Our First Dance - “Biblical” by Callum Scott
We didn’t hire a videographer so I had the idea to piece together videos guests took and add panning, zooming, etc. It’s a bit rough but I love reliving this moment through the lens of our guests.
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Відео
Our Wedding - Last Dance of The Night
Переглядів 1182 роки тому
Our last dance of the night to Taylor Acorn's cover of "First Date" as captured by a friend.
My Mentality Shift During Pandemic
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I talk a little bit about how COVID19 has affected me mentally, and how I've shifted my thinking to take a more positive outlook.
Update: First Remicade Treatment of the Pandemic
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Detailing my first Remicade treatment of the Corona Virus (COVID-19) Pandemic
Chronic Illness in the Time of Pandemic (Ulcerative Colitis, Remicade and Corona Virus)
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Watch my update here: ua-cam.com/video/8bmWMpFzq54/v-deo.html What I’m doing as someone with a chronic illness on immunosuppressants during this corona (COVID-19) pandemic. For more from me, head to my blog post on the topic: livedlearnedblogged.com/2020/03/18/living-with-chronic-illness-in-a-time-of-pandemic/ For those seeking more info, my recommended link would be: crohnsandcolitis.ca/Living...
My Journey With Ulcerative Colitis
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A bit about my diagnosis and journey with UC. To help support my walk, please click here: crohnsandcolitiscanada.akaraisin.com/GutsyWalk2018/danimarielynn
My First Time Using A Curling Wand - L'ange 32mm Titanium Lustre
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Watch me fumble my way through my first time using a curling wand - Burns and terrible Canadian commentary included! For 50% off your own wand, use my special link below: i.refs.cc/m1mJwfPl?u=1523127045186
Sephora 1000 Point Reward Reveal | Unboxing
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Unboxing of my latest Sephora Reward! Have to love free stuff ❤️
Bell Let's Talk Day - 2018
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Doing my part to keep the conversation around mental health going - Let's help each other and end the stigma.
My Thoughts on Remicade
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Having now had about 5 or 6 treatments, I thought it was time to share my thoughts on Remicade so far, and hopefully help ease the minds of others looking into it.
Final Blood Clot Update - September 1st 2017
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Really good news for those who have been following my journey!
Putting Some Fun in Fragmin Injections
Переглядів 2,5 тис.7 років тому
Two days ago, my needle sucked so bad. I lied around writhing in pain after - It was ridiculous. Yesterday, I decided NO - If I'm going to do this every single day, that's not how things are going to go down. Everything in life is what you make it, and this right here is what I'm making of these needles. Because this is who I am - A strong, independent woman who likes to laugh and dance through...
Start my first treatment this week for IBD. Thank you
No twist n turns,? Spins?
Thank you for this. I watch it every night for my 10 injections and it really helps me manage when I never thought I could do it. I love your video and sense of humour, thank you .
Thanks for the video.ive had 4 infusion of remicade now and havent seen a lot of difference.what infusion did It make a difference for your symptoms
Im sorry, I feel you.... but..... Ive been to college and all that, but I was always isolated, and I thought the pandemic would make people feel how I feel.
I saw other videos, and this one, this is how I used to do it.... for post surgery. This is how you do it.... Other people nope... Just like that, did you need this ALL your pregnancy? I needed 10 weeks of post surgery for a broken foot.
Anyone on it for uveitis and arthritis?
thank you for this video i have crohn's disease and ulcer colitis so they want to start me on remicade
Wonderful video thank you for the review im starting it soon and scared 😳 I am terrified of thinning hair:/
Please make vids for daily food for UC warriors 🙏 stay safe! 💕
They're trying to get me on Inflectra, but theres so many bad reviews i dont think ive seen 1, remicade has way better reviews! What should i do?
ProdiJay Always advocate for yourself. What you want for your OWN body matters more than what anyone tells you - Present your research and concerns to your doctor and don’t be afraid to push back. Here their side but also make Your’s heard and weigh your options accordingly.
