psoriasisIFPA
psoriasisIFPA
  • 86
  • 58 322
Puerto Rico Success Story - A Decade of Action Since the WHA Resolution on Psoriasis
The 2014 WHA resolution on psoriasis marked a significant milestone for the psoriatic disease community. Using the psoriasis resolution at the national level, the Puerto Rican Association for Helping Psoriasis Patients (APAPP) and its founders Leticia N. López and Ricardo Colón, advocated to the government to achieve law 97 on November 1, 2022. This law establishes October 29th as National Psoriasis Awareness Day, aiming to raise awareness and educate the public about psoriatic disease.🌟
Join us as we celebrate the 10th anniversary of the WHA Resolution on Psoriasis and share inspiring success stories of national action on psoriasis. Click the link to read the full story - ifpa-pso.com/resources-tools/10th-anniversary
#WHOPsoriasisResolution
#10YearsOfAction
Переглядів: 46

Відео

Philippines Success Story - A Decade of Action Since the WHA Resolution on Psoriasis
Переглядів 2 тис.14 днів тому
The 2014 WHA resolution on psoriasis marked a milestone for the psoriatic disease community, with the Philippines playing a crucial role in the global advocacy! Psoriasis Philippines (PsorPhil), led by founder Josef de Guzman, tirelessly advocates for those with psoriasis, breaking the cycle of isolation and stigma, and ensuring access to care. Their efforts have made significant strides both n...
Sweden Success Story - A Decade of Action Since the World Health Assembly Resolution on Psoriasis
Переглядів 2221 день тому
The Swedish Psoriasis Association has been a strong advocate for better psoriasis care, working closely with IFPA for many years. Following the adoption of a crucial psoriasis resolution, Sweden's government tasked the National Board of Health and Welfare to develop national guidelines to ensure those in greatest need receive priority care. Let's continue to support effective healthcare initiat...
Panama Success Story - A Decade of Action Since the World Health Assembly Resolution on Psoriasis
Переглядів 6728 днів тому
Panama played a crucial role in putting psoriasis on the global agenda! Thanks to the efforts of the Panama Psoriasis Foundation, the patient organization in Panama and member of IFPA, and its founder Mónica Chapman, Law 322 was passed, recognizing psoriasis as a national health priority and ensuring better care and research. 🌟 Join us as we celebrate the 10th anniversary of this milestone and ...
A Decade of Action Since the World Health Assembly Resolution on Psoriasis - Success Stories
Переглядів 696Місяць тому
Before 2014, psoriasis was largely ignored by policy-makers. The WHO website did not have any information about it. IFPA set out to change that by pushing for a resolution on psoriasis. In May 2014, the 67th World Health Assembly adopted Resolution WHA 67.9, the only international resolution focused on psoriasis. It recognizes psoriasis as a noncommunicable disease with significant impact and t...
Access For All: World Psoriasis Day 2023
Переглядів 1348 місяців тому
Everyone living with psoriatic disease deserves access to timely, quality health care. Join us on October 29th to fight for progress. Visit psoriasisday.org to learn more.
Chiara's Story: A right to health
Переглядів 5278 місяців тому
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow Chiara on her journey from Indonesia to Estonia, navigating health care in four different countries. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
Reena's Story: A right to health
Переглядів 2238 місяців тому
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow Reena as she advocates for herself and others around the globe living with psoriatic disease. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
A Right to Health
