![psoriasisIFPA](/img/default-banner.jpg)
- 86
- 58 322
psoriasisIFPA
Sweden
Приєднався 13 жов 2011
Puerto Rico Success Story - A Decade of Action Since the WHA Resolution on Psoriasis
The 2014 WHA resolution on psoriasis marked a significant milestone for the psoriatic disease community. Using the psoriasis resolution at the national level, the Puerto Rican Association for Helping Psoriasis Patients (APAPP) and its founders Leticia N. López and Ricardo Colón, advocated to the government to achieve law 97 on November 1, 2022. This law establishes October 29th as National Psoriasis Awareness Day, aiming to raise awareness and educate the public about psoriatic disease.🌟
Join us as we celebrate the 10th anniversary of the WHA Resolution on Psoriasis and share inspiring success stories of national action on psoriasis. Click the link to read the full story - ifpa-pso.com/resources-tools/10th-anniversary
#WHOPsoriasisResolution
#10YearsOfAction
Join us as we celebrate the 10th anniversary of the WHA Resolution on Psoriasis and share inspiring success stories of national action on psoriasis. Click the link to read the full story - ifpa-pso.com/resources-tools/10th-anniversary
#WHOPsoriasisResolution
#10YearsOfAction
Переглядів: 46
Відео
Philippines Success Story - A Decade of Action Since the WHA Resolution on Psoriasis
Переглядів 2 тис.14 днів тому
The 2014 WHA resolution on psoriasis marked a milestone for the psoriatic disease community, with the Philippines playing a crucial role in the global advocacy! Psoriasis Philippines (PsorPhil), led by founder Josef de Guzman, tirelessly advocates for those with psoriasis, breaking the cycle of isolation and stigma, and ensuring access to care. Their efforts have made significant strides both n...
Sweden Success Story - A Decade of Action Since the World Health Assembly Resolution on Psoriasis
Переглядів 2221 день тому
The Swedish Psoriasis Association has been a strong advocate for better psoriasis care, working closely with IFPA for many years. Following the adoption of a crucial psoriasis resolution, Sweden's government tasked the National Board of Health and Welfare to develop national guidelines to ensure those in greatest need receive priority care. Let's continue to support effective healthcare initiat...
Panama Success Story - A Decade of Action Since the World Health Assembly Resolution on Psoriasis
Переглядів 6728 днів тому
Panama played a crucial role in putting psoriasis on the global agenda! Thanks to the efforts of the Panama Psoriasis Foundation, the patient organization in Panama and member of IFPA, and its founder Mónica Chapman, Law 322 was passed, recognizing psoriasis as a national health priority and ensuring better care and research. 🌟 Join us as we celebrate the 10th anniversary of this milestone and ...
A Decade of Action Since the World Health Assembly Resolution on Psoriasis - Success Stories
Переглядів 696Місяць тому
Before 2014, psoriasis was largely ignored by policy-makers. The WHO website did not have any information about it. IFPA set out to change that by pushing for a resolution on psoriasis. In May 2014, the 67th World Health Assembly adopted Resolution WHA 67.9, the only international resolution focused on psoriasis. It recognizes psoriasis as a noncommunicable disease with significant impact and t...
Access For All: World Psoriasis Day 2023
Переглядів 1348 місяців тому
Everyone living with psoriatic disease deserves access to timely, quality health care. Join us on October 29th to fight for progress. Visit psoriasisday.org to learn more.
Chiara's Story: A right to health
Переглядів 5278 місяців тому
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow Chiara on her journey from Indonesia to Estonia, navigating health care in four different countries. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
Reena's Story: A right to health
Переглядів 2238 місяців тому
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow Reena as she advocates for herself and others around the globe living with psoriatic disease. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
A Right to Health
Переглядів 448 місяців тому
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow three people in different parts of the world as they live with psoriatic disease and fight for progress. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
Pierre's Story: A right to health
Переглядів 658 місяців тому
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow Pierre as he navigates psoriatic disease in Rwanda, works to fight for progress. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
Psoriatic Disease Reflections: A right to health
Переглядів 1,2 тис.9 місяців тому
Watch the trailer: ua-cam.com/video/GNsuGKsnAIk/v-deo.html Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow three people in different parts of the world as they live with psoriatic disease and fight for progress. Share your story with us - ifpa-pso.com/stories...
