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Tiny Tickers
Приєднався 7 сер 2012
We're the national UK charity working to improve early detection and treatment of babies with serious heart conditions: www.tinytickers.org
Tiny Tickers Family Support Webinars - Supporting Everyday Life: Travel and Holidays
This is our second webinar in a new series offering practical tips and support to families of babies with congenital heart disease (CHD).
Heart parents often ask questions about travel and holidays in our Tiny Tickers Parent Support Group. In this webinar, we aim to answer the most common questions and provide more general advice.
Speakers include Tiny Tickers staff members, who are also heart parents, sharing their experiences and cardiac liaison nurse, Gill McBurney.
Our family support webinar series is kindly funded by Global Make Some Noise.
Heart parents often ask questions about travel and holidays in our Tiny Tickers Parent Support Group. In this webinar, we aim to answer the most common questions and provide more general advice.
Speakers include Tiny Tickers staff members, who are also heart parents, sharing their experiences and cardiac liaison nurse, Gill McBurney.
Our family support webinar series is kindly funded by Global Make Some Noise.
Переглядів: 56
Відео
Tiny Tickers Family Support Webinars - Looking After Your Mental Health: A Toolkit
Переглядів 87Місяць тому
This is the first webinar in a new series from UK charity Tiny Tickers offering practical tips and support to families of babies with congenital heart disease. The webinar includes a toolkit for looking after your mental health - a vitally important topic for parents and carers of children with CHD. Speakers include professional mental health workers; peer support experts; and parents with live...
Amy's Story
Переглядів 1082 місяці тому
22-year old Amy was born with the serious heart condition hypoplastic left heart syndrome (HLHS). Her parents were told to prepare for the worst and she wasn't expected to survive. Amy has defied all expectations. Doctors told her that she'd need a heart transplant in her early twenties, but this will now be delayed until her forties. Working as a personal trainer, she went from being "ill and ...
Join us on a fetal cardiac study day
Переглядів 1023 місяці тому
Join our Project Support Officer, Abby, at our fetal cardiac study day for sonographers, which we held in collaboration with the North West CHD network, Alder Hey Children's Hospital Trust and Liverpool Women's Hospital. The event, held in April 2024, was sponsored by GE Healthcare.
An Ode to Heart Week Fundraisers
Переглядів 1215 місяців тому
Tiny Tickers Heart Week 2024 has been a huge success and we couldn't have done it without our fantastic fundraisers! Here's a poem we wrote for them, read by our Head of Fundraising and Partnerships, Kym Kitching and featuring photos of our Heart Week heroes.
Lullaby by Katie Burke for Tiny Tickers Heart Week 2024
Переглядів 1845 місяців тому
Tiny Tickers supporter, Katie Burke, wrote and performed this beautiful song for Tiny Tickers Heart Week 2024. If it has moved you, please donate to her page, to make a difference for babies born with congenital heart defects and their families. Donate here: www.justgiving.com/page/musicalstorybox #tinytickersheartweek #heartweek #chd #chdawareness #congenitalheartdefects #heart #hearts #heartb...
Tiny Tickers
Переглядів 2528 місяців тому
Tiny Tickers is working hard to help give babies with serious heart conditions a better start. We want babies with congenital heart disease (CHD) to get the treatment they need as early as possible. We want them to get the right care at the right time to give them the best chance of survival and a good quality of life. And we want their families to receive the support they need.
Tetralogy of Fallot: Rafe's Story. Part 3: Surgery and Beyond
Переглядів 1,5 тис.Рік тому
In the third part of their story, Catherine talks about Rafe's surgery, recovery and the future.
Tetralogy of Fallot: Rafe's Story. Part 2: Birth and Before Surgery
Переглядів 2,2 тис.Рік тому
In the second of a three part series, Catherine talks about events that occurred after her son, Rafe, was born with congenital heart disease (CHD). He was diagnosed with Tetralogy of Fallot (TOF) at her 20-week scan and not expected to need surgery until six-months-old. In part one, Catherine shared her experiences of the diagnosis and in part three she talks about Rafe's surgery and life after...