Переглядів 448 місяців тому
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow three people in different parts of the world as they live with psoriatic disease and fight for progress. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
Pierre's Story: A right to health
Переглядів 658 місяців тому
Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow Pierre as he navigates psoriatic disease in Rwanda, works to fight for progress. Share your story with us - ifpa-pso.com/stories Join us in spreading awareness and making a positive change!
Psoriatic Disease Reflections: A right to health
Переглядів 1,2 тис.9 місяців тому
Watch the trailer: ua-cam.com/video/GNsuGKsnAIk/v-deo.html Everyone living with psoriatic disease has a right to access affordable, quality healthcare. Yet throughout the world, there are major differences in the knowledge and treatment. Follow three people in different parts of the world as they live with psoriatic disease and fight for progress. Share your story with us - ifpa-pso.com/stories...
Jarar Ali explains plauque psoriasis
Переглядів 3810 місяців тому
Jarar Ali explains plauque psoriasis
Good Care for Psoriatic Arthritis
Переглядів 2310 місяців тому
Funding Disclosure: UCB Pharma has provided financial support through an unrestricted grant for the delivery of the First phase of the Psoriatic Arthritis Awareness project, also known as the "Good Care for the Psoriatic Arthritis" Project. UCB Pharma had no influence or input over the content, including the selection of project members and the development of all associated assets, such as vide...
Trailer: Psoriatic Disease Reflections
Переглядів 28411 місяців тому
Everyone living with psoriatic disease has a right to health. Film coming October 1st, 2023. Sign up to attend the live premiere! ua-cam.com/video/3AXashCALmM/v-deo.html
Christina lives with psoriatic arthritis
Переглядів 908Рік тому
Psoriatic disease ambassador describes her experience with psoriatic arthritis. To learn more, visit ifpa-pso.com
Good Care for Psoriatic Arthritis: Karina
Переглядів 94Рік тому
Good Care for Psoriatic Arthritis: Karina
Welcome to IFPA Conference, the 7th World Psoriasis & Psoriatic Arthritis Conference
Переглядів 244Рік тому
Welcome to IFPA Conference, the 7th World Psoriasis & Psoriatic Arthritis Conference
UPLIFT Innovation Challenge 2022
Переглядів 56Рік тому
UPLIFT Innovation Challenge 2022
UPLIFT Innovation Challenge 2022 Compilation Video
Переглядів 76Рік тому
UPLIFT Innovation Challenge 2022 Compilation Video
IFPA Forum 2022
Переглядів 110Рік тому
IFPA Forum 2022
IFPA Island: World Psoriasis Day 2022
Переглядів 53Рік тому
IFPA Island: World Psoriasis Day 2022
UnloadPSO : World Psoriasis Day 2022
Переглядів 252Рік тому
UnloadPSO : World Psoriasis Day 2022
Hands to Carry by Siphokazi Jonas
Переглядів 187Рік тому
Hands to Carry by Siphokazi Jonas
IFPA Island at EADV 2022
Переглядів 29Рік тому
IFPA Island at EADV 2022
IFPA Conference 2024 Trailer
Переглядів 458Рік тому
IFPA Conference 2024 Trailer
Living with Psoriasis: A Conversation with a Patient and Patient Advocate
Переглядів 122Рік тому
Living with Psoriasis: A Conversation with a Patient and Patient Advocate
"I just wish people would stop the stigma and make our lives easier"
Переглядів 4812 роки тому
"I just wish people would stop the stigma and make our lives easier"
Chiara shares her story with Erythrodermic Psoriasis
Переглядів 23 тис.2 роки тому
Chiara shares her story with Erythrodermic Psoriasis
South African Webinar: Dr. Docrat, Specialist Dermatologist
Переглядів 972 роки тому
South African Webinar: Dr. Docrat, Specialist Dermatologist
South Africa Presentation: Daniel den Hollander, Clinical Psychologist
Переглядів 1412 роки тому
South Africa Presentation: Daniel den Hollander, Clinical Psychologist