Jarar Ali explains plauque psoriasis
Переглядів 3810 місяців тому
Jarar Ali explains plauque psoriasis
Good Care for Psoriatic Arthritis
Переглядів 2310 місяців тому
Funding Disclosure: UCB Pharma has provided financial support through an unrestricted grant for the delivery of the First phase of the Psoriatic Arthritis Awareness project, also known as the "Good Care for the Psoriatic Arthritis" Project. UCB Pharma had no influence or input over the content, including the selection of project members and the development of all associated assets, such as vide...
Trailer: Psoriatic Disease Reflections
Переглядів 28411 місяців тому
Everyone living with psoriatic disease has a right to health. Film coming October 1st, 2023. Sign up to attend the live premiere! ua-cam.com/video/3AXashCALmM/v-deo.html
Christina lives with psoriatic arthritis
Переглядів 908Рік тому
Psoriatic disease ambassador describes her experience with psoriatic arthritis. To learn more, visit ifpa-pso.com
Good Care for Psoriatic Arthritis: Karina
Переглядів 94Рік тому
Good Care for Psoriatic Arthritis: Karina
Welcome to IFPA Conference, the 7th World Psoriasis & Psoriatic Arthritis Conference
Переглядів 244Рік тому
Welcome to IFPA Conference, the 7th World Psoriasis & Psoriatic Arthritis Conference
UPLIFT Innovation Challenge 2022 Compilation Video
Переглядів 76Рік тому
UPLIFT Innovation Challenge 2022 Compilation Video
Living with Psoriasis: A Conversation with a Patient and Patient Advocate
Переглядів 122Рік тому
Living with Psoriasis: A Conversation with a Patient and Patient Advocate
"I just wish people would stop the stigma and make our lives easier"
Переглядів 4812 роки тому
"I just wish people would stop the stigma and make our lives easier"
Chiara shares her story with Erythrodermic Psoriasis
Переглядів 23 тис.2 роки тому
Chiara shares her story with Erythrodermic Psoriasis
South African Webinar: Dr. Docrat, Specialist Dermatologist
Переглядів 972 роки тому
South African Webinar: Dr. Docrat, Specialist Dermatologist
South Africa Presentation: Daniel den Hollander, Clinical Psychologist
Переглядів 1412 роки тому
South Africa Presentation: Daniel den Hollander, Clinical Psychologist
🎉Mabuhay Psoriasis Philippines
Patuloy tayong makikipaglaban hanggat lahat ng Pilipinong may sakit na psoriasis ay magkakaroon ng libreng gamutan
Let’s go, Psoriasis Philippines! 🇵🇭🇵🇭🇵🇭
Diet of veg and meat cures mine
Same condition I m suffering 😢
Agreed! We need the help of our government to support People with Psoriasis.
Chiara. You dear soul. Did this happen after taking a monoclonal antibody drug (BIOLOGIC)?? Can anyone who has had a biologic (MAB) drug and had a full body skin reaction PLEASE PLEASE comment. We now know this is caused by a major drug disaster. Once you have to quit these new drugs, this whole body cycle of exactly what you have Chiara. My brother Tony got this years ago from taking, then stopping Stelara. Once you have to stop the drugs is when it happens. He's dying from it and I am desperate for answers. Erythrodermic Syndrome is what they are calling it at the University of Washington. For years they thought it was Steven Johnsons, Then Erythrodermic Psoriasis. Now they added the Syndrome. Chiara, What do you think?. ANY info would be so appreciated.
😢😢😢😢
What is Psoriasis never ever heard of it before
❣️ "promo sm"
I was analysing your UA-cam channel. You make nice videos on your channel, I really enjoyed it. I noticed one thing: according to your channel, your channel videos are not viewed and subscribed. You Need to optimise your channel and do video SEO to reach your target audience. Otherwise, if you upload videos to your channel throughout the year, none of your videos will get viral views. If your channel is optimised and if the videos are SEO then your channel will rank very fast and your channel will grow. And monetization of your channel will be on.