Tetralogy of Fallot: Rafe's Story. Part 1: Diagnosis
Переглядів 2,3 тис.Рік тому
In the first in a three-part series, Catherine shares her experiences of finding out her second son, Rafe, has congenital heart disease (CHD) when he was diagnosed with Tetralogy of Fallot (TOF) at her 20-week scan. Part two covers Rafe's birth and first few weeks and in part three Catherine talks about Rafe's surgery and life after surgery.
Test For Tommy
Переглядів 2 тис.2 роки тому
Every newborn baby deserves the test that could help save their life. However, at present, pulse oximetry testing is not a compulsory part of newborn checks. In this video you can watch a midwife carry out a pulse oximetry test on a newborn baby and find out why, through our Test for Tommy campaign, we aim to place pulse oximetry machines at maternity units throughout the UK. Please support us....
Zoe's Story
Переглядів 3223 роки тому
Tiny Tickers CEO and heart dad, Jon Arnold, shares his daughter Zoe's story and discusses why the early detection of her heart condition by a sonographer was a crucial part of her journey from survival to thriving.
Heart Week 2021
Переглядів 883 роки тому
Everything you need to know about Tiny Tickers' Heart Week with our fundraising manager, Kym Kytching!
Helping sonographers communicate unexpected news - BBC Breakfast news report
Переглядів 4243 роки тому
Tiny Tickers has been supporting a research project that has produced the world's first consensus guidelines aimed at helping sonographers communicate unexpected news to expectant parents. The research was featured on a BBC Breakfast news report, including an interview with our Chief Executive. For more information visit: www.tinytickers.org/2020/08/05/helping-sonographers-communicate-unexpecte...
A coronavirus update from Jon, our chief executive
Переглядів 824 роки тому
A coronavirus update from Jon, our chief executive
Tiny Tickers - A Better Start For Tiny Hearts
Переглядів 8244 роки тому
Tiny Tickers - A Better Start For Tiny Hearts
Test For Tommy Report on ITV Calendar
Переглядів 1535 років тому
Test For Tommy Report on ITV Calendar
Test For Tommy: What is a pulse oximetry test?
Переглядів 18 тис.5 років тому
Test For Tommy: What is a pulse oximetry test?
Test for Tommy - Help Every Tiny Ticker
Переглядів 3335 років тому
Test for Tommy - Help Every Tiny Ticker
Family Experiences: Dealing with Bereavement
Переглядів 1,1 тис.5 років тому
Family Experiences: Dealing with Bereavement
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Wow! Very informative!!
Watching this helps but still scary af my son has tof found in utero where I knew most of the possibilities. Today at 9 days old is his first surgery I’m scared of the worst but hoping for the best.
We hope surgery goes well Elizann, thinking of you and your little one ❤
@@tinytickers6423 it was such an emotional day full of ups and downs. I thought I was mentally prepared but I don’t think anything can mentally prepare to see your 9 day old have surgery. After a 4 hr surgery and 4 hr recovery told by all he is doing great Drs are very happy with the outcome. He is still sedated a bit saw him they say his breathing tube will be removed this morning. So here Jasper goes on the road to recovery
@@elizannpoetry4538 We're so glad to hear he's doing well. ❤ Well done to your little heart hero and to you for getting through it. Wishing Jasper all the best with his recovery. ❤ If you haven't seen our website, we have lots of information and support for heart parents: www.tinytickers.org/support-info/family-support/
Wonderful video, thank you!
I am 24 weeks along and my baby has been diagnosed with TOF. Do all TOF babies have chromosomal abnormalities?
Jazdya Herarndz
Jazdya Herarndz
Jazdya Herarndz
Jazdya Herarndz
Jazdya Herarndz
Jazdya Herarndz
So what is cure for this?
I also faced 2 time this problem with my baby
Hi Dear, did you have a normal Pregnancy after that?
Hi do u face the same problem like CHD,??
Hi .. what happen, my baby is having CHD. I'm very much tensed about my baby.
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My mother always told how it was painful not knowing if I was going to survive. I had like 4 defects. I'm 44 and had another surgery at 39. Still here.
سبحان اللہ ۔ الحمد اللہ ۔ اللہُ اکبر
سبحان اللہ ۔ الحمد اللہ ۔ اللہُ اکبر
Thank you very much
Really good video
Thank you for sharing these stories and raise awareness ;(