КОМЕНТАРІ

  • @marvinrenon5064
    @marvinrenon5064 15 днів тому

    🎉Mabuhay Psoriasis Philippines

  • @pongtsong
    @pongtsong 15 днів тому

    Patuloy tayong makikipaglaban hanggat lahat ng Pilipinong may sakit na psoriasis ay magkakaroon ng libreng gamutan

  • @lolliguab
    @lolliguab 15 днів тому

    Let’s go, Psoriasis Philippines! 🇵🇭🇵🇭🇵🇭

  • @killianokeeffe7113
    @killianokeeffe7113 Місяць тому

    Diet of veg and meat cures mine

  • @Snehawagh-br2us
    @Snehawagh-br2us Місяць тому

    Same condition I m suffering 😢

  • @Xeyuns
    @Xeyuns Місяць тому

    Agreed! We need the help of our government to support People with Psoriasis.

  • @flagship1701e
    @flagship1701e 3 місяці тому

    Chiara. You dear soul. Did this happen after taking a monoclonal antibody drug (BIOLOGIC)?? Can anyone who has had a biologic (MAB) drug and had a full body skin reaction PLEASE PLEASE comment. We now know this is caused by a major drug disaster. Once you have to quit these new drugs, this whole body cycle of exactly what you have Chiara. My brother Tony got this years ago from taking, then stopping Stelara. Once you have to stop the drugs is when it happens. He's dying from it and I am desperate for answers. Erythrodermic Syndrome is what they are calling it at the University of Washington. For years they thought it was Steven Johnsons, Then Erythrodermic Psoriasis. Now they added the Syndrome. Chiara, What do you think?. ANY info would be so appreciated.

  • @suevan8110
    @suevan8110 5 місяців тому

    😢😢😢😢

  • @AndreaRossini-le5mx
    @AndreaRossini-le5mx 6 місяців тому

    What is Psoriasis never ever heard of it before

  • @johnwalsh5483
    @johnwalsh5483 7 місяців тому

    ❣️ "promo sm"

  • @lamiaislam208
    @lamiaislam208 7 місяців тому

    I was analysing your UA-cam channel. You make nice videos on your channel, I really enjoyed it. I noticed one thing: according to your channel, your channel videos are not viewed and subscribed. You Need to optimise your channel and do video SEO to reach your target audience. Otherwise, if you upload videos to your channel throughout the year, none of your videos will get viral views. If your channel is optimised and if the videos are SEO then your channel will rank very fast and your channel will grow. And monetization of your channel will be on.

  • @youtubevideoseoandpromotion
    @youtubevideoseoandpromotion 7 місяців тому

    Hi, Hope you are doing fantastic. I am not sure this is relatable to you. I have reviewed your channel “psoriasisIFPAYour video content is amazing and I enjoyed it very much. Look, you have uploaded 81 videos and achieved 360 subscribers and your videos are not viewed and subscribed that much. The numbers should be more than they are now. You need to optimize your channel and do video SEO to reach your target viewers. Otherwise, if you upload videos to your channel throughout the year, none of your videos will get viral views. So you need to optimize your UA-cam channels & do video SEO organically then your channel will rank & grow very fast and monetization of your channel will be on if you wish. For more details, I can arrange a Zoom meeting at your convenience. Are you interested in improving those issues?

  • @thelmacandid8530
    @thelmacandid8530 8 місяців тому

    Thank God my husband psoriasis infection was permanently eradicated with the use of herbal medicine by dr OARE on UA-cam channel

  • @saurabhpahad7695
    @saurabhpahad7695 9 місяців тому

    I am psoryisis patient from India can you help

    • @zenp2154
      @zenp2154 4 місяці тому

      Drink ionized alkaline water. It is a big help.

    • @raji5313
      @raji5313 2 місяці тому

      There are many videos in youtube for natural cure for psoriasis..... according to these videos it's all about healthy life style , good gut health etc etc...and you are cured of any type of skin disease.. just check

  • @paulkhainza9423
    @paulkhainza9423 9 місяців тому

    There's hope, we shall defeat it one day

  • @bettdenisse5799
    @bettdenisse5799 9 місяців тому

    Excellent! Good job! It covers all the issues that we have during our journey suffering from psoriasis. Thanks for your commitment with Us!

  • @sandraayala6636
    @sandraayala6636 9 місяців тому

    Excelente 🎉

  • @saurabhpahad7695
    @saurabhpahad7695 9 місяців тому

    I am psoryisis patient plz help 😭

  • @mrsh3910
    @mrsh3910 10 місяців тому

    Currently going through this and I cried at the words at the end. Thank you x

    • @chrisbrowning550
      @chrisbrowning550 10 місяців тому

      I’m also going through this. What has your Dermatologist said and are you getting any medication for this?

    • @chrisbrowning550
      @chrisbrowning550 10 місяців тому

      Also I’m trying the dry method of having no moisturiser. This so far has helped with itching a lot but I still have a burning feeling on and off through the day.

    • @JamesLerem
      @JamesLerem 5 місяців тому

      So what has been y'all's results?..i have been battling this for the last 8 months.. wouldn't wish this on my worst enemy

  • @nicoledennisenepomuceno8062
    @nicoledennisenepomuceno8062 11 місяців тому

    Hi! Badly want to know what product can be use to treat this kind of skin condition Po 🥺

  • @whitenoisemonk
    @whitenoisemonk Рік тому

    Currently on my 3rd week of carnivore diet and my psoriasis on 13 years is dramatically better already.