Hi, Hope you are doing fantastic. I am not sure this is relatable to you. I have reviewed your channel “psoriasisIFPAYour video content is amazing and I enjoyed it very much. Look, you have uploaded 81 videos and achieved 360 subscribers and your videos are not viewed and subscribed that much. The numbers should be more than they are now. You need to optimize your channel and do video SEO to reach your target viewers. Otherwise, if you upload videos to your channel throughout the year, none of your videos will get viral views. So you need to optimize your UA-cam channels & do video SEO organically then your channel will rank & grow very fast and monetization of your channel will be on if you wish. For more details, I can arrange a Zoom meeting at your convenience. Are you interested in improving those issues?
Thank God my husband psoriasis infection was permanently eradicated with the use of herbal medicine by dr OARE on UA-cam channel
I am psoryisis patient from India can you help
Drink ionized alkaline water. It is a big help.
There are many videos in youtube for natural cure for psoriasis..... according to these videos it's all about healthy life style , good gut health etc etc...and you are cured of any type of skin disease.. just check
There's hope, we shall defeat it one day
Excellent! Good job! It covers all the issues that we have during our journey suffering from psoriasis. Thanks for your commitment with Us!
Excelente 🎉
I am psoryisis patient plz help 😭
Currently going through this and I cried at the words at the end. Thank you x
I’m also going through this. What has your Dermatologist said and are you getting any medication for this?
Also I’m trying the dry method of having no moisturiser. This so far has helped with itching a lot but I still have a burning feeling on and off through the day.
So what has been y'all's results?..i have been battling this for the last 8 months.. wouldn't wish this on my worst enemy
Hi! Badly want to know what product can be use to treat this kind of skin condition Po 🥺
Currently on my 3rd week of carnivore diet and my psoriasis on 13 years is dramatically better already.
You're eating meat only? what are you drinking?
@@heirofthenazareen3812They’re drinking meat too duh
@@megiohgaming Nonsense. Duh
I can honestly say it was the worst 4 weeks of my life having that,was close to death with it,no skin anywhere, any movement hurt so much, I feel for anybody who has or had this horrible experience
What treatement donyou receve ?
@GuillaumeLifeDrums I got put on humera injections, and it worked within 2 weeks,after 2 weeks I was 100% clear of psoriasis
Wow good for you, i am currently on ciclosporine 150 g a day, i got a erythrodermic psoriasis 98% of my body is under attack, even my legs hurts so bad, worst days of my life, it's a pure nightmare . I'm on first week treament so have to wait couple of week again... Tank you for your fast response.
@GuillaumeLifeDrums I feel ur pain really do,it's unbearable, every movement hurts etc,wishing u a safe recovery 🙏, keep me posted on ur progress pls
@@ticktock362 sure i will do, thanks for your support.
baking soda/fasting/just vegetable diet
Anybody tried fasting?
I'm starting at the moment, 18 hours dirty fast, meaning I take cream in my early morning coffee. I think its helping. I've also started expermenting by spraying Clorine Dioxide on one leg and arm to see if it works.
@@africo9104 wet wraps 2 times a day with creams prescribed by doc. No flakes or inflammation. Results in under a week. Hope this helps and you get better.
Maam, how did you maintain your skin now? Its so Amazing that it doesn't show that you have psor before.
so how did you manage to control?
I feel for all you experience. I have had it for 43 years. The pain is something else. I relate to each of your words. Take care Angel, I came to accept it & just be Happy everyday. If they looked at my marks I would give them a very happy smile & carry on with my day GOD Bless
Tq share
I was suffering from that very same kind of soritice sickness and everything that you are saying is what I have feeling. I have it for 20 years but now it is better still have it on my feet in couple spot
:(
:(
Keep on fighting 💪💪
How you guys controlled it?
Keep doing amazing things! 🧡💜
Pustular psoriasis sa kin
My baby was diagnos of Pustular psoriasis
Thank you for all of the important work you do at IFPA and for allowing me to share my experiences with you.
Your not the one.. Im one of you #skinmate #worldpsoriasisday
Happy #Worldpsoriasisday #skinmate
We had some great conversations and helped raise awareness of the patient perspective on living with psoriatic disease! 💜🧡