My daughter is on remicade last month we went for her first treatment during this pandemic. they only had 1 entrance open for the hospital we go to. they asked the question for covid-19. We went up to the treatment area the had the toy area blocked for the kids and the nurses only had masks. We go this friday again i wonder how it will have changed whithin the month.
I have ulcerative colitis and I'm been taking remicake for many years, I'm very scare because I'm workingn construction cleaning. What can I do please tell me
Hospitals are refusing to treat an infection, because of my remicade use. Bangalore under 100 percent lockdown, and now crohn's is my best friend. Freaky to hear that you had a clot, I had a clot Known as CVT couple if years back but my underlying condition was Crohns in large bowels, blood thinners were a such a seesaw time.
I had my remicade infusion last week and none of these procedures were enforced at my clinic. They just asked the standard COVID19 questions then proceeded with my regular treatment. Maybe when I go back in a few weeks this will be enforced at my clinic.
Tiffany I sure hope so! Are you also in Canada? Wondering if protocol is different in different places...
Lived. Learned. Blogged. Yes I’m the gta
I take asacol that has mesalazine is this a immunosuppressant ? I think it’s nit but just wondered if anyone else knows fir sure %?
john swift Hi there! I can confirm that it isn’t an immunosuppressant. Wishing you good health! I’ve been following along here for additional resources during this time crohnsandcolitis.ca/Living-with-Crohn-s-Colitis/COVID-19-and-IBD
Thanks that link is very helpful, stay safe and keep strong 🌺
The good news is that if you’re on immunosuppressants, you are NOT at a greater risk of catching it but you are at greater risk of complications if you catch it. Thus far, there are very few incidents of ppl w colitis having Coronavirus. And yes, best not to change up your meds right now.
This is true. Still best to err on the side of caution in my opinion. Research is still very limited at this stage.
Lived. Learned. Blogged. Very true. Stay safe!
NYC Entrepreneur thank you! You too!
I appreciate this video more than words...I am also a graphic designer and have been on Remicade for four years now for IBD. It is scary when you know what it's like to have your body fail you and to have your health compromised. Thanks for sharing! 💜
Your comment means so much to me! It’s good to know we’re not alone. It’s a scary time but we’ve already been through much - We’ll get through this too. Wishing you good health! 💜
Where do you go for you Remicade infusions? I am concerned about going to hospitals, clinics or anywhere there are high volumes of sick people or just people in general. Remicade does compromise the immune system.
Hi there! I go to Toronto (Canada) for my treatments. I usually take the train in from the suburbs but we’ll be driving in for my treatment next week instead. My clinic is in a small back room of a doctor’s office. It only fits four people receiving treatment at a time, which I’m happy about now!
I’ve done my treatment and posted an update - Hope it will help put your mind at ease a little :) ua-cam.com/video/8bmWMpFzq54/v-deo.html
I live in New Hampshire and I am 75 years old female and I am on Remicade for Crohn’s disease I will not stop taking it Remicade infusions because I am pretty much in remission after two years of trying so many other things. I am taking plenty of precautions because I’m retired and my adult children are keeping watch over me that I am quarantined to the house LOL. Wishing you all the best and that you stay in good health thank you for your channel.❤️💕❤️💕
It truly has been a miracle for me as well - I'm so happy to hear it's been the same for you, and that you have help in these trying times. Thank you, and I'm wishing you the best and good health as well! We're tough - We'll get through this 🥰
Thanks for your post. Started Remicade and noticed some results. Not all the way healed but only had 2 infusions so far. God bless you. Your friend Jeffrey
I just had my 4th dosage and it has improve my life DRAMATICALLY! It actually began working after the 1st dose and to be honest, I had some reservations about this treatment. However I'm glad I went with it. The advice I can give is have your GI doctor monitor your infusion level by checking your level THE DAY BEFORE your next scheduled infusion. This way your levels could be adjusted accordingly, never allowing your levels to drop to zero before your next infusion.
thanks for sharing. im going to be starting treatment in a couple of weeks. i just want my life back. i am very worried about the long term side effects tho. hoping for the best.