  • @ticktock362
    @ticktock362 Рік тому

    I can honestly say it was the worst 4 weeks of my life having that,was close to death with it,no skin anywhere, any movement hurt so much, I feel for anybody who has or had this horrible experience

    • @GuillaumeLifeDrums
      @GuillaumeLifeDrums 18 днів тому

      What treatement donyou receve ?

    • @ticktock362
      @ticktock362 17 днів тому

      @GuillaumeLifeDrums I got put on humera injections, and it worked within 2 weeks,after 2 weeks I was 100% clear of psoriasis

    • @GuillaumeLifeDrums
      @GuillaumeLifeDrums 17 днів тому

      Wow good for you, i am currently on ciclosporine 150 g a day, i got a erythrodermic psoriasis 98% of my body is under attack, even my legs hurts so bad, worst days of my life, it's a pure nightmare . I'm on first week treament so have to wait couple of week again... Tank you for your fast response.

    • @ticktock362
      @ticktock362 17 днів тому

      @GuillaumeLifeDrums I feel ur pain really do,it's unbearable, every movement hurts etc,wishing u a safe recovery 🙏, keep me posted on ur progress pls

    • @GuillaumeLifeDrums
      @GuillaumeLifeDrums 17 днів тому

      @@ticktock362 sure i will do, thanks for your support.

  • @damon123jones
    @damon123jones Рік тому

    baking soda/fasting/just vegetable diet

  • @TheKb117
    @TheKb117 Рік тому

    Anybody tried fasting?

    • @africo9104
      @africo9104 Рік тому

      I'm starting at the moment, 18 hours dirty fast, meaning I take cream in my early morning coffee. I think its helping. I've also started expermenting by spraying Clorine Dioxide on one leg and arm to see if it works.

    • @ave3.727
      @ave3.727 10 місяців тому

      @@africo9104 wet wraps 2 times a day with creams prescribed by doc. No flakes or inflammation. Results in under a week. Hope this helps and you get better.

  • @teamguiquinglifestylechann9082

    Maam, how did you maintain your skin now? Its so Amazing that it doesn't show that you have psor before.

  • @vannyluntian5388
    @vannyluntian5388 Рік тому

    so how did you manage to control?

  • @lydianilson3230
    @lydianilson3230 Рік тому

    I feel for all you experience. I have had it for 43 years. The pain is something else. I relate to each of your words. Take care Angel, I came to accept it & just be Happy everyday. If they looked at my marks I would give them a very happy smile & carry on with my day GOD Bless

  • @askhadijah
    @askhadijah Рік тому

    Tq share

  • @savitrilootawan8287
    @savitrilootawan8287 Рік тому

    I was suffering from that very same kind of soritice sickness and everything that you are saying is what I have feeling. I have it for 20 years but now it is better still have it on my feet in couple spot

  • @julzpogi17
    @julzpogi17 Рік тому

    :(

  • @julzpogi17
    @julzpogi17 Рік тому

    :(

  • @julzpogi17
    @julzpogi17 Рік тому

    Keep on fighting 💪💪

  • @dineshmanick
    @dineshmanick Рік тому

    How you guys controlled it?

  • @JoelvsArthritis
    @JoelvsArthritis Рік тому

    Keep doing amazing things! 🧡💜

  • @rosemariegallego3342
    @rosemariegallego3342 Рік тому

    Pustular psoriasis sa kin

  • @kimberlyjanemontevirgen
    @kimberlyjanemontevirgen Рік тому

    My baby was diagnos of Pustular psoriasis

  • @JoelvsArthritis
    @JoelvsArthritis Рік тому

    Thank you for all of the important work you do at IFPA and for allowing me to share my experiences with you.

  • @ma.kristyjaneamar8348
    @ma.kristyjaneamar8348 Рік тому

    Your not the one.. Im one of you #skinmate #worldpsoriasisday

  • @ma.kristyjaneamar8348
    @ma.kristyjaneamar8348 Рік тому

    Happy #Worldpsoriasisday #skinmate

  • @JoelvsArthritis
    @JoelvsArthritis Рік тому

    We had some great conversations and helped raise awareness of the patient perspective on living with psoriatic disease! 💜🧡