Відео

Hey Emily I have MND and I really wish I could talk to you.

Did you have spasticity in your foot?

My injury happened right at 2 years ago and spasticity in my arm hindered my progress for my occupational therapist so she discharged me a few months ago I do take oral baclofen, but my neurologist mentioned THC Valium’s d the baclofen pump for spasticity

Keep up the good attitude. I bought an Ioverra medical device for the Health Science Centre Winnipeg. Paul Winston from Victoria, BC came here Oct, 2023 and injected my hamstrings and made a difference immediately. It injects Nitrous Oxide to the problem nerve and kills it. He injects patients with claw hands and he can move them full extension after. The cost was $7,500 buy worth every penny. Dry Needling every month and that also helps. Weekly massage. Exercise. Keep Hydrated. My MD injects Nitrous Oxide in my quads and glutes. It is a process.

👍👍👍

thanks for sharing

Lol cute scsr. . I have the pump yoo gor bsclofen My spssma are not that bst..mym.y legs just kick the goot bosrd at night i do get cramps.

Thank you for the video! I’m a 46 year old woman with MS and my doc wants me on this. Your video made it not so scary. You are awesome to have done this a couple years ago. Let me know how it’s going if you have time.

The side effects are scary!

Wish you so much good you are awesome 👌👌🌹

Thank for the information. This help me to take a desition.

Thank you for the video and sharing your experience.

My doctor & I are talking about me getting this pump. I have ALS & clonic spastic seizures, nothing is working. & it’s speeding up my ALS progression.

what is the name of this gadget?

I have to decide if should get surgery for this I suffer with spaticity in my legs please help me decide does give good results

Hi there, Its been a while since you last posted a video. I hope you are doing as well as is possible. What is that device you are using to measure the peak flow values? Could you share the name, and make of the device? And thank you so much for the videos. They are immensely helpful. EDIT: found the link in the description. was it there all along? hmmm. Anyway, thanks so much.

Does that pump Henderson’s ur sex life? I’m not being a perv I’m a stroke survivor?

💙💜

Are you okey to grip

This is true

youre a trooper, honey. keep it up

Current medical student on the topic of cerebral palsy. Amazing and detailed video! Books are very detailed, but a visual guide can help a lot. Thank you!

I’ve had my pump since August 2012, and I’m extremely happy with the results I’ve had with my pump. It has saved my life. I suffered a massive stroke in August 2011 and the spasticity was so bad that I was unable to walk. Since having my first pump I have been able to function and walk a lot better.

I am motor n d patient please help me

Well done thanks for the info I'm in the beginning stages of if will work for me

I have had an intrathecal pump for 13 years for a spinal injury and have permanent nerve damage. I have a 5 level fusion in my lower lumbar with disc removed, ALIF, PLIF. It has been a life changer and helped me with my chronic pain. I am unable to use Baclofen but use Flexeril and robaxine. My pump contains has Fentanyl and Bupivacaine. I get it refilled once a month. I have the bigger pump, 40ml, and it is a 6-hour drive, with breaks, to my doctors one way and I have a driver. Not fun. I have had 2 pump failures that were a nightmare of withdrawals. I fill fortunate to have the pump.

Thanks so much I'm in this situation I've maxed out on everything and I'm bed ridden wheelchair bond at this point I want to suggest this but I'm scared 😢

Tyvm very informative. AweSome work. 🍀🙏🦋

Have you read anything about acetyl L carnitine?

I have CP would this give me 100% improvement? The Doctor is talking about using backliffin and morphine together.

Thanks so much for your video. I will do the baclofen pump trial this Friday. I'm hopeful like you that it will help as I have done all that I can with pills. I had the pump surgery in 2012 but got meningitis before it could be loaded and even used, so after removing I chose not to go through it again. I have spasticity in my upper and lower body, but lower is significantly worse. I thought prior to your video that if I got the pump I would have to go off oral baclofen. Do you find that when you take the oral baclofen along with your pump dose it makes you more tired? Thanks for sharing 👍

Which neurodegenerative di you have ? I have hereditary spastic paraplegia spg4 with Babinski and Hoffman sign. I hope you are feeling better.

If you ever need a boyfriend, just talk to me buttercup. You're a fighter, keep moving forward ;)

Clear and complete presentation. Thank you!

Oh my god thank you so much for the tongue free shoe design tip. I’m kinda irritated I’ve been in the chair (SCI) for quite some time now, well long enough, should have figured the shoe thing out already. 😂

Have you had any problems with your voice yet? People don’t understand me when I talk anymore.

I’m due for pump surgery 12/26 finally. I plan to get out of this wheelchair + walk like you + get new car. Your vids are all great & inspirational. I’ll keep following + may post my own clips. Thank you.

wow that jump you did was crazy cool!

I’ve had a pump for 9 years, I’m actually on my second. My first one lasted a full 7 years. I have 3 meds in mine, baclofen being the main one. Mine gets refilled every 35 days, which sucks! They could make it last longer, but my doc wouldn’t get as much money that way. My meds for my pump cost $1499.00 each 35 days, which sucks!! I wouldn’t trade it for the world though, unless it meant I didn’t need the pump anymore!

You are real brave 💪 women. Only few people are as strong as you

Thank you so much for this video. You are beautiful.. very positive attitude as well. Good luck to you❤

Your positivity and attitude really help, I have pma. so far, my right hand and left leg have been affected, but I am still functioning. Fatigue seems to be my biggest daily battle. good luck

Mam i'm from india (tamilnadu) my father have the same problem MND starting stage so , can u give me a usefull information mam please 🙏

Slight correction. Pump reservoir capacity options are 20mL or 40mL. Love the story

I just got mine installed to treat Spastic Paraplegia a few days ago.

What is your microgram dosing per day.

I think I need this. I have MS and my knee area is very spastic.. currently on oral baclofen and it seems like it’s not working

Love love ❤️ only love take care ...my father going through physiotherapy sessions using fes and stretching exercises, he used cane to walk, balancing weakness..he has mnd..

worst thing you can do to your body! that drug is horrible and dangerous... its all about $$$

Can you show me the exact electro stimulator you bought 44 in Dublin 3 kids diagnosed 2 years ago. Speech gone & mobility weak x