Nothing to fear, it's actually better than you think. The key is to have your doctor monitor infusion levels so they can made adjustments the day before infusion. Also, better to schedule your next infusion soon than later, you don't want you levels to drop below zero.
@@petemendez6978 I will be starting Remicade within the next 4 weeks. Im confused by what you mean by infusion levels?
@@flmoseley8141 your doctor should monitor your infusion levels prior to your next scheduled infusion and make adjustments according. You do not want your medication levels to completely zero out a week or two before your next infusion.
Wow their so expensive....... why is their stuff so expensive is there specialty features?
What's the brush u used
😘👌
I am flaring right now, i was scared of remicade Im glad to hear your story ❤
Tracey Whitney I hope my story can bring you some strength in some way - Also watch my video on Remicade - I was sooooo scared too but I’m very glad I made the decision to try it ❤️✨
I have been in your shoes. The benefits outweighed the risks. Until I was told today I have cirrhotic liver. So be careful about long term use of Remicade. I've been on it for over 2 years for Crohns. I've been in remission, but now I've got the liver issue to worry with.
Yeah, sorry to hear! ... the Remacade is the worst for liver damage in the bio class of drugs. It has a 8.3% liver damage for the 100% of patients who uses it. I went over 10 years now without meds but now I'm coming out of a obstruction on my own but really considering a biologic now though. This is a lot worse than I remember and had Crohn's for right around 35 years. I also got osteoporosis for long term predizone use when I was younger.. just another reason I try to avoid the pharmas sh*t as much as I can.. Nothing good ever comes from it.
my liver was swollen in the first place that's why I finally figured out it was Crohn's. what is going on with your liver? what are you going to do now if you don't mind me asking
Great message. How have you been doing lately? I have read that it's very common (50%) to develop a resistance to the medication after as soon as one year.
Please do an update with the other curling wand, thank you! Great video!
watertree1000 so glad you enjoyed it! I'll do a video of the other size very soon - stay tuned!
watertree1000 so glad you enjoyed it! I'll do a video of the other size very soon - stay tuned!
Thank you for posting this. I am going for my first treatment on Saturday and have been terrified reading everyone's comments online. Watching your video and hearing about your experience really helped. I'm still scared but feel more confident because you shared your story. Thank you.
samarama14182 I'm so happy to hear that I helped in some way ❤️ I was scared for so very long, and I regret it. It's changed my life and I hope it does the same for you!! You can find me on Instagram - @danimarie_lynn and I'm always happy to answer questions or just be a source of support! Wishing you the best :)
You’ve helped me so much! I have UC & C Diff. I’m hoping to start Remicaid soon! My GI has ordered it.
praisedalord58 I'm so incredibly happy to read this! I wish for you the same wonderful success that I've had with Remicade! I'm on Instagram as @danimarie_lynn if you ever need to reach out! Please don't hesitate and let me know how it goes for you :)
Lived. Learned. Blogged. Thank you 😊
How did it go?
I hope you didn't start remicade until the c diff was cleared up.
Thanks for sharing. I’ve had UC for 17 years. Tried just about every type of medicine, some worked well for quite a while, but been dealing with a flare up for the past 2 years. Tried Imuran with Prednisone a couple months ago and my symptoms got worse. Finally decided to try Remicade. Got my 2nd infusion last week and haven’t noticed any improvement. Debating whether I should go in for my 3rd infusion or discontinue and try different diets. Thanks again for sharing :)
my1978z So very happy to share! Please don't give up on the Remicade just yet - Sometimes it takes time :) My doctor kept me on both prednisone and imuran while I started - A year later I still take imuran and an ASA in addition to Remicade! Hoping for the very best for you - 3rd times the charm?
Lived. Learned. Blogged. Thank you for the reply. Yeah maybe I'll see improvement after another infusion. 😊
You go girl!!!