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I'm training in support care. Appreciate this content very much. Thankyou 💪👍

Rest in peace, Lucy ❤❤ I'm sorry I only found out about you after you'd gone. I'd have loved to meet you. ❤❤

You are a very inspiring person

Thank you very much for your video 😊 sending best wishes

God bless!😘😘

Tedros is not a doctor. So, Dr. Tedros naming is a fail. Tedros is continuously struggling with the English language...as the president of WHO.

Please keep these coming. I am so grateful to see an example that this is working. I was devastated when I had to give up a great paying job. This is my best option because I just cannot live off of 800 (disability payments) a month.

You so sweet

Amazing, well done!

which social media platform do you find the most useful to get the word about your blog?

Thanks for sharing Lucy! These are good tips! Peace and blessings.

Absoloutely marvellous and thank you

Superb. So helpful. Thank you both very much.

Dr Tewodros from Ethiopia the beast man

Thank you Lucy. This was a great fear for me concerning my son who has complex health needs. I feel alot better knowing my disabled son will receive care that he requires if needed.

That is great news! Hope you are doing well during this difficult time. Thank you for being such an inspiration :)

Finding it very impressive you're managing to juggle all your usual advocacy and other roles, aswell as under taking new COVID-19 related projects in aid of our community. Sending a virtual hug!

You are such an inspiring lady, Lucy and I wish you a long and happy life doing what you do best which is helping others ❤

I saw your article shared by hospice UK about your difficult situation during the Coronavirus outbreak. So glad I came across you, I think you’re a real inspiration and can’t wait to see more vlogs etc ❤️

Came here from seeing an article on a recent news feed and you are one seriously tough cookie! Keep up the amazing work you do, your beautiful and awesome 😎

There are lots of people who like you have a life limiting disease, but do so with great humbleness. To actually say you’re the 9th most influential person with a disability in the UK is incredibly arrogant. It is really not nice at all, it makes others who are living with very challenging health problems feel small and as though their life is not as precious or important. I believe we are all equal and many contribute as patient advocates, peer supporters, ambassadors etc etc. without the limelight. I am happy for you that you have been awarded a MBE, but it is immodest to elevate oneself above others, “The first test of a truly great man (or woman) is his (her) humility" .

Thanks for sharing Lucy. I found this a very interesting watch and seeing your TPN & stoma supplies certainly brought back some memories for me. I'm looking forward to seeing some day in the videos from you in the future & of course more of Molly. Lots of love x

I appreciate this request would take a lot of time, energy and organising help with the camera to film, however if it is possible, I think many people would be interested to see a day in the life as you go to a speaking event/conference, a day in the life at home, how you manage staff rotas etc, continuing healthcare for newbies, a video montage of all things molly can do, weekend vlog with you getting ready and taking molly for a walk in your favourite park, hickman line care tips and how tpn is set up. All of which I'm secretly hoping you already planned to do as I'm so intrigued and love to gain a better understanding of others conditions

You seem to be a delightful young lady. I am sure you are most deserving of this honor. The world needs more fanstastic people like yourself. Congratulations and best wishes from this Grandma in the USA.

Really clear, concise and heartfelt video! Loved it ❤️

Thanks so much for the info! Of course congratulations as well.

It been a straight day because one minute my mentor believe me next minute he don't really had enough of that again Lucy.

You really are incredible Lucy x

Great video Lucy, you're very wise. I really struggle with pacing as my energy levels vary so much from day to day so I never know what my limits are. Please try to take your own tips on board & be kind to yourself x

YASSSS! I'm LOVING your UA-cam Lucy. Amazing on point content that the disabled community needed! xx

Thanks for sharing Lucy. That pink dress is really pretty, I hope you find it comfortable. And the zebra dress is very you. I also have a lot of difficulty with buying clothes but for different reasons x

Great video Lucy 🥰 you have come on so much in all the years I have known you. You are my inspiration....but I have to hold my hand up and say yes I do push myself to do too much and then crash energy wise...I getting better at doing ‘something’ everyday but definitely room for huge improvements in that field. Also I too have Set myself way too high goals and extremely high standards that even I cannot live up to 🙈 the walks with Skylah are helping, as is the batec and smartdrive....but I do need work out how leave myself enough energy to make in the evenings too especially if I am going to exceed this years fundraising totals via crafting!!! Plus I need pass Skylahs final too...so 2 big goals to achieve with useless time management skills, so thanks for sharing the video I will try take on board your 12 tips......oh and 1 last thing big huggles and remember your 12 tips when you look into the mirror they apply to her too 😘 love ya lots D xxx

I’ve got a chronic illness too (cystic fibrosis) and it’s nice to see a CI warrior on UA-cam sharing your story. I hope your well?’’

Thanks for the value here. I think I tend to go all in way too much in then burn out which has a residual effect on the next few days. You're inspiring, thank you :D

Loving that you're bringing your work to UA-cam! Brilliant, fantastic talk and couldn't agree more with everything said.

I'm in stitches watching this, the bright side of reality is the humour! Great video Lucy :-)

Thanks for your refreshing honest Kate and Lucy. This is a great conversation to be able to have.. a real blessing.

It's so important to make these decisions whilst you are capable of doing so. Thank you for making these videos Lucy. You are looking fabulous right now! 😊 long may it continue 👍🏻

I agree congratulations

how wonderful. Well done and many congratulations.

That was amazing Lucy. Well done. Xxxx

really awesome job Lucy! 😊